Abstract
Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family's knowledge about legal rights. Descriptive statistics were used to analyze data. 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.
Highlights
The incidence of cancer in childhood has reached high survival rates[1], it is still associated to loss, suffering, pain, and family breakdown[2]
The main caregivers were represented by the mother figure, a family member who usually takes over the care of the sick child and adolescent[20,21]
The study sets forth the knowledge of the family members about the rights of children and adolescents with cancer and emphasized that this population still needs more information regarding the legislation and possible aids and benefits as well as support from the multidisciplinary team to face the difficulties to guarantee them. It identified that the family members are especially motivated to search for their rights due to the financial impacts coming from the care with their children
Summary
The incidence of cancer in childhood has reached high survival rates[1], it is still associated to loss, suffering, pain, and family breakdown[2]. The National Policy for Comprehensive Child Health Care (PNAISC) has, in its strategic axis IV, actions that qualify the assistance to prevalent diseases, and chronic conditions in childhood[7] According to these and other provisions of law, this population has the right to receive dignified care in health institutions, which gives him attention and respect[6]. Another important aspect for maintaining a healthy childhood and adolescence is the right to continue school activities[6] and enjoy a recreation space, for example, a playroom[8] They can be accompanied during the whole time of treatment, and in exams and appointments, and the public health units must provide conditions of permanence for the companion[9]
Sign-in/Register to view highlights & summary 
Published Version (
Free)
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a call