Dissemination Of Research Research Articles

Evaluating the linguistic coverage of OpenAlex: An assessment of metadata accuracy and completeness

AbstractClarivate's Web of Science (WoS) and Elsevier's Scopus have been for decades the main sources of bibliometric information. Although highly curated, these closed, proprietary databases are largely biased toward English‐language publications, underestimating the use of other languages in research dissemination. Launched in 2022, OpenAlex promised comprehensive, inclusive, and open‐source research information. While already in use by scholars and research institutions, the quality of its metadata is currently still being assessed. This paper contributes to this literature by assessing the completeness and accuracy of OpenAlex's metadata related to language, through a comparison with WoS, as well as an in‐depth manual validation of a sample of 6836 articles. Results show that OpenAlex exhibits a far more balanced linguistic coverage than WoS. However, language metadata are not always accurate, which leads OpenAlex to overestimate the place of English while underestimating that of other languages. If used critically, OpenAlex can provide comprehensive and representative analyses of languages used for scholarly publishing, but more work is needed at infrastructural level to ensure the quality of metadata on language.

CTGCT, Centre of Excellence for the Technologies of Gene and Cell Therapy: Collaborative Translation of Scientific Discoveries into Advanced Treatments for Neurological Rare Genetic Diseases and Cancer

The emerging field of precision medicine relies on scientific breakthroughs to understand disease mechanisms and develop cutting-edge technologies to overcome underlying genetic and functional aberrations. The establishment of the Centre of Excellence for the Technologies of Gene and Cell Therapy (CTGCT) at the National Institute of Chemistry (NIC) in Ljubljana represents a significant step forward, as it is the first centre of its kind in Slovenia. The CTGCT is poised to spearhead advances in cancer immunotherapy and personalised therapies for neurological and other rare genetic diseases. The centre’s overarching mission is to extend beyond the NIC’s scientific excellence in basic research and bring new therapeutic solutions toward clinical application. The CTGCT aims to develop a broad pipeline of biomedical tools, including innovative synthetic biology tools, gene editing and splicing technologies, RNA-based technologies, immune regulation engineering and novel viral and non-viral delivery systems. The CTGCT is supported by partner institutions from the UK, the Netherlands and Germany, which already have academic good manufacturing practice (GMP) facilities for the manufacture of advanced therapy medicinal products (ATMPs) and is committed to active collaboration with clinicians and patient organizations at all stages of development to improve access to gene and cell therapies (GCTs) for patients. The Centre also seeks to collaborate with national and international academic and industrial partners, and the newly established GMP facilities will address a critical bottleneck in the translation of GCTs from research to practice. Finally, CTGCT's translational research and technology transfer units will ensure the impactful dissemination of research and innovation activities in Slovenia, throughout the Western Balkans and Eastern Europe region, and beyond. With its comprehensive approach and forward-looking vision, the CTGCT will drive transformative advances in gene and cell therapies for the benefit of patients on a global scale.

Embracing the Digital Era for Greater Impact and Accessibility.

As we stand at the cusp of a transformative era in scholarly publishing, it is with great anticipation and excitement that we announce Health Education & Behavior (HE&B) will transition to an exclusively online format starting in 2025. This decision aligns with our commitment to sustainability, accessibility, and leveraging digital advancements to enhance the dissemination of vital public health research.

Leveraging the Clinical Translational Science Award Network to Advance Family Medicine Research.

In this commentary, the authors present opportunities for the family medicine's strategic plan for research to build and expand research infrastructure by leveraging the federally funded Clinical and Translational Science and Clinical and Translational Research Awards programs. These include engaging patients and communities historically underrepresented in research throughout the research design, development, implementation, and dissemination process; building and expanding practice-based research networks; leveraging research resources, facilities, trainings, and mentorship opportunities; obtaining pilot funding; using informatics expertise to improve care quality; and embedding dissemination and implementation science expertise to promote the use of evidence-based interventions in real world clinical primary care settings.

Research Culture at Public Universities in Pakistan: Academics’ Perspective

The study was designed to explore research culture at public universities in Pakistan. Faculty members of general public sector universities were approached for data collection by using a questionnaire. By adopting multistage cluster sampling method, 382 faculty members were selected from six delimited universities of Punjab, Pakistan. Cronbach Alpha value (0.961) showed high level of reliability. The collected data was analyzed by using various statistical tests with the help of Statistical Package of Social Sciences (SPSS). Teachers’ opinions were divided and close to neutral value but respondents were vaguely accepting that research culture at public universities was improving. Teachers had positive perception about supervisory practices, available physical facilities, management support, dissemination of research and policies for improving research culture at universities. Whereas, respondents believed that human resources capacity building activities to develop research skills, collaboration and funding were less than the requirements of the universities to establish a rich research culture. There was no significant difference among the perception of teachers about research culture by gender and age. It is recommended that there was need to conduct trainings for researchers, develop academia-industry linkage, update laboratories and libraries, revise policies; and provide consultancy services to the private sector for earning funds.

EDITORIAL

With great enthusiasm, we present Volume 57, Issue 1, of the journal Arquivos de Ciências do Mar, reaffirming the commitment of this publication to the dissemination of highquality scientific research in the fields of oceanography, marine ecology, and coastal studies. In this volume, we have assembled a diverse selection of 10 original articles, 3 critical reviews, and 1 scientific note that offer significant contributions to the understanding and management of marine and coastal ecosystems, with a special focus on biodiversity and the socioenvironmental challenges of tropical and subtropical regions. The original articles in this issue explore emerging and multidisciplinary topics, including fungal contamination on beaches and its impact on environmental quality, the development of tools to assess ocean literacy, and studies on environmental perception as a tool for coastal management. We also highlight research on the gametogenic cycle of Lytechinus variegatus, population dynamics modeling of Ucides cordatus, and advances in understanding the ontogenetic development of otoliths in coastal fish. Additionally, this volume includes systematic reviews that expand knowledge about the Serranidae family in the Atlantic and the life history parameters of snapper species (Lutjanidae), as well as a comprehensive analysis of bycatch of non-target species in Brazil, a crucial topic for marine conservation. In the scientific notes, we highlight contributions to the knowledge of length-weight relationships of threatened shark species from the Brazilian Amazon coast, underscoring the importance of baseline data to support conservation and management strategies. This issue reflects the dedication of researchers and reviewers, as well as the commitment of the editorial team to ensuring the quality and relevance of the published works. We hope the contents presented here inspire new research, promote knowledge exchange, and support informed decision- aking for the conservation and sustainable use of marine resources. We thank the authors for sharing their findings and the readers for their trust in our publication. We invite everyone to explore this issue and actively participate in the scientific dialogue it fosters. Enjoy your reading!

Is science for everyone? bioethical challenges of current editorial practices

As Drumond Rennie put it, ‘Science does not come alive until it is shared publicly’ (1998), emphasising that the rapid advancement of scientific research requires its efficient and rigorous dissemination both to encourage the development of new strategies and to avoid duplication of effort and resources. The current model of scientific and technological research is facing a significant challenge: the cost associated with publishing its results. It is now increasingly common for publishers to impose fees on the scientific community to publish their results, generating debate about the impact of this practice on the fairness of scientific dissemination. Requiring researchers to pay publication costs would limit or exclude research from countries with limited resources, creating significant barriers to the dissemination of knowledge. It has been estimated that costs in some cases are up to ten times higher than what is considered adequate to cover the actual costs of publication (Grossmann & Brembs, 2021). This mismatch raises questions about the justification for such fees and the benefits to funders, given that the funds are often public, or even come from researchers' own pockets. Moreover, this current model supports a highly lucrative publishing industry, valued at approximately $10 billion (Global $10B Scientific & Technical Publishing Industry Report, 2019-2023), and is possibly one of the main causes of the emergence of so-called Predatory Journals. These journals, sometimes described as fraudulent, appear to be legitimate journals, but in reality distort certain publication practices, with a purely profit-driven ultimate purpose (Elmore & Weston, 2020), representing an ethical violation by exploiting the need of researchers for financial gain without providing true scientific value. Given the current landscape, it is crucial to reflect on how these practices affect equity in the dissemination of scientific knowledge?, and how publishing power can limit the dissemination of research on specific pathologies in emerging countries, restricting the right of communities to access crucial information and develop effective public health policies?. Undoubtedly, equity of access to and distribution of scientific knowledge is a fundamental principle that must be strongly defended. Paying high costs for scientific and technological publication not only jeopardises equal opportunities for researchers from regions with fewer resources, but also affects fairness in the distribution of knowledge. This economic barrier can result in a systematic exclusion of relevant perspectives and data from emerging countries, deepening inequalities and limiting global progress in critical areas such as public health. Consequently, there is a need to re-examine the current publication model to ensure that science continues to advance in a way that is fair and accessible to all, and to ensure that information vital to public health and scientific progress is not restricted by economic barriers, but is based on principles of fairness and transparency. Indeed, the scientific community must work together to promote the dissemination of knowledge in a manner that is accessible, equitable and free from harmful practices.

“Tears of Gratitude Are Flowing From My Eyes; You Touch My Soul”

With love and gratitude, months since we learned of his departure, we meet in Seville to say goodbye and remember our beloved mentor, Professor Norman Denzin. We appreciate the invitation to say goodbye to him in the journal that he created, a space for the dissemination of qualitative research, from where he supported, in an inclusive way, those who are dedicated to this research in Ibero-America. As members of the A Day in Spanish and Portuguese (ADISP), and one of us being Spanish and the other being Chilean, we want to honor Professor Denzin by remembering some significant moments that we shared with him. We have evoked memories and reflect on the impact of his teachings on our present and our future. Although distance has softened his departure in our hearts, at the same time, they keep his memory alive.

The Critical Role of Introspective Analysis in Modern Research Practices

Introspective analysis is a crucial element in modern research practices, as it enhances the rigour, relevance, and ethical integrity of research practices across various disciplines. By examining the interplay between self-reflection and methodological approaches, introspective analysis fosters deeper understanding and critical thinking, encouraging researchers to confront biases, assumptions, and ethical dilemmas inherent in their work. Incorporating introspective practices into research design, data interpretation, and dissemination of findings can lead to a culture of accountability and transparency in research, promoting collaboration, and ultimately improving the quality and impact of scholarly outputs. This discourse underscores the necessity of integrating introspective analysis into the research process, positioning it as a vital component for advancing knowledge and addressing the challenges faced by the global research community. By engaging in introspective analysis, researchers can unearth underlying motivations that may affect their interpretation of data, selection of methodologies, and interactions with research participants. This reflective practice can lead to the refinement of research questions, ensuring they are not only relevant but also ethically sound. By engaging in self-reflection, researchers can confront their ethical responsibilities toward participants, stakeholders, and the broader community, fostering a culture of accountability and ensuring that researchers remain aware of their impact and obligations. In conclusion, the critical role of introspective analysis cannot be overstated as the research landscape continues to evolve. By embracing self-reflection as an essential component of research, researchers can contribute to more innovative and comprehensive solutions to complex problems.

Older adult and caregiver needs for patient-centered outcomes research training in medication optimization.

Improved health outcomes and lower costs have been reported with pharmacist-led patient-centered approaches to medication optimization in older adults, but heterogeneity in studies has complicated assessments of how well these approaches have worked. Among the challenges in advancing care from patient-centered research is uncertainty in how well research questions have matched patients' care needs. One strategy is to engage patients, ideally as equal partners, in the preparation, execution, and dissemination of research. The objective of this study was to survey older adults, caregivers, researchers, and pharmacists to better understand the needs for training on patient-centered outcomes research (PCOR) focusing on medication optimization in older adults. A 12-member Community Council was formed to guide the project and to build capacity for engaging older adults, caregivers, researchers, and pharmacists in medication-related patient-centered outcomes research. The Community Council consisted of individuals from three regions: Hawaii, Midwest, and Mid-Atlantic. The Council created a needs assessment survey that was deployed electronically. There were 93 Elder Care Network participants who were asked to complete the needs assessment survey and 74 surveys were received resulting in a response rate of 80% but only 68 were completed and included in the analysis. Explaining what PCOR is, sharing examples of how members of the community can participate in research, discussing how community members can work with research teams to answer questions, and helping respondents understand how research can affect them were the top responses. Work of the Elder Care Medicine Network illustrates the importance of understanding the ongoing needs for education that are customized to meet the needs and preferences reported by older adults, caregivers, compared to clinicians and researchers.

MEMBANGUN DESA MANDIRI ENERGI MELALUI PENGOLAHAN SAMPAH PLASTIK MENJADI BBM ALTERNATIF DI DESA HANURA KECAMATAN TELUK PANDAN PESAWARAN

The market in Hanura Village faces serious problems related to rubbish, especially because it is located close to the main beach tourist route which is busy during holidays. Increased activity in markets produces more waste, which is usually simply transferred to landfill, but this method is less effective. Plastic waste is the second biggest problem after organic waste and is difficult to decompose naturally, so other solutions are needed to reduce waste accumulation. To tackle this issue, the Unila community service team proposes a more efficient plastic waste management system. Drawing from Bahri et al., (2019), their research demonstrates that plastic waste can be converted into alternative fuel through a pyrolysis process, utilizing a device known as a pyrolizers. With an abundant supply of plastic waste and Hanura Village’s strategic location, the development and application of this process are being implemented through a community service program based on research dissemination. The result of this activity is a plastic waste processing tool that converts waste into alternative fuel in the form of a pyrolyzer with three condensers. The fuel produced from the pyrolysis of plastic waste is characterized by its chromatogram profile using Gas Chromatography Mass Spectrometry (GCMS), and its calorific value is measured using a bomb calorimeter, while the octane number is determined using an Octane Number Tester. The results of the community service activity in Hanura Village cognitively show that the residents of Hanura Village were highly enthusiastic about receiving the training, especially related to the processing of plastic waste into fuel, with an overall achievement of specific instructional objectives reaching 53%.

The role of arts-based methods in supporting safe and participatory research addressing sexual violence with young people

Background: The use of participatory visual methods in humanities, health, education and social science research to study ‘sensitive’ subject matter with children and young people is growing. Such approaches have been widely – though sometimes uncritically – celebrated for contributing to safe data elicitation, promoting participant influence and strengthening research dissemination and impact. Some authors have pointed to their political contributions – challenging the traditional politics of representation and fostering critical consciousness and thinking. Methods: This article explores these claims, reflecting on a study using creative and participatory methods to explore the concept of ‘resistance’ among young people affected by sexual violence. It begins by outlining the background, rationale and use of creative methods in the project, moving from plans to utilise ‘Photovoice’ methods to a more diverse and responsive set of creative methods. Findings: The paper presents evidence for the contribution of such methods to creating safety and fostering participation while developing new conceptual thinking among researchers and participants. Conclusion: In this project, the success of creative methods is rooted in the dynamics of what we term spaciousness and playfulness which support dialogical practice. These dynamics are critical to enabling a safe participatory culture that bridges divides between stakeholders of different status, identity and ownership.

Voices Through Art: Co-Creating the School Daze Comic for and with Autistic Young People to Support Educational Transitions

Educational transitions between schools can be very challenging for autistic children and young people. Research tends to focus on the views of families and teachers which means that children’s voices are often marginalised despite them having valuable knowledge that could improve transition practices and experiences. ‘Voices through Art’ was an innovative project involving researchers, educators, a graphic artist, and neurodivergent lived experiences. Together we co-created a transition support resource – the School Daze comic – to enable insights and conversations about transitions. This project contributes to the amplification of autistic voices as agentic knowers of the sources of difficulty and supports in their educational transitions. This was achieved through several methods including small-scale research projects and project-specific workshops where students worked on character development, storylines, and other imagery for the comic. The output is the School Daze comic which tells the story of the lead character – Lee Mouse – as they start at a new secondary school. The stories include the first day at school and the anxieties associated with that, finding safe spaces and supportive teachers, making friends through shared interests, and settling into school life. School Daze was positively reviewed by students and education and related professionals, suggesting that this could be a valuable transition resource. We share it here to encourage wider dissemination and use in research and practice.

Evaluation of “Paper Chase”: Enhancing research dissemination and collaborative writing skills

We use Paper Chase as a team science model to engage interdisciplinary learners in research. Paper Chase is a structured collaborative writing approach for rapidly disseminating research findings and serves as a collaborative active learning professional development program for students at a southeastern university. We evaluated the impacts across 2 years of campus-wide Paper Chase trainings (virtual and in-person). Data was collected 1 to 2 years following participation. Trained research assistants unaffiliated with the Paper Chase program conducted semi-structured interviews with a sample of past participants who were undergraduate students, graduate students, and faculty. We analyzed the 21 interviews using thematic analyses. Participants described immediate impacts: training/structure of Paper Chase, mentorship, and scientific integration. Intermediate impacts included teamwork, attitudes toward teamwork, writing skills, and publications. Longer-term impacts were career influences. These findings suggest that Paper Chase active learning exercise fosters favorable changes in individual attitudes and skills and interpersonal skills among participants. Involvement in research dissemination was instrumental in demystifying research and researchers among undergraduate students. More than 2 years from Paper Chase participation evaluations may be needed to understand further longer-term impacts, such as changes in faculty’s team science, mentorship approaches, or publication records.

The 100 Most Impactful Articles in Foot and Ankle Surgery: An Altmetric Analysis

Citation count and impact factor of the publishing journal are two historically utilized metrics to determine an article's impact in its research field. However, these metrics are limited given the rise in research dissemination through social media. Across other orthopedic specialties, the Altmetric Attention Score (AAS) has been used to determine which articles are most impactful. This study utilizes the AAS to highlight the 100 most impactful articles in foot and ankle surgery and determine if bibliometric factors and article characteristics are predictive of AAS. The AAS website was queried on a single day in September 2024 and 4,262 articles were retrieved. The top 100 relevant foot and ankle articles published after 2010 were ranked by AAS and analyzed for bibliometric factors, study design, and study subject. The median (IQR) AAS was 18 (14, 42.5). A majority of the top 100 impactful articles were published in the Journal of Foot and Ankle Surgery and Foot and Ankle Surgery. Most articles were original clinical research articles (54%). Facebook and news mentions were positively correlated with AAS (p = 0.019, p < 0.0001, respectively) while other social media mentions had no significant relationship (p > 0.05). Study design and study subject were not significant predictors of AAS (p > 0.05). In conclusion, our study finds that, while citation count indicates an article's longitudinal impact, it does not correlate with AAS in foot and ankle surgery, which provides an immediate, dynamic metric to directly compare articles’ impacts.Level of Evidence: Level IV

Development and significance of geriatrics as reflected in the Deutsche Medizinische Wochenschrift

The "Deutsche Medizinische Wochenschrift" (DMW) is one of the oldest and most respected medical journals in Germany. Since its foundation in 1875, it has played a central role in the dissemination of medical research and practice. Its significance for geriatrics is far-reaching. The DMW has not only contributed to the dissemination of new research findings and treatment methods, but has also promoted the development and recognition of geriatrics as an independent medical specialty.

Can Open Science Advance Health Justice? Genomic Research Dissemination in the Evolving Data-Sharing Landscape.

Scientific data-sharing and open science initiatives are increasingly important mechanisms for advancing the impact of genomic research. These mechanisms are being implemented as growing attention is paid to the need to improve the inclusion of research participants from marginalized and underrepresented groups. Together, these efforts aim to promote equitable advancements in genomic medicine. However, if not guided by community-informed protections, these efforts may harm the very participants and communities they aim to benefit. This essay examines potential benefits and harms of open science and explores how to advance a more just vision of open science in genomics. Drawing on relational ethics frameworks, we argue that researchers should consider their obligations to participants as well as the broader communities that are impacted by their research. We propose eight strategies to provide a foundation of practical steps for researchers to reduce the possibility of harms stemming from open science and to work toward genomic justice.

Building capacity in dissemination and implementation research: the presence and impact of advice networks

BackgroundAs dissemination and implementation (D&I) research increases, we must continue to expand training capacity and research networks. Documenting, understanding, and enhancing advice networks identifies key connectors and areas where networks are less established. In 2012 Norton et al. mapped D&I science advice and collaboration networks. The current study builds on this work and aims to map current D&I research advice networks.MethodsD&I researchers in the United States (US) and Canada were identified through a combination of publication metrics, and key persons identified networks and were invited to participate (n = 1,576). In this social network analysis study, participants completed an online survey identifying up to 10 people from whom they sought and/or gave advice on D&I research. Participants identified four types of advice received: research methods, grant, career, or another type (e.g., work/life balance). We used descriptive statistics to characterize the sample and network metrics and visualizations to describe the composition of advice networks.ResultsA total of 482 individuals completed the survey. Eighty-six (18%) worked in Canada and 396 (82%) in the US. Respondents had varying D&I research expertise levels; 14% beginner expertise, 45% intermediate, 29% advanced, and 12% expert. The advice network included 978 connected nodes/individuals. For all research types, out-degree, or advice giving, was higher for those with advanced or expert-level expertise (6.9 and 11.9, respectively) than those with beginner or intermediate expertise (0.8 and 2.2, respectively). Respondents reporting White race reported giving (out-degree = 5.2) and receiving (in-degree = 6.1) more advice compared to individuals reporting Asian (out-degree = 2.9, in-degree = 5.3), Black (out-degree = 2.3, in-degree = 5.2), or other races (out-degree = 2.5, in-degree = 5.4). Assortativity analyses revealed 98% of network ties came from individuals within the same country. The top two reasons for advice seeking were trusting the individual to give good advice (78%) and the individual’s knowledge/experience in specific D&I content (69%).ConclusionsThe D&I research network is becoming more dispersed as the field expands. Findings highlight opportunities to further connect D&I researchers in the US and Canada, individuals with emerging skills in D&I research, and minoritized racial groups. Expanding peer mentoring opportunities, especially for minoritized groups, can enhance the field’s capacity for growth.

Building capacity for maternal, newborn and child health research in low-income country settings: A research fellowship experience in Ethiopia.

There is a need to build research capacity to improve maternal, newborn, and child health (MNCH) in low- and middle-income countries (LMICs). To address this gap, we co-designed the HaSET (meaning 'happiness' in Amharic) MNCH Research Fellowship programme for academics and policymakers in collaboration with the Ministry of Health (MOH) and academic institutions in Ethiopia. Based on interviews and focus group discussions regarding a landscape analysis of the MNCH research environment, we developed an innovative 'learning by doing' model in which fellows identified research questions, developed proposals, obtained institutional review board (IRB) approvals, conducted research, analysed data, disseminated their findings, and developed policy briefs. Postdoctoral fellows were paired with policymakers and health professionals at the MoH to facilitate the translation of research findings into policy and programmes. Each pair received mentorship from a member of the HaSET's scientific advisory group (SAG) who had expertise in research methods, data analysis, dissemination, and translation of evidence into policy. The HaSET MNCH Research Fellowship curriculum included 10 modules covering topics from biostatistics to study operations and professional development. From March 2021 to July 2023, five postdoctoral fellows from local universities and four policymakers from the MoH and government research institutes underwent the HaSET programme, where they learned to gather high-quality evidence on priority research questions and guide the implementation of national policies and programmes. Leveraging existing data, the fellows produced 15 manuscripts and 11 policy briefs. The programme established a functional research link between the MoH, regional health bureaus, and local universities, while utilising the SAG's expertise in mentorship. This robust and comprehensive HaSET MNCH Research Fellowship produced the first cohort of dedicated fellows trained in evidence-based medicine and mentored them to become effective public health professionals. They conducted high-quality studies to inform policy decisions on MNCH interventions in Ethiopia. Given its sustainability and scalability, researchers and academic institutions can further adapt the fellowship curriculum within capacity-building programmes to educate the next generation of research leaders in LMICs.

Lipedema resistance after bariatric surgery: case reports

Introduction: Lipedema is a loose connective tissue disease characterized by painful fibrotic fat nodules in the limbs. Obesity is the comorbidity most frequently associated with lipedema; however, lipedema fat is resistant to traditional weight loss measures, including metabolic bariatric surgery (MBS). We present seven cases of women with distinct types, stages, and symptoms of lipedema who had already undergone MBS for the treatment of obesity and its complications. Case Presentations: Women with diagnostic features of lipedema were voluntarily recruited for a project involving the dissemination of research on lipedema. Among these women, seven (15.6%) had already undergone MBS, and their case reports are described in this study. The volunteers were interviewed regarding their clinical history and evaluated the impact of MBS on overall weight loss and weight regain, as well as the impact of these processes on the volume and the presence of symptoms and comorbidities of lipedema. Conclusions: MBS was effective in providing significant weight loss in the cases evaluated but had limited effects on lipedema fat. The treatment of lipedema should be paired with the treatment of obesity by employing conservative methods, such as dietary plans, or liposuction surgery. A previous diagnosis of lipedema associated with obesity in patients who undergo MBS may improve pre- and postoperative management and, consequently, lead to a better outcome, improving the quality of life of the patient.