For people living with Dementia (PwD), Person-Centered Care (PCC) is emphasized. PCC requires knowledge about patient preferences. This formative qualitative study aimed to identify patient-relevant criteria and sub-criteria of PCC for PwD, to design a quantitative preference study. After an initial focus group interview with n=2 Dementia Care Managers to ensure comprehensibility, we conducted individual interviews with n=10 PwD and n=3 informal caregivers (CGs). The interviews followed a semi-structured interview guide including a card game. The cards showed 12 criteria and 12x3 sub-criteria of PCC identified by a previous systematic review. Criteria-cards were shown to the PwD to explore their conception of the 12 criteria of PCC. Subsequently, PwD had to sort and rank the cards to identify the most important criteria of PCC. Interviews were recorded and transcribed verbatim. Two reviewers coded and analyzed the transcripts with qualitative content analysis. Ranking results from the individual card games were coded on a 10-point scale, whereupon sums and means for criteria across interviews were calculated. Analyses were discussed in a final meeting with the research team until consensus. Six patient-relevant criteria with each two sub-criteria of PCC for PwD emerged from the participant’s elaborations and card games; social relationships (indirect contact, direct contact), cognitive training (passive, active), organization of care (decentralized structures & no shared decision-making, centralized structures & shared decision-making), assistance with daily activities (professional, family member), characteristics of professional CG (empathy, education & work experience) and physical activities (alone, group). Our study provides evidence about patient-relevant criteria and sub-criteria of PCC for PwD to design a quantitative preference study. PwD had preferences for PCC and could express them. Future research should pay particular attention to dementia-sensitive wording and the balance between comprehensibility vs. realizability, completeness, independence and relevance of the criteria and sub-criteria in this population.
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