Experiences Of Persons Research Articles

Foot Health And Footwear For Persons Experiencing Homelessness: A Resource

Foot Health And Footwear For Persons Experiencing Homelessness: A Resource

Experiences of patients living with HIV and AIDS on antiretroviral therapy in Accra, Ghana.

The human immunodeficiency virus and acquired immunodeficiency syndrome (HIV and AIDS) pandemic has greatly affected Africa, particularly Ghana. The pandemic remains a public health concern, particularly in terms of accessing essential medication and improving quality of life for people living with the disease. This study aimed to explore and describe the experiences of persons diagnosed and living with HIV who are on antiretroviral therapy. A qualitative, exploratory, descriptive, and contextual design was used. The research population included persons diagnosed with HIV who were receiving antiretroviral therapy at three public hospitals in Ghana. Data saturation was achieved after conducting 15 semi-structured interviews. Creswell's six steps of data analysis were used to analyse the data, which resulted in the emergence of one main theme and six sub-themes. The main theme identified by the researchers highlighted the participants' diverse experiences of being diagnosed and living with HIV. It was found that the study participants expressed shock, disbelief, surprise, and fear of death after being diagnosed with HIV. The participants also experienced stigmatisation, discrimination, and rejection. There is a need for further research on the extent of discrimination and stigmatisation and the effect on optimal adherence to antiretroviral therapy. Continuous public education on HIV is required to limit the extent of discrimination and stigmatisation.Contribution:The study has highlighted the various emotions related to stigma and discrimination expressed by persons living with HIV (PLHIV). The findings will guide policy on eliminating discrimination and stigmatisation for people living with HIV.

The Urban Environment and Cardiometabolic Health.

Urban environments contribute substantially to the rising burden of cardiometabolic diseases worldwide. Cities are complex adaptive systems that continually exchange resources, shaping exposures relevant to human health such as air pollution, noise, and chemical exposures. In addition, urban infrastructure and provisioning systems influence multiple domains of health risk, including behaviors, psychological stress, pollution, and nutrition through various pathways (eg, physical inactivity, air pollution, noise, heat stress, food systems, the availability of green space, and contaminant exposures). Beyond cardiometabolic health, city design may also affect climate change through energy and material consumption that share many of the same drivers with cardiometabolic diseases. Integrated spatial planning focusing on developing sustainable compact cities could simultaneously create heart-healthy and environmentally healthy city designs. This article reviews current evidence on the associations between the urban exposome (totality of exposures a person experiences, including environmental, occupational, lifestyle, social, and psychological factors) and cardiometabolic diseases within a systems science framework, and examines urban planning principles (eg, connectivity, density, diversity of land use, destination accessibility, and distance to transit). We highlight critical knowledge gaps regarding built-environment feature thresholds for optimizing cardiometabolic health outcomes. Last, we discuss emerging models and metrics to align urban development with the dual goals of mitigating cardiometabolic diseases while reducing climate change through cross-sector collaboration, governance, and community engagement. This review demonstrates that cities represent crucial settings for implementing policies and interventions to simultaneously tackle the global epidemics of cardiovascular disease and climate change.

The Person Experiences Interview Survey: A Measure Addressing Ableism in Mental Healthcare for Patients with Intellectual and Developmental Disabilities

The Person Experiences Interview Survey: A Measure Addressing Ableism in Mental Healthcare for Patients with Intellectual and Developmental Disabilities

Layanan Konseling Individu Dalam Menangani Konflik Interpersonal Siswa di MAN 2 Bandar Lampung

Interpersonal conflict is a conflict between individuals driven by personal dislike or disagreement. Conflict between individuals arises when someone has negative perceptions of other people. When a person experiences a negative emotional reaction, he will act irrationally towards the surrounding environment. Disputes that occur usually consist of opposing opinions. This research aims to determine the process of individual counseling services in handling interpersonal conflicts at MAN 2 Bandar Lampung. This research uses qualitative research with the type of field research and qualitative descriptive research. There were 8 participants involved in this research. There are two data sources in this research, namely primary data sources and secondary data sources. Primary data sources were obtained from 1 guidance counselor, 5 students who experienced interpersonal conflicts and used supporting informants, 1 homeroom teacher and 1 classmate, for secondary data sources obtained from field notes and school data and documentation studies. Data collection techniques use observation, interviews and documentation, while data analysis begins with reducing data, presenting data and drawing conclusions. The results of this research show that in implementing services Individual counseling at MAN 2 Bandar Lampung has not resolved interpersonal conflicts, namely individual counseling services at MAN 2 Bandar Lampung are not implemented in accordance with existing theory. Several stages of the implementation of individual counseling services are not in accordance with the existing theory because the counselors do not come from guidance and counseling experts.

The experience of persons with disabilities as beneficiaries of Ghana's District Assemblies Common Fund.

Ghana's Disability Fund aims to build the capacity of persons with disabilities, particularly those outside of formal employment, to engage in livelihood generation activities as a way to reduce poverty. The objective of this paper is to investigate the kind of knowledge that exists on the District Assemblies Common Fund program, understand the experience of beneficiaries when they access the program, and examine the benefits on beneficiaries' livelihoods. The research consisted of five focus group discussions with 35 beneficiaries, key informant interviews with six member organizations of Ghana Federation of Disability Organizations, and interviews with eleven Disability Fund Management Committees members. This research found the experiences of beneficiaries on the program are varied yet the program on the whole has had a positive outcomes on their livelihoods. Persons with disabilities who participated in this study demonstrated knowledge of the program. Beneficiaries further described issues relating to the quality of purchased items, the procurement process, as well as reductions and changes to requested items. Disability-specific issues in accessing the funds were also noted. These limited the effectiveness of the Fund to meet its stated goals. The findings of the study can inform the Common Fund Secretariat efforts to improve the performance of the fund as well as the advocacy of the disability movement. The findings are also relevant to the design and implementation of other social protection programmes in low-and middle-income countries.

Older persons' perceptions and experiences of community palliative care.

Older persons' perceptions and experiences of community palliative care.

Exploring the experiences of persons living with albinism in Ghana

Exploring the experiences of persons living with albinism in Ghana

Chronic pain, complexity and a suggested role for the osteopathic profession

Chronic pain is common and has a substantial impact on individuals’ lives and the society in which they live. However, current strategies for managing chronic pain have low to moderate efficacy. We present a complexity informed model of managing chronic pain.The authors propose that the biological, psychological and social factors influencing the experience of chronic pain can be framed as elements of a complex system (when ‘system’ is understood as a mental model of a set of relationships in the world) and discuss the advantages of this approach.The ‘Learning Cycles’ framework of Human Learning Systems is suggested as an appropriate approach to managing chronic pain. There are five elements of the Learning Cycle; ‘understanding the system’, ‘co-design’, ‘experimentation exploration’, ‘embedding and influencing’ and ‘system stewardship’. The authors describe how this could be implemented in osteopathic practice.The implications of a complexity approach with respect to evidence-informed as opposed to evidence-based practice is briefly discussed. Further, the opportunity for osteopathy to be at the vanguard of broader movement for change in public service and healthcare is highlighted.Applying Learning Cycles to the context of managing chronic pain requires further research to explore its utility. Learning Cycles provide an action-research model that would supply the rich data by which to understand the efficacy of chronic pain management. Implications for practice•Using a complexity informed approach (Human Learning Systems' Learning Cycles) in the management of chronic pain.•Structured and efficient way of providing a co-produced, person specific approach to practice.•Practical way of incorporating biological, psychological and social factors influencing the person's experience of chronic pain into management, without assuming causal weighting.•Epistemological implications for research and the current understanding of hierarchy of evidence.

Internalized Stigma among Persons with Schizophrenia: A Study from Tertiary Care Center in the Northeastern Part of India

Abstract Background: Stigma relating to mental illness has mostly been studied in communities and families. Less research has been conducted in India to understand the current subjective experience of persons with mental illness in the tertiary care hospital setting in India. Aim and Objectives: This study aimed to assess the extent of internalized stigma among persons and to see the association between self-stigma, self-esteem, insight, and adherence. Methodology: The study used a cross-sectional design. The present study was conducted in the Outpatient Department of LGB Regional Institute of Mental Health, Tezpur, Assam. For the present study, 200 persons with schizophrenia were selected. Participants of this study were persons with a clinical diagnosis of schizophrenia according to the International Classification of Diseases-10 Diagnostic Criteria for Research. Sociodemographic and clinical data sheet, Brief Psychiatric Rating Scale, the Internalized Stigma of Mental Illness Scale, Morisky Adherence Scale, and Rosenberg Self-Esteem Scale were administered. The collected data were analyzed using descriptive and inferential statistics in Statistical Package for Social Science (SPSS) 21 version. Results: The findings show that 45% of the participants were having moderate internalized stigma and 21% of the participants were having severe internalized stigma. Self-Esteem Scale (B = −341, t = −2.940, P = 005), medication adherence (B = −701, t = −9.832, P = 000), and insight (B = −711, t = −6.496, P = 000) contributed significantly to the prediction of internalized stigma among persons with schizophrenia (F [3,63] =58.712, P = 000) accounting for 85.8% variance. Conclusion: The findings confirm that self-esteem, medication adherence, and insight contributed significantly to the prediction of internalized stigma among persons with schizophrenia.

“I can't cry on cue”: Exploring distress experiences of persons with sickle cell

Persons with sickle cell disease exhibit high levels of distress, which has been documented with validated measures. However, there has been little qualitative investigation of the sources of distress in the lives of persons with sickle cell or the strategies they use to manage different sources of distress. Our study sought to: (1) identify sources of distress for persons with sickle cell, (2) explore management strategies for different sources of distress, (3) inform content development of the future mobile phone application, and (4) incorporate patient voices in the design and development phases of the future mobile phone application. In this manuscript, we present findings for the first objective. Using convenience sampling, we recruited participants with sickle cell (n = 11) from a home visit program at The Ohio State University Wexner Medical Center between February and July 2021. One team member conducted one-on-one semi-structured interviews with participants. We coded and analyzed all transcripts. Participants identified clinical encounters in the emergency department and intermediate care center to manage acute pain flares as the most profound source of distress. Our analysis identified four themes: (1) Pain has performative features, (2) Stigma and racism surround care, (3) Sickle cell is a neglected disease, and (4) Participants lack control over their pain management plan. Researchers may wish to consider how these settings can foster distress, and providers may wish to adopt participant recommendations to reduce distress associated with seeking pain treatment in acute care settings.

Andrey Platonov: Utopia as a private matter. On the writer’s first ‘five-year plan’ in literature

The article is concerned with the stylistic particularities of A. Platonov’s early works (the novellas The Sluices of Epiphany [Yepifanskie shlyuzy], The Innermost Man [Sokrovenniy chelovek], and For Future Use [Vprok]), characterized by a new kind of consciousness inspired by socialist utopia. In the opinion of the critic V. Kozlov, it is during the first Soviet five-year plan that Platonov’s style emerges as uniquely recognizable thanks to, among other things, his personal experience as a land amelioration engineer — a job he took under the birth name of Klimentov. Kozlov argues that a life in utopia as personally experienced by the first Soviet social and scientific activist and administrator finds its way into the personalities of Platonov’s characters as well as his plots and inimitable language of narration. However, by the end of the five-year period, the writer had unambiguously deviated from the path of the official Soviet literature. The reason being that, while the Soviet utopia had been conceived as a social and political project, Platonov’s works demonstrate that an individual may experience their private Soviet utopia, which often dramatically, if not tragically, differs from the collective idea.

Peran adverse childhood experience terhadap kecemasan sosial pada remaja

Social anxiety phenomena can occur easily because each individual has a tendency to experience social anxieties with their individual's different levels of anguish. An adverse childhood experience (ACE) is a negative experience that a person experiences during childhood, such as physical violence, sexual violence, neglect, or emotional instability in the family. Some literature shows that person with more ACE experience tend to have a higher level of social anxiety compared to those who do not experience ACE. The aim of this survey is to find out the impact between adverse childhood experience and social anxiety in adolescents. This research used quantitative approach with a correlational design. The subjects were determined using random sampling techniques with samples of 282 students. As for the ACE variable, the World Health Organization Adverse Childhood Questionnaire (WHO ACE-IQ) scale and the social anxiety variable using the SAS-A scale (Social Anxiety Scale for Adolescents). The analysis of the research data uses simple linear regression analysis. The results of this study show that there is no correlation between adverse childhood experience and social anxiety. Adverse childhood experience does not have significant influence with social anxiety in adolescents.

"I'm not getting paid to give you a TED talk on how my trans body works". Experiences of hysterectomy gender affirming surgery: A qualitative study.

To explore the experiences of care surrounding hysterectomy as part of gender affirming surgery. An in-depth reflexive thematic analysis from accounts by 10 out of 12 people was undertaken. Experiences were then mapped to the surgery journey as a template for developing system responsiveness. No one person's experience of the procedure was affirmed across the entire surgery journey. Transgender health literacy was central to inclusive practice as it mediated bodily autonomy being upheld. The physical care environment influenced the experience, for example, the waiting room was marginalizing (intimidating), with a gendered clinic name and toilets. Some participants took a female support person/partner so that "people looking would assume that I was there supporting her, not the other way around." Communication misalignments were evident around information provided/understood about fertility and ovarian preservation. Participants were also placed in the position of both receiving care and providing education: "I also shouldn't have to be going in there for treatment, and then being expected to educate the medical professional that's meant to be helping me… I'm not getting paid to give you a TED talk on how my trans body works." The experiences mapped across the surgery journey highlighted multiple levels of service provision development needed to foster inclusive practice, for example, from workforce education to healthcare policy. Healthcare for transgender people can be unsafe and inequitable. Increasing transgender health responsiveness across the surgery journey will facilitate better alignments in communication and uphold bodily autonomy, leading to safer and inclusive practice.

Koreanautistic persons facing systemic stigmatization from middle education schools: daily survival on the edge as a puppet.

Korean autistic persons who have endured an integrated secondary education system have been exposed to school bullying, causing trauma and stigma to them. It also blocks them from entering a tertiary education system and a decent work, resulting in a lower quality of life. However, research on how it affects autistic persons has not yet been conducted in Korea. Fourteen adult autistic persons in the Republic of Korea participated in the semi-structured focused group interviews. Their conversations were analyzed through qualitative coding. The interview results show the rare voice of Korean autistic people. Although interviewees experienced physical, verbal, and sexual violence against them during the secondary education period, they could not get substantial assistance from schools and society. Interviewees agreed that bullying is inherent in the secondary education system of Korea, even in Korean culture. They experienced the cause of bullying being attributed to them as victims rather than perpetrators, and impunity is given to the bullying assailants. Early analyses of this article confirm that such experiences are combined with the sociocultural climate of elitism, meritocracy, and authoritarianism in the Republic of Korea. The study confirmed that the autistic person's bullying experience does not come from the social inability of autistic people but the "profound" competition and discriminative atmosphere of the society. The result urges further studies on the bullying experience of East Asian autistic persons and the construction of Korean intervention strategies to prevent school violence against Koreans with disabilities, especially autistic pupils.

Gender Impeded: The Lived Experiences of Transgenders at The Workplace

This article examines the lived experiences of Malaysian transgender persons at the workplace. Drawing on focus group discussions with transgenders working in a broad range of sectors in Malaysia, we illustrate the challenges they face in relation to discrimination and lack of inclusiveness at work. Discrimination at work can take several forms. Ozereen (2014) states that it can be formal and/or interpersonal. Contrary to previous reports, we find that transgender persons are accepted in Malaysian organisations to some extent. The ‘assumption’ therefore fundamentally affects the chances of LGBT persons getting hired, as well as their chances for career progression (Mize 2016). In continuation, we find that they remain subjected to specific forms of discriminatory practices and continue to experience a climate non-inclusiveness which fundamentally impede the full expression of their chosen gender identity at the workplace. However, in the case of Malaysia, there is no recognition of transgender at the workplace as regards their chosen gender identity. Transgender remain categorised as per their gender assigned at birth. This is only to be expected since organisations operating in Malaysia are subjected to and bound by the nation’s laws and regulations. Therefore, unless the nation’s laws are amended to recognise a third gender, or in allowing individuals to change their gender, there will not be any changes in terms of gender recognition at the workplace.

How Latinos’ perceptions of environmental health threats impact policy preferences

AbstractObjectiveThis article examines the relationship between environmental health threats, personal experiences with climate change, and their association with attitudes toward global warming and willingness to pay for clean energy.MethodsUsing a nationally representative survey of Latino adults (n = 1200), we use categorical regressions to examine the relationship between environmental health threats and policy preferences.ResultsLatinos who have personally experienced climate change and who view air pollution as a threat, are more likely to be concerned with climate change and believe that passing stricter environmental laws will improve the economy as opposed to reduce econonic growth. Latinos who have experienced climate change and worry about the impact of climate change in their homeland are also more willing to pay $5 or $10 for clean energy.ConclusionThis study has implications for our collective knowledge of Latinos’ connections to the environment and policy outcomes and contributes to the growing area of environmental public opinion among ethno‐racial groups.

Early Post-Transplant Adaptation Experience in Young and Middle-Aged People With Kidney Transplant in China: A Qualitative Study.

Successful adaptation to post-transplantation life in patients who have undergone kidney transplants is crucial. The psychosocial needs of people with kidney transplants are closely related to the health of the transplanted kidney. If transplant recipients cannot adapt to the effects of the transplant, their physical and mental health will be seriously impaired. The purpose of this study was to explore the early post-transplant adaptation experience of young and middle-aged persons with kidney transplants in China based on the Roy adaptation model. A qualitative descriptive study was conducted using semi-structured interviews. Fifteen young and middle-aged persons with kidney transplant were recruited from a tertiary hospital in China between September 2022 and March 2023 through purposive sampling. Data were analyzed using a thematic analysis approach. This study identified 4 themes: (1) "two-sided" changes in physiological functioning, (2) "dawn and darkness" (conflicting perceived emotions about the future), (3) role functioning adaptation conflict and impairment, and (4) social isolation and the challenges of coping. This study found that early post-transplant adaptation in young and middle-aged people with kidney transplant included both positive and negative experiences, and these findings can provide new insights into research related to successful post-operative adaptation.

NOOR: Illuminating Vitiligo through Cinematic Entrepreneurship and Social Change

The moving and inspiring short film NOOR explores the experiences of those impacted NOOR is a moving and thought provoking short film that delves into the lives of people affected by Vitiligo (Pulberi). The disease causes depigmentation of the skin, causing white patches of skin on the body. The film highlights the tests, trials, and consequential successes faced by such a person, all the while learning to accept oneself as one is with the resultant self-confidence. The aim of this treatise is to develop an impactful cinematic experience that portrays the unique experiences of persons who suffer from Vitiligo, including psychological misery, suffering social stigma, and the resultant effects on self-esteem and confidence. The much-needed unknown disorder is shown in the film so that its psychological effects and the tribulations faced by people who have it can be seen. The drive to delve into the topic of Vitiligo stems from the necessity to discuss uncomfortable subjects that are usually misunderstood and face social stigma. Vitiligo imposes a significant effect on one’s mental status, self-esteem, and self-confidence, not to mention its visibility. The crux of the film revolves around the theme of a person suffering from Vitligo who has a driving passion to create a career in athletics, which is hindered due to her condition. The entrepreneurial component of this endeavor is conceptualizing NOOR's potential beyond its function as a film. It acts as a model for a broader commercial project—a whole multimedia platform focused on raising awareness and empowering individuals with Vitiligo. This platform goes beyond conventional cinema by including interactive experiences, educational tools, and a community involvement program. The main objective is to utilize this film representation not just for educational purposes but also as a stimulus for societal contemplation, encouraging conversations regarding traditional beauty norms, and nurturing a more comprehensive and compassionate community. This method harnesses the potential for entrepreneurship by creating engaging visual material and generating chances for social change and empowerment focused on Vitiligo.

Persons with Disabilities in the Christian Church: A Scoping Review on the Impact of Expressions of Compassion and Justice on their Inclusion and Participation

Despite the recognition of societal inclusion as a human right, persons with disabilities face many barriers preventing their participation in mainstream Christian denominations. A scoping review was conducted to map the relevant literature to explore the Christian Church’s expressions of compassion and/or justice toward persons with disabilities, and how this impacts their inclusion and participation. The findings confirm the paucity of literature addressing this phenomenon, as well as the under-representation of persons with disabilities in research concerning their own interests. Four nested themes reflect the harmful effects of misplaced pity and insufficient justice toward persons with disabilities, revealing evidence of oppression, expressed through stereotypes, prejudice, and discrimination – all perceived to hinder their meaningful participation in the body of Christ. Knowledge gaps concerning the lived experiences of persons with disabilities in this setting were identified and recommended for future research.