ICF Core Sets For Multiple Sclerosis Research Articles

Validation of the Comprehensive ICF Core Set for Multiple Sclerosis: A Turkish clinical perspective.

The aim of this study was to evaluate the results of the construct validity of the Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set for Multiple Sclerosis (MS) and to identify the impact of MS on specific health domains according to the ICF categories in Turkish individuals. Between December 2011 and December 2012, a total of 150 individuals with MS (69 males, 81 females; mean age: 39.8±8.0 years; range, 19 to 52 years) who were diagnosed by a neurologist at least six months previously were included. The Comprehensive ICF Core Set for MS was used to assess functioning, disability, and environmental factors in all participants. The Spearman correlation coefficient was used to determine construct validity of the ICF Core Set between the ICF components and disease-specific and general measurements. The most frequently coded impairments in the body functions component were b280 sensation of pain, b134 sleep functions, b1301 motivations, and b740 muscle endurance functions. The most frequently coded impairments in the body structures component were s110 structure of brain, s120 spinal cord and related structures and s750 structure of lower extremity. A significant problem was documented in 47 of the 53 categories of the activities and participation. Of the 38 categories in the environmental factors, 23 were identified as a facilitator, while 12 categories were identified as a barrier. All body function, structure, activities and participation and environmental factors categories showed a significant correlation with disease-specific and generic measures. Based on these results, the ICF Core Set may help to determine major facilitators or barriers to functioning and disability and a targeted rehabilitation approach in patients with MS.

Content validity of the Comprehensive ICF Core Set for multiple sclerosis from the perspective of speech and language therapists.

The Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set for Multiple Sclerosis (MS) is a comprehensive framework to structure the information obtained in multidisciplinary clinical settings according to the biopsychosocial perspective of the International Classification of Functioning, Disability and Health (ICF) and to guide the treatment and rehabilitation process accordingly. It is now undergoing validation from the user perspective for which it has been developed in the first place. To validate the content of the Comprehensive ICF Core Set for MS from the perspective of speech and language therapists (SLTs) involved in the treatment of persons with MS (PwMS). Within a three-round e-mail-based Delphi Study 34 SLTs were asked about PwMS' problems, resources and aspects of the environment treated by SLTs. Responses were linked to ICF categories. Identified ICF categories were compared with those included in the Comprehensive ICF Core Set for MS to examine its content validity. Thirty-four SLTs named 524 problems and resources, as well as aspects of environment. Statements were linked to 129 ICF categories (60 Body-functions categories, two Body-structures categories, 42 Activities-&-participation categories, and 25 Environmental-factors categories). SLTs confirmed 46 categories in the Comprehensive ICF Core Set. Twenty-one ICF categories were identified as not-yet-included categories. This study contributes to the content validity of the Comprehensive ICF Core Set for MS from the perspective of SLTs. Study participants agreed on a few not-yet-included categories that should be further discussed for inclusion in a revised version of the Comprehensive ICF Core Set to strengthen SLTs' perspective in PwMS' neurorehabilitation.

Validation of the Comprehensive ICF Core Set for Multiple Sclerosis from the perspective of occupational therapists

Objective: The Comprehensive ICF Core Set for Multiple Sclerosis (MS) is an application of the International Classification of Functioning, Disability and Health (ICF) and represents the typical spectrum of problems in functioning of People with MS (PwMS). The objective of this study was to validate this ICF Core Set from the perspective of occupational therapists (OTs). Method: In a three-round Delphi study, OTs were asked about problems and resources of PwMS, as well as environmental aspects treated by OTs. Statements were linked to the ICF and compared with the categories included in the Comprehensive ICF Core Set for MS. Results: Sixty-one OTs from 21 countries agreed on 71 categories that are included in the Comprehensive ICF Core Set for MS (19 Body Functions, 40 categories of Activities and Participation, 12 Environmental Factors). Eleven ICF categories were identified as not-yet-included ICF categories in the Comprehensive ICF Core Set for MS (6 Body Functions, 2 categories of Activities and Participation, 3 Environmental Factors). Conclusion: This study contributes to the validity of the ICF categories included in the Comprehensive ICF Core Set. It outlines which areas of functioning and health are relevant for PwMS from the perspective of OTs and consequently should be assessed.

Validation of the Comprehensive ICF Core Set for Multiple Sclerosis From the Perspective of Physical Therapists

The Comprehensive ICF Core Set for Multiple Sclerosis (MS) is an application of the International Classification of Functioning, Disability and Health (ICF) and represents the typical spectrum of problems in the functioning of people with MS. The objective of this study was to validate the Comprehensive ICF Core Set for MS from the perspective of physical therapists. A 3-round survey based on the Delphi technique was used. Physical therapists experienced in the management of MS were asked about problems and resources of people with MS as well as environmental aspects treated by physical therapists (eg, use of assistive devices, support). Statements were linked to the ICF and compared with the Comprehensive ICF Core Set for MS. Eighty physical therapists from 23 countries mentioned 2,133 issues that covered all of the ICF components. Two hundred thirty-eight ICF categories were linked to the statements. Forty-six categories in the Comprehensive ICF Core Set for MS were confirmed by physical therapists at the same level or a more specific level of classification. Nineteen additional ICF categories were reported by at least 75% of the participants. The results of this study support the content and face validity of the Comprehensive ICF Core Set for MS. Areas of functioning and health that physical therapists believe should be assessed were identified. The findings of this study as well as the results of completed and ongoing validation studies will further elucidate the validity of the Comprehensive ICF Core Set for MS from different perspectives.

Validation of the Comprehensive International Classification of Functioning, Disability, and Health Core Set for multiple sclerosis from the perspective of physicians

The Comprehensive International Classification of Functioning, Disability and Health (ICF) Core Set for multiple sclerosis (MS) is an application of the ICF to describe the typical spectrum of functioning in people with MS. The objective of this study was to validate the Comprehensive ICF Core Set for MS from the perspective of physicians. Using a three-round Delphi technique, physicians experienced in the MS treatment were requested to name patients' problems, resources, and aspects of environment. The statements of the first Delphi round were linked to ICF categories based on established linking rules. These categories as well as the results of the second round were reported back to the participants. Eighty-four physicians participated in the study. Totally, 89 categories (64.5%) of the Comprehensive ICF Core Set for MS were confirmed by the participants. Eight ICF categories, which are currently not included in the ICF Core Set, were identified. The validity of the Comprehensive ICF Core Set for MS was largely affirmed by the physicians. However, some additional categories were named, which should be further discussed regarding a revised version of the Comprehensive ICF Core Set for MS.

The development of ICF Core Sets for multiple sclerosis: results of the International Consensus Conference

To systematically and comprehensively describe functioning and disability in Multiple sclerosis (MS), practical tools based on the International Classification of Functioning, Disability and Health (ICF), such as ICF Core Sets, are needed. To report on the results of an evidence-based International Consensus Conference to develop the Comprehensive and Brief ICF Core Set for MS. A formal and iterative decision-making and consensus process was undertaken, involving the integration of evidence from preparatory studies (expert survey, systematic literature review, qualitative study, empirical cross-sectional study) and expert opinion. The decision-making and consensus process included discussions and voting in working groups and plenary sessions involving selected international experts from different health professions. Twenty-one experts from 16 countries selected 138 ICF categories for the Comprehensive ICF Core for MS (40 Body functions, 7 Body structures, 53 Activities and Participation categories and 38 Environmental factors) and 19 categories for the Brief ICF Core Set for MS (8 Body functions, 2 Body structures, 5 Activities and Participation categories, 4 Environmental factors). An evidence-based and formal decision-making consensus process led to the approval of ICF Core Sets for MS which should be further validated.

The development of ICF Core Sets for Multiple Sclerosis

Functional impairments, activity limitations and restrictions in participation are consequences of Multiple Sclerosis (MS) that occupational therapists, among other health professionals, focus on. Unfortunately, the field lacks a widely agreed-upon tool for capturing this complex construct. With the International Classification of Functioning, Disability and Health (ICF), we can now rely on a globally-agreed-upon framework and system for classifying the typical spectrum of problems in functioning of individuals. ICF Core Sets are lists of ICF categories selected to capture those aspects of functioning most likely to be affected by specific diseases. ICF Core Sets for MS are in the process of development. The ICF Core Sets for MS will be defined at an ICF Core Sets Consensus Conference, which will integrate evidence from four preparatory studies. The ICF Core Sets for MS are being designed with the goal of providing useful interdisciplinary standards for research, clinical practice and education.