Family Members Of Adolescents Research Articles

Conceptual Framework for the Psychosocial Management of Depression in Adolescents in the North West Province, South Africa

Background A conceptual framework is imperative in the understanding of the psychosocial management of depression in adolescents, owing to the ability to effectively present and demonstrate the linking of concepts for an in-depth understanding of the phenomenon. Objectives This study aims To develop and validate a conceptual framework for the psychosocial management of depression in adolescents in the North West Province, South Africa. Methods A qualitative, exploratory, descriptive, contextual research design was followed in two phases: the empirical phase (phase 1) and the development of a conceptual framework phase (phase 2). Phase 1 consisted of two steps: firstly, a systematic review (referred to as step 1), followed by qualitative, exploratory, descriptive, and contextual research (referred to as step 2). The outcomes from the empirical phase served as the foundation for developing a conceptual framework for the psychosocial management of depression in adolescents, North West Province, South Africa. In Phase 2, the development of this conceptual framework was guided by addressing the six crucial questions introduced by Dickoff et al. (1968) regarding Practical Orientation and validated by Chinn and Kramer’s five criteria questions. Results The conceptual framework focused on mental health practitioners, immediate and extended family members of adolescents, social workers, psychologists and peer groups of adolescents, adolescents diagnosed with depression, mental health institutions, homes of adolescents, schools, religious institutions, and communities. Conclusion The conceptual framework for the psychosocial management of depression in adolescents provides comprehensive insights capable of enhancing the recovery process for adolescents dealing with depression. Implementing this conceptual framework has the potential to enhance professional practice, elevate the quality of care provided, and contribute to expanding the body of knowledge within the field of mental health.

Prospects for preconception genetic screening at the pregnancy planning stage

To date, the active introduction of genetic technologies into practical medicine continues in the healthcare sector. The number of genetic diseases is growing, for which different gene therapy and targeted therapy options are emerging. At the same time, the genetic burden in the population is also increasing. The only way to reduce it is the universal introduction of primary preventive programs, the most significant of which is preconception screening, or carrier screening of monogenic diseases. In this review article, various options for preconception screening are considered in detail and the main categories of people for whom such a survey is indicated are identified. The latter are high school students, couples registering a marriage, couples planning a pregnancy, women in early pregnancy, relatives of family members of adolescents with established disabilities, as well as donors of sperm or eggs used in IVF cycles. A detailed historical perspective and examples of various international carrier screening programs for genetic diseases are given in this review. Our analysis shows that sequential testing for monogenic diseases is an appropriate screening strategy (the woman shall be examined first). As part of the screening, the ethnic composition of the population should be taken into account. However, in the case of a mixed population and a high frequency of migration, it is preferable to use an expanded panel that includes the most frequent diseases characteristic of the nationalities inhabiting a certain region. The best results are achieved with mandatory or almost mandatory screening. This review shows the main steps that have been taken in the Russian Federation over the past two years and describes the programs of the Research Institute of Obstetrics, Gynecology and Reproductology named after D.O. Ott, Saint Petersburg, Russia. These include free screening programs for family members and relatives of patients with the most common diseases and couples with reproductive loss, as well as a carrier screening program for six major diseases at the expense of the patient. The summary part provides an assessment of the prospects for the practical use of carrier screening in the general population and high-risk groups, as well as for donors of reproductive material, in Russia.

O cuidado de crianças e adolescentes negros com problemas de saúde mental na interseccionalidade entre gênero e raça

Objective: to characterize the sociofamily profile of black-skinned children and adolescents with mental health problems and to intersectionally describe who assumes responsibility for their care. Method: a descriptive and exploratory study with a quantitative approach, developed in the Psychosocial Care Center for Children and Adolescents from the North region of the municipality of São Paulo. The data were collected from 47 family members of black-skinned children and adolescents, using a script with predefined variables submitted to statistical analysis. Results: a total of 49 interviews were conducted: 95.5% women with a mean age of 39 years old, 88.6% mothers and 85.7% black-skinned. Family income comes from wages for all the male caregivers and for 59% of the women. Among the black-skinned female caregivers, 25% live in their own house, whereas this percentage is 46.2% among the brown-skinned ones. Of all the caregivers, 10% have a job, 20% live in transferred properties, 35% in houses of their own and 35% in rented places. The social support network is larger among white-skinned people (16.7%), followed by brown-skinned (3.8%), and absent among black-skinned individuals (0%). Conclusion: those responsible for the care of black-skinned children and adolescents monitored by the CAPS-IJ are almost entirely women, black-skinned (black or brown) “mothers or grandmothers”, with unequal access to education, work and housing, constitutional social rights in Brazil.

Attitude towards death in family members of adolescents who applied to the crisis care room of a child psychiatric clinic due to suicidal thoughts

IntroductionThe study of ideas about death and the mechanisms of their formation in adolescents with suicidal behavior is an important task for both diagnosis and psychotherapy. The parents’ notions of death, and the prohibition on discussing the topic of death in the family, can significantly distort the adolescent’s relationship with death.ObjectivesInvestigate differences in attitudes towards death in parents and adolescents who apply to the crisis care room of a child psychiatric clinic.MethodsThe study involved 90 adolescents with their parents who applied to the crisis outpatient care system. The following questionnaires were offered: Death Attitude Profile-Revised, Death Anxiety Scale, Experiences in Close Relationships-Revised, Multidimensional Scale of Perceived Social Support, GAD-7.ResultsSignificant differences were found for most of the scales in the samples of adults and adolescents, of particular interest to us were the scales “death avoidance” (W=317,500,z=3,089,p=0,002) and “perception of family support» (W=288,500,z=3,393,p=0,001). For the group of adolescents, there are higher indicators on the scales of anxiety (W=61,000,z=-2,546,p=0,011), anxiety in close relationships (W=83,000,z=-2,549,p=0,011), avoidance of close relationships (W=28,000,z=-3,870,p=0,000), and death as a means of escape (W=54,500,z=-3,076,p=0,002).ConclusionsIn families of adolescents with suicidal behavior, the severity of dysfunctional patterns of building close relationships and the presence of sharply opposite positions in relation to death in children and parents are observed without the possibility of discussing this topic.DisclosureNo significant relationships.

"Changed our lives": Psychosocial issues experienced by families of early adolescents with leukemia.

This research aimed to explore psychosocial problems experienced by families of early adolescents with leukemia. This phenomenology research was done during December 2019-August 2020 and involved eighteen families (47 family members) of early adolescents (10-14 years old) with leukemia. Participants were recruited by using purposive sampling and snowball techniques. Data were collected by using in-depth interviews and non-participatory observations until data saturation. Content analysis was used for data analysis. Member checking and triangulation methods were confirmed for trustworthiness. The families' perception on psychosocial problem experiences included three themes and nine sub-themes. The first theme was dealing with adolescent' emotional changes with sub-themes, namely, emotional responses to the illness, compensation for the suffering, and self-showing. The second theme was parents' social isolation with sub-themes, namely, cancer-stigma, burden of care, and jealousy to non-cancer families. The last theme was emotional distress struggles with sub-themes, namely, feeling worried, guilty, and depressed. Leukemia diagnosis in early adolescents causes psychosocial problems affecting the family lives. Health care providers need to concern and support the families and the adolescents so that they can pass through the difficulties with positive adjustments.

QUIMIO EM CASA: APLICATIVO PARA FAMILIARES DE CRIANÇAS E ADOLESCENTES EM USO DE ANTINEOPLÁSICOS ORAIS

ABSTRACT Objective: to develop and validate a mobile application for the guidance of family members of children and adolescents undergoing treatment with oral antineoplastic drugs. Method: this is methodological research developed in seven steps: search for themes through interviews with twenty-three family members of children and adolescents undergoing oral chemotherapy; theoretical study; mobile application development; validation with thirteen expert judges; adequacy; validation with twelve family members of children and adolescents undergoing oral chemotherapy and mobile application final adaptation. The interviews were analyzed using the Interface de R pour Analyses Multidimensionnelles de Textes et de Questionneires software and validated with a Likert-type scale, considering validated items with a Concordance Index equal to or greater than 70%. Results: the application “Quimio em Casa” was returned with two interfaces, a desktop version aimed at health professionals and the application for family members of children and adolescents undergoing treatment with oral chemotherapy. The contents that guided the application development were storage, handling, administration, specific care for each chemotherapy agent, adverse effects, when to go to the emergency room and daily checking of administrations. The application was designed and validated with an adequacy Concordance Index of 96.7% among judges, and 100% by family members. Conclusion: the application proved to be valid as an educational technology in practical application with family members of children and adolescents undergoing oral chemotherapy.

Experiences of families of adolescents with gender incongruence in the light of the Calgary Models for Families.

to know the experiences of family members of adolescents with gender incongruence. this is a qualitative case study, supported by the Calgary Family Assessment and Intervention Models theoretical-methodological framework. Data collection took place through semi-structured interviews, participant observation in family groups and document analysis, with eight family members. Data analysis was performed following the precepts of content analysis. with family assessment, two categories emerged: "Challenges in the face of gender transition", which highlighted the problems related to the expectations created at birth, new names, pronouns and gender fluidity and the fear of prejudice, and "Supporting aspects in the face of the possibility of gender transition", which revealed family support as a strong point. knowing the experiences allowed us to understand the challenges that family members face when facing physical and emotional aspects of their children's gender transition. It was noticed that the act of seeking help and offering support is important for a healthy transition. The findings provided a better understanding of family issues and provided suggestions on how nursing can develop care for this population.

A qualitative investigation of adolescent participation in Care Groups for improved maternal and child nutrition: experiences from rural Zimbabwe

The Amalima program in Matabeleland North and Matabeleland South Provinces of Zimbabwe, an intervention funded by the United States Agency for International Development (USAID) Office of Food for Peace, promoted Care Groups from 2014-2020. Care Groups are community peer- to- peer support groups that provide a platform for promoting optimal nutrition and health for pregnant and lactating women, as well as children 6-23 months of age through training sessions run by community group leaders to promote recommended maternal, infant and young child nutrition practices. A qualitative study was conducted to describe adolescent mother inclusion and participation in Care Groups, highlighting key enablers and barriers for participation. A total of 28 in-depth interviews were conducted with adolescents in Care Groups, as well as adolescents not participating in Care Groups. Focus group discussions were also held with family members of adolescents. The key enablers for Care Group participation by adolescent mothers were found to include the motivation to learn how to take care of their children, the social and interactive benefits, family support, and positive facilitator attitudes. Key barriers to participation were workload and chores at home, lack of family support, and lack of adolescent-friendly approaches amongst facilitators. Key recommendations include training facilitators on adolescent-friendly approaches and group dynamics so they can better understand and relate to adolescents.

The longitudinal relationship between family and peer teasing in young adulthood and later unhealthy weight control behaviors: The mediating role of body image.

Sociocultural theories hold that family and peer weight-related teasing increases the risk for unhealthy weight control behaviors (UWCBs) by negatively impacting body image. Although much cross-sectional support exists for these pathways, longitudinal data are lacking. This study tested the longitudinal relationships among peer and family teasing (occurrence and perceived impact) in early adolescence, body satisfaction in late adolescence, and UWCBs in young adulthood among a racially/ethnically and socioeconomically diverse population. Data were drawn from three waves of Project EAT over a 15-year period (Eating and Activity in Teens and Young Adults), and included responses from 1,902 young adults (57% female). Among female participants, a mediated indirect pathway emerged with family weight-related teasing predicting increased engagement in UWCBs in early adulthood via poorer body image in late adolescence. In contrast, peer teasing did not predict body image or UWCBs. Among boys, the mediated indirect pathways were not significant. However, poor body image in late adolescent males predicted higher likelihood of engaging in UCWBs in early adulthood. These findings support the long-term impact of family weight-related teasing on greater risk for UWCBs among girls and young women, and poor body image as a mechanism accounting for this relationship. Moreover, the results highlight the poor body image among adolescent boys as a factor for increased risk of engaging in UWCBs in early adulthood. Pending replication in current cohorts, health promotion and prevention involving family members of early adolescents that address family weight teasing and body image are needed.

Family knowledge about the legal rights of children and adolescents with cancer.

Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family's knowledge about legal rights. Descriptive statistics were used to analyze data. 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.

Coping with family members of children and adolescents with cancer: a quantitative approach

Coping with family members of children and adolescents with cancer: a quantitative approach

Screening of Adolescents for Selected Mental Illness and to Identify its Risk Factors

Background: Mental health can be disturbed among adolescents at any time. One in five adolescents areaffected by mental illness age between 14-24 years. 10-20% of adolescentsis affected by mental illness bythe age of twenty all over the World.Aims: The study aims to Screening of adolescents for schizophrenia and depression and to identify its riskfactors.Objectives: 1. To identify the risk factors of specific mental illness among adolescents. 2. To screen andidentify the adolescents for depression through BECK depression scale. 3. To screen and identify theadolescents for neurotic disorders through Brief psychiatric rating scale. 4. To associate the risk factors ofspecific mental illness with their demographic variables.Method: Research approach: Exploratory approach, Research design: Descriptive design.Sample: Adolescents aged between 10-20 years. Sample size: 300. Sampling technique: Non probabilityPurposive sampling Tools: BECK depression inventory to identify depression, Brief psychiatric rating scale:To identify for neurotic disorders. Setting of study: Selected Schools of Wardha district.Results: The main risk factors identified are: Most of the adolescents was having enmeshment relationshiptowards their parents and 2% were having disengagement relationship; 15.67% family members ofadolescents were diagnosed with psychiatric illnesses and on psychiatric treatment. In BECK depressioninventory, most of the adolescents were adopted everyday ups and down are considered normal whereas20% of them were having moderate depression.Conclusion: More interventions are required to deal with mental disorders among adolescents.

Disruption, worries and autonomy in the everyday lives of adolescents with type 1 diabetes and their family members: A qualitative study of intrafamilial challenges.

To explore daily life with type 1 diabetes in families with an adolescent with type 1 diabetes. Management of adolescent type 1 diabetes is carried out in the context of everyday life, thus involving and affecting the entire family. Type 1 diabetes causes disruption of family life, but the specific experiences and challenges of adolescents with type 1 diabetes, siblings and parents are not well-explored. Specifically, research is lacking on the siblings' experience of adolescents with type 1 diabetes. A qualitative design using participatory workshops. A sample of 21 families comprising adolescents with type 1 diabetes (aged 8-18) (N=20), their parents (N=29) and siblings (N=10) participated in four workshops exploring everyday life in families with adolescent diabetes from the perspective of all family members. Data were analysed using systematic text condensation. The COREQ checklist was used preparing the manuscript. Family life with type 1 diabetes was characterised by three overarching themes: (a) the perpetual challenges and disruptive nature of life with diabetes, (b) different ways of worrying about diabetes and (c) diabetes autonomy and emancipation from parents. All family members' lives were marked by these aspects, however in different ways and to varying degrees. Our findings emphasise that type 1 diabetes is indeed a family illness affecting all family members. The study provides insight into the unique experiences of adolescents with diabetes, their parents and siblings, all of whom encounter diabetes-related challenges in their daily lives. The findings call for the inclusion of all family members of adolescents with type 1 diabetes in both research and healthcare practice. Family-oriented approaches targeting adolescents with diabetes as well as their parents and siblings will enable provision of nursing care that can meet the needs of the entire family.

DA SUSPEITA AO DIAGNÓSTICO DE CÂNCER INFANTOJUVENIL: A EXPERIÊNCIA DE FAMILIARES EM SERVIÇOS DE SAÚDE

Este trabalho buscou compreender a experiência de familiares de crianças e adolescentes com câncer, nos serviços de saúde, desde os primeiros sinais e sintomas da doença até a comunicação do diagnóstico. Trata-se de um estudo qualitativo realizado com 20 cuidadores familiares de crianças e adolescentes que estavam em tratamento oncológico em um hospital público da Paraíba. Recorreu-se à entrevista semiestruturada para apreensão dos dados e à análise de conteúdo, do tipo temático, para a organização e análise dos resultados. O processo de análise permitiu a construção de três categorias temáticas: Em busca de um diagnóstico; Diagnóstico; e Mudanças no sistema familiar. Recorrer a vários serviços de saúde, esperar pelo diagnóstico e, por vezes, receber diagnósticos errados causaram sofrimento na família, que geralmente sentia-se negligenciada e impotente. Apesar de grande parte dos cuidadores avaliar a comunicação do diagnóstico como adequada, as reações dos cuidadores expressaram o choque surgido pela notícia. Nesse cenário, identificou-se uma maior união na maioria das famílias e mudanças de rotina e papéis, no sentido de adaptação à adversidade inesperada. Ressalta-se a importância de repensar as práticas de cuidado na rede de assistência oncológica, assegurando uma postura de acolhimento e vínculo, a partir da ótica da integralidade.

TRAINING OF CHILDREN'S AND ADOLESCENTS' FAMILY MEMBERS IN HOME PARENTERAL NUTRITION CARE.

ABSTRACTObjective: To report the experience of the training in home parenteral nutrition (PN) directed to family members of children and adolescents participating in a multidisciplinary intestinal rehabilitation program of a tertiary public hospital.Methods: Cross-sectional descriptive study with family caregivers of patients from the Intestinal Rehabilitation Program of Hospital de Clínicas de Porto Alegre, RS, Brazil, from July/2014 to January/2017. Inclusion criteria: family members of children aged 30 days to 17 years and estimated PN use ≥8 weeks; and family members motivated to care for the child. The training covered: hand washing and disinfection; infusion pump handling; and central venous catheter (CVC) and PN care. Outcomes assessed: catheter-related bloodstream infection (CRBSI) rate, accidental CVC exit, end of PN infusion with more than 60minutes of delay or advance compared to the time predicted, mechanical obstruction, bleeding in the CVC insertion site, and death.Results: Twenty-seven family members of 17 children were trained. Their median age was 28 (18-60) years, and 63% were mothers. The mean CRBSI rate was 1.7/1,000 days of CVC use, and 29.4% of patients had at least one episode of accidental CVC exit. There were no complications related to PN infusion, bleeding, or death.Conclusions: The training of family caregivers allowed the safe implementation of home PN, with the active participation of families, making the procedure feasible in the public health system in Brazil.

Psychological treatment for family members of children with cancer: A systematic review and meta-analysis.

This meta-analytical study examined the effects of psychological treatments applied to family members of children and adolescents with cancer, as well as the characteristics of the studies that can be associated with their effects. Four databases were searched between January 1980 and January 2017; the references of the located studies were reviewed, and emails were sent to experts in this topic. Forty articles fulfilled the selection criteria. The standardized mean pretest-posttest (or pretest-follow-up) change was used as the effect-size index for the treatment and control groups. The 40 articles included 40 treatment groups and 21 control groups. When treatment and control pretest-posttest mean effects were compared, psychological interventions revealed positive, statistically significant results for anxiety (dadj =0.339) and problem-solving skills (dadj =0.385) and, to a lesser extent, for posttraumatic stress (dadj =0.224). No statistically significant differences were found for mood (dadj =0.147), acute stress (dadj =-0.010), coping skills (dadj =0.123), social support (dadj =0.245), or quality of life (dadj =0.538). Positive effects of mild to moderate magnitude were found in the posttests for some outcome measures. Behavioral interventions seem to be the most promising. Interventions achieved the best results when they were long in duration and low in intensity and when they were applied to family members with young children who were undergoing medical treatment. At follow-up, the intervention benefits were diminished. The application of psychological interventions is recommended to mitigate the negative psychological repercussions in this population.

Needs and Experiences of Family Caregivers of Individuals With Autism Spectrum Disorders Across the Lifespan

AbstractBoth service needs and needs of the caregiver may differ across the lifespan for individuals with autism spectrum disorder (ASD). As individuals with ASD age, they may need different services, which can place different burdens on the family. The present study aimed to determine the needs of both the individual with ASD and the family caregiver across the lifespan, as well as what experiences are important to families that may not be captured by quantitative measures. Data for the present study were taken from a large, online survey of family members of individuals with ASD. Participants were primarily mothers, with children ranging from early childhood to adulthood. The survey used a list of various services that could be used by individuals with ASD and the Family Needs Questionnaire to examine service needs and usage. Service needs and usage were compared by age category (childhood, adolescence, and adulthood). Most categories of service needs and usage differed by age, although the percentage of unmet service needs was quite high across all ages. Family members of adolescents or adults tended to report fewer individual needs than did family members of children. In open‐ended responses, families frequently discussed lack of services, worry about the future, and challenges with family and social relationships. Overall findings indicate a still‐high level of unmet service needs for individuals with ASD and their families. Although most basic health needs are met, more specific needs, such as therapy services and employment services, are received by comparatively few families. This has the potential to negatively impact families as the child with ASD ages, despite caregivers reporting fewer personal needs for older individuals.

Reading comprehension treatment development for high school students with autism spectrum disorder: Stakeholder considerations for feasibility

BackgroundWe explored the potential benefits, possible challenges, and further considerations of two proposed academic interventions under development. These interventions target the reading comprehension of adolescents with autism spectrum disorder (ASD). These interventions were part of a comprehensive treatment package proposed to improve postsecondary outcomes for those with ASD transitioning to college, vocational training, and careers. Our purpose was to examine the reading comprehension treatments from the perspective of multiple stakeholders from whom buy-in is needed if treatments are to be used with confidence and fidelity. We aimed to better understand and address the issues that may limit the feasibility of implementation and thus treatment integrity and outcomes of our treatments prior to piloting them in typical high school settings. MethodWe conducted six focus groups across two states. The 39 participants included family members of adolescents with ASD, school instructional and support staff members, and school and district administrators. The questions were semi-structured and open ended. A multistep, team-based approach was used to analyze focus group data. ResultsWe report on three major themes with supporting subthemes. Stakeholders affirmed the need for and value of the proposed academic component. However, they were unsure that the reading interventions would prove beneficial without the proper supports, understanding of ASD in place, and further enhancements. ConclusionsThis study highlights the complexities of designing treatments for students with ASD across the spectrum.Stakeholder feedback is relevant and offers those designing and conducting school-based treatments considerations regarding issues of social validity and quality of life that can enhance or detract from treatment integrity and sustainability of the intervention. A rationale for gathering and using stakeholder feedback is provided to drive research design and implementation, along with recommendations for future research endeavors.

Social support network of family members of abused children and adolescents: Perspectives and possibilities.

To analyse the network of care and social support from the perspectives of family members of children and adolescents who have been abused. The theoretical-methodological background of the ecological model for understanding violence and the Paradigm of Complexity provide a broad perspective of violence. The paradigm considers all aspects that constitute a phenomenon as well as particular features. Qualitative research based on the Paradigm of Complexity, developed by Edgar Morin, the primary philosopher. We have adhered to the COREQ Checklist guidelines for qualitative research. Data were collected through Minimal Maps of Personal Social Networks, and semi-structured interviews were held with 15 families who were assisted by a nongovernmental organisation in a Brazilian city. The notions of comprehension and contextualisation guided the data analysis. Two categories emerged from the data analyses: "Social isolation" and "Affective relationships needs." The maps revealed a weakened and limited network with low-density, homogeneous bonds and few significant bonds. Therefore, the network provided predominantly instrumental and material social support with few important effective relationships. The participants disclosed some strategies to empower their lives. We conclude that it is urgent to develop strategies in a broad manner to promote family empowerment, especially on education and employment dimension, and to construct supportive and respectful relationships between services and families as well. The present study contributes to international clinical nursing, especially in low- and middle-income countries, by discussing (a) looking at and caring for family members of children and adolescents who have been abused in a contextualised manner; (b) family empowerment, which enables them to have access to healthier environments and to educational/employment opportunities; and (c) broad comprehension of health care among the family members, which provides perspectives not only for looking at violence but also for strengthening supportive social relationships.

Conhecimento dos familiares de crianças com diabetes mellitus 1 atendidas em um centro de referência

Introdução: Diabetes Mellitus (DM) tipo 1 é uma das doenças crônicas mais comuns da infância e requer cuidados especiais exigindo do paciente e dos cuidadores comportamento que se adeque as demandas do tratamento, buscando um controle da doença, adesão à terapêutica e conhecimento do que envolve a patologia. Objetivo: Identificar o nível de conhecimento dos familiares de crianças e adolescentes com DM tipo 1, atendidas em um centro de referência em DM do sul do Brasil. Métodos: Estudo transversal com abordagem quantitativa realizado com 62 familiares de crianças e adolescentes diagnosticados com DM1, que responderam dois questionários, um com variáveis sociodemográficas e outro sobre o conhecimento da doença. Resultados: O estudo identificou um bom conhecimento sobre a doença, havendo diferença significativa (p = 0,005) quando comparado ao nível de escolaridade dos participantes. Do total, 25% dos avaliados estavam abaixo do preconizado pelo teste. Conclusão: Os participantes possuem um bom conhecimento sobre a doença, contudo outros fatores implicam para o não controle da DM. Destaca-se a importância de os profissionais estarem capacitados para continuar a desempenhar atividades educativas, que visem a individualidade de cada família atendida.