The Comparison of Quality of Life in Children with Type 1 Diabetes Mellitus Based on Parents and Children Report

Abstract

Background: The primary goal of current diabetes management for children and adolescents has shifted from purely medical to optimal glucose control, normal psychological development, and increase QoL. Parents who accompany their children in the routine treatment of diabetes also have their own perceptions of their children’s quality of life. The study regarding the QoL of T1D according to parents and children still vary. This research intends to compare between the QoL of T1D according to parents and children report in Indonesia. Methods: This is a cross sectional, conducted in a pediatric endocrine outpatient clinic, Dr. Soetomo Hospital, Surabaya, during November 2020 to August 2021. Comparison between variables were analyzed using an independent t-test and P < 0.05 was statistically significant. Result: The overall average quality of life score from parents is 71, while from children is 73,14. From parents report, in each domain, the average scores regarding the disease; treatment I; treatment II; worries; communications are 66,1; 74,3; 81; 60,8; 72,8 respectively. while from children, in each domain, the average scores regarding the disease; treatment I; treatment II; worries; communications are 68,5: 75,8: 80,6; 61,7; 79,1 respectively. The P score in each domain regarding the disease; treatment I; treatment II; worries; communications are (P=0.978); (P=0.728); (P=0.766); (P=0.641); (P=0.531) respectively. Conclusion: There is no difference between parents and children report on the QoL of children with T1D for each domain.