Implementation Of Portal Research Articles

Determinants of adoption and usage of the online examination portal (OEP) in Indian universities

PurposeThe purpose of this study is to examine the factors influencing the adoption and utilization of the online examination portal (OEP) in Indian universities. This study combines the Unified Theory of Acceptance and Usage of Technology (UTAUT) and Task Technology Fit (TTF) to explain the user's intention to use an OEP at an Indian University.Design/methodology/approachThis study's methodology combines UTAUT as a theoretical framework with TTF. It is conceptualized that TTF has a moderating effect on UTAUT's primary construct. The authors collected the data from 182 graduate students from an Indian university. PLS-SEM is used to identify the causal relationship between the constructs using the structural equation modeling (SEM) technique.FindingsThe findings will demonstrate the applicability of the constructs of performance expectancy, effort expectancy and facilitating conditions in influencing the usage intention and behavior of students towards OEP. The outcome will also demonstrate the moderating effect of TTF on the predictors of intention to use OEP at an Indian University.Research limitations/implicationsThe sample respondents who participated in the study are students at the Indian University in Pune. The selection of samples was based on convenience sampling. Future research should be conducted at a variety of geographic locations, educational levels, undergraduate and graduate schools, as well as multiple universities. To increase the objectivity of sample selection, the probabilistic sampling method can be used to select samples. For future studies, larger sample sizes (more than 182) can be collected in order to increase the generalizability and applicability of the findings to other developing markets.Practical implicationsThe study will aid Indian universities in enhancing the effectiveness of OEP. The study will also demonstrate the users' perception of the portal and their willingness to use it. It will also assist the university administration in finalizing the examination portal's implementation strategy.Originality/valueVery few studies have been published on the factors influencing the acceptance and utilization of specific online examination systems. To address this underrepresentation, the current article investigates the factors and criteria that influence students' intent to use the OEP. The authors conceptualize the model using UTAUT as a theoretical foundation, which is absent from the published literature on the OEP. The study incorporated UTAUT and TTF to determine the impact on OEP usage and intent. In addition, the study contributes by testing the moderating effect of TTF on the UTAUT variables that influence the intention to use OEP.

Development and implementation of the academic portal for optimization of services

The Escuela Normal Oficial de Irapuato (ENOI) emerged in 1951 and has distinguished itself as a higherlevel Institution dedicated to the training of professionals in preschool, primary, and inclusion education, through the proper operation of its plans and current programs. Nowadays, technology has allowed people to communicate or transmit information through the internet. Despite that, there are still institutions that do not have these technologies, as was the case of ENOI which lacked an official page website with its domain. The lack of an official site meant that the public did not have easy access to information related to the institution. The objective of this project was to facilitate the administration and display of the information presented on their page through a system that allows them to update it without the need to know any programming language, as well as to give the page its own identity. of the institution, set up the website on its own server with its unique domain, and develop different profiles or roles for information management. With this, it was possible to give the ENOI a place where it can share relevant information and serve as a main page where you can enter other sites of interest for people related to the institution. of the institution and spread false information.

Implementation of The Information Service Application Portal for Registration of Prospective Santri and Recording of School Activities Using The Extreme Programming Method

For Islamic boarding schools, the website functions as a medium of information and school introduction to the public. In order for prospective students to register easily, complete information is needed so that the boarding school can easily manage the data of prospective students. Apart from teaching and learning, teachers and students also have other activities at school. The categories of activities carried out by teachers are training, teaching, RPP (Learning Implementation Plans), and clubs or CCA (Co-Curricular Activities), while the categories of activities carried out by students are extracurricular activities, organizations, and competitions. All information on teacher and student activities requires data to be stored properly for a certain period of time. This study aims to build an information service application for registration of prospective students and recording of school activities using the extreme programming method. This application is made using the PHP programming language with the CodeIgniter framework, a MySQL database, and extreme programming as an application development method. Based on the tests carried out, this application can run on various browser applications, such as Google Chrome, Mozilla Firefox, and Microsoft Edge.

Health professionals’ experiences with a patient portal pre and post launch: A qualitative study

ObjectivesDigital technologies are extending existing healthcare models, and increasingly supporting delivery of new care models. One such technology are patient portals, which are digital platforms that are integrated with clinical information systems like Electronic Health Records. They are designed to provide patients/carers access to a range of features including communication with their healthcare team, and access to information in their health record such as test results and prescriptions. The aim of the study described in this manuscript was to compare hospital staff perceptions of a patient portal before and after implementation at a paediatric hospital. MethodA qualitative methodology using semi-structured interviews was used to understand the perceptions of clinical and administrative hospital staff before and three months after the implementation of the patient portal. Interviews were undertaken with 12 participants pre-launch, and 8 participants’ post-launch. ResultsPost-implementation health professionals who felt there was greater uptake of the patient portal by patients/carers tended to be more positive about its benefits than those who reported lower patient/family uptake. Likewise, concerns about integrating the tool into the workflow may be overcome if the patient portal would improve management of care for patient/carers. ConclusionsWhen health professionals are actively involved in the design and implementation of patient portals, they had more realistic and positive expectations of their benefits to patients/carers. Similarly, if benefits can be conferred to patients/carers, health professionals are less likely to have concerns about barriers to uptake such as perceived increase to workload in relation to the patient portal.

A STUDY OF INFORMATION TECHONOLOGY AND ITS IMPACT ON GOVERNMENT E –PORTAL: MINISTRY OF CORPORATE AFFAIRS (MCA) IN VERSION 3.0

This study reveals the effectiveness of the MCA21 version 3.0 [MINISTRY OF CORPORATE AFFAIRS PORTAL] that is used for conducting E-governance and audit functions because it helps to carry out audit functions, balance competing interests of various stakeholders and strengthen institutions for achieving excellence in service delivery. The most important aspect concerned with the ministry is it’s upgradation over the years and thus it helps in conducting the research in regard to its audit functions which would bring the pros and cons of such upgradation.
 The study provides insights into the framework of E-governance and easy compliance with continuous Government Process Re-engineering [GPR] with reference to the audit functions. It discusses the major impact on filing of various functions related to the companies with the Registrar of Companies [ROC] by the audit firms. The Government Process Re-engineering [GPR] based on the operations of the MCA 21 v3 portal. It attempts to identify its functionality for the future research of this field. In this analysis, descriptive research design is adopted along with the convenience sampling method. The sample size is taken as 110 and analysis was done based on the data collected from the questionnaire. The tools used for analyzing the data are chi- square, Anova and correlation. In this study, the main emphasis is made on the major upgradation of the MCA21 portal over the years which covers the recent version. Next the emphasis is made on the implementation of the MCA21 portal and its impact with respect to e- filing functions, quality of work, job performance and secured login services. However, the result showed that although there are some issues related to login and other such technical issues the portal provides enough information in resolving the problem or issues faced and its working mechanism is easy and understandable for the employees. It is also suggested that the ministry of corporate affairs will adhere to the related issues and help in better functioning of the MCA21 portal.

Abstract 6168: Implementation and adoption of a web tool to support precision diagnostic and treatment decisions for patient with myelodysplastic syndromes

Abstract Despite a detailed understanding of the genes mutated in myelodysplastic syndromes (MDS), diagnostic and treatment decisions for patients with MDS rely primarily on clinical and cytogenetic variables as considered by the Revised International Prognostic Scoring System (IPSS-R). Here we describe the recently developed Molecular IPSS (IPSS-M), a clinico-genomic risk stratification system that considers clinical, cytogenetic and genetic parameters; the implementation of a web portal to facilitate its adoption, a strategy to handle missing variables, and the worldwide utilization of the web calculator as a clinical support tool. The IPSS-M was trained on 2,957 clinically annotated diagnostic MDS samples profiled for mutations in 156 driver genes. To maximize the clinical applicability of the IPSS-M and account for missing genetic data (i.e genes missing from a sequencing panel), we implemented a strategy to calculate a risk score under three scenarios: best, worst and average. Last, we developed an online calculator as a standalone single-page web application using VueJs, and D3Js for the interactive visualizations, deployed through a CI/CD pipeline on AWS, where collection of anonymous usage analytics allows to track adoption and usability of the new proposed model. The model incorporates clinical, morphological, genetic variables informed by cytogenetics and constructed from the presence of oncogenic mutations in 31 genes. It delivers a unique risk score for each individual patient, as well as an assignment to one of six IPSS-M risk strata. Compared to the IPSS-R the IPSS-M re-stratified 46% of MDS patients. The model was validated in an external dataset of 754 MDS patients. We released an open-access IPSS-M web calculator available at https://mds-risk-model.com. By specifying the patient clinical and molecular profiles, the tool returns the patient-specific IPSS-M risk score and category, and the probability estimates over time for three clinical endpoints, i.e. leukemia free survival (LFS), overall survival, and incidence of leukemic transformation. Since its launch in June 2022, the calculator has been used by >6000 users in >75 countries, reaching a daily average of 100 users per day. Risks have been calculated for >45,000 patient profiles. 99.28% of the sessions initiated reach an IPSS-M score, suggesting that the calculator is intuitive and easy to use. We trained and validated the IPSS-M on 3,711 patients, a patient tailored risk stratification tool for patients with MDS that considers clinical, morphological and genetic variables inclusive of cytogenetics and mutations in one of 31 genes. The development of a web based tool was instrumental to the global dissemination of the model, enabling non-expert users to leverage the power of molecular biomarkers in risk stratification for patients with MDS. Citation Format: Elsa Bernard, Juan E. Arango Ossa, Heinz Tuechler, Peter L. Greenberg, Robert P. Hasserjian, Yasuhito Nannya, Sean M. Devlin, Maria Creignou, Philippe Pinel, Lily Monier, Juan S. Medina-Martinez, Dylan Domenico, Martin Jädersten, Ulrich Germing, Guillermo Sanz, Arjan A. van de Loosdrecht, Olivier Kosmider, Matilde Y. Follo, Felicitas Thol, Lurdes Zamora, Ronald F. Pinheiro, Andrea Pellagatti, Detlef Haase, Pierre Fenaux, Monika Belickova, Michael R. Savona, Virginia M. Klimek, Fabio P. Santos, Jacqueline Boultwood, Ioannis Kotsianidis, Valeria Santini, Francesc Solé, Uwe Platzbecker, Michael Heuser, Peter Valent, Kazuma Ohyashiki, Carlo Finelli, Maria Teresa Voso, Lee-Yung Shih, Michaela Fontenay, Joop H. Jansen, José Cervera, Norbert Gattermann, Benjamin L. Ebert, Rafael Bejar, Luca Malcovati, Mario Cazzola, Seishi Ogawa, Eva Hellström-Lindberg, Elli Papaemmanuil. Implementation and adoption of a web tool to support precision diagnostic and treatment decisions for patient with myelodysplastic syndromes [abstract]. In: Proceedings of the American Association for Cancer Research Annual Meeting 2023; Part 1 (Regular and Invited Abstracts); 2023 Apr 14-19; Orlando, FL. Philadelphia (PA): AACR; Cancer Res 2023;83(7_Suppl):Abstract nr 6168.

Contextual Factors That Impact the Implementation of Patient Portals With a Focus on Older People in Acute Care Hospitals: Scoping Review

Older people are the highest users of health services but are less likely to use a patient portal than younger people. This scoping review aimed to identify and synthesize the literature on contextual factors that impact the implementation of patient portals in acute care hospitals and among older people. A scoping review was conducted according to the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) guidelines. The following databases were searched from 2010 to June 2020: MEDLINE and Embase via the Ovid platform, CINAHL and PsycINFO via the EBSCO platform, and the Cochrane Library. Eligible reviews were published in English; focused on the implementation of tethered patient portals; included patients, health care professionals, managers, and budget holders; and aimed at identifying the contextual factors (ie, barriers and facilitators) that impact the implementation of patient portals. Review titles and abstracts and full-text publications were screened in duplicate. The study characteristics were charted by one author and checked for accuracy by a second author. The NASSS (Non-adoption, Abandonment, Scale-up, Spread, and Sustainability) framework was used to synthesize the findings. In total, 10 systematic reviews published between 2015 and 2020 were included in the study. Of these, 3 (30%) reviews addressed patient portals in acute care hospitals, and 2 (20%) reviews addressed the implementation of patient portals among older people in multiple settings (including acute care hospitals). To maximize the inclusion of the literature on patient portal implementation, we also included 5 reviews of systematic reviews that examined patient portals in multiple care settings (including acute care hospitals). Contextual factors influencing patient portal implementation tended to cluster in specific NASSS domains, namely the condition, technology, and value proposition. Certain aspects within these domains received more coverage than others, such as sociocultural factors and comorbidities, the usability and functionality aspects of the technology, and the demand-side value. There are gaps in the literature pertinent to the consideration of the provision of patient portals for older people in acute care hospitals, including the lack of consideration of the diversity of older adults and their needs, the question of interoperability between systems (likely to be important where care involves multiple services), the involvement of lay caregivers, and looking beyond short-term implementation to ways in which portal use can be sustained. We identified important contextual factors that impact patient portal implementation and key gaps in the literature. Future research should focus on evaluating strategies that address disparities in use and promote engagement with patient portals among older people in acute care settings.

A proposal for a set of attributes relevant for Web portal data quality: The Brazilian Rare Disease Network case

Despite widespread growth in the use and complexity of web portals, insufficient attention is paid to their quality. Thus, this paper aims to describe the validation process of the Brazilian Network of Rare Diseases Portal and identify a set of data quality attributes required for psychometric evaluations that will support the portal implementation. This protocol describes a cross- sectional study of mixed nature divided into three steps: A usability evaluation, a Delphi consensus, and an electronic service quality assessment. Also, the RE-AIM model will be applied at various stages of evaluative research. We hope the improvement carried out during the validation of RARAS can contribute to the dissemination of knowledge in the area and include, based on scientific knowledge and clinical experts, offering clear, attractive, and accessible information for the population. A research gap exists in determining components of integrated e-service quality, usability, and user experience evaluation model in general, and for rare disease web portals, in particular. Users of the RARAS Portal need to get validated content and the required reliable online services without doing exhaustive searches or visiting multiple sources, with the main focus on e-service quality.

Implementation of an e-medical portal system for healthcare services in Calabar

This article is about the implementation of a web-based e-medical patient portal to facilitate the interaction between the hospital, the medical practitioners and the patients. The aim of this study is to develop a guideline that can be used to implement a web-based e-medical portal. An E-medical portal is an information system that provides to individuals the access to their personal health records and many other services related to healthcare. To achieve the aim, two questions were formulated: (1) what are the requirements for the implementation of interactive systems (portal) between the medical practitioners and patients? and (2) what are the factors that influences an interactive systems (portal) that can be used by both medical practitioners and patients? The study was conducted using the qualitative method, with an inductive approach. The Data was collecting through Documentation using the desk research method as tool of collection. From the analysis, three important factor were find and discussed.

Information and Communication Technology(ICT) as a Tool in Revenue Generation and Tax Administration , A Study of Firs Abakaliki,Ebonyi State-Nigeria

Information and Communication Technology (ICT) has opened a new visage to globalization in revenue generation and tax administration. The deployment and integration of ICT facilities into revenue generation and tax administration for internet access and a web portal implementation that enable the organizations in charge of revenue generation and tax administration in Nigeria;federal inland revenue service(FIRS) to carry out most of its activities ubiquitously on the internet is steadily growing in Nigeria. This has enabled many financial operations such as Pay-direct,E-tax,M-banking,E-banking,E-fiiling,E-assessment,E-auditing among others.In Nigeria,quite a large number of revenue generation and tax administration organizations in different state have either developed their portal or have had one deployed for the purpose of ICT-related operations. This development has had tremendous impact on revenue generation and tax administration or management. It now provides these organizations with opportunities for e-revenue and tax operations.Taxation can be defined as the imposition by government of compulsory contributions or levies on the citizens, property, income, commodities, transactions and so forth, for the purpose of raising revenue for government expenditure.The purpose of the study therefore is to review the roles of ICT in revenue generation and tax administration in federal inland revenue service Abakaliki,Ebonyi state-Nigeria. Keywords: ICT,Renenue Generation,Tax Administration,Firs,Ebonyi State DOI: 10.7176/CEIS/13-5-02 Publication date: October 31 st 2022

Distance learning technologies with blockchain elements in the system of continuous education

The relevance of the study was explained by the fact that the support of management of the distance learning information processes is associated with the problem of effective allocation of system resources used upon transferring and processing of educational information. The purpose of this study is a comprehensive analysis and development of the principles of developing an electronic portal for the system for continuous education. In the work, the authors used general methods of generalization and systematization, as well as the method of mathematical calculations. 150 teachers of secondary and higher primary schools took part in the calculations. The results of the calculations made it possible to confirm the need to use distance learning technologies with blockchain elements in educational institutions. The use of blockchain technologies for the implementation of an electronic portal can increase the motivation of students and teachers, facilitating work in the learning process. Keywords: continuous education, distance learning, blockchain, electronic portal, automation of learning.

IMPLEMENTASI PORTAL JAKARTA OPEN DATA DALAM MENDUKUNG PEMBANGUNAN BERKELANJUTAN

This paper is the result of research on the implementation of the Jakarta Open Data portal in supporting sustainable development in DKI Jakarta. The approach in this study use d descriptive qualitative methods to provide a clear picture of the problems studied, identify and explain the existing data systematically. The main theory used in this research is the Van Meter and Horn implementation theory with its indicators and the theory of open government, open data and sustainable development as supporting theories. The results show that the implementation of the Jakarta Open Data portal as a portal that provides data information generated from regional apparatus organizations in the DKI Jakarta Province has been going quite well because it makes it easier for people to find and access data information. Utilization of data on the Jakarta Open Data portal can open up space for public participation and input for the DKI Jakarta Provincial Government in improving governance and supporting sustainable development in the realm of public information disclosure. However, there are still obstacles because regional apparatus organizations that have data and information officers in the process of managing data in their work units that will be uploaded to the Jakarta Open Data portal system are not yet optimal, causing inequality in the data presented in each regional apparatus organization and affecting the availability of collections data on the Jakarta Open Data portal. Keywords: Jakarta Open Data Portal, Implementation, Open Government and Sustainable Development.

Remote Follow-up of Self-isolating Patients With COVID-19 Using a Patient Portal: Protocol for a Mixed Methods Pilot Study (Opal-COVID Study).

BackgroundPeople with COVID-19 are instructed to self-isolate at home. During self-isolation, they may experience anxiety and insufficient care. Patient portals can allow patients to self-monitor and remotely share their health status with health care professionals, but little data are available on their feasibility.ObjectiveThis paper presents the protocol of the Opal-COVID Study. Its objectives are to assess the implementation of the Opal patient portal for distance monitoring of self-isolating patients with COVID-19, identify influences on the intervention’s implementation, and describe service and patient outcomes of this intervention.MethodsThis mixed methods pilot study aims to recruit 50 patient participants with COVID-19 tested at the McGill University Health Centre (Montreal, Canada) for 14 days of follow-up. With access to an existing patient portal through a smartphone app, patients will complete a daily self-assessment of symptoms, vital signs, and mental health monitored by a nurse, and receive teleconsultations as needed. Study questionnaires will be administered to collect data on sociodemographic characteristics, medical background, implementation outcomes (acceptability, usability, and respondent burden), and patient satisfaction. Coordinator logbook entries will inform on feasibility outcomes, namely, on recruitment, retention, and fidelity, as well as on the frequency and nature of contacts with health care professionals. The statistical analyses for objectives 1 (implementation outcomes), 3 (service outcomes), and 4 (patient outcomes) will evaluate the effects of time and sociodemographic characteristics on the outcomes. For objectives 1 (implementation outcomes) and 4 (patient outcomes), the statistical analyses will also examine the attainment of predefined success thresholds. As for the qualitative analyses, for objective 2 (influences on implementation), semistructured qualitative interviews will be conducted with 4 groups of stakeholders (ie, patient participants, health care professionals, technology developers, and study administrators) and submitted for content analysis, guided by the Consolidated Framework for Implementation Research to help identify barriers to and facilitators of implementation. For objective 3 (service outcomes), reasons for contacting health care professionals through Opal will also be submitted for content analysis.ResultsBetween December 2020 and March 2021, a total of 51 patient participants were recruited. Qualitative interviews were conducted with 39 stakeholders from April to September 2021. Delays were experienced owing to measures taken at the McGill University Health Centre to address COVID-19. The quantitative and qualitative analyses began in May 2022. As of June 2022, a total of 2 manuscripts (on the implementation and the patient outcomes) were being prepared, and 3 conference presentations had been given on the study’s methods.ConclusionsThis protocol is designed to generate multidisciplinary knowledge on the implementation of a patient portal–based COVID-19 care intervention and will lead to a comprehensive understanding of feasibility, stakeholder experience, and influences on implementation that may prove useful for scaling up similar interventions.Trial RegistrationClinicalTrials.gov NCT04978233; https://clinicaltrials.gov/ct2/show/NCT04978233International Registered Report Identifier (IRRID)DERR1-10.2196/35760

Verification and Data Processing of Open Data for Data-Driven News Stories in Lokadata.id and Katadata.co.id

With the existence of open data, journalists have additional investigative tools to report on issues in the public interest and to hold the government to account. However, it remains outside the mainstream of journalism due to the limitation to access and work with data. The open data initiative in Indonesia has started since 2010. Adhering to UU No. 14 Tahun 2008 about Public Information Openness, Indonesia has implemented an open data portal, called Satu Data Indonesia in 2019. There are indeed a handful of studies that examine the implementation of open data portals in Indonesia. However, only a few studies have given attention to how data journalists are using these data and their perceptions about the quality of data provided by the government. This study uses a descriptive qualitative approach and collects data through semi-structured in-depth interviews. It is intended to see the process on how data journalists in Indonesia turn data to news stories. By studying Lokadata.id and Katadata.co.id, we found that data provided by the authority sources (government) are still the main sources for data journalists in Indonesia. Despite the fact that the quality of data is getting better, most journalists in this study argued that the government’s open data has not yet integrated and has no basic standard that is collectively used. Therefore, the verification process and data processing in each media is important. The most common ways that journalists use to verify the data are by exploring the raw data, contacting the institution that provided the data, and considering the reputation of the data sources. However, there is a tendency of data journalists to be passively relying on official sources and ‘hide behind’ the perceived credibility of their sources.

Healthcare Proctoring System Using Chatbot Based on Machine Learning

This presentation describes the implementation of a healthcare portal which will include features like interoperability, symptom-based disease prediction with the help of a chatbot and remote patient health proctoring services.[1] As it is common knowledge, health and medicine are gaining a lot of significance in today’s advancing world, where evolving technology is being used to combat almost all the known diseases.[2] Technology is constantly developing everywhere forevery new ailment that us humans come across. We have new counter-measures ready for these diseases.[3]However, according to reports, more than 200 thousand people in China, 100 thousand in the USA,and nearly 70 thousand people in India die each yeardue to medication errors. Technologies such as data mining and other recommended technologies provide possibilities to explore potential knowledge from diagnosis history records and help doctors to diagnose the disease and prescribe medicines correctly to decrease medication error effectively.[4] This project proposes a system which will aim to negate any miscommunication between the medical professional and patient by acting as a medium whichwill be accessible by both entities with every record of the patient available for the professionals.[5] This system consists of a database system module, data preparation module, disease prediction module,medicine recommendation module, model evaluation and API which will be used for a centralized database for the patient’s data.[6] A decisiontree map and random forest algorithm are used to achieve the objective. This paper also mentions the additional features of the proposed system like the dual function of prediction of diseases and the recommendation of medicines, which adds to the capabilities of the existing systems, and has a portal through which a patient can have appointments, get reports for every medical check-up which will be virtually available. The patient’s data will be globally available for both medical professionals as well as the patient to see.[7] The proposed system will be designed in such a waythat every user’s data will be regularly updated in case it is being monitored by other attending medicalprofessionals.[8] Keywords healthcare portal, recommendation

Why the Utilization of E-Government Services is Poor? – A study with the Citizens in Colombo Municipal Council Area in Sri Lanka

One of the most important elements of an e-Government system is the interaction between users and e-Government systems, specifically the adoption and utilization by those users, who are the main target of such systems. However, even after taken numerous efforts to develop an e-service system in Sri Lanka, its utilization and adoption are still at a very poor level. It indicates as the rate of online submission of applications is 1.16% and for license/ permits it is 0.18%. Thus, this research aims to investigate, analyze and understand the key factors that influence users’ adoption and utilization of two e-Government services: e-Vehicle revenue license and e-Police clearance certificate in Sri Lanka with a holistic approach. The conceptual framework was developed by studying the Technology Acceptance Model (TAM) and Web Trust models and theories related to technology acceptance and usage, in conjunction with a review of e-Government adoption and utilization literature. The study population was the Colombo Municipal Council area with 561,314 individuals. A random sample of 203 chief occupants was selected and the response rate was 96.5%. Respondents’ demographic details, educational qualifications, internet experience, e-Government usage and as well as preferences when obtaining e-Government services were included. The results showed significant (5% level) moderate positive relationships among utilization and “usefulness”, “ease of use”, “trust in the internet” and “trust in the Government”. Moreover, “usefulness” (β=0.445) and “trust of the government” (β=0.379) were found to be the significant (5% level) influential factors in adoption and utilization with model adequacy at 36.5%. Similar to the literature, the findings ensure that when the usefulness and the trust are at a higher level, the adoption and utilization also be at a higher level. The- challenges for citizen-centered e-Government applications were identified as a lack of users’ trust in the internet service providers, level of security standards, quality of e-Government systems, reluctance to share, exchange, and store their personal information specially the financial information in the online platform. However, the positive factor is the citizens perceive and experience e-Government systems as simple to use and useful. Further, they intend to accept and use it. Based on the interviews held with the uses, implementing simple and useful e-services and e-transactions, enhancing the reliability of the services, improving the accessibility options of the implemented e-services and e-transactions, and increasing the awareness of implemented e-services and their benefits were highlighted as their suggestions to develop the existing e-Government systems and services in Sri Lanka. The most important fact emphasized here is the implementation of a one-stop e-Government portal for all the services. Actions taken to enhance the digital literacy of the citizens from their school level will be benefited to successful adoption and utilization of e-services in Sri Lanka.

Adolescent Consent and Confidentiality: Complexities in Context of the 21st Century Cures Act.

Adolescent Consent and Confidentiality: Complexities in Context of the 21st Century Cures Act.

The Use of Patient-Reported Outcome Measures in Daily Clinical Practice of a Pediatric Nephrology Department.

(1) Background: Health-related quality of life (HRQoL) is lower in patients with chronic kidney disease (CKD) compared to the general population. In 2011, the KLIK PROM portal was implemented in the Emma Children’s Hospital to monitor and discuss HRQoL in daily care. This study describes and assesses the implementation and use of the KLIK PROM portal in the pediatric nephrology department. (2) Methods: CKD patients (self-report, if 8–18 years of age) and their parents (proxy-report, if 1–8 years) were invited to complete HRQoL patient-reported outcome measures (PROMs): TNO-AZL Preschool children Quality Of Life (TAPQOL) or Pediatric Quality of Life Inventory for Children (PedsQL). The PROMs were completed before and discussed during outpatient consultations. The adaptation rate—the proportion of patients/parents who were invited and completed at least one PROM—was calculated. Reported HRQoL scores of CKD patients were compared to the general population. (3) Results: In total, 142 patients (proxy- and self-report) were invited, 112 patients completed at least one PROM (adaptation rate 79%). Patients (n = 84 with informed consent for scientific use) with CKD reported lower HRQoL and HRQoL was more often impaired compared to the general Dutch population. (4) Conclusions: The implementation of KLIK was successful and its use is feasible for daily care. Using KLIK, HRQoL problems can be easily identified and monitored.

The ethical and legal considerations of young people and their parents using a hospital patient portal: Hospital Ethics Committee members perspectives

Background In April 2019, our hospital transitioned to an electronic patient record system and patient portal (MyGOSH). MyGOSH enables young people aged 12 years or older and their parents to access results, documentation, appointments, and to communicate with their care team. Aims A focus group was conducted to explore the ethical and legal considerations of young people and their parents using a patient portal from the perspective of hospital Ethics Committee members. Participants and research context Members of the hospital Paediatric Bioethics Centre were recruited ( n = 7). Written informed consent was provided by all participants. Research design The focus group discussion was recorded, transcribed verbatim and analysed using thematic analysis. Ethical considerations Health Research Authority Research Ethics Committee (REC) Approval was granted by London Southeast REC (IRAS Project ID: 248793; REC Reference: 18/LO/1945). Results Four themes, and sub-themes, were identified: (1) granting access – complexities of assessing competence/capacity, exclusion from MyGOSH due to non-disclosure of diagnosis, and truth-telling; (2) inequalities resulting in inequities – complexities of inequity in access; (3) responding to change – providing support and managing expectations; (4) engagement, empowerment and understanding – data safety, empowering young people to take ownership of their health data, a one-size fits all system may not meet the needs of all families, and early engagement with young people/parents. Discussion Giving families portal access can increase engagement, empowering them to be more involved in care, yet poses challenges for all. Complexities exist in the assessment for portal access, and supporting and managing user expectations whilst providing an equitable service. Conclusions Ongoing support is required for all stakeholders following patient portal implementation to navigate the ethical and legal complexities, and to promote equity and portal utility for patient benefit.

E-service portal for freelance community: case study in photography business

This study revealed the limitations of freelancers’ inability to perform portfolios and biographies, their performance ratings to a large community of customers. The difficulties were evident in searching for reliable, qualified and experienced freelancers from multi-channel information sources. These limitations might impact the ability of freelancers selected by customers to perform the required task to the customers’ satisfaction. This research focused on the case study of the freelance community for photography business in southern of Thailand. This aims to establish an online facility in which freelance photographers can publicize their services and performance to potential customers. The concepts entailed in web portals and e-services were the key elements in the development and ensured that its functions worked efficiently. The study employed qualitative methods were used to assess the current practices of web portal and thus determining the requirements for the e-service web portal for freelance community. The practical contribution is that it can aid the effective design and implementation of an e-service web portal for the freelance community of photography business, and it is a massive step towards promoting the freelance community in Thailand.