Title: Younger Care Givers of Stroke Survivors Experience Personal Growth through Caregiving Background: Stroke is the leading cause of disability in the US. One in four patients with stroke is disabled. Providing care to these survivors long term is very burdensome to the family. Wellbeing and respite of care givers (CG) has not been studied well in the past. In this study, we focused on quality of life (QOL) of the young care giver (YCG) of stroke survivors. The Retreat and Refresh Stroke Camp (RRSC), initiated in 2004, offers respite, opportunities to develop new relationships, networking, sharing and education/access to resources. Methods: QOL of CG attending the Retreat and Refresh Stroke Camp (RRSC) in 2016 -2017 was assessed using the Adult Carer Quality of Life Questionnaire (ACQOLQ). YCG were defined as 65 years and younger. The ACQOLQ addresses 8 subcategories of QOL. High (11+) subcategory score indicates high QOL in that category, a score (0-5) indicates low QOL and potential difficulties. Emails were sent to all CG with a link to ACQOLQ in Survey Monkey. Results were analyzed using descriptive statistics and unpaired t-test. Results: Seventy four CG responded to the survey. Sixty one percent are YCG (mean 61.2 years), 86.49% female. Approximately 40% YCG provided care >70 hours/week. Mean duration of caring 6.36 years. Mean ACQOLQ score 69.23, indicating mid-range QOL. Seven had a high QOL, 4 had low QOL. Of the eight subcategories, support for caring averaged 7.17; caring choice, 7.43; caring stress, 8.52; money matters, 7.96; personal growth, 8.46; sense of value, 9.61; ability to care, 10.41; and care satisfaction, 9.66. Unpaired t-test, showed higher QOL in personal growth (P<0.05) and more financial concerns (P<0.05) for these YCG. Conclusions: The ACQOLQ provides a benchmark for QOL assessment for the RRSC CG. RRSC may have played a role in improving the self-worth, confidence, feelings of appreciation of CG. RRSC must reach out to populations of higher stroke incidence and families of stroke survivors. Camp Directors will use this information to develop strategies to improve CG freedom, money management, and general support.
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