Support Group Activities Research Articles

The Different Roles of Help-Seeking Personalities in Social Support Group Activity on E-Portfolio for Career Development

Social Support plays a crucial role between recipients and service providers. It is a strong contributor in reducing the level of uncertainty in a situation, in both relationships with one’s own self, as well as relationships on other levels. It can also be used within a group activity system such as E-Portfolio development. One example of this being the support provided to learners who have reflected on their own experience during a period of transition. However, it is possible that some of the learners who participated in the social support group activity may not have been familiar with the community and may have acted differently, changing their help-seeking style within the group. This research used Activity theory as a tool to define the activity structure and aimed to focus on the working behavior among members of a social support group with different help-seeking personalities. The experiment also revealed the effects of E-portfolio development on self-efficacy skills in career-based decision-making, based on different help-seeking personalities using Pretest–Posttest Nonequivalent Control Group design. Upper secondary school students in Thailand were used as the population in the research. Participants in this study were also students under Royal patronage in grade 11 (n = 80) and there were students from each region of Thailand. These participants attended the guidance and preparation summer camp in collaboration with Chulalongkorn University. It is revealed by the findings that the statistically significant difference is at the level of .05 in Autonomous help-seeking learners and within the subgroup 3, which included Autonomous and Dependent help-seeking learners. The help-seeking personality working styles in the support group are discussed.

Improving Metastatic Breast Cancer Care in Kenya Using Information Technology

Background and context: In Africa, up to two thirds of breast cancer patients have been reported to present with an advanced stage of III or IV at diagnosis leading to a disproportionately higher mortality. In Kenya, breast cancer is the most common cancer in females in terms of diagnosis and mortality. Metastatic breast cancer (MBC) patients are an ignored part of the breast cancer community as they are marginalized in many of the breast cancer related initiatives. MBC suffer from clinical depression, anxiety and four out of five of these women do not receive any services, referral or guidance to help them with their emotional distress. Preferred evidence based methods of support desired by women with MBC, include online support. International resources are not always applicable to the local context thus making them unattractive for people from diverse cultures and background, such as those from Africa. Kenya has a high percentage of literate females and highest Internet usage in the area. This provides a unique opportunity in an otherwise limited resource country to reach out to a significant population of MBC patients. The patients voices are a valuable and trustworthy assessment of their actual needs. They have been used frequently in the area of cancer as a first step in designing needs-tailored interventions. We propose to develop a virtual online forum with the aim of providing patients with MBC, and their caregivers an interactive forum for psycho social support, addressing stigmas, seek relevant clinical advice, find links to the nearest healthcare facilities, download helpful information, participate in support group activities and receive links to other important helpful sites that are locally relevant. We also propose that such forum should also reflect the needs of our patients as described by themselves. Aim: Primary aim of this project is developing a virtual online interactive support forum where MBC patients and their caregivers can access information on social, psychological, spiritual, religious and clinical needs. The purpose is to be partly achieved by assessing the patient needs by needs assessment survey and to evaluate the impact of such intervention on patient knowledge and satisfaction with care. Strategy/Tactics: Web site development is the key component of the project. Patients would be asked to fill out the Supportive Care Needs Survey/The Knowledge Assessment Tool. The surveys will take place at four major cancer treatment hospitals in Kenya. Postlaunch promotion and awareness about Web site will be made and, usage data and knowledge tool to be used to assess the impact and acceptability. Web site updated regularly to address issues identified. Program/Policy process: Information gathered would be made part of policy on national cancer strategy, recommendations to factor in identified patient needs in policy. What was learned: Ongoing process.

A support group activity for first year graduate students

A support group activity for first year graduate students

The Usage of Digital Resources by Swedish Suicide Bereaved in Their Grief Work: A Survey Study.

This study examined Swedish suicide bereaved individuals’ use of different resources in their grief work and how they value these resources. The material consisted of a web-based survey, which was analyzed with quantitative methods. The results showed that the psychosocial ill-health was severe among the suicide bereaved participants and that a majority used digital resources in their grief work. The propensity to engage in online support groups or memorial websites was not predicted by the severity of psychosocial consequences following the suicide. However, multiple regressions showed that higher online support group activity predicted more satisfaction with current psychosocial health, while memorial websites seemed to have the opposite effect. This study not only indicates that some digital resources, for example, online support groups, may be an effective way of coping with grief related to suicide loss, but also suggests that memorial websites may increase rumination and in this way cause emotional distress.

Technology-Supported Group Activity to Promote Communication in Dementia: A Protocol for a Within-Participants Study

Computer Interactive Reminiscence and Conversation Aid (CIRCA)is an interactive conversation support for people living with dementia. CIRCA facilitates one-to-one conversations and caregiving relationships in formal care environments. Originally developed as a standalone device, a new web-based version of CIRCA has been created to increase availability. The potential of CIRCA to support group activities and conversation between people living with dementia and a facilitator has not previously been explored. The two objectives of this study are (i) to validate the new web-based version of CIRCA against the original standalone device, and (ii) to explore the efficacy of CIRCA in supporting group activity for people with dementia in a formal care setting. This mixed-methods study comprises two parts: (i) an eight-session group activity using the CIRCA stand-alone device, and (ii) an eight-session group activity using the web-based CIRCA. One hundred and eighty people with dementia will be recruited: 90 for part (i) and 90 for part (ii). Measures of cognition and quality of life will be taken at the baseline, post-CIRCA intervention, and three months later, plus video recordings of the group sessions. Both parts of the study will be completed by June 2018. The study will provide evidence on two issues: (i) a validation of the new web-based version of CIRCA, and (ii) the suitability of CIRCA to support group activities in formal care settings for people living with dementia. This protocol is an extended version of the short paper presented at the AAATE 2017 conference and published in Studies in Health Technology & Informatics.

‘I am not alone’ – an ethnographic research on the peer support among northern-Finnish children with hearing loss

ABSTRACTThis study focused on the peer support group activities organized in two northern-Finnish places for children with hearing loss and their experiences of it. This was an ethnographic child research, in which the research participants were 16 (12 girls, 4 boys, aged 7-17 years) northern-Finnish children with hearing loss. The main research data consisted of the researcher’s field notes and diaries, and focus group interviews among the research participants. Additional research data consisted of various questionnaires and background information. Peer support group activities provided children with hearing loss social, functional, cognitive, and emotional peer support. The benefits of peer support were:(1) peer support group activities provided information and coping skills for the children’ daily lives;(2) participation in group activities and group discussions strengthened the children’s social competence; and (2) peer support group activities empowered the participants. The importance of social relationships is discussed based on the findings.

Long-Term Antiretroviral Treatment Adherence in HIV-Infected Adolescents and Adults in Uganda: A Qualitative Study.

BackgroundLong-term success of HIV antiretroviral therapy requires near-perfect adherence, maintained throughout one’s lifetime. However, perceptions towards ART and patterns of adherence may change during the life course. We assessed challenges to long-term adherence in adolescents and adults in three regional HIV treatment centers in Uganda.MethodsWe conducted 24 in-depth interviews and 2 focus group discussions with a total of 33 health-care providers and expert clients (HIV patients on long-term ART who assist with adherence support of fellow patients). Interview topics included experiences with patients on long-term treatment with either declining adherence or persistent poor adherence. Transcribed texts were coded and analyzed based on the social-ecological framework highlighting differences and commonalities between adolescents and adults.ResultsThe overarching themes in adolescents were unstructured treatment holidays, delays in disclosure of HIV status by caretakers, stigma, which was mainly experienced in boarding schools, and diminishing or lack of clinical support. In particular, there was minimal support for early and gradual disclosure for caretakers to the infected children, diminishing clinical support for young adults during transition to adult-based care and declining peer-to-peer support group activities. The predominating theme in adults was challenges with treatment access among temporary economic migrants. Common themes to adults and adolescents were challenges with disclosure in intimate relationships, treatment related factors including side effects, supply of single tablets in place of fixed-dose combined drugs, supply of drug brands with unfavorable taste and missed opportunities for counseling due to shortage of staff.ConclusionAdherence counseling and support should be adapted differently for adolescents and adults and to the emerging life course challenges in long-term treated patients. Programs should also address constraints experienced by temporary economic migrants to ensure continuity of treatment within the host country.

MobiGroup: Enabling Lifecycle Support to Social Activity Organization and Suggestion With Mobile Crowd Sensing

This paper presents a group-aware mobile crowd sensing system called MobiGroup, which supports group activity organization in real-world settings. Acknowledging the complexity and diversity of group activities, this paper introduces a formal concept model to characterize group activities and classifies them into four organizational stages. We then present an intelligent approach to support group activity preparation, including a heuristic rule-based mechanism for advertising public activity and a context-based method for private group formation. In addition, we leverage features extracted from both online and offline communities to recommend ongoing events to attendees with different needs. Compared with the baseline method, people preferred public activities suggested by our heuristic rule-based method. Using a dataset collected from 45 participants, we found that the context-based approach for private group formation can attain a precision and recall of over 80%, and the usage of spatial–temporal contexts and group computing can have more than a 30% performance improvement over considering the interaction frequency between a user and related groups. A case study revealed that, by extracting the features such as dynamic intimacy and static intimacy, our cross-community approach for ongoing event recommendation can meet different user needs.

Shared mobile displays: an exploratory study of their use in a museum setting

We conducted an exploratory study that examines the use of shared mobile displays such as mobile projectors and tablets to support group activities. We compare how a small group of visitors use either a shared display or personal individual devices in a museum visit context, in both a navigation task and a media viewing task. Group proximity, decision making, leadership patterns, and interaction between group members as well as attitudes are analyzed. We report on various usage patterns observed with group use of shared displays and discuss user preferences in comparison with the non-shared handheld alternative. Results show how mobile shared displays can support and enhance the group experience, by providing a shared mobile environment. Mobile shared displays increase group cohesiveness as was shown by increased proximity and amount of discussion by participants. Users perceive the use of shared displays as both useful and enjoyable, with the caveat that many users still want to retain individual control. We discuss this trade-off between groupness and individual control, as well as provide an analysis of the relative advantages of each shared display option.

Rehabilitation following cerebral anoxia: An assessment of 27 patients

Objectives: (1) To evaluate cognitive and emotional impairments, disability and quality-of-life for adults with cerebral anoxia institutionalized in residential care facilities. (2) To evaluate the efficacy of medication, psychotherapy, support group and therapeutic activities.Methods: Twenty-seven persons with cerebral anoxia were recruited, on average 8 years post-injury. Only 20 went through the whole study. Over three consecutive 2-month periods, they were assessed four times to evaluate: baseline observations (T1–T2), adjustment of their medication (T2–T3); and the effect of psychotherapy, support group and therapeutic activities such as physical and artistic or cultural activities usually proposed in the facilities involved (T3–T4). Examined variables at all time points were cognitive status, anxiety and depression, anosognosia, alexithymia, disability and quality-of-life.Results: All participants exhibited cognitive and emotional impairments comparable to those reported in the literature. Statistical analyses revealed good baseline stability of their condition and no significant effects of changes in medication (between T2 and T3). Conversely, following implementation of psychotherapy, support group and therapeutic activities (between T3 and T4), quality-of-life and social participation were significantly improved.Conclusion: Social participation and quality-of-life for persons instutionalized several years after cerebral anoxia were improved by psychotherapeutic and therapeutic activities.

Gender and Children as the Moderators of the Relationship between Social Support and Quality of Life: An Empirical Study of People Living with HIV/AIDS in Ghana

Although gender differences persist in the receipt of social support and the report of quality of life among people living with HIV/AIDS in Sub-Saharan Africa, the knowledge base on this topic is scant. For those living with HIV/AIDS, women tend to participate more than men in support group activities, but their gender predisposes them to lower quality of life. Therefore, this study seeks to determine what demographic factors moderate the relationship between social support and quality of life among those living with HIV/AIDS in Ghana. A convenience sample of 300 HIV/AIDS support group members who have experience participating in research studies and was obtained for use via cross-sectional design survey in September and October 2013. The Medical Outcome Studies (MOS) HIV Health Survey, the MOS Social Support Survey, and demographic questionnaire instruments were used to assess quality of life, social support, and demographic information respectively. Gender (male) F(3, 296) = 66.04, t = 2.26, p = .024) and having children (have children) (F(5, 294) = 40.34, t = 2.50, p = .013) moderated the relationship between social support and quality of life. Implications of the findings for practice, policy, and research in Ghana and the rest of the developing world were discussed.

IMPLEMENTASI PROGRAM IPTEK BAGI MASYARAKAT KELOMPOK PERAJIN LIMBAH PLASTIK DI KELURAHAN KARUNRUNG DAN MAKKIO BAJI KECAMATAN RAPPOCINI KOTA MAKASSAR

This article describes the results of the Science and Technology for Society (IBM) for training, coaching and mentoring on Craft Group Karunrung Plastic Waste in the village and sub-district Bontomakio Rappocini Makassar. This activity aims to : (1) increase the motivation for entrepreneurship partner members, (2) enhance the ability of members of the technical partners in production and marketing, (4) increase the number and quality of the production of associate members, (4) improving the understanding and participation of associate members of the plan business and good management. Outcomes achieved from this program are : (1) increasing the entrepreneurial spirit and the spirit of partner members in an effort to support group activities, (2) the group has the knowledge and skills partners and pemasaan production, (3) with the increasing productivity partner group, (4) group partners have the ability to make a simple business plan, established institutional partner organizations, (5) increased faculty attention to the group of crafters Nobel STIE plastic waste, and (6) increased activity in the development of science and technology STIE Nobel Indonesian. While the physical outcomes of this program is in the form of object carried in the hand bag, school bag, decoration curtains, different types of flowers (flowervase ), key chains, glass cover, water spots and other minirel.

The Value of Support Group Participation in Influencing Adherence to Antiretroviral Treatment among People Living with Human Immunodeficiency Virus (HIV)

Advances in antiretroviral therapy for both Human Immunodeficiency Virus (HIV) treatment and prevention have increased interest in adherence to HIV treatment. This is because the individual patient and public health benefits of antiretroviral treatment (ART) greatly depend on the extent to which people living with HIV (PLHIV) adhere to the prescribed daily dosing regimens. Studies have shown that nonadherence to ART increases drug resistance, morbidity and person-to-person HIV transmission. Public health experts are trying different innovations to enhance ART adherence, including promoting support groups of PLHIV. The purpose of this study was to determine the value of support group participation in enhancing ART adherence. The study used a cross-sectional design to compare ART adherence among PLHIV who participate in support group activities and those who do not. Respondents were adults who were initiated on ART between January 1, 2010 and December 31, 2012. Multistage probability sampling was used to select study sites and respondents. Data was collected using a self-administered questionnaire from 1676 respondents between February and May 2014. Data was analyzed using STATA. Univariate analysis was carried out to generate descriptive statistics, while Chi-square tests were used to examine if there was an association between participation in support group activities and antiretroviral treatment adherence. ART adherence was self-reported by 745/788 (95%) and 814/888 (92%) respondents who had ever and had never participated in support group activities respectively. Among respondents who reported nonadherence to ART, 74/117 (8%) had never participated in support group activities compared to just 43/117 (5%) who participated in support group activities. These findings suggest that PLHIV who participate in support group activities are more likely to adhere to ART than those who do not participate. This implies that there is value in participating in support groups by PLHIV in terms of ART adherence.

Young adults’ childhood experiences of support when living with a parent with a mental illness

There are several concerns in relation to children living with a parent suffering from a mental illness. In such circumstances, the health-care professionals need to involve the whole family, offering help to the parents on parenting as well as support for their children. These children are often helped by participating in meetings that provide them with contact with others with similar experiences. The aim of this study was to investigate young adults' childhood experiences of support groups when living with a mentally ill parent. Seven young women were chosen to participate in this study. A qualitative descriptive method was chosen. The main category emerged as 'the influence of life outside the home because of a parent's mental illness' from the two generic categories: 'a different world' and 'an emotion-filled life'. The participants' friends did not know that their parent was ill and they 'always had to…take responsibility for what happened at home'. These young adults appreciated the support group activities they participated in during their childhood, stating that the meetings had influenced their everyday life as young adults. Despite this, they associated their everyday life with feelings of being different. This study highlights the need for support groups for children whose parents suffer from mental illness.

The Role of Mutual Support Groups for the Control of Diabetes in a Mexican City: Achievements and Limitations from the Patients’ Perspective

Background: Mutual Support Groups (MSG) provides to the patient, the ability to effective self-management behaviors, such as taking prescribed medications, following diet and exercise regimens, self-monitoring, and coping emotionally with the rigors of living with diabetes. Physicians, nurses and health promoters from public primary Health Care Centers (HCC) are responsible for providing follow-up care through MSGs. However, although the MSG program has been carried out, in the last decade Mexico presents the most alarming statistics in the prevalence and complications of Diabetes Mellitus type II (DM-II), suggesting a low impact of MSG in the strategy to support the effective control of the disease. Objetive: The aim of this work was to assess whether knowledge or benefits of effective management to control of DM-II, also to identify strengths and limitations of MSGs, in six different Health Care Centers (HCC), in San Luis Potosi, Mexico. This research provides an overview of patients’ perception, and significant issues that demand to adjust MGSs strategies, with the goal of exceed the expectations of current health statistics. Methods: A qualitative evaluation was carried out, with an ethnographic approach design. The study included 28 diabetic persons, (21 women and 7 men from ruraland urban carecenters). Semi-structured interviews, non-participant observation, and structured content analysis were used. Results: Support groups give patients a way to address emotional issues, and learn about their disease and self-care, although some patients consider participation an inconvenient obligation. Support group users mention barriers such as lack of continuity in support group activities, inconvenient meeting times, and the difficulty of commuting to attend group sessions. They also mention that overworked health care workers find it difficult to provide leadership to keep the group going. These issues have multiple implications for the success of strategies to control the disease. Conclusions: This study shows the need to apply a participatory model to disease support group strategies to reorganize their actions in such a way as to meet the needs and requirements of patients and to ensure their participation and help them control their disease.

P3‐412: The impact of Alzheimer's support group activities on relatives of patients in long‐term care facilities

P3‐412: The impact of Alzheimer's support group activities on relatives of patients in long‐term care facilities

Peer‐led diabetes self‐management programme for community‐dwelling older people in China: study protocol for a quasi‐experimental design

A protocol for a new peer-led self-management programme for community-dwelling older people with diabetes in Shanghai, China. The increasing prevalence of type 2 diabetes poses major public health challenges. Appropriate education programmes could help people with diabetes to achieve self-management and better health outcomes. Providing education programmes to the fast growing number of people with diabetes present a real challenge to Chinese healthcare system, which is strained for personnel and funding shortages. Empirical literature and expert opinions suggest that peer education programmes are promising. Quasi-experimental. This study is a non-equivalent control group design (protocol approved in January, 2008). A total of 190 people, with 95 participants in each group, will be recruited from two different, but similar, communities. The programme, based on Social Cognitive Theory, will consist of basic diabetes instruction and social support and self-efficacy enhancing group activities. Basic diabetes instruction sessions will be delivered by health professionals, whereas social support and self-efficacy enhancing group activities will be led by peer leaders. Outcome variables include: self-efficacy, social support, self-management behaviours, depressive status, quality of life and healthcare utilization, which will be measured at baseline, 4 and 12 weeks. This theory-based programme tailored to Chinese patients has potential for improving diabetes self-management and subsequent health outcomes. In addition, the delivery mode, through involvement of peer leaders and existing community networks, is especially promising considering healthcare resource shortage in China.

The Impact of Alzheimer's Support Group Activities on Relatives of Patients in Long Term Care Facilities

The Impact of Alzheimer's Support Group Activities on Relatives of Patients in Long Term Care Facilities

The role of the Internet in supporting and informing carers of people with cancer: a literature review

The Internet is an expanding source of information and support for cancer patients and their families. Studies mostly report patient Internet use. Little is known about how carers (families/informal caregivers/friends) use the Internet and what they find useful. The aim of this paper was to review the literature on the role of the Internet in supporting and informing carers of people with cancer. Findings are based on a review of published studies identified from 1996-2009 Ovid MEDLINE, CINAHL, EMBASE and 2002-2009 PsycINFO, Cochrane database and Google Scholar. Key search words used were cancer, patient, information, Internet, online, web, support, family, carer, caregiver and friend. One hundred forty-five abstracts were reviewed. Fifty-two articles were retrieved in full text. Twenty of the 52 articles were critically appraised using the appropriate Critical Appraisal Skills Programme tool. All studies retrieved were level IV evidence. Most compared carer and patient Internet use with other cancer information sources or analysed content of postings to web sites. Some reported on patient 'indirect' Internet use through carers. Heterogeneity of results related to different study aims, diversity in study tools, varying sample sizes and differing cancer populations. Broadly, Internet use can be divided into information searching and support group activity. Carers access Internet information to problem solve; however, they report doctors as their most preferred information source. They would like to have e-mail communication with Health Care Professionals to ask questions and clarify information. Participation in online support groups provides information tailored to individual needs and peer support. The Internet may be a primary or secondary source of information and can be used to access services. Routine assessment of carers' Internet use, prescribing of Internet sites and e-mail communication with carers are possible areas for practice improvement. The current level of evidence is not ideal to influence policy development. Research is required to evaluate carer Internet use in the rapidly changing world of health and technology. Interactive Internet applications developed specifically for carer use have the potential to prepare, inform and support the carer in their ever-expanding health care role. The impact of these services on carer quality of life also requires investigation.

A group recommendation system for online communities

Online communities are virtual spaces over the Internet in which a group of people with similar interests or purposes interact with others and share information. To support group activities in online communities, a group recommendation procedure is needed. Though there have been attempts to establish group recommendation, they focus on off-line environments. Further, aggregating individuals’ preferences into a group preference or merging individual recommendations into group recommendations—an essential component of group recommendation—often results in dissatisfaction of a small number of group members while satisfying the majority. To support group activities in online communities, this paper proposes an improved group recommendation procedure that improves not only the group recommendation effectiveness but also the satisfaction of individual group members. It consists of two phases. The first phase was to generate a recommendation set for a group using the typical collaborative filtering method that most existing group recommendation systems utilize. The second phase was to remove irrelevant items from the recommendation set in order to improve satisfaction of individual members’ preferences. We built a prototype system and performed experiments. Our experiment results showed that the proposed system has consistently higher precision and individual members are more satisfied.