Average Quality Of Life Score Research Articles

Quality of Life and Its Association With HIV-Related Stigma Among People Living With HIV in Kerman, Iran: A Cross-Sectional Study.

This study aimed to evaluate the quality of life (QoL) and its association with HIV-related stigma among people living with HIV (PLHIV) in Kerman province, southeast Iran. A convenience sample of 104 PLHIV was recruited. Data on QoL were collected using the HIV/AIDS-Targeted QoL instrument. Internal and external stigma were measured using an instrument developed by UNAIDS. The average QoL score was 52.5 ( SD =13.9). In multivariable model, PLHIV who experienced higher external stigma score (B = -1.9; 95% confidence interval [CI]: -2.6 to -1.1) and higher internal stigma score (B = -1.1; 95% CI: -1.5 to -0.6) had lower level of QoL. The low level of QoL among PLHIV in Iran indicates the need for initiatives to increase QoL among this population. Our data suggest that QoL in PLHIV could be improved by interventions aimed at reducing stigma in both community and health care settings.

Reallocating Time Between Sleep, Sedentary Time, And Physical Activity On Quality Of Life In Cancer Survivors

PURPOSE: Increasing time in moderate-vigorous physical activity (MVPA) and reducing time in sedentary behaviors (SB) can improve quality of life (QOL) in cancer survivors (CS). However, these behaviors only account for a small portion of the day, neglecting other important health behaviors like sleep and light PA. When examining the effects of these behaviors on QOL, it is important to account for their interdependent nature within the confines of the 24-hour day (i.e., you must decrease time in one activity to increase time in another). This study examined the effect of reallocating time between sleep, SB, light PA and MVPA on QOL in a mixed sample of CS. METHODS: A cross-sectional evaluation of adult CS within five-years of completing active cancer treatment(s). Participants concurrently wore the activPAL™ accelerometer to measure SB, light PA and MVPA, and the Actiwatch-2 to measure sleep duration for 7-days, 24-hours per day. QOL was measured using the Functional Assessment of Cancer Therapy-General (FACT-G). FACT-G scores range from 0-108, a difference of 4 points is considered clinically meaningful, and higher scores indicate better QOL. Isotemporal substitution methods in linear regression models were used to examine the effect of 30-minute time reallocations on total QOL. RESULTS: Participants (N=73) were M=53±13 years old, mostly female (75.7%), and diagnosed with colorectal (33.8%) breast (29.7%), leukemia/lymphoma (9.5%), or other (27.0%) cancer. Average QOL score was 87.0±15.3 (range = 41-107). No time reallocations were statistically significant, however, clinically meaningful associations (i.e., lower QOL) were observed for reallocating 30 minutes from MVPA to sleep (-4.42), SB (-4.32), or light PA (-5.06). CONCLUSION: Findings suggest that moving time away from MVPA may negatively impact QOL but did not reach statistical significance. These findings are congruent with previous literature which has established the important role of MVPA for QOL in CS. Future studies should evaluate reallocating time among a sample of survivors presenting with poor versus good QOL to guide intervention development.

Evaluating the effect of nurses' supportive and educational care on GATA2 gene expression and quality of life in patients with endometriosis

Endometriosis is one of the women's aggressive but benign diseases, formed by the presence of endometrial glands and stroma outside the uterine cavity. Various genes, including the GATA2 gene, are involved in the pathogenesis of endometriosis. Since this disease affects patients' quality of life, this study was conducted to investigate the effect of nurses' supportive and educational care on the quality of life of endometriosis patients and its role in GATA2 gene expression. For this purpose, 45 patients with endometriosis participated in this research, a semi-experimental before-and-after study. The instrument used was demographic information and quality of life questionnaires affiliated with Beckman Institute, which were completed in two stages before and after implementing patient training and support sessions. The real-time PCR technique was also used to evaluate the expression level of the GATA2 gene after obtaining endometrial tissue from patients before and after the intervention. Finally, the received information was analyzed using SPSS software and statistical tests. Based on the obtained results, the average quality of life score before the intervention was 51.73±13.91, and after the intervention was 60.46±13.80 (P<0.001). Also, in all four dimensions of quality of life, patients' average scores increased after the intervention compared to before the intervention. Still, this difference was significant only in the two dimensions of physical and mental health (P<0.001). GATA2 gene expression before intervention was 0.35 ± 0.13 among endometriosis patients. After the intervention, its amount reached about three times, i.e., 0.96 ± 0.32, which showed a significant difference between the two groups at the 5% probability level. In general, the results of this research confirmed the positive effect of educational and support programs in improving the quality of life of breast cancer patients. Therefore, it is suggested to design and implement such programs in a broader manner and based on patients' educational and support needs.

Characteristics and Outcomes of Heart Failure Patients from a Middle-Income Country: The RECOLFACA Registry

Background:There is a lack of epidemiological data around heart failure (HF) in Latin America; the potential impact description of this disease in middle-income countries is relevant.Objective:This study aimed to describe the characteristics and healthcare resource utilization patterns of HF patients at baseline and six-month follow-up.Methods:This retrospective observational study used data from the RECOLFACA (Registro Colombiano de Falla Cardíaca) registry, which includes data obtained from the examination of clinical records from 2,528 patients in 60 Colombian healthcare institutions. Baseline and six-month follow-up data were evaluated from patients with previous hospital admissions due to HF during the 12 months prior to enrollment.Results:This study analyzed 2,045 patients (42.8% female) with a mean age of 67.71 ± 13.64 years. The most common etiologies were ischemic (44.4%) and hypertensive heart disease (38.5%). At baseline, 53.4% of patients were classified with NYHA class II, and 73.6% had a reduced left ventricle ejection fraction (LVEF). A year prior to entering the registry, patients were hospitalized an average of 1.4 ± 1.1 times due to HF. Prescription of evidence-based treatment at baseline included sacubitril/valsartan (10%), ACEI (33%), ARB (41%), beta-blocker (79%), diuretics (68%), and MRA (56%). The average quality of life score measured using the EQ-5D-3L questionnaire was 78.7 ± 20.8 at baseline and 82.3 ± 20.1 at the six-month follow-up. The mortality rate was 6.7%.Conclusions:The use of information from the RECOLFACA registry allowed characterization as well as analyses of healthcare resource utilization of patients with heart failure in Colombia. The results of this study show that multiple evidence-based treatments for HF are being widely used in Colombia, but there seems to be room for improvement regarding some interventions for the treatment of patients with HF.

Assessment of Quality of Life in Patients of Mastectomy With Chemotherapy.

Background: Breast cancer is one of the most common cancers in India as well as the world. In India, 48% of patients with breast cancer are below 50 years of age, indicating a huge age shift in the last 25 years. Breast cancer in an early age group increased the five-year survival rate and increased life expectancy has created a large group of breast cancer survivors who battle scars of disease as well as treatment. Standardized multimodal treatment is either not affordable or not available, so the breast conservation surgery rate is very low. Mastectomy is still the most common modality of treatment, particularly in rural areas. In addition to psychological, social, economic, and family barriers to obtaining the diagnosis and treatment needed, economic barriers like the cost of travel and lost wages are important factors influencing the choice of treatment. Mastectomy represents a deep burden for women with breast cancer. Very little is known about the psychological consequences over time and the quality of life (QOL) of women so treated, with or without breast reconstruction. Conflicting literature is available regarding QOL after mastectomy. The survival rates of breast cancer are increasing. They are reported in the range of 80-90% in western countries while in the range of 60% in the Indian scenario. With high survival rates in cancer, the focus needs to shift from mortality indicators to QOL indicators. The QOL that these survivors experience is a comparatively newer domain of study. Though there are many instruments for assessment of breast QOL of breast cancer patients with numerous studies in western literature, QOL studies in Indian rural population are far less, and urban studies cannot be extrapolated because the method of treatment differs, with breast conservation being more common in urban population. Hence, the present study is undertaken to assess the QOL in patients who have undergone mastectomy and ongoing chemotherapy or completed chemotherapy recently using a relatively newer instrument, i.e., the Quality of Life Instrument - Breast Cancer Patient version.Methodology: The present study was a cross-sectional study conducted at a rural tertiary healthcare center on mastectomy patients attending the outpatient department and admitted to the hospital. All the female patients of carcinoma breast treated with a mastectomy who were receiving the adjuvant or neoadjuvant chemotherapy or were within one year of completion of chemotherapy irrespective of age at diagnosis were included in this study. The assessment was performed by interview method using a questionnaire.Results: In this study, 44.90% of the patients were <50 years old and 55.10% were more than 50 years old. Among them, 28.57% were illiterate while only 20.41% had graduate education. The majority (61.22%) were from the low socioeconomic class. Majority of women presented in the late stages of the disease, with 61.22% presenting in the third stage and only three (6.12%) presenting in the first stage of the disease. The overall global QOL score was 49 ± 2.6 and fear was assessed. Patients scored better in the physical, psychological, social, and spiritual domains, with an average score of more than 50. The worst scores were observed among distress of illness or treatment.Conclusions: The present study shows that the average QOL scores in rural Indian women after mastectomy are moderate. Global scores and other indicators show moderate QOL.

Impact of a Mobile Application for Tracking Nausea and Vomiting During Pregnancy (NVP) on NVP Symptoms, Quality of Life, and Decisional Conflict Regarding NVP Treatments: MinSafeStart Randomized Controlled Trial.

BackgroundPregnant women are active users of mobile apps for health purposes. These apps may improve self-management of health-related conditions. Up to 70% of pregnant women experience nausea and vomiting (NVP). Even mild NVP can significantly reduce quality of life (QoL), and it can become an economic burden for both the woman and society. NVP often occurs before the first maternal care visit; therefore, apps can potentially play an important role in empowering pregnant women to recognize, manage, and seek appropriate treatment for NVP, when required.ObjectiveThis study investigated whether the MinSafeStart (MSS) mobile app could impact NVP-related symptoms, QoL, and decisional conflict regarding NVP treatment.MethodsThis randomized controlled trial enrolled 268 pregnant women with NVP in Norway from 2019 to 2020. The intervention group had access to the MSS app, which could be used to track NVP symptoms and access tailored advice. NVP severity was rated with the Pregnancy Unique Quantification of Emesis (PUQE) score. The control group followed standard maternal care. We collected data on maternal baseline characteristics, NVP severity, QoL, and decisional conflict using 2 sets of online questionnaires. One set of questionnaires was completed at enrollment, and the other was completed after 2 weeks. We performed linear regression analyses to explore whether the use of the MSS app was associated with NVP severity, QoL, or decisional conflict.ResultsAmong the 268 women enrolled in the study, 192 (86.5%) completed the baseline questionnaires and were randomized to either the intervention (n=89) or control group (n=103). In the intervention group, 88 women downloaded the app, and 468 logs were recorded. In both groups, women were enrolled at a median of 8 gestational weeks. At baseline, the average PUQE scores were 4.9 and 4.7; the average QoL scores were 146 and 149; and the average DCS scores were 40 and 43 in the intervention and control groups, respectively. The app had no impact on NVP severity (aβ 0.6, 95% Cl −0.1 to 1.2), QoL (aβ −5.3, 95% Cl −12.5 to 1.9), or decisional conflict regarding NVP treatment (aβ −1.1, 95% Cl −6.2 to 4.2), compared with standard care.ConclusionsTracking NVP symptoms with the MSS app was not associated with improvements in NVP symptoms, QoL, or decisional conflict after 2 weeks, compared with standard care. Future studies should include a process evaluation to improve our understanding of how pregnant women use the app and how to optimize its utility within maternity care. Specifically, studies should focus on how digital tools might facilitate counseling and communication between pregnant women and health care providers regarding NVP management during pregnancy.Trial RegistrationClinicalTrails.gov (NCT04719286): https://www.clinicaltrials.gov/ct2/show/NCT04719286

Impact of Fibromyalgia Syndrome on the Severity of Migraine Without Aura

Background: Migraine is a common neurological disorder associated with periodical disability and impaired quality of life. Recent large epidemiological studies have shown high levels of concurrency between fibromyalgia syndrome (FMS) and migraine. Objectives: Due to the possible relationship between migraine and FMS, we aimed to measure the effect of FMS on the severity of migraine without aura (MWO). Methods: This is a cross-sectional study of 80 patients with MWO who were referred to Isfahan Al-Zahra Clinic of Neurology. To monitor the patients, the researcher asked them to complete the demographic data and questionnaires, including FSQ-P for diagnosis FMS, HIT-6 for the severity of migraine headache, and MSQ for measuring the quality of life, with their written consent. Results: Of 80 patients with MWO, 22.5% suffered from FMS. Based on our study, elderly patients with MWO were more likely to be affected by FMS. Additionally, the average quality of life score in the migraineurs with FMS was significantly lower than the migraineurs without FMS. According to our findings, the severity of migraine was not significantly different between patients with and without FMS. In addition, age (OR = 1.1, 95% CI = 1.006-1.2, P &lt; 0.001] and quality of life (OR = 1.03, 95% CI = 1.002 - 1.07, P = 0.04) were the predictive factors for FMS in patients suffering from migraine. Conclusions: The findings of this study may support that the presence of FMS had no effect on the severity of migraine; however, further studies are needed to clarify this claim.

FACTORS AFFECTING QUALITY OF LIFE OF PERSONS WITH TYPE 2 DIABETES OUTCOME TREATMENT AT TRA VINH UNIVERSITY HOSPITAL

The study aimed to determine the factors affecting the quality of life of patients with type 2 diabetes treated as outpatients at Tra Vinh University Hospital in 2021. The crosssectional study includes data from over 200 people with type 2 diabetes who are being treated as outpatients at Tra Vinh University Hospital. The study used direct interviews to collect data. The study managed and analyzed data using SPSS 20.0 software and the Kruskal Wallis and MannWhitney test to identify factors affecting the life quality of patients with type 2 diabetes. Theresults show that the overall quality of life score of diabetic patients is 62.10 ± 7.31, equivalent to the average quality of life of patients with diabetes. The results also show that the average quality of life score for participants are connected with factors including age groups, occupation, duration of disease, other comorbidities, and complications in patients. This difference is statistically significant with p &lt; 0.001, p = 0.001,p = 0.039, p = 0.007, p = 0.008, respectively. In addition, the study did not find any difference in the mean quality of life scores by gender, education level, marital status, health insurance, household economy, people living with, BMI, glycemic index, and treatment methods.

Quality of life of patients with schizophrenia

IntroductionSchizophrenia (SCZ) is considered one of the most disabling mental illnesses with significant family, social and occupational repercussions resulting in impaired quality of life (QOL).ObjectivesTo assess the QOL of patients with SCZ or schizoaffective disorder (SAD) and to analyze the sociodemographic and clinical factors associated with its alteration.MethodsThis was a cross-sectional, descriptive and analytical study, which began in December 2019, conducted with 60 subjects followed for SCZ or SAD, at the psychiatry outpatient unit of the Hedi Chaker University Hospital in Sfax (Tunisia). General, clinical and therapeutic data were collected using a pre-established questionnaire. QOL was assessed with the «36 item Short-Form Health Survey» (SF-36).ResultsPatients enrolled had SCZ in 78.2% and SAD in 21.8% of cases. The mean age was 47.2 years and the sex ratio M/F was 4.5. They were single in 63.7% of cases and unemployed in 61.8%. Psychiatric family history, the presence of personal somatic illnesses and tobacco use were found in 43.6%, 61.8% and 67.3% of cases, respectively. The average QOL score was 57.7, the average physical health score was 61.1, and the average mental health score was 54.3. Female sex (p=0.02), being single (p=0.039), lack of work activity (p=0.00), tobacco use (p=0.05), and presence of medical history (p=0.034) were statistically correlated with impaired QOL.ConclusionsQOL in SCZ and SAD is impaired. This result encourages us to conceive of the patient in his whole life and not only from the point of view of the disease.DisclosureNo significant relationships.

The Association of Health Insurance and Quality of Life in Type One Diabetics

The main purpose of this study was to investigate the correlation between health insurance and the quality of life of type 1 diabetic adults in Connecticut. Type 1 diabetics over the age of 26 living in Connecticut were invited to participate in a mixed methods case study. Quality of life data was collected from a questionnaire with questions drawn from the 12-Item Short Form Health Survey and the Appraisal of Diabetes Scale. Each participant was assigned a quality of life score after taking the questionnaire. After taking the survey, a semi-structured interview was conducted with each participant with questions assessing their health insurance plan, access to care, and self-perception of quality of life. The quality of life scores from the survey were cross-referenced with how each participant responded in the interview, then analyzed The average quality of life score was 37, revealing a below average quality of life for type 1 diabetic adults in Connecticut. Patients reported in the interviews that health insurance helps maintain quality of life, but can restrict individuals from improving. The interviews also revealed higher levels of concern for the financial burden of diabetes and the effectiveness of insurance. The study concluded that type 1 diabetics face quality of life disparities. Health insurance effectively maintains a level of quality of life, but often restricts individuals from elevating themselves.

Overview of the Quality of Life of Breast Cancer Patients Undergoing Chemotherapy During the COVID-19 Pandemic

Chemotherapy as an option for breast cancer treatment. The Covid-19 pandemic has had a serious impact on health services, one of which is chemotherapy services. The delay in chemotherapy services due to the increasing number of COVID-19 cases indirectly has an impact on the quality of life of breast cancer patients undergoing chemotherapy. The purpose of this study was to describe the quality of life of breast cancer patients undergoing chemotherapy during the COVID-19 pandemic. The design of this study used a quantitative descriptive with a cross sectional design. The study was conducted in the Chemotherapy Room Sanjiwani RSUP Sanglah with a sample size of 50 respondents with a sampling technique using purposive sampling. The results of this study indicate that the majority of breast cancer patients have quality of life in the moderate category as many as 47 respondents (96%) with an average quality of life score of 649.45 in the moderate category. Moderate quality of life in cancer patients is due to chemotherapy which improves the patient’s healing process so that there is an increase in quality of life. It is hoped that health workers will receive IEC and motivation for breast cancer patients undergoing chemotherapy during the COVID-19 pandemic as an effort to improve the patient's quality of life

The association between health-promoting-lifestyles, and socioeconomic, family relationships, social support, health-related quality of life among older adults in china: a cross sectional study

ObjectivesLifestyles, accounting for 53% in determining death, play a vital role in improving the health of older adults. Thus, this study aimed to explore the influencing factors of the health-promoting-lifestyles and interaction mechanisms among older adults.MethodsA total of 8526 elders were selected by a three-stage stratified random cluster sampling method. Socioeconomic status, family relationships, social support, health-related quality of life (QOL), and health-promoting-lifestyles (HPLP) of older adults were assessed with the Social Support Rating Scale, the short form 36 health survey (SF-36) and Health-Promoting Lifestyle Profile. A structural equation model (SEM) was conducted to test the direct and indirect association between influencing factors with HPLP.ResultsIn this study, there were 4901 older adults who were empty nesters, and 3625 were non-empty nesters. Of all respondents, the average QOL score of older adults was 62.28 ± 16.51, average social support score was 78.06 ± 7.50. The HPLP score of older adults was 105.9 ± 19.6, and the average score of subscales was 2.5 ± 0.5, which was at the medium level. Social support had a positive and direct effect on HPLP of older adults (total effect, 0.34). Meanwhile, social support mediated the relationship between socioeconomic (total effect, 0.17), QOL (total effect, 0.33) and HPLP. Family relationships had a small indirect effect on HPLP via social support (0.01).ConclusionsSocial support is the strongest influencing factor in the health-promoting-lifestyles among older adults, followed by socioeconomic, health-related quality of life and family support. Thus, maintaining higher social support was important to improve the HPLP of older adults.

Post-Bariatric Surgery Patients: A Quality of Life Assessment in Saudi Arabia.

BackgroundBariatric surgery has emerged as the most successful and long-lasting treatment for weight loss because of its effect on losing weight, diminution or elimination of sedentary lifestyle-related comorbidities, and a concomitant decrease in mortality and healthcare expenditures. Understanding its effects on the quality of life of patients is a crucial aspect of treatment. This study aims to assess the quality of life and its associated factors following bariatric surgery in Saudi Arabia.MethodologyIn this cross-sectional study, 400 adult patients who had undergone bariatric surgery were recruited from different regions in Saudi Arabia between December 2021 and February 2022. Data were collected and analyzed using SPSS version 23 (IBM Corp., Armonk, NY, USA).ResultsOf the 400 participants, 160 (40%) were males and 240 (60%) were females. The average weight of the participants before surgery was 113.9 ± 18.7 kg (range = 84-146 kg) and after surgery was 84.8 ± 18.3 kg (range = 58-138 kg). The average quality of life score was -0.13 ± 2.0 (range = -3-3). Most of the participants (35%) had a fair quality of life, 25% had very poor quality, 20% had very good quality, 15% had good quality, and 5% had poor quality of life. A statistically significant association (p < 0.001) was found with the following factors: gender, age, nationality, educational level, marital status, and history of chronic diseases.ConclusionsQuality of life following bariatric surgery was mostly reported to be fair or average. Several sociodemographic factors were found to be associated with the reported quality of life including age, gender, nationality, educational level, marital status, and history of chronic disease or comorbidities.

Long-Term Quality of Life of Vestibular Schwannoma Patients: A Longitudinal Analysis.

Vestibular schwannoma management aims to maintain optimal quality of life (QoL) while preventing severe sequelae of the tumor or its treatment. This study assessed long-term QoL of patients with vestibular schwannoma in relation to treatment modality and decisional regret. A longitudinal study, in which clinical and QoL data were used that were cross-sectionally acquired in 2014 and again in 2020 from the same patient group. A tertiary expert center for vestibular schwannoma care in the Netherlands. QoL was measured by the Penn Acoustic Quality of Life (PANQOL) scale. Changes in time were assed using a linear mixed model. In addition, the Decision Regret Scale was analyzed. Of 867 patients, 536 responded (62%), with a median follow-up of 11 years. All PANQOL subdomain scores remained stable over time and did not exceed minimal clinically important difference (MCID) levels. Time since treatment did not affect QoL. Patients had comparable average QoL scores and proportions of patients with changing QoL scores (ie, exceeding the MCID) over time, irrespective of the received initial treatment. Female patients and those who required salvage therapy (either by radiotherapy or surgery) reported a lower QoL. The latter patient group reported the highest decisional regret. On average, the long-term QoL of patients with vestibular schwannoma is comparable for patients under active surveillance and those who have received active treatment, and it remains stable over time. This suggests that, on average, preservation of QoL of patients with vestibular schwannoma is feasible when adequately managed.

Functional recovery after discharge in enhanced recovery video-assisted thoracoscopic lobectomy: a pilot prospective cohort study.

Little is known about functional recovery following patient discharge in an established enhanced recovery programme after video-assisted thoracoscopic lobectomy. We conducted a single-centre pilot prospective observational cohort study. We hypothesised that patients achieved early functional recovery after discharge. A total of 32 patients aged ≥ 18 years were enrolled. A digital device was used for objective activity measurements, and patient-reported outcomes were collected as subjective measurements. Primary outcomes were the difference in physical activity; sleep duration; pain; fatigue; and average quality of life scores between pre-operative baseline and 7 days following discharge. The secondary outcome was the reason for reduced daily activity during the first 7 days after discharge. Median (IQR [range]) length of stay was 3 (2-5 [1-13]) days. Up to post-discharge day 7, total, lower intensity and moderate-to-vigorous activities were lower than pre-operative activity (p < 0.001; p = 0.005 and p = 0.027, respectively). Numerical rating scale (0-10) pain scores increased postoperatively at rest (mean difference 1.2, p < 0.001) and during walking (mean difference 1.4, p < 0.001). Fatigue assessed by the Christensen Fatigue Scale (1-10) was also increased postoperatively (mean difference 1.7, p = 0.001). There was a reduction in quality of life scores, while sedentary activity and sleep duration were unchanged postoperatively. Dominant reasons for not recovering daily activity included fatigue in 43% and pain in 33% of patients. Despite compliance with an enhanced recovery programme with a median length of hospital stay of 3 days after video-assisted thoracoscopic lobectomy, functional recovery was not achieved within 7 days after hospital discharge. Reduction in postoperative pain and fatigue are important factors to enhance functional recovery.

Abstract P049: A Digital Therapeutic Intervention Is Feasible For Outpatient Care In Coronary Artery Disease

Introduction: Lifestyle and medication adherence are important factors in secondary coronary artery disease (CAD)-prevention. Furthermore, the mind-heart-body connection is gaining recognition in cardiovascular health management. Hypothesis: We assessed the hypothesis that a CAD-specific digital intervention is feasible for outpatient care in terms of program retention, satisfaction, quality of life, symptom frequency and medication adherence. Methods: A four-week CAD-program (SK-121) delivered via a smart phone was designed in collaboration between the National University Hospital of Iceland (NUHI) and Sidekick Health. Patient recruitment took place at NUHI, and program participation consisted of daily health promoting missions assigned within the digital intervention such as watching educational videos, mindfulness exercises, medication reminders and logging quality of life scores. Pre- and post-intervention questionnaires were administered for the Hospital anxiety and depression scale (HADS), Seattle Angina Questionnaire-7 (SAQ-7) and the Morisky medication adherence scale (MMAS-8). Stress-, energy-levels and quality of sleep were logged on a ten-point scale. Participants were interviewed about their program experience. Results: A total of 33 individuals signed informed consent and completed the baseline survey, of which 25 individuals registered in the app (76% males, mean age 60 years [SD=10]). A total of 23 participants logged a mission during the 4-week intervention, five of those were active a single day. A total of 16 (70%) participants completed the program and both pre- and post-surveys (mean age 60 years [SD=10], range 44-80 years). On average participants logged 7.5 missions/day (10.2 for women and 6.6 for men), completing half of daily missions (women 71%, men 47%). Results for average quality of life scores from week one to four were: for energy 5.5[SD=1.8] to 5.8[SD=1.9], p =0.22, for quality of sleep 6.2[SD=2.5] to 5.9[SD=2.4] p =0.20 and for stress 3.3[SD=2.6] to 3.3[SD=2.4] p =0.71.The proportion of the 16 patients who experienced CAD-symptoms in the last four weeks decreased from 56% at baseline to 38% at program completion, p &lt;0.01.Medication adherence at baseline was 50% (8/16, MMAS-8=8) and increased as five of the eight (63%) non-adherent individuals became adherent, p =0.03.There were slight non-significant decreases in anxiety scores from 4.3 [SD=3.4] to 4.13[SD=2.9] p =0.88 and depression scores from 3.1 [SD=3.3] to 2.8[SD=3.6] p =0.33.User satisfaction was good as 75% of the 16 participants said it was likely that they would recommend the program, that it had a positive effect on their life, well-being and ability to deal with their disease. Conclusions: In conclusion, a CAD-specific digital intervention is feasible in terms of engagement, user satisfaction and improved treatment adherence. An RCT study is being planned to further test the program.

Interdialytic Body Weight Gain, Anxiety, Fatigue and Quality of Life in Hemodialysis Patients During the COVID-19 Pandemic

Hemodialysis patients are at a high risk of contracting COVID-19 and have a high risk of death when infected with COVID-19. During the pandemic, anxiety and fear have escalated, triggering more psychological disorders among hemodialysis patients, leading to depression and decreased quality of life. Therefore, the purpose of this study was to describe interdialytic body weight gain (IDWG), anxiety, fatigue and quality of life in hemodialysis patients during the COVID-19 pandemic. This was quantitative research with a descriptive approach and a survey design. 74 hemodialysis patients at various hemodialysis clinics in Bandung were recruited using consecutive sampling. The instruments used included the IDWG observation sheet, Beck Anxiety Inventory, the Fatigue Severity Scale, and KDQoL-SF36. Univariate analyses were conducted using frequency distribution. The mean IDWG was 5.35 ± 5.21, and 33 respondents (44%) were in the light category. The mean score for fatigue was 40.37 ± 16.99, and 47 respondents (63%) experienced fatigue. The mean anxiety score was 22.12 ± 10.2, and 30 respondents (40%) were in the deficient category. Meanwhile, the highest average quality of life score was in the SF-12 mental health composite aspect, with 45.39 ± 7.59, and the lowest was in the burden of kidney disease aspect with an average value of 14.42 ± 6.58. Some respondents had mild IDWG, fatigue and anxiety levels, and some respondents had a poor quality of life.&#x0D; Keywords: anxiety, fatigue, hemodialysis, IDWG, quality of life

Effects of different types of scaly scalp diseases on patients' quality of life

This study investigated the disease spectrum in 209 patients with different types of scalp scaly cutaneous diseases. The quality of life of patients with the diseases were also analyzed. We found that seborrheic dermatitis (52.6%), dandruff (14.4%), eczema (17.7%) and psoriasis (15.3%) are common scalp scaly diseases. Eczema and psoriasis can be restricted to the scalp. The four diseases occur frequently in 20-40 years. Compared with patients with seborrheic dermatitis, those with dandruff were statistically different in terms of gender (P=0.004), occupation (P=0.010), drinking (P=0.007) and distressing factors (P=0.016). The average quality of life scores for scalp seborrheic dermatitis, dandruff, eczema and psoriasis were 3.00(1.00, 6.00),2.00(1.00, 5.25),4.00(1.00, 8.50)and 3.00(1.25, 6.75), respectively (P=0.42). The difference between the quality of the four diseases were not statistically significant. The diseases reduced patients' quality of life.

Quality of life of COVID-19 patients after treatment at Thu Duc City Hospital

Objective: To determine the average quality of life score and the relationship between the quality of life score of COVID-19 patients after treatment at Thu Duc City Hospital with socio-demographic characteristics and historical treatments. Methods: A total of 188 inpatients with COVID-19, who were discharged from hospital for more than 30 days at 05 COVID-19 treatment departments of Thu Duc City Hospital from November 2021 to January 2022, were enrolled to a cross-sectional study. Data on inpatients was collected by a prepared questionnaire through medical records and telephone interview. Results: Of 188 enrolled patients, male accounted for 36.7% and female accounted for 63.3%. Age mean of patients was 47.1 ± 14.9 years. The majority of patients had a treatment duration of more than 10 days (60.1%). The average time from the end of treatment to the time of the survey was 69.1 ± 34.2 days. Most of the COVID-19 patients had moderate disease (43.1%). Severe and critical accounted for 25.0%. The prevalence of patients with EQ-VAS score of 71-80 points was the highest with 27.7%, and 91-100 points was the lowest with 6.9%. The overall quality of life score (EQ-5D-5L scale) was 0.78 ± 0.24 points. The EQ-VAS score was 74.19 ± 15.82 points. There was a negative correlation between age, mean duration of treatment and mean quality of life score and a statistically significant relationship between age group, employment status, severity of patients with COVID-19 and quality of life score (p &lt; 0.05). Conclusions: The quality of life of COVID-19 patients after treatment for more than 30 days is significantly lower that of the general population and recently discharged COVID-19 patients in Vietnam. More attention should be paid to solutions to improve the quality of life of people who have been treated with COVID-19 for more than 10 days, those with severe and critical disease, and those over 70 years old.

The Comparison of Quality of Life in Children with Type 1 Diabetes Mellitus Based on Parents and Children Report

Background: The primary goal of current diabetes management for children and adolescents has shifted from purely medical to optimal glucose control, normal psychological development, and increase QoL. Parents who accompany their children in the routine treatment of diabetes also have their own perceptions of their children’s quality of life. The study regarding the QoL of T1D according to parents and children still vary. This research intends to compare between the QoL of T1D according to parents and children report in Indonesia. Methods: This is a cross sectional, conducted in a pediatric endocrine outpatient clinic, Dr. Soetomo Hospital, Surabaya, during November 2020 to August 2021. Comparison between variables were analyzed using an independent t-test and P &lt; 0.05 was statistically significant. Result: The overall average quality of life score from parents is 71, while from children is 73,14. From parents report, in each domain, the average scores regarding the disease; treatment I; treatment II; worries; communications are 66,1; 74,3; 81; 60,8; 72,8 respectively. while from children, in each domain, the average scores regarding the disease; treatment I; treatment II; worries; communications are 68,5: 75,8: 80,6; 61,7; 79,1 respectively. The P score in each domain regarding the disease; treatment I; treatment II; worries; communications are (P=0.978); (P=0.728); (P=0.766); (P=0.641); (P=0.531) respectively. Conclusion: There is no difference between parents and children report on the QoL of children with T1D for each domain.