Lives Of Youth Research Articles

Health-related quality of life in pre-pubertal children with pediatric growth hormone deficiency: 12-month results from a phase 3 clinical trial of once-weekly somatrogon versus once-daily somatropin

Objective Treatment of pediatric growth hormone deficiency (pGHD) with daily injection of recombinant human growth hormone (somatropin) aims to increase height velocity and improve health-related quality of life (HRQoL). The Quality of Life in Short Stature Youth (QoLISSY) questionnaire was administered in a phase 3 clinical trial that evaluated efficacy and safety of once-weekly somatrogon versus once-daily somatropin in children with pGHD (ClinicalTrials.gov no NCT02968004). Methods Treatment-naïve prepubertal children with pGHD received once-weekly somatrogon or once-daily somatropin for 12 months. The QoLISSY core module (physical/social/emotional subscales) was administered at baseline and 12 months after treatment initiation. QoLISSY-Parent was completed by parents/caregivers of children <7 years old and some parents/caregivers of children ≥7 years old; children ≥7 years old self-completed QoLISSY-Child. Results Baseline characteristics were similar between treatment groups (N = 117). Among children <7 years old, QoLISSY-Parent total and subscale scores showed similarly improved HRQoL at 12 months relative to baseline in both treatment groups. Self-reported QoLISSY-Child total and subscale scores in children ≥7 years old indicated HRQoL improvements at 12 months that were numerically better with somatrogon than somatropin (similar results with QoLISSY-Parent in this age group). At both time points, children reported better HRQoL than perceived by their parents/caregivers. Conclusion Treatment for 12 months with once-weekly somatrogon or once-daily somatropin resulted in comparable improvements in HRQoL among children with pGHD. Lower HRQoL perceived by parents/caregivers possibly reflect children’s tendency to emphasize adaptation. These results suggest that evaluation of HRQoL could help support treatment decisions in children with pGHD treated with growth hormone.

Associations Between Patient-Reported Outcome Measures of Physical and Psychological Functioning and Willingness to Share Social Media Data for Research Among Adolescents With a Chronic Rheumatic Disease: Cross-Sectional Survey.

Social media data may augment understanding of the disease and treatment experiences and quality of life of youth with chronic medical conditions. Little is known about the willingness to share social media data for health research among youth with chronic medical conditions and the differences in health status between sharing and nonsharing youth with chronic medical conditions. We aimed to evaluate the associations between patient-reported measures of disease symptoms and functioning and the willingness to share social media data. Between February 2018 and August 2019, during routine clinic visits, survey data about social media use and the willingness to share social media data (dependent variable) were collected from adolescents in a national rheumatic disease registry. Survey data were analyzed with patient-reported measures of disease symptoms and functioning and a clinical measure of disease activity, which were collected through a parent study. We used descriptive statistics and multivariate logistic regression to compare patient-reported outcomes between youth with chronic medical conditions who opted to share social media data and those who did not opt to share such data. Among 112 youths, (age: mean 16.1, SD 1.6 y; female: n=72, 64.3%), 83 (74.1%) agreed to share social media data. Female participants were more likely to share (P=.04). In all, 49 (43.8%) and 28 (25%) participants viewed and posted about rheumatic disease, respectively. Compared to nonsharers, sharers reported lower mobility (T-score: mean 49.0, SD 9.4 vs mean 53.9, SD 8.9; P=.02) and more pain interference (T-score: mean 45.7, SD 8.8 vs mean 40.4, SD 8.0; P=.005), fatigue (T-score: mean 49.1, SD 11.0 vs mean 39.7, SD 9.7; P<.001), depression (T-score: mean 48.1, SD 8.9 vs mean 42.2, SD 8.4; P=.003), and anxiety (T-score: mean 45.2, SD 9.3 vs mean 38.5, SD 7.0; P<.001). In regression analyses adjusted for age, sex, study site, and Physician Global Assessment score, each 1-unit increase in symptoms was associated with greater odds of willingness to share social media data, for measures of pain interference (Adjusted Odds Ratio [AOR] 1.07, 95% CI 1.001-1.14), fatigue (AOR 1.08, 95% CI 1.03-1.13), depression (AOR 1.07, 95% CI 1.01-1.13), and anxiety (AOR 1.10, 95% CI 1.03-1.18). High percentages of youth with rheumatic diseases used and were willing to share their social media data for research. Sharers reported worse symptoms and functioning compared to those of nonsharers. Social media may offer a potent information source and engagement pathway for youth with rheumatic diseases, but differences between sharing and nonsharing youth merit consideration when designing studies and evaluating social media-derived findings.

Exploring alternative discourses about datafication in a speculative youth participatory action research curriculum

PurposeThis paper aims to address the limitations in designing educational approaches that apply critical approaches to data literacy, given the obscure nature of digital platforms, which leave youth unable to develop discourses that challenge dominant narratives about the role of data in their lives. The purpose of this study is to propose and evaluate a critical data literacy approach that empowers youth to engage with data from a sociocultural perspective using a speculative participatory research approach that affords opportunities to develop alternative discourses.Design/methodology/approachThis is a multiple-case study that involves five alternative schools in Uruguay which implemented the Nayah-Irú curriculum over ten weeks leading to the development of six distinct research projects about the materialization of data in youth lives. The curriculum incorporates an alternate reality game (ARG) to engage youth in critical data literacy, based on the principles of Youth Participatory Action Research (YPAR) epistemology and Speculative Civic Literacies.FindingsThe findings of this study highlight the integration of speculative storytelling and real-life experiences in developing alternative discourses about datafication. The analysis revealed instances of discursive closure among the youth, but through the curriculum's speculative fiction elements, such as the narrative of Nayah-Irú, emotional connections were formed, leading to increased engagement, critical inquiry, and problem framing.Research limitations/implicationsThe study conducted on the Nayah-Irú curriculum shows its effectiveness in engaging youth and educators in critical data literacy by affording opportunities for youth to engage in the analysis of their personal data literacies in an alternative world. Bringing speculative approaches to data literacy can open new avenues for exploring data literacy with youth in ways that center their voices and help them overcome different forms of discursive closure.Originality/valueThis study offers new insights into critical data literacy education blending youth participatory action research epistemologies with a speculative literacies framework to support youth in developing alternative discourses regarding the role of data in their lives.

(Im)possibilities of parity of participation in school settings in the lives of unaccompanied youth

ABSTRACT Despite the rhetoric of inclusion and equal participation, educational practices end up producing social exclusion. In this research, we are interested in practices where outcomes fail to match efforts with respect to students’ opportunities to participate equally. The research was carried out as a focused ethnography with young people who arrived in Finland as unaccompanied asylum-seeking youths. The results show that separated learning environments in school settings commonly exclude these young people socially from the rest of their peers. The research sheds light on how seemingly ‘innocent’, well-meaning practices form a mesh of exclusion, making inclusion and parity of participation practically impossible for students seeking asylum.

Democratizing dual enrollment: Beyond economic rationales

Dual enrollment (DE) is a popular reform in the United States that allows high school students to take college courses through partnerships between school districts and institutions of higher education. DE programs have been scaling rapidly, but participation is stratified by race and class, and research reveals little about the quality and content of DE courses. These limitations stem, in part, from a lack of theorizing around what purpose DE reform can and should serve, both in the lives of youth and for communities writ large. Situated in literature on the purpose of education in capitalist democracies, this study employs qualitative content analysis to examine the rationales for DE coursework, as depicted in state-level policy documents. Findings indicate that DE policy rationales are depicted almost entirely in neoliberal economic terms. We argue that, while economic benefits are important, the almost exclusive emphasis on economic outcomes has led to rapid scaling of a curricular reform with insufficient attention to teaching, learning, and equity. To maximize the potential benefits of DE reform, we call for imagining its democratic possibilities.

Facilitated WhatsApp Support Groups for Youth Living With HIV in Nairobi, Kenya: Single-Arm Pilot Intervention Study.

Mobile technology can support HIV care, but studies in youth are limited. In 2014, youth receiving HIV care at several health care facilities in Nairobi, Kenya spontaneously formed peer support groups using the social media platform WhatsApp. Inspired by youth-initiated groups, we aimed to evaluate the use of WhatsApp to deliver a social support intervention to improve HIV treatment and psychosocial outcomes in youth. We developed a facilitated WhatsApp group intervention (named Vijana-SMART), which was grounded in social support theory and guided by the design recommendations of youth living with HIV. This paper evaluates the intervention's acceptability and pre-post changes in health outcomes. The intervention involved interactive WhatsApp groups facilitated by study staff for 6 months, with each group having approximately 25 members. Study staff sent weekly structured messages, and the message content was based on social support theory and encouraged unstructured peer-to-peer messaging and support. We conducted a single-arm pilot among 55 youth living with HIV aged 14-24 years recruited from a government health care facility serving a mixed-income area of Nairobi. At enrollment and follow-up, self-report questionnaires assessed acceptability; antiretroviral therapy (ART) information, motivation, and behavioral skills (IMB); depression; social support; stigma; resilience; and ART adherence. All participants received the intervention. We used generalized estimating equations (GEEs) clustered by participant to evaluate changes in scores from baseline to follow-up, and correlates of participant WhatsApp messaging. The median participant age was 18 years, and 67% (37/55) were female. Intervention acceptability was high. All participants reported that it was helpful, and 73% (38/52) sent ≥1 WhatsApp message. Messaging levels varied considerably between participants and were higher during school holidays, earlier in the intervention period, and among youth aged ≥18 years. IMB scores increased from enrollment to follow-up (66.9% to 71.3%; P<.001). Stigma scores also increased (8.3% to 16.7%; P=.001), and resilience scores decreased (75.0% to 70.0%; P<.001). We found no significant change in ART adherence, social support, or depression. We detected a positive association between the level of messaging during the study and the resilience score, but no significant association between messaging and other outcomes. Once enrolled, it was common for participants to change their phone numbers or leave the groups and request to be added back, which may present implementation challenges at a larger scale. Increased IMB scores following WhatsApp group participation may improve HIV outcomes. Increased stigma and decreased resilience were unintended consequences and may reflect transient effects of group sharing of challenging experiences, which should be addressed in larger randomized evaluations. WhatsApp groups present a promising and acceptable modality to deliver supportive interventions to youth living with HIV beyond the clinic, and further evaluation is warranted. ClinicalTrials.gov (NCT05634265); https://clinicaltrials.gov/study/NCT05634265.

Key predictors of epilepsy-specific health-related quality of life (HRQOL) in youth with epilepsy

PurposeEpilepsy-specific health-related quality of life (HRQOL) is an important outcome in youth with epilepsy (YWE). The PedsQL™ Epilepsy Module is the only caregiver-proxy and youth self-report epilepsy-specific HRQOL measure that can be used with youth 2–25 years. Multiple factors affect HRQOL, including epilepsy-specific characteristics, comorbid mental and behavioral health concerns, as well as sociodemographic factors. However, we have not yet examined the cumulative impact of these factors on epilepsy-specific HRQOL in YWE using the PedsQL™ Epilepsy module. MethodYouth with epilepsy (n = 281) and their caregivers completed questionnaires focused on sociodemographic factors (e.g., youth biological sex and age), mood/anxiety and behavior symptoms (i.e., Behavioral Assessment Scale for Children – Second Edition; BASC-2, Parent Rating Scale), epilepsy characteristics [e.g., seizure frequency, number of anti-seizure medications (ASMs), ASM side effects, and years since diagnosis], and the PedsQL™ Epilepsy module (subscales: Impact, Cognitive Functioning, Executive Functioning, Sleep, and Mood/Behavior). ResultsHierarchical linear regressions were conducted to examine caregiver-proxy and youth self-reported factors that affect epilepsy-specific HRQOL. Results indicate the strongest key shared predictors of HRQOL in YWE, for both youth and caregiver informants, were mental and behavioral health symptoms. For instance, caregiver-proxy report of YWE HRQOL indicated BASC-2 Externalizing (p < 0.05), Behavioral Symptoms (p < 0.01), and Adaptive Skills (p < 0.001) explained 58 % of the variance in youth Cognitive Functioning HRQOL, while youth self-report of HRQOL indicated that BASC-2 Externalizing (p < 0.01), Behavioral Symptoms (p < 0.05), and Adaptive Skills (p < 0.001) contributed only 36 % of the variance in Cognitive Functioning HRQOL above and beyond the variance explained by sociodemographic and epilepsy-specific characteristics. Similar results were noted for Executive Functioning HRQOL domain, wherein caregiver-proxy report of YWE HRQOL indicated BASC-2 Internalizing (p < 0.01), Behavioral Symptoms (p < 0.001) and Adaptive Skills (p < 0.001) explained 65 % of variance in Executive Functioning, whereas youth self-report of Executive Functioning HRQOL indicated that caregiver-proxy BASC-2 Internalizing (p < 0.001) and Behavioral Symptoms (p < 0.01) explained 34 % of the variance in Executive Functioning HRQOL, above and beyond the variance explained by sociodemographic and epilepsy-specific characteristics. Unique mental and behavioral health predictors of YWE HRQOL were also found for both caregiver-proxy and youth self-report. ConclusionsGiven the integral role of mental and behavioral health symptoms in epilepsy-specific HRQOL, it is critical to address mental and behavioral health symptoms preventatively and proactively to provide YWE with the most optimal health plan, including good seizure control, minimal ASM side effects, and the best possible HRQOL.

Gaps and Opportunities for Strengthening In-School Support for Youth Living With HIV.

With optimized antiretroviral treatment youth living with HIV (YLH) now spend most of their time in schools, making schools an important venue to optimize outcomes. We evaluated school support for YLH. We conducted surveys with public secondary/high schools in 3 Kenyan counties (Nairobi, Homa Bay, and Kajiado) to determine policies and training related to HIV. Chi-squared tests and Poisson regression were used to compare policy availability and staff training by county HIV prevalence and school type. Of 512 schools in the 3 counties, we surveyed 100. The majority (60%) of schools surveyed had boarding facilities. The median student population was 406 (IQR: 200, 775). Only half (49%) of schools had medication use policies; more in boarding than day schools (65% vs 30%, p = .003). While most schools (82%) had clinic attendance policies; policy availability was higher in higher HIV prevalence counties (Homa Bay [100%], Nairobi [82%], Kajiado [56%], p < .05). Overall, 64% had confidentiality policies with higher policy availability in higher HIV prevalence regions (p < .05). Few schools had staff trained in HIV-related topics: HIV prevention (37%), HIV treatment (18%), HIV stigma reduction (36%). Few were trained in confidentiality (41%), psychosocial support (40%), or mental health (26%). Compared to day schools, boarding school were more likely to have staff trained in HIV prevention (prevalence ratio: 2.1 [95% confidence interval 1.0, 4.0], p = .037). In this survey of Kenyan schools, there were notable gaps in HIV care policy availability and training, despite high HIV burden. Development and implementation of national school HIV policies and staff training as well as strengthening clinic and family support may improve outcomes for YLH.

Lifetime Impact Study for Achondroplasia (LISA): Findings from an observational and multinational study focused on health-related quality of life in individuals with achondroplasia in Latin America

PurposeThe multisystem clinical manifestations and complications of achondroplasia, the most common form of disproportionate short stature, can cause functional impairment and psychosocial burden. The Lifetime Impact Study for Achondroplasia (LISA), aimed to assess health-related quality of life and medical resource utilization among Latin America patients with achondroplasia. MethodsData were collected from individuals aged 3 years and above in Argentina, Brazil, and Colombia between 2018 and 2021. A total of 172 patients participated in the study. ResultsChildren with achondroplasia reported lower scores compared with average stature children in Quality of Life in Short Stature Youth (QoLISSY) and Pediatric Quality of Life Inventory (PedsQL) questionnaires, with the greatest impact on physical and social domains. Among adolescents, a significant percentage reported pain, 10.3% experienced pain in 3 or more sites. Adults scored lower than the reference population in the EQ-5D-5L Visual Analog Score, and a considerable portion reported moderate to severe anxiety/depression, pain or discomfort, and mobility problems. The Nottingham Health Profile (NHP) revealed poor health status in terms of energy, pain, and mobility. Medical events, particularly musculoskeletal and connective tissue disorders were reported, resulting in high medical resource utilization. ConclusionOverall, the Lifetime Impact Study for Achondroplasia study provides extensive data on health-related quality of life, psychosocial impact, and health care resource utilization among individuals with achondroplasia in Latin America. The findings confirm a significant burden of illness across multiple domains for these individuals.

Beneficial effects of automated insulin delivery over one-year follow-up in real life for youths and adults with type 1 diabetes irrespective of patient characteristics.

To investigate glycaemic outcomes in youths and adults with type 1 diabetes with either MiniMed™ 780G or Tandem t:slim X2™ control-IQ automated insulin delivery (AID) systems and to evaluate clinical factors that migrate, mitigate the achievement of therapeutic goals. This retrospective, real-world, observational study was conducted in a specialized university type 1 diabetes centre with patients observed for 3-12 months post-initiation of an AID system. Primary outcomes were the percentage time in the target glucose range [TIR70-180 mg/dl (3.9-10 mmol/L)] as measured by continuous glucose monitoring, mean glucose management indicator (GMI) and glycated haemoglobin (HbA1c) levels. Our study cohort consisted of 48 adolescents and 183 adults (55% females) aged 10-77 years. The mean (95% confidence interval) TIR70-180 mg/dl after 30 days was higher than baseline and by 14% points after 360 days with 71.33% (69.4-73.2) (n = 123, p < .001). HbA1c levels decreased by 0.7% and GMI by 0.6% after 360 days. The proportion of time spent <70 mg/dl (3.9 mmol/L) was not significantly different from baseline. During follow-up, 780G users had better continuous glucose monitoring results than control-IQ users but similar HbA1c levels, and an increased risk of weight gain. Age at onset influenced TIR70-180 mg/dl in univariate analysis but there was no significant relationship after adjusting on explanatory variables. Baseline body mass index did not influence the performance of AID systems. This analysis showed the beneficial effects of two AID systems for people with type 1 diabetes across a broad spectrum of participant characteristics. Only half of the participants achieved international recommendations for glucose control with TIR70-180 mg/dl >70%, HbA1c levels or GMI <7%, which outlines the need to maintain strong educational and individual strategies.

THE DEVELOPMENT OF MORAL POTENTIAL OF STUDENTS IN THE ERA OF DIGITALISATION AND ARTIFICIAL INTELLIGENCE

The upbringing of a moral personality has always been relevant and has been an important task of domestic education. The development of the moral potential of students can be achieved by creating an educational environment that provides special psychological and pedagogical conditions that allow students to form stable views on life and man, a system of beliefs that are focused on understanding moral norms and striving to fulfill them. The current situation in education is characterised by the persistent introduction of digitalisation and artificial intelligence, which significantly changes and destroys traditional approaches to the education of a moral personality, complicating the process of formation of personal and civic identity and its substructure – the moral Self. The traditional educational environment in modern conditions is significantly supplemented by remote online communication, which has its own characteristics. The article examines the negative consequences of deep inclusion of the modern digtal space in the life and education of children and youth and raises the question of requirements for the educational environment in the new digital reality to ensure the development of the moral potential of students.

Impact of agribusiness empowerment interventions on youth livelihoods: Insight from Africa

This study generates evidence to understand the impact of agribusiness empowerment programmes on youth livelihoods in developing countries based on the ENABLE-TAAT programme implemented in Kenya, Nigeria, and Uganda. A multistage sampling technique was used in obtaining primary agribusiness-level data from a sample of 1435 young agripreneurs from the study countries. An Endogenous Treatment Effect Regression (ETER) model was used to assess the impact of programme participation on youth livelihoods (income and food security). Results show that participation significantly increased youth's agripreneurship income by 7% and improved food security by 75% for the pooled analysis. The country disaggregation results show that participation led to a 54% and 37% increase in the income of participants in Nigeria and Uganda, respectively. Also, positive and significant impacts were obtained for food security in the two East African countries. These findings suggest policy interventions or programmes focusing on youth agribusiness empowerment, particularly those that target young actors along different agricultural value chains. The study also suggests interventions geared towards mitigating constraints to credit access and productive resources by young agripreneurs to ease barriers to working capital and business innovation.

Effects of common interest groups on rural women and youth livelihood: A qualitative study from Central Ethiopia.

The study was conducted to examine the implications of the Common Interest Group (CIG) scheme for rural livelihood change in the selected areas of the Wara-Jarso woreda, Central Ethiopia. The study focuses on the activities of the CIGs, their effectiveness, Strengths, Weaknesses, Opportunities, and Threats, along with the changes in the livelihood status of CIG members. Four CIGs that fits into the aim of the study were purposively selected from the CIGs operating in the woreda. Among a qualitative research approach, a case study was employed. The data were collected from January 1, 2021 to February 28, 2021. Primary data were gathered using Focus Group Discussions and Key Informant Interviews. A thorough desk review of official documents and other secondary sources was made as an auxiliary method to capture sets of relevant information. The data organization was performed by the MAXQDA 2020 qualitative data analysis package program. The data were analyzed using thematic analysis, relational analysis, and content analysis methods. It was found that the CIGs have encouraged strong social capital among members and becomes an important alternative financial source. It was also found that the CIGs operation has encountered problems related to lack of entrepreneurial education and skill training, monitoring and evaluation, workplace, coordination among stakeholders, inadequate and improper financial use, and non-existence of market linkage. Their strengths, weaknesses, and opportunities were also indicated. For successful rural women and youth livelihood change through the CIGs scheme, the study recommends access to entrepreneurial skill training, coordination among relevant stakeholders, strong monitoring and evaluation, access to market linkage and workplace, and adequate funding.

Attitude towards motivation and formation of healthy fundamentals of life in modern youth

The article reveals the essence and content of the concept of "motivation for a healthy lifestyle", outlines the need and substantiates the main factors, factors and approaches to the formation of motivation and key competence for leading a healthy lifestyle. The mechanisms of influence on the state of health and the absence or presence of healthy motivation of the population as a whole and each person separately are revealed. Physical education and sports help to strengthen health, improve functional and motor capabilities. They are an integral part of a healthy lifestyle and lead to harmonious physical and spiritual development of the individual. Systematic physical education and sports preserve youth, health, and longevity, which is accompanied by creative work growth. A conscious attitude to physical culture and sports is of great importance. The principle of constant motivation, an active attitude towards arbitrary self-improvement and self-development in sports should be laid at the heart of any physical education program. Motivation to do sports is the most important aspect, in many ways it is not inferior in importance to the training process. It reflects interest in classes, an active and conscious attitude to sports and is one of the factors of successful mastering of the training program and progress. “Motivation is the urge to action; a psycho-physiological process that controls human behavior, capable of determining its direction, organization, activity and stability; a person’s ability to satisfy his own needs”.

Strategies to Apply Sufficiency Economy Philosophy to the Way of Life for Youth in The Greater Mekong Sub-region

This research aimed to study the learning state and knowledge about the sufficiency economy philosophy (SEP) of youth in the Greater Mekong Sub-region to create a strategy to sustainable apply the SEP to the way of life of youth in the Greater Mekong Sub-region, create a map for SEP application to the way of life, and produce the public media to extend application results for benefit. The sample group was key informants: 50 youth students from each institute: Chiang Rai Rajabhat University, Shan State Community College, Luang Nam Tha Teacher Training College, Luang Phrabang Teacher Training College, Dong Kham Chang Teacher Training College, Dong Kham Chang Accounting and Financial Institute, and Dong Kham Chang Agricultural Technical College, 50 experts and scholars, and 50 administrators or professors. The research tool included a questionnaire about the learning state and knowledge about the sufficiency economy philosophy (SEP) of youth in the Greater Mekong Sub-region, a focus group, and a workshop. The result of the workshop of experts, scholars, and administrators or professors from the three countries to draft the strategies was eight strategies and 25 development guidelines. The map for SEP application to the way of life was also produced, and public media to extend application results for sustainable benefit was initiated.

Transitions into adulthood for people with fetal alcohol spectrum disorder: A scoping review of promising practices

Fetal alcohol spectrum disorder (FASD) is a leading known cause of developmental disabilities in Canada. Youth with FASD often experience challenges while transitioning to the expectations of adulthood. Research has demonstrated that appropriate supports in the transition to adulthood and throughout the lifespan may help mitigate these challenges. Literature that examined strategies, programs, and/or supports for youth with FASD entering adulthood was the focus of this inquiry.To better understand the scope and recommendations of strategies, programs, and supports for youth with FASD who are transitioning to adulthood, this scoping review examined peer-reviewed and grey literature from 2005 to 2020 to answer the following questions: (1) What is the scope of existing strategies, programs, and supports for youth with FASD who are transitioning to adulthood?; (2) What recommendations are provided from existing strategies, programs, and supports assisting youth with FASD as they transition to the expectations of adulthood?The scoping review was conducted using the Joanna Briggs Institute methodology. Findings from the review are reported following the Preferred Reporting Items for Systematic Reviews and Meta-Analysis extension for Scoping Reviews (PRISMA-ScR), and the PRISMA extension for searching (PRISMA-S).Twenty-one peer-reviewed sources were included in the final review. Studies largely focused on one of three areas: (1) programs supporting youth with FASD and their families, (2) lived experiences of individuals with FASD during the transition to adulthood, or (3) preventing adverse outcomes. Recommendations from included studies highlighted the importance of programs and supports that demonstrate an understanding of FASD and emphasize relationship-building, the benefits of obtaining an FASD diagnosis, the notable gap in services for individuals who have transitioned to adulthood, and the importance of consistent advocates in the lives of youth with FASD.Implications for educators, employers, service providers, and caregivers who support youth with FASD are discussed.

A tale of two Youth Expert Groups (YEGs): Learnings from youth activism in research in India and Brazil

AbstractThis paper explores how research advisory groups can be a vehicle for youth activism. It draws on our experiences with young activists, aged 15–26 years, in India and Brazil, who were advisors on a research project focused on youth livelihoods in cities. These young people played a vital role in supporting youth researchers, identifying research themes and developing engagement and advocacy strategies. Through this paper, we explore how the Youth Expert Group advisory model evolved differently in each location and examine how these were shaped by the context, the ‘adult’ research team and the youth activists themselves. A critically reflexive response in intergenerational partnership is essential to support youth activists in research activities.

Biography, belonging and legacies of the Yugoslav disintegration wars in the lives of postmigrant youth in Switzerland

ABSTRACTThe article examines the life-stories of three young people who were born in Switzerland, but whose parents fled Bosnia due to the Yugoslav disintegration wars. These biographic portraits present three different ways of relating to and identifying with the country of origin, and (dis)engaging with its violent past. The paper highlights the ways in which young people are exposed to histories of violence and how these become personally relevant to them. One way of relating to this violent past is through family histories and memories, but these often remain obscure and fragmented. At the same time, young people encounter the legacies of the conflict outside the family and the home: in different diasporic and non-diasporic social spaces. The paper identifies the crucial role of diasporic divisions resulting from the conflict, social encounters in different contexts, and exposure to alternative historic narratives, in the development of young people's sense of belonging.

Factors predicting mental health in youth during the first COVID-19 lockdown in Spain

BackgroundThe first COVID-19 lockdown decreed in Spain by the government resulted in a significant disruption in the daily lives of youth that may have affected their mental health. The aim of this study was to identify factors that influenced youth mental health during this period. Methods: Between March and May 2020, a sample of 1205 youths (age range 18–24 years) from across Spain completed a questionnaire that assessed sociodemographic, mental health, loneliness, coping with humour and healthy habits. Data were analysed using Structural Equation Modelling.ResultsThe proposed model showed good fit values, and significant variables explained 37% of mental health. loneliness, coping humour, healthy and unhealthy habits, and gender significantly predicted youth mental health.ConclusionsThe consequences of the pandemic and confinement derived from COVID-19 seemed to be especially severe for youth, increasing their mental health vulnerability. It is recommended that evaluating the long-term effects of confinement on this population, the mental health needs they may have and the support resources that would help meet them in situations of isolation, paying special attention to females.

Innovative Programs with Multi-Service Integration for Children and Youth with High Functional Health Needs.

The integration of care services and providers across the health-social-community continuum has helped improve the lives of many children and youth living with complex health conditions. Using environmental scan data, 16 promising multi-service programs were selected and analyzed qualitatively through a deliberative conversation approach. Descriptive data of analyzed programs are presented, as well as the thematic analysis results. An important program strength is its clear founding principles and engagement of patients and families. However, the scale-up of these initiatives remains a challenge unless such programs can be better financed and supported.