Support Of Family Members Research Articles

Digital Natives and Community Resilience: An Exploration of AAPI Families’ Digital Technology Use

The current study adopted community resilience and explored Asian American and Pacific Islander (AAPI) digital natives’ supporting family members’ digital technology use and outcomes related to engagement. A sample of 29 AAPI late adolescents answered open-ended questions about the challenges, benefits, and familial dynamics when the group helped or instructed older family members in using digital technologies. Findings showcased complex intergroup dynamics between digital natives and their family members, including increased mutual respect, greater communication access, and worry of family members’ physical ailments interrupting digital technology use. Outcomes demonstrated how AAPI digital natives, amid family systems, embraced collectivist tendencies as a means of resilience amid the ongoing challenges related to digital technology use.

LEGAL NATURE OF SINGLE CASH AID IN THE CASE OF THE DEATH OF A MILITARY SERVANT

The article is devoted to the clarification of the legal nature of one-time monetary assistance in the event of the death of a serviceman, as well as the corresponding personal order regarding this assistance in the event of his death. It is a well-founded position that such assistance is not an element of the composition of the inheritance, taking into account its specific features. Thus, unlike the heirs, recipients of the aid under investigation do not acquire the duties of a deceased serviceman and are not required to notify creditors of the latter’s death. In addition, the right to receive a one-time cash benefit in the event of the death of a serviceman is exercised within three years from the date of the emergence of such a right, which is related to the date specified in the person’s death certificate. Recipients of one-time cash assistance do not coincide with the circle of heirs according to the law of the first order. It is emphasized that the terminology of inheritance law does not apply to such assistance. In particular, persons who are entitled to receive a one-time cash benefit are not named as heirs, the time of the death or death of a serviceman is not indicated as the time of the opening of the inheritance, etc. The right to receive the researched assistance arises as a result of the person’s death, which makes inheritance impossible in this case. The essence of universal legal succession is the transfer of rights and obligations from the testator to his heirs. It is emphasized that the one-time monetary assistance in the event of the death of a serviceman has a compensatory nature, which is aimed at materially supporting family members (parents, children, spouse) and dependents of a deceased serviceman after the loss of a loved one. A military serviceman’s personal order to pay a one-time cash benefit to a certain person in the event of his death (death) is not a type of will. In its essence, this personal order is close to the order of a depositor of a bank (financial institution) in the event of his death, which is defined in Part 1 of Art. 1228 of the Civil Code of Ukraine.

Older People Living Alone and Their Strategies to Face Life: Case Studies from Yogyakarta and West Sumatra

Across Indonesia, the dominant model for care and support in later life is for older people to live with or near younger family members. However, coresidence with an adult child or other close relative is not always attainable or preferred. There are conditions where older people live alone and cannot fully depend on their family members for care and support, be it for matters related to physical, economic, psychological, or spiritual needs. We examine how older people who live alone, live their lives and what strategies they pursue in facing life. The data presented in this paper are a subset of a larger comparative study on Older People’s Care Networks, which covered five disparate sites across Indonesia. This article focuses on evidence from West Sumatra and Yogyakarta. As our case studies illustrate, older people living alone is a diverse category, ranging from those with children, to those who are de facto childless or actually childless. Their security or vulnerability cannot simply be deduced from their household composition, but they require the understanding of how people create, maintain, and develop supportive networks and how they use agency in actively managing dependence, independence, and interdependence over the life course and in later life.

Family Involvement During Comprehensive Developmental Evaluations: Perspectives of Diverse Mothers.

Early diagnosis and social support postdiagnosis (i.e., family involvement) can lead to improved outcomes for children with autism spectrum disorder (ASD) and other developmental disorders. Children of minority ethnic and racial groups are typically diagnosed later in childhood compared with White children, contributing to disparities in outcomes. Research has not yet explored family involvement during comprehensive developmental evaluations nor accounted for cross-cultural differences in family roles and involvement. This qualitative study sought to characterize the nature and impact of family involvement during the developmental evaluation process among racially and ethnically marginalized mothers of children with developmental delays and possible ASD. Mothers (N = 27) of children who had a positive autism screen during their 18- or 24-month well-child visit but did not receive an ASD diagnosis after comprehensive developmental evaluation participated in individual semi-structured interviews exploring experiences with developmental screening, related services, and family involvement/social support. Qualitative data were transcribed, coded, and analyzed using applied thematic analysis. Data were stratified by partner status (i.e., partnered vs. nonpartnered) to examine differences in support and family involvement across varying family compositions. Three qualitative themes emerged: (1) mothers sought family involvement when making decisions about pursuing developmental evaluations, (2) family involvement affected mothers' navigation of logistical challenges, and (3) mothers involved family members for emotional support. Differences by partner status emerged in themes 1 and 2. Findings highlight benefits of and potential approaches to harnessing family involvement to support parents' navigation of the developmental evaluation process and ultimately improve child outcomes.

Piloting and watch over in the end-of-life care of intensive care unit patients with COVID-19-A qualitative study.

During the COVID-19 pandemic, intensive care units (ICUs) were under heavy pressure, with a significantly increased number of severely ill patients. Hospitals introduced restrictions, and families could not visit their ill and dying family members. Patients were cared for without privacy, and several died in shared patient rooms, leaving the intensive care nurse to protect the patient's need for loving care in a vulnerable situation at the end of life. This study aimed to investigate how piloting and watch over were revealed in end-of-life care for patients with COVID-19 in intensive care COVID-19. A qualitative study was conducted with an abductive approach was conducted. Data were collected via semi-structured interviews to cover the research area while allowing the informant to talk freely about the topic; 11 informants were interviewed. The findings are presented based on four categories: The road to the decision, End-of-life care, Farewell of close family members and Closure. Each category and subcategory reveal how piloting and watch over were addressed in the end-of-life care of patients with COVID-19 in the ICU during the pandemic. Overall findings indicated that workload and organization of care directly affect the quality of care given, the acceptance of privacy and the possibility of dignified end-of-life care. Workload directly affects the quality of care, risking dehumanization of the patient. Visiting restrictions hindered supporting family members through the various piloting phases. Visiting restrictions also forced the ICU nurses to take on the role of the relative in watching over the patient. Collaboration with family members is essential for the intensive care nurse to be able to provide a person-centred and dignified end-of-life care.

THE ROLE OF PSYCHOLOGY IN PEDIATRIC PALLIATIVE CARE: A participant observation experience report

Hospitalization in childhood can be characterized as a stressful and distressing event for patients and families, especially in cases of illnesses or chronic conditions that require pediatric palliative care (PPC). The hospital psychologist who works in PPC contributes, among other things, to minimize the suffering resulting from illnesses. The purpose of this article was to report the experience of participant observation, as a field activity of a Psychology guided research practice discipline, about the work in PPC of a psychologist in a public hospital in the South of Brazil. This is an observational study, of a qualitative and descriptive nature, of six episodes of participant observation recorded by a Psychology undergraduate in a field diary and analyzed through categorical content analysis. During the observations, the psychologist worked with nine companions and eleven children in hospitalized PPC. It was found that the most required activities for the psychologist were the following categories: listening and supporting family members, to express emotions and encourage self-care; mediation between family members and the healthcare team, for better communication; playful activities with children, to distract and form bonds; and doing records in medical records, to inform and guide the team. In the field of PPC, the psychologist's work must be based on a biopsychosocial perspective of individuals, with the purpose of promoting comprehensive and humanized care. However, considering the complexities present in PPC and the tensions inherent to the hospital context, the psychologist must also be aware of his self-care needs during his professional practice.

Supporting Bereaved Family Members: A Qualitative Interview Study on the Experience of Bereavement Counselling by the Bereavement Network Lower Saxony (BNLS) in Germany for Parents Who Have Lost Children or Teenagers.

The "Trauer Netzwerk Niedersachsen" ("Bereavement Network Lower Saxony" (BNLS)) aims at supporting families after the loss of a child or teenager due to various causes. This study aims to describe the experiences of bereaved family members with the BNLS counsellors. 12 semi-structured interviews were conducted with parents who had received or were currently receiving BNLS counselling. The interviews revealed the vital role counselling played aiding individuals cope with their grief. Participants valued the bereavement support, which was often lacking in their personal support networks. Counselling assisted parents in returning to daily life and caring for loved ones. Discussing "death" and "dying" helped participants find peace with their loss. Our findings suggest that bereavement counselling should be considered an essential component of healthcare for family members dealing with the loss of a child. Additionally, there is need for awareness and publicity for both the BNLS and its bereavement counselling services.

Critical care nurses' experiences of ethical challenges in end-of-life care.

In Swedish intensive care units, nine percent of patients do not survive despite receiving advanced life-sustaining treatments. As these patients transition to end-of-life care, ethical considerations may become paramount. To explore the ethical challenges that critical care nurses encounter when caring for patients at the end of life in an intensive care context. The study used a qualitative approach with an interpretive descriptive design. Twenty critical care nurses from eight intensive care units in an urban region in Sweden were interviewed, predominately women with a median age of fifty-one years. This study was approved by The Swedish Ethics Review Authority. Critical care nurses described encountering ethical challenges when life-sustaining treatments persisted to patients with minimal survival prospects and when administering pain-relieving medications that could inadvertently hasten patients' deaths. Challenges also arose when patients expressed a desire to withdraw life-sustaining treatments despite the possibility of recovery, or when family members wanted to shield patients from information about a poor prognosis; these wishes occasionally conflicted with healthcare guidelines. The critical care nurses also encountered ethical challenges when caring for potential organ donors, highlighting the balance between organ preservation and maintaining patient dignity. Critical care nurses encountered ethical challenges when caring for patients at the end of life. They described issues ranging from life-sustaining treatments and administration of pain-relief, to patient preferences and organ donation considerations. Addressing these ethical challenges is essential for delivering compassionate person-centered care, and supporting family members during end-of-life care in an intensive care context.

Chapter 6: What Else Can I Do with This Equipment?

AbstractIf there is sound in the ear canal, you can measure it with a probe microphone in the ear. The following are a few examples of how you might use your real-ear probe microphone measures beyond verifying hearing aid fittings, signal processing, and function of features. A process to simulate hearing loss to educate and support family members and patients is described.

Families’ moral distress when supporting military Veteran and public safety personnel mental health: Conceptual model

LAY SUMMARY Families offer vital mental health and well-being support to Veterans and public safety personnel. This study offers a model of how families can experience moral distress from service cultures that exclude them, leaving families stuck, exacerbating a sense of moral distress resulting from perceived organizational betrayal felt in the context of families’ help-seeking experiences. The model was informed by in-depth interviews conducted in Australia with 25 family members with experience seeking help and providing support to a family member who is a Veteran or public safety personnel. The interviews provided a detailed description of how embedded and aligned families were to a member’s service role, and their profound sense of betrayal and distress when attempts to support family members’ mental health were thwarted. Families may experience moral distress from identifying the problem and potential support solutions, but having nowhere to go to realize those supports for their family member. The implications for Veteran and public safety organizations as well as health professionals to promote more meaningful involvement of families is discussed.

Utilisation of palliative/ end-of-life care practice recommendations in the burn intensive care unit of a Ghanaian tertiary healthcare facility: An observational study

BackgroundThe need to integrate palliative/end-of-life care across healthcare systems is critical considering the increasing prevalence of health-related suffering. In burn care, however, a general lack of practice recommendations persists. Our burn unit developed practice recommendations to be implemented and this study aimed to examine the components of the practice recommendations that were utilised and aspects that were not to guide further training and collaborative efforts. MethodsWe employed a prospective clinical observation approach and chart review to ascertain the utilisation of the recommendations over a 3-year period for all burn patients. We formulated a set of trigger parametres based on existing literature and burn care staff consultation in our unit. Additionally, a checklist based on the practice recommendations was created to record the observations and chart review findings. All records were entered into a secure form on Google Forms following which we employed descriptive statistics in the form of counts and percentages to analyse the data. ResultsOf the 170 burn patients admitted, 66 (39%) persons died. Although several aspects of each practice recommendation were observed, post-bereavement support and collaboration across teams are still limited. Additionally, though the practice recommendations were comprehensive to support holistic care, a preponderance of delivering physical care was noted. The components of the practice recommendations that were not utilised include undertaking comprehensive assessment to identify and resolve patient needs (such as spiritual and psychosocial needs), supporting family members across the injury trajectory, involvement of a palliative care team member, and post-bereavement support for family members, and burn care staff. The components that were not utilised could have undoubtedly helped to achieve a comprehensive approach to care with greater family and palliative care input. ConclusionWe find a great need to equip burn care staff with general palliative care skills. Also, ongoing collaboration/ partnership between the burn care and palliative care teams need to be strengthened. Active family engagement, identifying, and resolving other patient needs beyond the physical aspect also needs further attention to ensure a comprehensive approach to end of life care in the burn unit.

All in the family: The complementary protective roles of spousal and other family support for Chinese immigrant mothers' life satisfaction over time.

The demand-resources model of stress posits that parenting tasks and expectations of mothers that exceed their resources are likely to tax their psychological well-being. Social and instrumental support from spouse or family may help alleviate the negative effects of parenting stress on mothers' psychological well-being. However, parenting stress and its impact have been less studied among immigrant mothers. Moreover, the sources of family support (i.e., spousal and other family members) might interactively affect mothers' well-being in the face of parenting stress. Therefore, the present study aimed to examine whether support from the spouse and other family members jointly buffers against the long-term psychological effects of parenting stress on Chinese immigrant mothers' life satisfaction. Data were collected from 273 Chinese American mothers at two time points separated by 6 months. A three-way interaction was conducted to examine the complementary protective effect of perceived support mothers received from their spouses and their other family members combined. Results showed that after controlling for the covariates, parenting stress was only longitudinally associated with changes in maternal life satisfaction when support from both spouse and other family members was low. Our findings highlight the complementary protective effects of spousal support and nonspouse family members' support in alleviating parenting stress of mothers and its adverse impact on lowering mothers' life satisfaction 6 months later. Theoretical and applied implications of these findings are discussed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

Who is most vulnerable? Factors associated with presenting to antenatal care without a male partner in Northern Tanzania

ObjectiveMale engagement in pregnancy care can be beneficial for maternal and child health outcomes. In Tanzania, pregnant women are strongly encouraged to present to their first antenatal care (ANC) appointment with a male partner, where they jointly test for HIV. For some, this presents a barrier to ANC attendance. The objectives of this study were to identify factors associated with presenting to ANC with a male partner using a cross-sectional design and to assess whether women presenting without partners had significantly delayed presentation. MethodsPregnant women (n = 1007) attending a first ANC appointment in Moshi, Tanzania were surveyed. Questions captured sociodemographic characteristics and measures of psychosocial constructs. ResultsJust over half (54%) of women presented to care with a male partner. Women were more likely to present with a male partner if they were younger than 25 years old, married, Muslim, attending ANC for their first pregnancy, and testing for HIV for the first time. Women presenting to ANC with a male partner were significantly more likely to attend ANC earlier in their pregnancy than those presenting without male partners. ConclusionPolicy change allowing women to present to care with other supportive family members could promote earlier presentation to first ANC. Unmarried women may be at a disadvantage in presenting to ANC when policies mandate attendance with a male partner. Male partners of multiparous women should be encouraged to provide pregnancy support even after first pregnancies, and a wholistic emphasis (beyond HIV testing) on first ANC could encourage male engagement beyond the initial appointment.

Heart Failure Nurses within the Primary Care Setting.

Cardiology services within primary care often focus on disease prevention, early identification of illness and prompt referral for diagnosis and specialist treatment. Due to advances in pharmaceuticals, implantable cardiac devices and surgical interventions, individuals with heart failure are living longer, which can place a significant strain on global healthcare resources. Heart failure nurses in a primary care setting offer a wealth of clinical knowledge and expertise across all phases of the heart failure trajectory and are able to support patients, family members and other community services, including general practitioners. This review examines the recently published evidence on the current and potential future practice of heart failure nurses within primary care.

"It's Opened My Eyes to a Whole New World": Positive Behaviour Support Training for Staff and Family Members Supporting Residents With Dementia in Aged Care Settings.

This study examined the acceptability and usefulness of Positive Behaviour Support (PBS) training in enhancing the capabilities of support staff and family members providing behaviour support to residents with dementia in residential aged care (RAC). A mixed-methods pilot study was conducted across 3 RAC organisations, involving pre- and post-training questionnaire assessments for clinical leaders (n = 8), support staff (n = 37) and family members (n = 18). Findings indicated increased confidence among support staff and family members in providing behaviour support, with 96% indicating it would support their practices across settings. Key training benefits included identifying and addressing underlying causes of challenging behaviours. A majority (89%) expressed the need for further behaviour support training. Recommendations focus on developing systems to enable effective and collaborative behaviour support practices. Further research is needed to examine application of PBS principles and planning for residents living with dementia.

Use of the 3 Wishes Project to Help Individualize End-of-Life Care in a Medical Intensive Care Unit.

Multiple organizations recommend that individualized end-of-life (EOL) care should be standard practice. However, a standardized approach does not exist because EOL care should be individually tailored. The 3 Wishes Project is an EOL intervention that provides direction for individualized care with 3 goals: dignify death, celebrate the patient's life, and support family members and the intensive care unit clinicians caring for the patient. Patients and families are given the opportunity to choose 3 wishes during the dying process. To ascertain if the implementation of the 3 Wishes Project allowed the medical team to provide individualized EOL care. The Iowa Model was used for this evidence-based project. The project was implemented in the medical intensive care unit at an academic medical center. Outcomes were evaluated by the collection and analysis of qualitative and quantitative data. From the 57 patients who died during the 2-month implementation period, 32 wish forms were collected; 31 patients participated and 1 declined. Overall participation among patients was 56%. The top 5 wishes were cloth hearts, blankets, heartbeat printouts, fingerprints and handprints, and music. The total cost was $992, and the average cost per wish was $6.98. Eighty-five percent (33 of 39) of the respondents to the medical team survey indicated that they either agreed or strongly agreed that the project allowed the medical team to consistently provide individualized EOL care. The survey data support the 3 Wishes Project as a method that allowed the medical team to individualize EOL care and as a valuable tool for incorporation at the bedside.

Characteristics of domestic violence perpetrators with dementia from police records using text mining.

Few studies have examined the characteristics of domestic violence (DV) committed by people with dementia. We provide an overview of DV perpetrated by people with dementia in the community based on police reports of attendances at DV events. A text mining method was used on 416,441 New South Wales (NSW) police narratives of DV events from January 2005 to December 2016 to extract information for Persons of Interest (POIs) with mentions of dementia. Events involving those with dementia accounted for a relatively low proportion of total DV events (<1%). Of the 260 DV events with a dementia mention for the POI, the most common abuse types were assault (49.7%) and verbal abuse (31.6%). Spouses were the largest group of victims (50.8%) followed by children (8.8%). Physical abuse was common, occurring in 82.4% of events, but injuries were relatively mild. Although weapons were infrequently used, they were involved in 5% of events, mostly by POIs aged 75 years and older. Similarly, the POIs were mainly aged 75+ years (60%), however the proportion of those aged <65 was relatively high (20.8%) compared to the reported prevalence of dementia in that age group. This study demonstrates that some cases of DV perpetrated by people with reported dementia are significant enough to warrant police involvement. This highlights the need to proactively discuss the potential for violence as part of the holistic management and support family members, particularly those caring for people with young-onset dementias.

The Lived Experience of Family Support Among Women During and After Childbirth in Jordan: A Phenomenological Study.

Many studies highlight the importance of family support in enhancing the experience of childbirth among women. This qualitative study aimed to describe the lived experience of family support from the perspective of women during and after childbirth in the Jordanian context. A qualitative descriptive phenomenological approach was used to explore the experiences of women's family support in the context of their childbirth experiences. A total of 11 Jordanian women participated in the study. Face-to-face semi-structured interviews were conducted to collect data. Four major themes emerged from the data describing family support provided to women during and after childbirth. These themes were family support during childbirth, family support in the postpartum period, importance of family support during and after childbirth, and challenges related to receiving family support. Supportive family members primarily included the husband, the woman's family, and the family-in-law, according to the traditions inherited in the Jordanian context and culture. The study findings could help maternal health professionals screen pregnant women who are at risk of receiving low family support, contribute to developing effective interventions regarding family-centered care, and enhance the overall childbirth experience for women in Jordanian cultural contexts.

Assessment of the Challenges in Care of Patients with Substance Use Disorder among Caregivers at Parirenyatwa Hospital Psychiatric Unit, Zimbabwe

This paper assesses the challenges in care of patient with substance use among care givers at Parirenyatwa Group of Hospitals psychiatric Unit, Zimbabwe. This paper seeks to further explore the experiences of care givers supporting family members with substance use disorder and their engagement in self-care. Exploratory Qualitative research design was employed to facilitate the exploration of family experiences affected by Substance Use Disorder and to identify the necessary assistance they may require. A Sampling size of 21 participants was used to avoid biased information and participants were recruited using purposive sampling technique, by selecting individuals with members affected, by Substance Use Disorder. The findings from the study strongly indicated that family members were significantly affected by the responsibility of caring for individuals with substance use disorder. This article extensively explores the intricate and multifaceted challenges faced by the caregivers supporting individuals grappling with substance use disorder. Researchers recommended that it is crucial for health care system, to acknowledge the indispensable role played by caregivers and extend the necessary support system.

PATTERN RECOGNITION AND INNOVATION OF HOME-BASED CARE IN CHINA: FROM THE PERSPECTIVE OF MULTINATIONAL COMPARISON

Abstract The development trend of family structure’s miniaturization and nucleation in China and the overlapping occurrence of population aging and associated frailty and morbidities have created an urgent need for innovation in the home care service model. In this paper, home-based care is regarded as a dynamic pension method. Based on the analysis of dynamic changes in population structure and family structure, this paper uses multi-stage microsimulation technology to scientifically predict the evolution of the older adult population’s distribution state and multi-health state. This approach leads to early identification of the risks of various home-based care models in the process of family structure changes. Based on this, with reference to the home-based care model cases in China, Japan, Europe, and the United States, this paper proposes the innovation of the multi-health state and the “ integrated care at home” model for households with an aging resident and brings up the optimization plan of home-based care service for accelerating the aging process. Implications for policies and practices to support family members to realize this optimized home care model will be discussed.