Participation Of Family Members Research Articles

Improving infectious TB education for foreign-born patients and family members

Objective: In low tuberculosis (TB) incidence countries, linguistic and cultural dissonance between families experiencing infectious TB and TB health care providers is a barrier to effective communication and successful treatment. The purpose of this research was to explore infectious TB education and counselling from the perspective of patients and family members who are foreign-born. Design/Setting: One component of a multiphase, qualitative case study conducted in Calgary, a large city in western Canada. Method: Data were collected through semi-structured interviews, chart review and field notes and analysed thematically. Eight families were represented in the 6 patient and 13 family member participants who had recently experienced infectious TB. Results: Three themes were generated from the data: ‘learning about TB from many sources’, ‘reassurance and connection’ and ‘missing information’. Participants described learning about TB in different ways, feeling reassured once they knew more and sharing information with others. Overall, participants expressed satisfaction with education and counselling received. However, there were indications that communication problems had occurred. Participants asked questions during the interview, described areas of lingering confusion and shared TB-related behaviours incongruent with medical understanding. Knowledge gaps often increased isolation. Conclusion: Gaps in infectious TB education and counselling have negative impacts on patient and family member well-being. Education and counselling can be improved using multiple modes of communication, proactively addressing common misperceptions and reducing barriers to patient participation. Improvements could empower families to better manage their own experience and share accurate TB information with their communities.

Fishing habits and the connection with malaria case in East Lombok Regency

Fishing habits become malaria risk when the fishermen contact with vector, the aim is to know the fishing habits and its correlation with malaria. an observational study using cross-sectional plan toward fishermen where the sample was taken randomly, the data analysis using cross-tabulation of Chi-square. The result of the study shows that there are five variables of fishing habits connecting with malaria case on the coastal area in east Lombok regency, those are the duration of being fishermen ( p = 0.000), the period of fishing ( p = 0.004), the period of returning from fishing activities ( p = 0.015), the participation of other family members ( p = 0.003), the traveling habit of the fishermen ( p = 0.001). The habits which become risk factor are the duration of being fishermen, the period of fishing, the period of returning from fishing activities, family members, and the mobility of fishermen.

Effect of family member participation nursing on depression of patients with dysphagia

Effect of family member participation nursing on depression of patients with dysphagia

Anxiety, social support and satisfaction of patients' families in intensive care units: A descriptive-correlational study.

This study was conducted with family members of patients' in the intensive care unit (ICU) to identify their anxiety level, social support and satisfaction with the ICU. Admission of critical patients to the ICU usually involves the participation of family members. A descriptive-correlational design was used and reported according to the STROBE checklist. The sample consisted of 250 family members in ICUs in a city of Turkey. Data were collected by the Multidimensional Perceived Social Support Scale, the State-Trait Anxiety Inventory and the Family Satisfaction in the Intensive Care Unit scale. A negative correlation was found between family satisfaction of the ICU and state anxiety (r=-0.349, p<0.001), and a negative relationship between the satisfaction of the ICU and trait anxiety of the participants (r=-0.151, p<0.05). There was a significant relationship between the state anxiety level (Adjusted R²=0.080, F=8.247, p<0.001), trait anxiety level (Adjusted R²=0.185, F=19.821, p<0.001), the perceived social support (Adjusted R²=0.094, F=9.640, p<0.001) and satisfaction (Adjusted R²=0.013, F=4.161, p<0.001) of family members and their sociodemographic characteristics. The study concluded that anxiety levels of relatives of the families were high, their social support and satisfaction with the intensive care unit were at a moderate level. There was a correlation between anxiety levels, satisfaction with the intensive care unit, and the perceived social support of families. Holistic care for the psychosocial needs of families who have a member in the ICU should be planned to increase satisfaction. Nurses should observe families closely for anxiety, allow them to ask questions and include them in the care of their family member.

Providing a model for breaking the glass ceiling to promote women in managerial positions in the country's education system

The aim of the study is to provide a model for breaking the glass ceiling to promote women in the country's managerial positions based with the GT strategy. The statistical population includes specialists in the field of educational management with at least 108 specialized doctoral degrees in the northwest of the country. The statistical sample was selected based on the theoretical saturation of 21 people with the available targeted sampling method. Semi-constructed interviews were used to collect data. The data obtained from the text of the interviews were analyzed by the (MAXQDA.Pro2018) software. For accuracy and reliability of data collection method, accuracy criteria were used in GT theorizing (validity and appropriateness). To calculate the reliability of the data collection tool (GT Questionnaire), the method of agreement within the subject of two coders was used. Reliability between coders was 0.875 and Confidentiality of coding was confirmed. The findings of the research and the extracted model show the attention and focus of the members of the expert team on the components of the culture of acceptance and support of women, Planning to support women, transparency in the rules for selecting and appointing managers, Strengthening organizations and demanding freedom, socialization of women within the framework of security and freedom, Comprehensive support for women, participation and support of family members, Cultivate self-confidence and independence, strengthen constructive communication, expand individual knowledge and management, Institutionalizing meritocracy and justice as strategies, contextual conditions and intervention.

Effect of family member participation nursing on depression of patients with dysphagia

Effect of family member participation nursing on depression of patients with dysphagia

Systemic interventions for traumatic event exposure: A 2010–2019 decade review

Trauma exposure is a pervasive issue worldwide. People exposed to traumatic events may develop PTSD, depression, anxiety, and other mental health symptoms. Family and intimate partner relationship problems also are frequently associated with trauma exposure. The purpose of this study was to conduct a systematic research synthesis of the empirical evidence on systemic interventions for traumatic event exposure from 2010 to 2019. A search of peer-reviewed research resulted in 31 articles that met inclusion criteria and were included in this review. Systemic interventions were grouped by modality (e.g., parent-child, couple, group). The collective evidence was strongest for systemic youth-caregiver interventions, group, and couple treatment categories for traumatic event exposure. Youth-centered interventions that included various combinations of family member participation can be considered probably efficacious. Overall, results indicated that systemic interventions for traumatic event exposure were successful in reducing posttraumatic stress symptoms including PTSD, depression, and anxiety, and improving relational outcomes.

ANALISIS DETERMINAN PENDAPATAN RUMAH TANGGA MISKIN DI KECAMATAN KARANGASEM

Poverty is the biggest challenge faced by the world and is one of the three main problems that exist in economic development in the world. This study aims to analyze the effect of education, age, and work participation of family members simultaneously and partially on the income of poor households in Karangasem District. This research was conducted in Karangasem sub-district with a total sample of 100 respondents using the sampling method, namely proportionate random sampling and data collection methods, namely observation, structured interviews, and in-depth interviews. The data analysis technique used is multiple linear regression. The results of this study indicate that the variables of education, age, and the level of work participation of family members simultaneously have a significant effect on the income of poor households in Karangasem District. The variables of education, age, and participation level partially have a positive and significant effect on the income of poor households in Karangasem District.

FLEXIBILITY OF THE IMPLEMENTATION OF INNOVATIONS AND NEW TECHNOLOGIES IN FAMILY BUSINESSES – RESULTS OF OWN RESEARCH

The flexibility of the organization results from changes in the business environment and internal conditions of companies, and the multidimensionality of the concept of the flexibility of operations leads to the considerations in terms of organizational behavior from the perspective of enterprise management. Family businesses are a special group, among others, characterized by the type of management, level of innovativeness, acquisition and mobilization of capital, cultural continuity, but also stability and flexibility of operation. The aim of the article is to diagnose the level of flexibility in the process of introducing innovations and new technologies by family businesses. The article is based on own research conducted in Poland in 2018 on a group of 346 family businesses. The survey, using the proprietary research tool, allowed for conclusions, that the size of the family business and the participation of family members in the power in the company determine the level of flexibility in activities in the area of introducing innovations and introducing new technologies

COVID‒19 Pandemic as an Opportunity to Transform Drug Development

The impact of COVID‒19 on our society is significant. To continue to offer new treatment options to society during and after the pandemic, experiences and ideas gained during this period should be utilized to transform drug development. Collaboration within the industry and with health authorities across the world is required, and now is the time to start the dialogue. To promote transformation, deploying methodologies based on high ethical standards and scientific rigor, prioritizing the safety of study participants, and securing transparency and the quality of deliverables are essential. In addition, broad acceptance of patient and public involvement is needed to promote understanding of drug development and to enable proactive participation of patients and family members. Utilization of digital tools and improving their reliability, the application of model informed drug development and real world data, improvement of regulatory procedures, continuous regulatory harmonization, and collaboration among companies and health authorities are required to continue to deliver breakthroughs that have a positive impact on society.

Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with Motor Neuron(e) Disease: clinicians’ and family members’ perspectives

Introduction International guidelines recommend that health care clinicians communicate with people with MND and their family members about non-invasive ventilation (NIV) and percutaneous gastrostomy tube (PEG) prior to or at the onset of respiratory symptoms. This study sought to discover the degree to which these recommendations are followed in practice. Methods Interpretive Description methodology was employed. Nineteen clinicians experienced in caring for people with MND, six relatives of recently deceased people with MND and one person with MND participated in semi-structured in-depth interviews. Clinicians’ accounts of NIV and PEG related communications were compared to family member participants’ recollections of their own discussions with clinicians. Data were analysed thematically. Results Six major themes emerged that together capture the factors that impact practitioner-patient-family communications about NIV and PEG. Some clinicians were unaware of MND guidelines particularly communicating the burdens or possible withdrawal of NIV or found them challenging to implement. Consequently, family participants reported that they and their relatives with MND found clinicians’ communication on these topics inadequate. This led to them ‘topping up’ their knowledge from less authoritative sources, predominantly the internet. Discussion Clinicians’ lack of awareness of the international guidelines and discomfort about discussing the benefits and burdens of NIV and PEGs means some people with MND and their families may be unprepared for the consequences of using and ceasing NIV.

Stay Current Through Recertification

Stay Current Through Recertification

Characterization of patient safety incidents reported by patients or families to the brazilian health regulatory system – 2014 – 2019

Patient safety incidents, especially adverse events (AEs), are a global public health issue. The objective of the study was to characterize patient safety incidents reported by patients or families to the Brazilian Health Regulatory System (SNVS). This is a descriptive, retrospective study with a quantitative approach, using a database from the Brazilian Health Regulatory Agency (ANVISA), NOTIVISA - Citizen module, 2014 to 2019. A total of 1355 safety incident were reported, a majority from the Southeast region (45.3%), occurred more frequently among women (58.0%) aged between 26 and 35 (16.7%) and 56 and 65 years (16.5%). Healthcare-associated infections (HAIs) (36.3%) were the most frequently notified event, followed by medication/intravenous fluid (IV) incident (36.2%). Injury was mostly classified as mild (32.0%) and moderate (23.7%). From a total of 33 deaths, the majority (51.5%) were due to HAI. There was a significant association between the proportion of deaths and age group (p-value = 0.032). Most notifications were related to HAIs, followed by drugs or IV fluids and most reported incidents resulting in death were due to HAIs, with a significant difference observed in the proportion of deaths in relation to age group. The study demonstrates the need for greater encouragement and participation of patients and family members in reporting incidents, valuing their experiences for continuous learning from errors in health services.

PALLIATIVE CARE RECOVERY OUTCOMES: NATURE OF RECOVERY OUTCOMES AMONG CANCER PATIENTS IN NAIROBI AND NYERI COUNTIES, KENYA

Purpose: This study sought to find out nature of recovery outcomes among cancer patients attending palliative care in Nairobi and Nyeri County&#x0D; Methodology: The study adopted a correlation research design. The target population were the cancer patients, attending treatment at the three palliative care units in Nairobi and Nyeri Counties. Systematic random sampling technique was used in the study to obtain a sample of 96 participants. Semi structured questionnaires were used to collect data. Data was analysed using both descriptive and inferential statistics, namely Pearson Moment Correlation Coefficient(r).&#x0D; Findings: Result showed that, majority of the respondents (65.5%) had a low level of recovery outcomes, while 32.1% had a high level of recovery outcomes. results indicate that the lowest score on recovery outcomes was 31, while the highest score was 74. The mean score was 47.0+9.465, which indicates that the recovery outcomes fell in the low range. These findings were not unusual considering that most of the patients were newly diagnosed with cancer and for some respondent’s metastasis had set in.&#x0D; Conclusion: The study concluded that the two most significant challenges encountered in palliative care were, patient experiencing isolation and lacking finances. Provision of financial support and increasing the number of counselling sessions were suggested as possible strategies for enhancing patient recovery outcomes&#x0D; Recommendation: This study recommended that the palliative care units staff should encourage participation of family members, friends and significant others in the cancer continuum, so as to provide psychological and social support to patients&#x0D; Unique contribution to theory, practice and policy Patients under palliative care could adopt group psychotherapy, including cognitive-behavioural, informational, non-behavioral, social support, and using unusual treatments such as music and art therapy to curb cancer. More cancer related programs enhancing patients AQ should be put in place by the counsellors in order to increase the patients AQ in the palliative care units from moderate level to high level of AQ in order to boost recovery outcomes

Понятие и признаки семейного предпринимательства

Relevance. The current lack of a holistic scientific understanding of family entrepreneurship as a special legal phenomenon is due to the lack of scientific research on this topic, the lack of consistency in their implementation. The lack of coherent doctrinal approaches, in turn, leads to the fact that legislative regulation on issues related to family entrepreneurship is developing in a non-systematic way, within the framework of individual legislative acts, without taking into account the specifics of existing problems and gaps in legal regulation. The science of civil law reveals a number of inconsistencies between the approaches to the regulation of entre-preneurial activity and the regulation of family legal relations. This necessitates the development of a holistic scientific understanding of family entrepreneurship as a special legal phenomenon. The purpose of the research is to develop theoretical provisions aimed at creating a holistic scientific under-standing of family entrepreneurship as a special legal phenomenon, taking into account the peculiarities of entrepre-neurial activity with the participation of family members, the need to protect the rights of participants of such activities and third parties. Objectives: to determine the totality of features of family entrepreneurship as a special legal phenomenon; to determine the features of the balance of interests in the conduct of business in the form of family business; to identify areas for further development of legal regulation of the issues under consideration. Methodology. In carrying out this study, the dialectical-materialistic method, the systematic method, methods of analysis and synthesis, the formal-legal method were applied. The results of the research are of a theoretical and applied nature and are aimed at improving the quality of legal regulation of civil legal relations. The conclusions made in the article are of debatable character, are aimed at continuing research in the framework of the declared subject, at developing basic principles that allow to solve problems related to family entre-preneurship in a uniform way. The article is a continuation of the author's research on the topic under consideration.

La búsqueda de personas en tiempos de pandemia. Desaparición forzada y resistencias colectivas

This paper aims to analyze the consequences of the pandemic in the search of collectives for disappeared persons in Mexico before the strategy of the Mexican State to pause, signal and cancel the participation of family members in the search processes. Based on the accompaniment of the Colectivo Sabuesos Guerreras A. C., we analyze the context of the pandemic, as well as the responses given by groups and relatives of disappeared persons. The methodology used in the article is documentary and qualitative, focused on interviews and discussions, as well as meetings with representatives of groups and human rights centers, and on documentary sources reviews. The pandemic has raised new challenges and new forms of intervention and involvement of popular sectors while searching for the disappeared ones. The socio-sanitary situation also mobilizes other forms of knowledge production that urge to tie previous knowledge, practical experience and the search for information to make visible the ways in which the violations of human rights is not suspended by government decisions, but, on the contrary, is intensified and worsened during the sanitary contingency. In this sense, this work makes possible not only the thinking on the importance of family groups in the search for disappeared persons, but also the presentatio of the logic of governance based on a state of exception, reduplicating the grievance for certain sectors of the population.

Development and validation of an educational video on the care for children using a semi-implantable catheter

ABSTRACT Objectives: To develop and validate an educational video for family members of children with leukemia using a semi-implantable catheter. Method: Methodological research, carried out from 2018 to 2020 in six stages: search for themes through interviews with family members of children with leukemia using a semi-implantable catheter at the Institute of Pediatrics of Rio de Janeiro; theoretical study; video development; online validation with expert judges; adequacy of the video and validation with family members. Interviews analyzed with Iramuteq software and validation with Likert scale considering validated items with a concordance index of 90%. Results: The themes hand hygiene, dressing and catheter fixation; bath care and catheter complications were addressed in an animated video created and validated with a concordance index of 97% among judges and 100% by family members. Conclusion: The study valued the participation of family members in all conception of the video and created a validated educational technology of far reaching and easy to use.

Pemberdayaan Keluarga Sebagai Upaya Menurunkan Kepadatan Larva Aedes spp. dalam Pencegahan Penularan Demam Berdarah Dengue

Abstract. One House One Jumantik Programme (G1R1J) has been launched by the Indonesian governmentsince 2015. This programme emphasizes the participation of family members as jumantik rumah bymonitoring and controlling larvae in their houses. Family’s coaching in the G1R1J’s programme is carried outby each jumantik coordinator. Tasikmalaya and Cimahi were Dengue endemic areas with high cases in thelast five years. This study aimed to determine the effect of family empowerment by the Jumantik Coordinatorin reducing the density of Aedes spp. larvae, reducing the number of DHF cases and increasing familyparticipation in vector surveillance. The study was located in the Tasikmalaya and Cimahi areas andconducted with an intervention. The interventions included RW-level workshops, coaching, and observationby jumantik coordinator. The sample unit is a family, consist of 400 unit in the intervention area and 200unit in the comparison area. The results showed that there were significant differences in the status ofcommunity participation in eradicating mosquito nests (PSN). The presence of dengue patients and thepresence of Aedes spp mosquito larvae were different between before and after the intervention both inTasikmalaya and Cimahi. In addition, there are significant differences in the status of communityparticipation in PSN, the presence of dengue cases, the presence of Aedes spp. larvae and theimplementation of vector surveillance by families in the intervention and comparison areas. The resultsconcluded that family coaching interventions and observations by the Jumantik Coordinator, proved to havean effect on community participation in PSN, decreasing dengue cases, increasing larvae free index (ABJ)and vector surveillance implementation by families.Keywords: Society participation, Dengue cases, Jumantik House, One House One Jumantik

Team decision-making service planning for children and adolescents at risk for placement instability: Fidelity and initial outcomes

Child welfare standards of care emphasize service planning that provides an opportunity for meaningful participation of youth, caregivers, and family members. For youth who are at high risk for multiple moves while in foster care, participatory service planning can be difficult to achieve. This research focused on a statewide program that uses team decision-making meetings to identify needs and plan services for youth who are at risk for instability while in foster care. Results from meetings held for 364 children and adolescents over a six-week period affirm that use of team decision-making for youth experiencing placement stability can result in a collaborative planning process. Immediately after the meeting, most participants endorsed meeting qualities such as believing that their participation was valued and that the entire team would support the plan. At follow-up four months after the meeting, significant improvements had occurred in emotional and behavioral symptoms, caregivers’ need for child care support, and satisfaction with mental health services, suggesting that the meeting process, subsequent services, and placement decisions supported changes in some key areas of concern. Additional research using controlled research designs is needed to identify the unique effects of team decision-making processes and subsequent services on short- and long-term outcomes.

Abstract 13410: Patient and Family Perspectives of Early Mobilization in Acute Cardiovascular Care

Introduction: Early mobilization (EM) is safe, feasible, and associated with good outcomes in people with acute CV disease. While studies have explored the perspectives of care providers on mobilization, little is known about patient and family member perspectives and experience with mobilization. Methods: Patient and family member surveys were developed using previously validated surveys (Family Satisfaction with Care in the ICU and the Patient Mobilization Attitudes &amp; Beliefs survey). The survey assessed attitudes toward and knowledge of mobilization, the family member’s role in providing care and the mobilization care they received. Surveys were distributed to patients and their family members in an acute CV unit of a tertiary care centre in Montreal, Canada over a 4-month period. Results: 102 participants completed the survey (78 patients and 24 family members). Most patients (N=54; 69.2%) agreed or strongly agreed that EM should be routinely performed, although nearly half of the patients (N=37, 47.4%) felt that mobilization soon after admission was potentially dangerous. Out of 64 patients who underwent EM, 60 (93.8%) felt that mobilization helped their recovery (Figure). 35 patients (54.7%) felt that family member participation helped their mobilization. Family members included 12 (50.0%) spouses/partners, 10 (41.7%) children, 1 (4.2%) siblings, and 1 parent (4.2%). Most family members felt that mobilizing their relatives too soon after admission was potentially dangerous (N=17, 70.8%). However, family members were interested in being involved with mobilization (N=22; 91.7%) and only a few felt that mobilization should not be routinely performed (N=2; 8.3%). Conclusion: Patients felt that EM helped with their recovery process. Family members were interested in being involved in mobilizing their relatives. Our findings should inform efforts to overcome patient and family-related barriers to mobilization and design an EM program for acute CV care.