Daily Life Experiences Research Articles

Health-related quality of life aspects of the 'Periodontitis prevalence in ulcerative colitis and Crohn's disease' (PPCC) cohort.

To assess whether oral health problems affect disease-specific quality of life (QoL) of inflammatory bowel disease (IBD) patients, and vice versa, whether IBD affects oral-health-related QoL. Individuals reporting IBD and matched controls were surveyed on general anamnestic information, oral-health-related questions and the Oral Health Impact Profile (OHIP)-5. IBD patients were additionally surveyed on years since diagnosis, disease activity and severity as well as health-related QoL (Short Inflammatory Bowel Disease Questionnaire, sIBDQ). OHIP-5 and sIBDQ were defined as primary outcome parameters, and several predictors and confounders were used in adjusted univariable and multivariable regression analyses. Answers from 1108 IBD patients and 3429 controls were analysed. Compared with controls, IBD patients reported significantly more frequently an oral impact on daily life and worse oral-health-related QoL, with Crohn's disease (CD) patients being more severely affected than ulcerative colitis (UC) patients. The diagnosis of UC and CD, having <20 teeth, severe periodontitis and stressful daily-life experience were associated with a higher prevalence of poor oral-health-related QoL. Among IBD patients, an impaired IBD-specific, health-related QoL was significantly associated with the diagnosis of CD and depression, IBD activity and severity, having <20 teeth, presence of oral lesions and stressful daily-life experience, while a longer time since diagnosis was significantly associated with an improved IBD-specific, health-related QoL. The results of the present study indicate, for the first time, that oral health problems are associated with an impairment of IBD-specific health-related QoL, and vice versa, IBD is associated with an impaired oral health-related QoL. This emphasizes the potential advantages of including dental professionals in the multi-disciplinary treatment teams of IBD patients.

안녕감 개념과 일상적 감정 경험

In this study, we conducted research to confirm that the emotional experience in daily life depends on the concept of well-being that individuals emphasize. Well-being can be composed of four concepts: the experience of pleasure(EP), the avoidance of negative experience(ANE), self-development, and the contribution to others(CO). A total of 609 participants responded to the belief about the well-being concept scale and the PANAS Expanded Form questions. As a result of correlation analysis, it was found that people who emphasized the ANE experienced more varied and stronger negative emotions, paradoxically. On the other hand, those who emphasized self-development experienced fewer negative emotions and experienced broader and stronger positive emotions. The results of this study suggest that it may be more appropriate to pursue eudaimonic well-being than hedonic well-being for a healthy life.

Examining the health and wellbeing of women sanitation workers in Ghana and Kenya

About 3.6 billion people worldwide lack access to safely managed sanitation service. To bridge service gaps, informal sanitation businesses have emerged as alternative service providers to meet the sanitation needs of unserved populations. Informal sanitation workers include persons who empty septic tanks, clean toilets, sewers, and manage public toilets. They provide a fundamental public service particularly in areas where access to municipal sanitation service is limited. Through qualitative methodologies, this paper explores the lived experiences and associated health risks of women working in the informal sanitation sector in urban Ghana and Kenya. Our findings show that female informal sanitation workers were exposed to injuries and infections, stigma and discrimination, emotional and psychological distress, sexual harassment, and unhealthy coping strategies. Distinctively, younger female participants were more likely to experience sexual harassment. Because of social stigma, many of the women developed unsafe work practices such as refusal to wear PPE and working at night. By paying close attention to the embodied effects of informal sanitation work, we can better comprehend the daily politics, lived experiences, and urban social infrastructure regimes that have a significant impact on the quality of life of informal sanitation workers. The results are also crucial for developing programs for women's empowerment and labour and social protection policies, especially in lowincome settings where gender norms interact with income disparities and other sociopolitical issues to affect women's participation in the labor market.

BODY IMAGE PERCEPTIONS AT CRITICAL AGE PERIODS: FOCUS ON WOMEN’S SELF-CONFIDENCE AND WELL-BEING

Body image is a crucial part of subjective experience in daily life. Most women are concerned with their body transformations due to pregnancy, delivery, breastfeeding, menopause, weight gain and obesity, serious gynecological and other diseases. Body image perceptions may influence women’s health, sexuality, fertility, and social behavior.&#x0D; Popularized images of slim models and celebrities adversely affect women’s perceptions of beauty and attractiveness. The difference between the perceived body image and desired silhouette may result in body image dissatisfaction. Outlook comparisons may influence the quality of life and result in anxiety, loss of confidence, and sexual ill-health.

Living with a rare disease - experiences and needs in pediatric patients and their parents

BackgroundA rare disease (RD) diagnosis and therapy can affect the family’s quality of life and mental health. A lack of information and missing care options lead to helplessness and psychological stress within families. This work aims to identify patients’ and parents’ experiences in daily life and with the health care system as well as their needs and current pathways to psychosocial care to develop implementation strategies adapted to the families’ needs.MethodsThe present analysis is part of the national multicenter study “Children Affected by Rare Disease and Their Families-Network (CARE-FAM-NET).“ We conducted semi-structured telephone interviews with children, adolescents, and young adults with RD (aged 12 to 21 years) and parents of children with RD (aged 0 to 17 years). We analyzed the transcribed and anonymized interviews using the method of focused interview analyses to identify previous experiences with medical and psychosocial care and possible needs for improvement and support.ResultsSeventy-four parents of children with RD and 15 children, adolescents, and young adults with RD participated. Five main themes emerged. Daily life with an RD: RD affects the everyday and social life of the respondents, negatively impacting mental well-being. Experiences with the health care system: The long diagnostic path is stressful for families. Professionals’ lack of information/education leads to inadequate care for those affected. Psychosocial support: Families do not know about psychosocial care services. In some cases, the families take advantage of psychosocial support services (such as support groups or advocacy groups), which are predominantly very helpful. Difficulties and barriers: Time, socio-legal and organizational problems burden families and lead to advantages in using psychosocial services. Improvements for patient-oriented support: Those affected wished for timely, preventive support (especially in administrative and socio-legal matters) and education regarding psychosocial care services.ConclusionRD represent a great challenge for all family members – patients, parents, and siblings. The patients’ and parents’ previous experiences in daily life, medical and psychosocial care show a need for target-group specific support, including training of health care professionals and low-threshold access care services and practical help for all family members.

Recent progress in understanding the microscopic origin of triboelectricity from mechanochemistry to thermoelectricity

Triboelectricity has long been discussed from ancient Greece to modern times in daily life experiences as well as in the earliest stages of planet formation and the cutting-edge triboelectric nanogenerator technology. Despite the numerous efforts from scientists and engineers, fundamental understanding of the friction-driven static electrification has remained elusive. Here, we review recent progress in understanding the microscopic origin of triboelectricity, directly associated with frictional energy dissipation at the interface, from mechanochemistry, strain-driven polarization, and tribo-tunneling to thermoelectricity. Noticeably, we note that the microscopic thermoelectric charging mechanism due to interfacial frictional heat offers a generally applicable, but exactly solvable triboelectric model in the weakly interacting regime, implying many opportunities in triboelectric based science and technology in the future.

베이비붐 세대의 성공적인 노화와 삶의 질

The objective of this study was to classify the latent types of preparation for old age among the baby boomers, based on economic preparation, physical health, and mental health. It also aimed to identify demographic and psychological factors that influence class membership and to compare successful aging and quality of life between latent classes. A total 204 participants (106 men and 98 women) completed online self-report questionnaires, including their representative episodes and emotional experiences during each episode yesterday. The results revealed three latent classes: “mental health symptoms” (13.7%), “insufficient preparation” (22.15%), and “good preparation” (64.2%). Income satisfaction, social support, and perceived burdensomeness influenced the membership of the latent class. Additionally, there were significant differences between latent classes in successful aging, life satisfaction, emotional well-being, and emotional experience in daily life. The findings underscore the necessity of psychosocial intervention to promote successful aging and enhance the quality of life among baby boomers.

From ethical approval to an ethics of care: Considerations for the inclusion of older adults in ethnographic research from the perspective of a ‘humanisation of care framework’

A deeper understanding of care demands the methodological finesse of qualitative research: we must observe, listen, and witness to expose what matters to care recipients. In this paper, we – a team of three: one early-career researcher and two supervisors – reflect on our experiences of designing and then seeking ethics approval for ethnographic research on care for older adults, many of whom demonstrate a lack of capacity to consent to research. Viewing experiences of well-being and dignity as embedded within interpersonal negotiations, this study privileges care home residents' daily life, looking to stories and observations of daily life to reveal the complexities of well-being in the care home setting. This paper emphasizes the importance of using qualitative research methods to gain a deeper understanding of care practices, particularly in the context of care for older adults with varying cognitive capacities. By privileging the daily life experiences of care home residents and employing the logic of process consent, we aim to include the voices of all participants, not just those who can provide written informed consent. However, obtaining ethics approval for this type of research presents several challenges, requiring careful negotiation and the inclusion of consultee advice. This paper highlights the tensions between procedural ethics and the need for better inclusion of vulnerable populations in ethnographic research on care. By addressing these challenges, we can move towards a more context-sensitive and humanised approach to research ethics that values the lived experiences of care recipients.

Estimation of a Structural Equation Modeling of Quality of Life Mediated by Difficulty in Daily Life in Survivors of Breast Cancer.

The purpose of this study was to clarify the structural relationship of quality of life (QOL) in survivors of breast cancer, including difficulty in daily life and negative experiences in daily activities, as health-related indicators. Participants were survivors of breast cancer for more than 2 years after primary breast cancer surgery and belonged to self-help groups. The assessment used FACT-B (QOL), HADS (anxiety and depression), SOC (sense of coherence), WHODAS 2.0 (difficulties in daily life), and CAOD (negative experiences in daily activities). Bayesian structural equation modeling (BSEM) was performed to analyze the hypothesized model. If the causal model was significant, multiplication of the path coefficient from emotional distress (anxiety and depression) to QOL, and from SOC to emotional distress, was considered a direct effect on QOL, and from SOC to difficulty in daily life, from difficulty in daily life to negative experiences in daily activities, and from negative experiences in daily activities to anxiety and depression were considered indirect effects on QOL. The participants comprised 73 survivors of breast cancer. The goodness of fit of the model in the BSEM was satisfactory. The direct effect was 0.274, and the indirect effect was 0.164. An additional finding of this study is that coping with difficulty in daily life and negative experiences in daily activities related to QOL may improve QOL.

Homiletical-liturgical Perspectives on Life in the Anthropocene: The Preeminence of People's Cognition, Weltanschauung, and Homeless Minds

The central theme of this article is the matter of church participants’ engagement in liturgy and how this could enhance their capacity for making moral decisions when it comes to life in the Anthropocene. First, one should acknowledge that liturgists in faith communities have to deal with the notion of people enclaved in the idea of homeless minds. They are exposed to contradictory views on reality. The concept of cognitive dissonance needs to be addressed, and without constructive homiletical-liturgical address of this matter, it will lead to people looking for answers elsewhere. Liturgy inevitably enables participants to see things they do not or may not want to. People want to make sense of life and experiences in daily life, a process well-known as cognition. It should also be acknowledged that without reflection on the functioning of attitudes within Weltanschauung's framework, numerous challenges for any debate on life in the Anthropocene will be experienced. First, this article offers a description of the currently concerning aspects to be found under this rubric. Second, systemizing perspectives based on the philosophy of religion, anthropology, bioethics, and cognitive psychology are examined as centered on the intimate interplay with ethical conduct in viewing the world and liturgy. Finally, the following research question is formulated and briefly discussed: How could a homiletical-liturgical praxeology dealing with the homeless mind enable its participants to cultivate a Weltanschauung committed to a focused interest in the Anthropocene? The methodological approach of Browning has been carefully identified to arrange the research into coherent phases and reflect on the research question.

Disorganized schizotypy and neuroticism in daily life: Examining their overlap and differentiation

Positive, negative, and disorganized schizotypy dimensions are associated with differential patterns of symptoms and impairment. Historically, disorganized schizotypy has been the least studied of the three schizotypy dimensions. Disorganized schizotypy has been found to be associated with emotional dysregulation, negative affect, and neuroticism. The current study examined the overlapping and differential associations of disorganized schizotypy and neuroticism with experiences assessed in daily life using experience sampling methodology (ESM). A total of 279 undergraduates completed the Multidimensional Schizotypy Scale and the NEO-FFI neuroticism subscale, followed by ESM surveys administered eight times daily for one week. The ESM surveys assessed affect, appraisals of the current situation, social experiences, and schizotypic experiences in daily life. Disorganized schizotypy and neuroticism had similar bivariate associations with daily life experiences. However, multilevel regression analyses indicated that, when entered simultaneously, disorganized schizotypy was predominately associated with elevated schizotypic experiences, negative affect, and emotional dysregulation, whereas neuroticism was associated with elevated negative affect and diminished positive affect. The findings indicate that the pathological expressions of disorganized schizotypy are not simply ascribable to its overlap with neuroticism. Furthermore, the results provide further evidence that disorganized schizotypy is a complex construct that involves disruption of emotion regulation, as well as cognition, communication, and behavior.

International student mobility to non-traditional destination countries: evidence from a host country

Since the early 1990s, Latvia has experienced high levels of emigration. Still, current dynamics show that net migration has nearly ceased and that a growing share of new immigrant populations are from non-European countries. One of the leading causes of a sizable share of recent immigration is the globalisation of higher education and the mobility of international students. However, in recent decades, international student mobility (ISM) has brought attention to various aspects of higher education, educational export, and migration trends. This has captured the interest of academics and practitioners worldwide. Receiving countries recognise the importance of attracting international students as potential residents, especially as they undergo unfavourable demographic changes. The paper aims to present empirical evidence on ISM in Latvia by assessing international student daily life and study experiences. The focus is on examining the perspective of a host country. The study utilises statistical data, survey data and a case study of the University of Latvia to analyse the link between the origin of the student and their choosing Latvia as a non-traditional destination for quality higher education. The findings indicate that Latvia is an attractive destination for young migrants from diverse geographies, including Europe and Southeast Asia and consistent flows of students from former Soviet countries. One of the main factors that draw international students to Latvia is the affordability of education offered in English, providing a “second chance” for achieving success and specific clusters of degree students from European countries studying medicine.

The experiences of Palestinian Arabs with disabilities in Israel

PurposeIsrael ratified the United Nations Convention on the Rights of Persons with Disabilities and has subsequently worked towards putting disability-empowering policies and facilities in place. This study explores the experiences of Palestinian Arab citizens of Israel with disabilities in everyday life including education, employment and accessing disability facilities and services.Design/methodology/approachThis study explores the challenges and experiences of Palestinian Arab citizens of Israel through in-depth, semi-structured interviews with a disparate group of Arab men and women with various forms of disabilities.FindingsThis research indicates that Arabs with disabilities are either unable to access them or do so with great difficulty relative to their Jewish counterparts. The findings suggest that this is due to one of two reasons: first is institutional discrimination by Jewish and Arab staff, and second is structural discrimination as facilities and services are specifically designed for the Jewish majority and their areas of residence as opposed to Arab residential areas.Originality/valueGuided by intersectional theory, this article explores how the multiple identities of Arabs with disabilities living in Israel are co-constituted and ordered by different social and political structures which inform their daily lived experiences. This research illustrates that in Jewish politics and institutions, Arabs with disabilities in Israel are “otherised” by being flatly identified as Palestinians; yet, within their Arab communities, they are “otherised” by being reduced solely to their disability. This article examines how this variation in ordering and reduction can lead to specific experiences and forms of discrimination that requires multi-dimensional approaches and ways forward.

Lower limb prosthesis users' perceptions of everyday life-A phenomenographic study.

A lack of understanding of personal experiences related to limb amputation and prosthetic use limits the extent to which clinicians involved in rehabilitation can support and advise their clients in a person-centered consultation. The objective of this qualitative study was to explore the personal experience of daily life as a lower limb prosthesis user. Fifteen lower limb prosthesis users participated in individual semistructured interviews. Transcripts were analyzed using a phenomenographic approach. The extent to which prosthesis users were able to adjust to their impairment and move on with their life was influenced by social interactions with other prosthesis users, access to relevant information about prosthetic solutions that may benefit them, and finding a balance between desired activities and their physical and/or cognitive capacity. After a period of existential adjustment, prosthesis users described themselves as living active, fulfilling lives. This was facilitated to a large extent by social interactions with other prosthesis users and access to information they perceived as relevant. Social media plays a particularly important role in establishing connections with other prosthesis users and is perceived as a useful source of information.

PENGGUNAAN APLIKASI COOMIS (COMIC ISLAMI) SEBAGAI MEDIA DAKWAH UNTUK MEMUPUK SIKAP SEDERHANA PADA SISWA SD

This research is based on the urgency of learning media in the Islamic Religious Education (PAI) learning process, which is also related to instilling simple attitudes in elementary school students. One way to cultivate simple attitudes in students is through the use of learning media in the form of the COOMIS (Islamic Comics) application. COOMIS is designed based on daily life experiences and perceptions of students. It presents three episodes of stories about simple living behavior in daily life, accompanied by animated characters, learning materials, and engaging quiz games. The method used in this research is the Design and Development (D&amp;D) method involving 26 fifth-grade elementary school students and an Islamic Religious Education teacher. The results showed the feasibility and satisfaction of students in using the COOMIS application in the learning process, which was evidenced by the increase in pre-test and post-test results from 82.88 to 90.76 after using the COOMIS learning media, and a teacher questionnaire indicating the feasibility of the material and product aspects by 80%. Based on these results, it can be concluded that the use of learning media based on the COOMIS application developed by the researcher is very effective in the PAI learning process and is also feasible and effective for instilling simple attitudes in elementary school students.

You've got mail! How work e-mail activity helps anxious workers enhance performance outcomes

Despite workplace anxiety being a common experience of daily work life that is increasingly reliant on technology, we lack knowledge of technology-based job demands that prompt its occurrence. Drawing on theorization on workplace anxiety and integrating literature on information and communication technologies, we consider telepressure and normative response pressure as internal and external between-person sources of daily workplace anxiety. We further present a model of how employees adaptively (vs. maladaptively) respond to workplace anxiety on days they experience workplace anxiety, where anxiety prompts: (a) work e-mail activity, a self-regulatory behavior facilitating performance outcomes; and (b) non-work e-mail activity, a behavior that disengages employees from their work, debilitating performance outcomes. Utilizing a multilevel, time-lagged experience sampling field study across 10 workdays (Level 1 N = 809; Level 2 N = 96), we identify telepressure as a significant contributor of daily workplace anxiety. Further, we found support for an adaptive function of workplace anxiety. On days employees experienced workplace anxiety, their personal initiative and citizenship behaviors were enhanced through behavioral regulatory activity manifested in work e-mail activity. This indirect effect was strengthened for employees perceiving higher (vs. lower) work e-mail centrality. This research advances understanding of the adaptive function of workplace anxiety, such that employees are active drivers of their daily experiences of workplace anxiety.

Semantic novelty modulates neural responses to visual change across the human brain

Our continuous visual experience in daily life is dominated by change. Previous research has focused on visual change due to stimulus motion, eye movements or unfolding events, but not their combined impact across the brain, or their interactions with semantic novelty. We investigate the neural responses to these sources of novelty during film viewing. We analyzed intracranial recordings in humans across 6328 electrodes from 23 individuals. Responses associated with saccades and film cuts were dominant across the entire brain. Film cuts at semantic event boundaries were particularly effective in the temporal and medial temporal lobe. Saccades to visual targets with high visual novelty were also associated with strong neural responses. Specific locations in higher-order association areas showed selectivity to either high or low-novelty saccades. We conclude that neural activity associated with film cuts and eye movements is widespread across the brain and is modulated by semantic novelty.

Portuguese Saudade, the Trajectories of Longing and Desire

Saudade is interpreted as an ethereal concept dear to the Portuguese people. This intangible idea is often identified with a Portuguese cultural value signifying elusive states of longing, yearning, and wistfulness. This article demonstrates how the spatial realm of a former Portuguese colony, Macau, is experienced through the lens of saudade as an eluding, incorporeal, and culturally meaningful concept. The main goal of this research is to analyze the lived experiences of the Portuguese community in Macau shaped by emotional trajectories of the postcolonial city. This study continues the tradition of anthropological interpretations based on philosophical phenomenology. Anthropologically grounded phenomenology gives priority to acknowledging people’s formulation of experiences vis-á-vis specific cultural settings. It is an extension of “radical empiricism.” The article works with the concept of saudade to analyze the modalities of sensory perception within the former Portuguese city. Saudade is used as a discursive formation to look at cultural and epistemological manifestations of daily urban lived experiences of the Portuguese people in Macau.

Out-of-home life spaces valued by urban older adults with limited income.

Access to, and occupational performance in, out-of-home-life-spaces is linked to health, wellbeing and quality of life for older adults. There is little evidence of how this relates to older adults with limited resources in an African urban context. To describe the out-of-home-life-spaces accessed and valued by older adults with limited resources, living in an urban South African setting. An exploratory concurrent mixed methods study saw 84 rehabilitation clinicians conduct 393 face-to-face interviews with older adults. Clinicians produced reflective field notes and participated in focus groups. Quantitative data were analysed using descriptive statistics with SPSS Version X. Qualitative data were analysed through inductive content analysis. Older adults walked, used mini-bus taxis or private vehicles to get to places of worship, medical facilities, shops, family and friends and special interest gatherings on a weekly or monthly frequency. Lack of funds was the main barrier. Older adults aspired to travel, go on holiday and to visit out-of-town family homes. Exploring the daily lived experience of older, urban South Africans with limited resources brought to light the value they attribute to participation in activities that contribute to the wellbeing of their families and communities. Such activities are found in a variety of life spaces. Results could inform policy makers and service providers in their planning of community mobility, transportation services and health care, for older adults with limited resources.

The emerging phenomenon of L2 vlogging on Bilibili: characteristics, engagement, and informal language learning

The rise of digital technology has provided new opportunities for language learning, extending beyond traditional classroom instruction. Video projects have emerged as an effective tool in foreign language education, yet research on self-initiated and regulated video production for language learning is scarce. This study investigates the phenomenon of vlogging in Spanish as a second language on the Chinese video sharing platform Bilibili, by analyzing 134 Chinese-produced Spanish-language vlogs. The study aims to understand the vlogs’ characteristics, the vloggers’ profile, and the ways they utilize the genre for learning Spanish. Through qualitative virtual ethnography, the study uncovers the presence and learning engagement of Spanish L2 vlogs on Bilibili. The results reveal a diverse range of vlogs, including daily life experiences and adaptations of popular YouTube trends, primarily produced by university students with advanced editing skills. Vloggers incorporate knowledge from both formal education (e.g., the Spanish textbook widely used in China, Español Moderno) and informal contexts. In addition to practicing oral Spanish, L2 vloggers use various forms of writing, including Spanish subtitles and Chinese translation, and mobilize multimodal resources, such as danmu comments for overlaying corrections. Vloggers also adopt discursive strategies for community interaction, such as self-deprecating metalanguage, feedback solicitation, and metalinguistic reflections. The study highlights the potential of video-sharing platforms like Bilibili as tools for language learning, reveals different learning styles in digital environments (self-supervised and interaction-oriented learning), and indicates the direction of integrating daily vlogs and multilingual subtitles into language curricula, emphasizing students’ agency, self-directed digital learning, and transmedia literacy development.