Qualitative Experience Research Articles

Early positive approaches to support (E-PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities.

BackgroundEarly Positive Approaches to Support (E‐PAtS) is a co‐produced and co‐facilitated group programme that aims to provide early years support to family caregivers of children with Intellectual and Developmental Disabilities.MethodThirty‐five caregivers who had attended E‐PAtS groups took part in individual interviews or focus groups. Caregiver experiences concerning attendance of E‐PAtS were explored, in relation to process variables and perceived outcomes. Interviews were thematically analysed.ResultsThree major themes were identified: our group, evolving emotions, and positive approaches. Being with and being supported by other families was very important to caregivers. Families reported increased confidence and greater realisation of the need for self‐care. Children were reported to show fewer behaviours that challenge and increases in adaptive skills. Findings corresponded to mechanisms and outcomes in the E‐PAtS logic model.ConclusionE‐PAtS shows promise as one way families and children with Intellectual and Developmental Disabilities can access early years support.

A Qualitative Study on Coping Strategies of Chinese Women With Metastatic Breast Cancer Undergoing Chemotherapy.

ObjectivesWomen who underwent chemotherapy (CT) for metastatic breast cancer (MBC) used both adaptive and maladaptive coping strategies but had low implementation levels. The present study explores the qualitative experience of coping strategies for women with MBC undergoing CT in Beijing.MethodsA hermeneutic phenomenological approach was employed on twenty Chinese MBC women undergoing CT. These interviews were transcribed verbatim, coded using thematic analysis, and analyzed using NVivo 11.ResultsThree themes are highlighted: Maintaining hope; Spiritual growth, and Self-perceived support resources.ConclusionThe present study results have led to a greater understanding of the tremendous impact of CT on MBC women’s lives. This research provides insight into the scope of maintaining hope. Spiritual growth and self-perceived support resources were crucial factors to coping strategies among MBC women to improve their quality of life.Clinical RelevanceBy attaining the adaptive coping strategies and further understanding about Chinese MBC women, health care professionals are encouraged to appraise MBC women’s specific problems and adopt effective interventions to improve MBC women’s psychosocial wellbeing.

Remote video interface psychological assessment during the COVID‐19 pandemic: Experiences of consultants and clients

The need for remote psychological assessment came to the fore during the Covid‐19 pandemic lockdown. This paper examines the qualitative experiences of psychologists and patients using remote video interfaces for psychological assessment during that period. The aim was to gain qualitative data on the personal experiences of both parties and explore whether remote assessment via video interface is a satisfactory method for psychological evaluations. Patients were seen for psychological assessments by consultant Clinical and Counselling Psychologists via through videoconference. Consultants and patients were asked about their experience of the video assessment and the consultant recorded their responses. Content Analysis was used to analyse the responses. The remote mode of assessment was found to be satisfactory to both patient and psychologist, although technical issues were highlighted to be the most disruptive to assessments. Consultants reported a certain level of fatigue, particularly after evaluations, and some of them commented that they had to try harder than in a face‐to‐face evaluation. Distraction in the patient environment was considered detrimental. The small sample size which requires further replication studies. Overall, the use of videoconference was found to be a satisfactory method for psychological assessment with some areas for improvement, such as technical difficulties and fatigue.

Through Our Eyes, Hear Our Stories: A Virtual Photovoice Project to Document and Archive Asian American and Pacific Islander Community Experiences During COVID-19.

Through Our Eyes, Hear Our Voices is a virtual photovoice project that documents the impact of COVID-19 on Asian American and Pacific Islander (AAPI) communities. Quantitative studies on the disproportionate impact of COVID-19 are still emerging, but they do not reveal qualitative experiences of a racialized pandemic exacerbated by political leaders labeling it "China virus." As a qualitative participatory action research approach, photovoice is an ideal archival and pedagogical tool to capture the lived experience of AAPI communities. However, we had to adapt photovoice to a virtual research environment. We did so by adopting a variety of digital learning and information sharing platforms. In addition, we enlisted community-based organizations who are providing essential services for underrepresented communities to serve as research mentors for university student researchers. Finally, given the historic nature of the pandemic and the underrepresentation of AAPI experiences in mainstream archives, we emphasized the importance of students as co-producers of archival knowledge.

Listening to Muslim Students’ Voices on the Prevent Duty in British Universities: A Qualitative Study

The Prevent Duty requires universities in the United Kingdom to identify and report students who might be seen as ‘vulnerable’ to radicalisation. Since its introduction in 2015, the duty has been subject to increasing empirical research in the education sector. However, there has been limited research that specifically explores Muslim students’ perceptions of Prevent in British universities. This paper directly addresses this gap in research by drawing upon the qualitative experiences of 25 university students who self-identified as ‘British Muslims’. Individual, semi-structured interviews were transcribed and analysed using Thematic Analysis. The findings demonstrate the securitisation of higher education and ‘policing’ of Muslim students. The paper draws on Pantazis and Pemberton’s use of the ‘new suspect community’ thesis in order to examine participants’ views and experiences. When analysing the data, three particular themes are especially prominent: as a tool of ‘surveillance’, Prevent hampers freedom of speech, threatens student activism and forces Muslim students to hide their Muslim identity to avoid being labelled as ‘radical’ or ‘vulnerable’ to terrorism. It will be concluded that the ‘surveillance’ function of Prevent is problematic on the grounds that it renders universities ‘modern-day panopticons’.

'Bad news consultations' with oncology nurses: Impact on perceived stress and patient experience.

'Bad News Consultations' (BNC), conducted by nurses who are specialists in cancer, have been institutionally implemented in all French anti-cancer centres, to support the patient facing announcement-related stress. This study aimed to 1/describe the impact of the BNC on the patient's perceived stress and 2/determine the patient's benefits from the BNC. This monocentric study, cross-sectional evaluation, used a mixed method, both quantitative and qualitative. During 8 months, 336 eligible participants who underwent a BNC were recruited by nurses. Perceived stress was self-assessed with a validated Visual Analogic Scale (VAS), at the beginning and at the end of the BNC. Stress resilience was self-assessed once using the CD-RISC2. Qualitative experiences were explored after the BNC, using a 25-item questionnaire. Multivariate analyses were conducted on perceived stress measures (on the VAS) to test mixed-effects models, including initial predispositions (e.g., stress resilience) and organisational constraints (e.g, interval between the medical consultation and the BNC). Analyses on the perceived stress measures revealed a significant and negative effect of Time (B=-1.91; p<.001), Gender (B=0.72; p=.03), and Resilience score (B=-0.43; p<.001), without any significant effect of the other incorporated random effects (i.e., Type of cancer/treatment) nor fixed effects (i.e., Age, Organisational constraints). Patients mostly reported having received necessary information, having their addressed emotions with empathetic responses and respect, perceived benefits in the healthcare pathway, and heard of some supportive cares. Perceived stress was reduced after BNCs. According to the patients, the BNCs allowed a better patient-centered communication and a better care pathway.

A tale of two team formation methods: Innovative ways to form student teams

Given the preponderance of teams in business schools, and their effect on student learning and experience, it is important to carefully consider team formation. While random assignment, student choice and various professor chosen methods have been considered, they have drawbacks. Therefore, this paper explores two methods using similar student motivation—either for the course or a topic—as the mechanism for team assignment. Three classes were surveyed about their experiences. Aspects examined included individual contribution, and team satisfaction and environment, as well as qualitative experience. The results suggest that these methods can be effective, assuming they align with course goals and context, and students strongly recommend using them.

Career Competencies for Academic Career Progression: Experiences of Academics at a South African University

An understanding of career competencies is critical for the progression of academic careers, as it influences the availability of adequate and capable academic staff at all levels within universities. The study aimed to explore and describe the career competencies that academics demonstrate to successfully progress in their careers, while theoretically underpinned by an integrated competency framework. This report is based on the qualitative experiences, gathered through semi-structured interviews of eight academic staff in various career phases, in a South African university. Data was thematically analysed, while a deductive modality was adopted to identify the competencies. The findings align very closely with the dimensions of the integrated competency framework, including reflective competencies: gap analysis, self-evaluation, social comparison, and goal orientation; communicative competencies: information seeking and negotiation; and behavioural competencies: strategy alignment, control and agency, university awareness, continuous learning and collaboration. Whilst the study did not include a comparative analysis, it is interesting to note that strategy alignment was the most commonly found competency, with negotiation only demonstrated by more senior academics. A career competency approach provides leaders and development practitioners in the higher education sector with factors to consider, as they attempt to understand holistic development for academic career progression. Moreover, how to assist and support the development of academic career progression. It offers academics a keen awareness, as a personal resource, to engage and navigate self-directed career management behaviour.

The qualitative experience of telehealth access and clinical encounters in Australian healthcare during COVID-19: implications for policy

BackgroundAdaptive models of healthcare delivery, such as telehealth consultations, have rapidly been adopted to ensure ongoing delivery of essential healthcare services during the COVID-19 pandemic. However, there remain gaps in our understanding of how clinicians have adapted to telehealth. This study aims to explore the telehealth experiences of specialists, based at a tertiary hospital in the Hunter Region, and general practitioners (GP), including barriers, enablers and opportunities.MethodsAn interpretative qualitative study involving in-depth interviews explored the telehealth experiences of specialists, based at a tertiary hospital in the Hunter Region of Australia, and GPs, including barriers, enablers and opportunities. Data were analysed using an inductive thematic approach with constant comparison.ResultsIndividual interviews were conducted with 10 specialists and five GPs. Key themes were identified: (1) transition to telehealth has been valuable but challenging; (2) persisting telehealth process barriers need to be addressed; (3) establishing when face-to-face consults are essential; (4) changes in workload pressures and potential for double-up; (5) essential modification of work practices; and (6) exploring what is needed going forward.ConclusionsWhile there is a need to rationalize and optimize health access during a pandemic, we suggest that more needs to be done to improve telehealth going forward. Our results have important policy implications. Specifically, there is a need to effectively train clinicians to competently utilize and be confident using this telehealth and to educate patients on necessary skills and etiquette.

Towards responsible science and technology: How nanotechnology research and development is shaping risk governance practices in Australia

Incorporating perspectives of multiple stakeholders concerning the appropriate balance of risks and benefits of new and potentially disruptive technologies is thought to be a way of enhancing the societal relevance and positive impacts of those technologies. A risk governance approach can be instrumental in achieving balance among diverse stakeholders, as it enables decision-making processes informed by multiple dimensions of risk. This paper applies a risk governance approach to retrospectively examine the development of nanotechnology research and development (R&D) in Australia to identify how risk governance is reflected in the practices of a range of stakeholders. We identify ten risk-related challenges specific to nanotechnology R&D based on a review of the international literature, which provided the foundation for documenting how those working in the Australian nanotechnology sector responded to these global risk-related challenges. This case study research draws on a range of sources including literature review, semi-structured interviews, and a combination of qualitative and quantitative approaches for data analysis to identify key themes and generate visualisations of the interconnections that exist between risk governance practices. The ability to visualise these interconnections from the qualitative data is a key contribution of this research. Our findings show how the qualitative insights and professional experiences of nanotechnologists provide evidence of how risk governance approaches have been operationalised in the Australian nanotechnology R&D sector. The findings generate three important insights. First, the risk research undertaken by Australian nanotechnologists is interdisciplinary and involves multiple stakeholders from various disciplines and sectors. Unlike traditional risk governance approaches, our findings document efforts to assess, not only physical risks, but also social and ethical risks. Second, nanotechnology risk governance is a non-linear process and practices undertaken to address specific challenges occurred concurrently with and contributed to addressing other challenges. Third, our findings indicate that applying a risk governance approach enables greater intersection and collaboration, potentially bridging any disconnect between scientists, policymakers, and the public to realise transdisciplinary outcomes. This research highlights opportunities for developing systematic methodologies to enable more robust risk governance of other new and emerging technologies.

Impact of respiratory syncytial virus disease on quality of life in adults aged ≥50 years: A qualitative patient experience cross-sectional study.

BackgroundInformation about the impact of respiratory syncytial virus (RSV) on quality of life in older adults is limited. This study characterized the patient experience of RSV illness in USA older adults and assessed the content validity of the InFLUenza Patient Reported Outcome (FLU‐PRO) in this population.MethodsThis qualitative, non‐interventional, cross‐sectional study included hybrid concept elicitation and cognitive debriefing interviews with 30 individuals (age ≥50 years) with polymerase chain reaction‐confirmed RSV diagnosed within 6 months of screening. Targeted literature review was first conducted to inform the development of interview materials. Webcam or telephone interviews were conducted by qualitative researchers using a semistructured interview guide. Interview transcripts were coded and analyzed using Excel and NVivo software.ResultsAll participants reported impacts on daily activities, social activities, and relationships during RSV disease. Physical functioning was impaired in 25 (83%) participants, and 18 (60%) reported not engaging in leisure activities/hobbies. All nine participants who were working reported major impacts on work. Most (n = 28; 93%) described emotional impacts. A majority (n = 19; 63%) reported symptoms lasting beyond the acute disease stage from a week to >1 month. Symptom concepts reported generally matched FLU‐PRO items and domains. Cognitive debriefing indicated that FLU‐PRO was easy to understand and captured participants' experiences of RSV illness.ConclusionsThis study indicates that RSV disease in adults aged ≥50 years in the USA has substantial impacts on daily life and that the concepts included in FLU‐PRO are appropriate and fit for purpose as a measure of RSV symptoms in this population.

Improving Child Development Screening: Implications for Professional Practice and Patient Equity.

Introduction and Objectives:A pediatric group with 25 clinics and 150 providers used multifaceted approaches to implement workflow processes and an electronic health record (EHR) flowsheet to improve child developmental screening. The key outcome was developmental screening done for every patient during 3 periods between ages 8 and 36 months. Identification of developmental concerns was the secondary study outcome. Screening rates and referrals were hypothesized to be optimized for children regardless of demographic backgrounds.Methods:During preventive visits, developmental screens targeted patients in age groups 8 to 12, 13 to 24, and 25 to 36 months. EHRs were analyzed for screening documentation, results, and referrals by patient demographics. Fifteen pediatric professionals were interviewed about their qualitative experiences. Quality improvement interventions included appointing clinic champions, training staff about the screening process and responsibilities, using a standardized tool, employing plan-do-study-act cycles, posting EHR prompts, providing financial incentives, and monitoring screening rates using control charts.Results:Within 25 months, screening rates improved from 60% to >95% within the 3 preventive visit age groups for a total of more than 30 000 children. Professionals valued the team process improvements. Children enrolled in Medicaid, black children, and those living in lower income zip codes had lower screening rates than privately insured, white children, and those living in higher income areas. Ages and Stages Questionnaire 3rd edition results were significantly different by gender, race/ethnicity, insurance, and income categories across all groups. Referral rates varied by race/ethnicity and zip code of residence.Conclusions:This project resulted in an effective and efficient process to improve child developmental screening that was valued by pediatric professionals. Analyses of patient demographics revealed disparities in services for the most vulnerable families. Ongoing quality improvement, health services research, and advocacy offer hope to improve health equity.

POSB328 Barriers and Enablers for Adherence to Antiretroviral Therapy Among People Living with HIV/AIDS in the Era of COVID-19: A Qualitative Experience from a Low Middle-Income Country

With increased availability of safe antiretroviral therapy (ART) in recent years, achieving optimal adherence and patient retention is becoming the biggest challenge in the people living with HIV (PLWH). Care retention is influenced by several socio-economic and socio-cultural factors. COVID-19 related measures that restrict movement may negatively impact access to HIV care and treatment. Therefore, we aim to explore barriers and facilitators to adherence to ART among PLWH in Pakistan during COVID-19 pandemic.

Patients’ and therapists’ experiences of CBT videoconferencing in anxiety disorders

Abstract Cognitive behavioural therapy (CBT) videoconferencing has been demonstrated to be an effective treatment for anxiety disorders and an equal alternative to face-to-face CBT. However, qualitative patient and therapist experiences of CBT videoconferencing have been less researched. Due to COVID-19, mental health services have shifted to remote therapy methods; thus, understanding patient and therapist experiences are crucial to better inform service policies and best practices. The current study focused on patient and therapist experiences of CBT videoconferencing at the Centre for Anxiety Disorders and Trauma (CADAT). Researchers used qualitative content analysis to explore patients’ (n = 54) and therapists’ (n = 15) responses to an online survey. Results yielded four themes: behavioural experiments work well if the problem lends itself to videoconferencing, overall practicalities but some home environment implications, privacy and technical issues, high telepresence and the negative impact on the therapeutic alliance, and COVID-19 influences attitude positively. The findings have clinical implications for CBT videoconferencing, including a need for specific training in assessment and intervention for therapists using videoconferencing. Key learning aims Readers of this paper will be able to: (1) Describe patient and therapist qualitative experiences of CBT videoconferencing. (2) Identify areas to consider when delivering CBT videoconferencing in anxiety disorders. (3) Understand therapist training needs for CBT videoconferencing in anxiety disorders. (4) Inform own service protocols and best practices for the delivery of CBT videoconferencing.

Multiple Types Physicalism: Infirmities of Non-reductive Physicalism

It is part of Jaegwon. Kim’s life’s work that he has demonstrated that non-reductive physicalism is not an option in the philosophy of the mental. However, he also recognizes the problems of mentalism that cannot be solved by physicalism. This concerns above all phenomenal consciousness, which resists naturalization. In the philosophy of the mental, this addresses a very fundamental problem of what the place of the mental is in the physical world. It is Kim’s merit in the philosophy of the mental to have shown non-reductive physicalism to be contradictory and qualitative experience to have shown its place as a phenomenon that cannot be explained physically. But Kim wants to be a physicalist and functionalist at the same time. For this he describes his position as “physicalism, or something near enough”. It is to Kim’s credit that he has presented non-reductive physicalism as a variation of British emergentism. But this raises a very fundamental problem, whether this is a valid research program of systematization of mental experience or whether it needs another research program.

Making Qualitative Research Inclusive: Methodological Insights in Disability Research

Qualitative research necessitates the representation of, and engagement with, people who the research is designed to assist. Disability research not only seeks to explore populations where lived experience of disability is distinct, it is also a field where researchers themselves have lived experience. This paper reflects on the methodological innovations between the researcher, their supervisory team and the co-created opportunities to collect qualitative experiences from participants with disabilities, acknowledging the researcher’s own disability. The purpose of the paper was to provide scope to explore the multiple provisions required to be inclusive of accessibility needs as a way to bring unique consumer perspectives to the research table. The paper demonstrates, through a narrative lens, how the research space is altered for people and researchers when disability is present; requiring ways to ensure inclusive research practices are responded to. Recommendations for future co-creation of research with disability are identified.

Practices of Inquiry-Based Teaching in English Language Classrooms

This study explores English teachers’ practices of inquiry-based teaching in secondary level. I used phenomenological research design for this study and semi-structured interview was used for data collection which enabled me in capturing qualitative experiences and practices, activities or strategies used in inquiry-based teaching from purposefully selected participants. The participants were four secondary level English teachers of Rupandehi district. Moreover, this study is based on socio-constructivism theory of Vygotsky. The data were analyzed using descriptive analysis approach. The findings of this study revealed that secondary level teachers used three different types of inquiry activities; structured, guided and open. The study further explored that assessment in inquiry, balancing content and inquiry, classroom management and the use of quality questions are the major challenges for implementing inquiry activities. The study is expected to have a great significance in improving the 21st century language pedagogy in general and in the process of implementing inquiry-based teaching in English language classroom in particular.

Analysis of local qualitative cancer patient experience alongside the 2019 results of the UK National Cancer Patient Experience Survey.

This study analyses data from local qualitative interviewing about what matters most to patients with information from the National Cancer Patient Experience Survey (NCPES) to formulate an accurate improvement plan. This study seeks to provide a deeper analysis of the results of the 2019 NCPES. Qualitative data were collected through a focus group, telephone and virtual interviews from patients in North East London. Ten questions from the NCPES were asked. Interviews were recorded, transcribed verbatim and analysed using an NVivo framework matrix. The results were analysed considering the 2019 National Cancer Patient Experience report. In total, 17 patients and 4 carers participated. The interview answers provided a more in-depth response when compared with the NCPES results, allowing for a deeper understanding of patient experience. This provided an insightful understanding of what matters most to our patients. The NCPES results are not always reflective of the patient population. Limitations of the survey make it hard for healthcare providers to develop accurate improvement plans. It is important to use other data sources such as qualitative interviewing alongside the NCPES. The data collated during this study have been used to identify themes and deliverables for achievable and sustainable improvements to be made.

The Ancient Greek Potter’s Wheel: Experimental Archaeology and Web Applications for Velocity Analysis

The potter’s wheel is central to the understanding of ancient technology, knowledge transfer, and social complexity. With scant evidence of potter’s wheels from antiquity, experimental projects with replica potter’s wheels can help researchers address larger questions on ceramic production. One such set of experiments, performed using the Ancient Greek wheel replica in Tucson modelled on Athenian and Corinthian iconographic evidence, provided useful insight into the qualitative experience of ancient potters. In past experiments, the quantitative analysis of the throwing sessions included data on wheel velocity which had been collected collected over large intervals, comprising entire stages of the throwing process. While this method provides an overview of rotational speed, a continuous velocity graph provides a clearer picture collected data on wheel velocity. To address this, we developed a web application (WheelVis; brandonneth.github.io/wheelvis) to aid in the velocity analysis of experimental potter’s wheels. Users provide a recording of the throwing session and while advancing through the recording, they mark points where the wheel has completed rotations. Using the time intervals between these points, the tool reconstructs a graph of the velocity of the wheel throughout the throwing session. This innovative application provides fast, fine-grained velocity information, and helps archaeologists answer questions about the physical properties of their experimental replicas or wheels used in traditional workshops. Future development of the application will include contextual partitions to allow users to split the throw into different stages, enabling further analysis into the throwing process. Moreover, intelligent error detection would notify users when a mark is likely to be made in error and allow them to correct their mistake.

Condemned to precarity? Criminalised youths, social enterprise and the sub-precariat

PurposeThe paper aims to consider whether social enterprise, who are growing in number and seemingly a politically popular alternative to mainstream employment are a potential conduit for social change. Discussions relating to the value of (stable) employment in reducing and preventing (re)offending are not new. For many ex-offenders, a multitude of barriers stand between them and access to the labour market. As a potential conduit for social change, social enterprises are a growing and seemingly politically popular alternative to mainstream employment.Design/methodology/approachFocusing on the qualitative lived experiences of young people (aged between 16 and 18) with criminal convictions enrolled in one such enterprise, this paper examines the extent to which work-integrated social enterprise can assist in overcoming existing barriers to the labour market.FindingsThe paper highlights the value of social enterprise(s) in addressing the complex needs and precarities of criminalised youths, promoting social inclusion and assisting with progression into future employment. The paper also discusses the limitations of social enterprise(s) in overcoming external structural barriers to meaningful employment for those with an offending history and the implications for young people who aspire to more than precariat work.Originality/valueJustice-orientated social enterprises are allowing young people with criminal records the opportunity to build social capita and access precarious work, previously unattainable for many. By focusing on the concept of “precarity”, this paper builds upon existing research on the collateral consequences of criminal convictions offering insights into the various challenges facing criminalised youths attempting to build a positive pro-social work identity within contemporary labour markets