Background: The cancer journey is a complex and emotionally challenging experience for both children diagnosed with cancer and their parents. Understanding the perspectives of both groups can provide critical insights into improving care, psychological support, and overall quality of life during treatment and survivorship. Objectives: This systematic review aims to synthesize existing literature on the perspectives of both pediatric cancer patients and their parents throughout the cancer trajectory, focusing on emotional, psychological, and social aspects. It seeks to highlight key themes and identify gaps in research for potential future studies. Methods: A comprehensive search was conducted across PubMed, C.I.N.A.H.L., PsycINFO, and Scopus for studies published between 2013 and 2023. Eligible studies included those addressing pediatric patients with cancer, their parents, and their experiences during diagnosis, treatment, and post-treatment phases. The studies were critically appraised using the P.R.I.S.M.A. guidelines, and thematic analysis was applied to extract key findings. Results: A total of 6 studies met the inclusion criteria, revealing both parents and children experience anxiety, fear, and uncertainty, especially during diagnosis and treatment initiation. Parental distress often mirrors or exceeds the child’s emotional challenges. Parents seek clear and transparent communication with healthcare providers, while children often desire age-appropriate information about their condition and treatment. Parents and children adopt a range of coping mechanisms, including reliance on healthcare professionals, family support, and religious or spiritual beliefs. Parents express concern about the long-term impact of treatment on the child's health, education, and social life. Pediatric patients often focus on maintaining normalcy, friendships, and school participation during treatment. Both groups emphasize the importance of emotional and psychological support from healthcare teams, family, and peer support networks during the cancer journey. Conclusion: The review underscores the profound emotional and psychological burden of cancer on both pediatric patients and their parents. Effective communication, individualized support systems, and addressing the unique needs of both parties are critical for improving overall well-being during the cancer trajectory. Further research is needed to explore interventions that can mitigate distress and enhance coping strategies for parents and children.
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