AbstractBackgroundIt is widely theorised that the accumulation of risk factors for neurodegenerative diseases like Alzheimer’s and other dementias likely begins during young adulthood, yet there is limited understanding about how young adults conceptualise their own brain health. The NextGen research programs aims to explore brain health and exposure to risk factors in adults before mid‐life. In this study, we explored young adults’ (18‐39 years) understanding and attitudes towards their brain health.MethodsThis qualitative study recruited community‐based adults aged 18‐39 years from the NextGen Programme of research, a large‐scale, international, multi‐centre research programme. Participants (N = 39; 18 female) had a mean age of 26 years (SD = 3.68) and were equally represented from North America (n = 20) and Europe (n = 19). Most participants identified as Black (76%), followed by White (15%), Asian (6%) and mixed race (3%). Data collection took place over focus groups using video conference technology and a semi‐structured discussion guide. A live Illustrator was present for each focus group to provide an immediate visual output of the group discussion. Data were analysed using thematic analyses by the research team.ResultsPreliminary themes highlight discrepancies between individuals’ awareness and understanding of their brain health, in relation to their general health, family history of dementia and personal experience of brain health issues (e.g., traumatic brain injury). Regarding factors that can positively affect brain health, participants highlighted the importance of rest, good nutrition and physical exercise. Regarding factors that can negatively affect brain health, participants highlighted exposure to racism and discrimination, poor quality sleep, stress, and excessive alcohol consumption. Participants also reported being unsure about many factors, such as screen‐time, cannabis use, engagement with social media and video games.ConclusionFindings from this study are among the first to explore young adults’ perceptions around brain health. We found that young adults had a moderate level of awareness of brain health risk factors, but they often did not connect these factors to risk of Alzheimer’s disease or other dementias. Outputs from this study will be used to inform a large‐scale, international survey to explore brain health awareness, understanding and exposure to risk factors among 18‐39‐year‐olds.
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