Abstract
As with other areas of the social world, academic research in the contemporary healthcare setting has undergone adaptation and change. For example, research methods are increasingly incorporating citizen participation in the research process, and there has been an increase in collaborative research that brings academic and industry partners together. There have been numerous positive outcomes associated with both of these growing methodological and collaborative processes; nonetheless, both bring with them ethical considerations that require careful thought and attention. This paper addresses the ethical considerations that research teams must consider when using participatory methods and/or when working with industry and outlines a novel informed consent matrix designed to maintain the high ethical standard to which academic research in the healthcare arena has traditionally adhered.
Highlights
The ethical dilemmas that arise from a researchers’ perspective, and dilemmas that must be considered by researchers, are numerous
In addition to addressing the ethical considerations discussed above, this ensures that the project is General Data Protection Regulation (GDPR) compliant because participants have been asked for specific consent for each of those different acts of processing
Concluding remarks This paper has highlighted the importance of reframing informed consent in an era of citizen science, technology and industry involvement with research, in the healthcare arena
Summary
The ethical dilemmas that arise from a researchers’ perspective, and dilemmas that must be considered by researchers, are numerous. Citizen science and informed consent What has been discussed highlights changes to the research process and with that change brings new considerations, around ethics.
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