Community Partners Research Articles

Neighbourhood-based participatory action research with older adults: Facilitating participation through virtual and remote methods

Participatory action research (PAR) is an effective means of collaborating with older adults to support community change. Limited PAR literature exists in which older adults catalyse social change within neighbourhoods, particularly using virtual methods. In this paper, we discuss a virtual PAR process with older adults that occurred during the COVID-19 pandemic, and the results of inquiry into our application of PAR principles. We conducted PAR in a collective involving university researchers, older adult residents and community partners in an urban core neighbourhood in a mid-sized Canadian city and focused on enhancing daily life for older adults. The PAR project emerged through reflection on previous ethnographic findings regarding older adults’ daily life in neighbourhoods. Our PAR collective collaboratively identified a need among older adults for more accessible information about community resources. To support older adults’ participation and access to community information, the PAR collective created and distributed a free neighbourhood resource booklet, in print and digital formats, to promote equitable access. We evaluated the impact of the booklet through a survey and discussions with community partners. During our PAR process we found challenges and solutions related to using technology, engaging in discussion during virtual meetings, and making collaborative decisions. A combination of in-person, remote and online interactions seemed to facilitate relationship development amongst co-researchers and completion of the project. Future PAR projects would benefit from incorporating in-person, remote and online methods from the outset, as well as ways to support older adults in using and accessing technology. We further noted the value of a local resource booklet, in print and digital formats, in promoting neighbourhood information sharing.

“I Have One More Hour of Power and Many Miles of Communication to Go”: Lessons Learned from Community Research Interrupted by Climate Crises

The Ang Pagtanom og Binhi Project is a University–Community partnership and community-based participatory research project exploring the health benefits of food sovereignty practices in the Philippines. In late 2021, in the midst of data collection, Super Typhoon Odette made landfall in the Philippines causing massive environmental and structural devastation. In the aftermath of the storm, community partners in the Philippines and members of the research team in the United States shared photos, texts, and updates. These messages included descriptions of structural and environmental damage caused by the storm and stories of mutual aid efforts and actions taken by individuals and small organizations, each highlighting connections between food sovereignty efforts in the Philippines and the impacts of climate change. Due to the richness of the stories, the interconnectedness between these conversations and the research topic, and the alignment within the theoretical foundations of the project, the researchers understood that these communications should be included as data. With feedback from the Community Advisory Board, the Research and Design Team amended project protocols, research questions, and consent forms to incorporate this emergent data. This manuscript describes the process that the team undertook and some of the lessons learned by taking this approach.

Assistance in Creating a Collective Brand "One Village One Brand" for the Development of Tangkil Cracker SMEs

Intellectual property has an important role in supporting Micro, Small, and Medium Enterprises (MSMEs). Small and Medium Industry Entrepreneurs in Cipete Village, Curug District, Serang City produce Kerupuk Tangkil (Krutang) from melinjo fruit, but they do not yet have an official brand. The Community Partnership Program activities carried out aim to provide assistance in making collective trademark through One Village One Brand (OVOB) for local food small and medium industry in Serang City, especially Krutang small and medium industry. This program was conducted through three stages: preparation, implementation, and evaluation. The preparation stage involved visits to Cipete Village and small and medium industry of Krutang. The implementation stage included socialization on collective trademark and One Village One Brand program. The evaluation stage focused on collective trademark registration and its utilization for business development. The result of the program is the association with the collective trademark name and logo that has been agreed upon. The results show that collective trademark registration is very important to protect products and increase competitiveness. The service contributes significantly to the development of small and medium industry by providing practical guidance to utilize intellectual property.

Exploring Students’ Feelings in the Initial Phase of a Community-Based Research Service-Learning Course: A Qualitative Approach Using Content Analysis

The emotional experience of situations and interactions with other people plays an important role in teaching and learning processes and interacts with cognitive as well as motivational and intentional factors in the acquisition of knowledge. In our qualitative investigation, we explored participants’ experiences in the initial phase of a community-based research service-learning project that dealt with issues of social inequality, poverty and homelessness. We were particularly interested in the affective processes in the project’s planning phase and during the first meetings between community partners, homeless people and the participating students. After completing the course, we conducted guided qualitative online interviews with the course participants. The interviews were fully transcribed verbatim. We then coded and analysed the data using qualitative content analysis approach. It became apparent that the students were particularly anxious and apprehensive about working with vulnerable groups of people. This manifested itself in uncertainty, nervousness, fears and negative feelings. Regarding the collaboration with the community partners, the emotional situation varied among the students in the initial phase. We conclude that students’ fears, anxieties, and uncertainties in the planning phase of a service-learning or community-based research project should be taken seriously. A relaxed and positive atmosphere at the first meetings can be viewed as particularly important for project progression and the students’ future learning success.

A Study on How Libraries Operate as Health Spaces in the United States.

A health space is any physical, social, or virtual space that supports building health literacy skills, promotes health behavior, preventive health, and wellbeing, or provides health care, health information, or health or social services. To move the needle on health, especially preventive health, a focus on non-traditional health spaces is critical. Libraries serve various community needs such as food distribution, health literacy, education, immunization, and health screenings. This study explores the extent to which libraries are equipped to function as a health space. A convergent mixed-methods approach was utilized; 234 library personnel were randomly recruited using data from the 2017 Public Libraries Survey to complete a survey and 24 semi-structured follow-up interviews were conducted. Our findings support that libraries function as a health space in multiple ways including providing important health and social programming and services to patrons. They help meet patron's health information needs by leveraging the expertise of community partners and incorporating valuable input from patrons in programming decisions. However, the capacity of libraries to carry out these health initiatives varies, in particular due to limited staff expertise in health-related topics and structural issues (e.g., funding). Our research emphasizes the need to integrate organizational health literacy attributes into library operations, specifically by (1) streamlining strategic partnerships with community experts in libraries in high-need areas to extend their limited resources, and (2) incorporating health literacy into missions and operations to draw necessary financial and personnel support to overcome salient challenges (i.e., funding and staff training).

Collaborating for Health Equity: A Perspective of an Federally Qualified Health Center's Community Partnerships and Initiatives.

Collaborating for Health Equity: A Perspective of an Federally Qualified Health Center's Community Partnerships and Initiatives.

The Role of Health Systems in Cross-Sector Collaboration in Addressing Social Determinants of Health and Promoting Health and Well-Being.

The articles featured underscore the critical role of trust, strategic planning, and cross-sector partnerships in addressing health inequities, while emphasizing the need for further research on sustainable and cost-effective collaboration models. Tocco and colleagues from Northwell Health describe the formation of the Health Equity Taskforce (HET), initially aimed at equitable COVID-19 vaccine distribution on Long Island. The HET has since expanded to address broader health disparities, focusing on community involvement, strategic partnerships, and sustainability. Nemiroff and colleagues discuss collaborations with community partners and payors to address social determinants of health in underserved populations, highlighting opportunities that can facilitate collaborations such as the New York State's Medicaid 1115 Demonstration Waiver.

Which reference groups matter for Taiwanese high school adolescent smoking? A card sorting study

BackgroundAdolescence represents a pivotal period for the initiation of smoking behaviours. While family, peer and social groups serve as significant reference groups influencing adolescents’ decision-making process, there remains a paucity of research that examines how diversified reference groups influence their smoking decisions.ObjectiveThe objective is to compare normative and informative influences given by different reference groups on adolescents’ smoking decision-making.DesignThis study applied reference group theory and used the card sorting technique. Adolescents were presented with 16 cards portraying various reference groups and 27 cards portraying different types of reference group influences. They were asked to construct sentences as smoking-elicited and smoking-inhibited cues and ranked these influences based on their relevance to their smoking decision-making.ParticipantsThe participants were recruited from four cities in the North, Central, South and East regions of Taiwan. The study sample consisted of 297 Taiwanese 11th graders drawn from high schools, vocational high schools and night schools.Primary outcome measuresThe most influential reference group among smokers, former smokers and never smokers.ResultsOur results of multivariable logistic regression show that for current smokers, having a smoking best friend (aOR=7.58,p<0.01), having a smoking colleague (aOR=3.83,p<0.01) and participating in ceremonial dance performances (aOR=4.62,p<0.01) are more likely to smoke. Peers play an important role in providing smoking-elicited cues for current smokers. Families provided the most smoking-inhibited cues for former and never smokers. Normative influences such as encouraging adolescent smoking provided more cues for adolescents than informative influences such as releasing stress by smoking.ConclusionsAdolescent smoking behaviour was influenced by peer norms, while former and non-smoking behaviours are associated with family norms. Therefore, tobacco prevention efforts should focus more on family-level interventions to discourage smoking initiation. Smoking cessation programmes for current smokers should address the reduction of peer pressure to smoke. Moreover, schools and community partners should collaborate to develop effective smoking cessation strategies, particularly for high-risk groups such as adolescents who involved in ceremonial dance performance.

Promoting Health and Wellbeing Through Non-Clinical Arts Programming: Multi-Stakeholder Perspectives From the Veterans Health Administration.

While the value of art therapy is well-established and arts are increasingly leveraged to promote health and wellbeing more broadly, little is known about the impacts of non-clinical arts programs. In this preliminary investigation, we sought to fill this gap by exploring diverse stakeholders' perspectives on the impacts of non-clinical arts programming on Veterans receiving care at the Veterans Health Administration (VA). Semi-structured qualitative interviews with Veterans, VA staff, and community partners. Interviewees were recruited from 7 VA medical centers that have recently implemented non-clinical arts programming to promote Veterans' health and wellbeing, some of them in partnership with community organizations. 33 individuals were interviewed, including 9 Veterans, 14 VA staff, and 10 community partners involved in non-clinical arts program implementation. Interview transcripts were analyzed using iterative rounds of qualitative content analysis. The following impacts on Veterans were described: (1) mental health improvements, (2) renewed sense of purpose; (3) increased social connectedness, (4) improved self-esteem, and (5) self-driven engagement in art activities. Non-clinical arts programming was perceived by diverse stakeholders to offer important benefits for Veterans' health and well-being. Offering non-clinical arts programming inside and outside healthcare facilities' walls is a promising direction for the field of public health undergoing a shift towards holistic approaches to improving individual and population health outcomes.

A Scoping Review of Implementation Science Studies in the Field of Traumatic Brain Injury: State of the Science and Future Directions.

Implementation research is essential to accelerating the public health benefits of innovations in health settings. However, the US National Academies of Sciences, Engineering, and Medicine 2022 report identified a lag in published implementation research applied to traumatic brain injury (TBI). Our objectives were to characterize implementation science studies published to date in TBI clinical care and rehabilitation and provide recommendations for future directions. A scoping review was conducted following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. Articles published between 2011 and 2023 were identified (MEDLINE, PubMed, PsychInfo, and Web of Science), and included if the study focused on the TBI population, measured at least one Proctor (2011) implementation outcome and aligned with implementation research designs. Data were charted using an extraction template. Of the 38 articles, 76% were published between 2018 and 2023. About 37% of articles were in the pre-implementation phase, and 57.9% were in the implementation phase. Over half of articles used a theory, model, or framework to guide the research. Fifteen studies were descriptive, 10 were qualitative, 7 were mixed methods, and 4 were randomized controlled trials. Most studies investigated implementation outcomes regarding national guidelines following TBI or TBI symptom management. Adoption (42.1%) and fidelity (42.1%) were the most commonly studied implementation outcomes, followed by feasibility (18.4%), acceptability (13.2%), and penetration (10.5%). Only 55% of studies used or tested the effectiveness of one or more implementation strategies, with training and education used most commonly, followed by data warehousing techniques. Future research should prioritize the selection and investigation of implementation strategy effectiveness and mechanisms across contexts of care and use implementation research reporting standards to improve study rigor. Additionally, collaborative efforts between researchers, community partners, individuals with TBI, and their care partners could improve the equitable translation of innovations across service contexts.

Charting new territory: the early lessons in integrating social determinant of health (SDOH) measures into practice.

Quality measures for social determinants of health (SDOH) have been introduced or proposed in more than 20 federal programs, initiatives, or guidance documents to capture performance, but understanding the scope of work needed to effectively collect and align with these new measurement requirements is still in its early stages. The National Committee for Quality Assurance (NCQA) recently developed the Social Need Screening and Intervention (SNS-E) measure and is currently building 2 new domains of interest: utility insecurity and social connection. Before these domains can be leveraged to drive population health, the feasibility of collecting and reporting on them must be assessed. This report describes qualitative data collection on the barriers and facilitators of collecting data elements for utility insecurity and social connection from 8 diverse health plans. Although plans reported that collecting SDOH data was feasible, they identified barriers associated with multiple data systems, coding, as well as data formatting, storage, extraction, and mapping. Further research is needed to explore additional codes, mechanisms for collecting SDOH data in a patient-centric manner, and ensuring that health plans, health care systems, and community partners can align with national measurement initiatives. Standardizing these data will be key to improving outcomes for all.

Expansion and evaluation of level II and III recovery residences for people taking medications for an opioid use disorder: project HOMES (Housing for MAR Expanded Services) study protocol

IntroductionAs the US continues to battle the opioid epidemic, recovery residences remain valuable services for people in recovery. While there is a growing body of literature describing positive outcomes experienced...

The Role of Health Systems in Cross-Sector Collaboration in Addressing Social Determinants of Health and Promoting Health and Well-Being.

The articles featured underscore the critical role of trust, strategic planning, and cross-sector partnerships in addressing health inequities, while emphasizing the need for further research on sustainable and cost-effective collaboration models. Tocco and colleagues from Northwell Health describe the formation of the Health Equity Taskforce (HET), initially aimed at equitable COVID-19 vaccine distribution on Long Island. The HET has since expanded to address broader health disparities, focusing on community involvement, strategic partnerships, and sustainability. Nemiroff and colleagues discuss collaborations with community partners and payors to address social determinants of health in underserved populations, highlighting opportunities that can facilitate collaborations such as the New York State's Medicaid 1115 Demonstration Waiver.

Collaboration to Reduce Sudden Unexpected Infant Death With Child Fatality Review and Outreach.

Sudden unexpected infant death (SUID) is the leading cause of postneonatal infant mortality in the United States, with disproportionately high rates in Baltimore City and Baltimore County in Maryland. This Advocacy Case Study describes the collaboration between the City and County Child Fatality Review teams to decrease infant mortality. B'more for Healthy Babies, formed in 2009 by the Bureau of Maternal Child Health in Baltimore City with the goal of reducing infant mortality through policy change, service improvements, community mobilization, and behavior change has had a sustained effort to respond to SUID. Recognizing that infants born in Baltimore City often reside in Baltimore County (and vice versa), collaboration with Baltimore County has been essential to increasing B'more for Healthy Babies' scope, reach, and effectiveness. Public health messaging campaigns, creation, and dissemination of a "SLEEP SAFE" testimonial video, and Safe Sleep Summits have involved caregivers, healthcare providers, and community partners. Outcomes of this ongoing collaboration demonstrate a decrease in sleep-related infant mortality rates. Our findings also highlight the need for continued, real time monitoring of sleep-related infant mortality trends with a coordinated, multidisciplinary, and crossjurisdictional response. This initiative can serve as a model of cross-sector communication that can be replicated in other similar geographic locations to further reduce SUID.

Seven core competencies and conditions for equitable partnerships and power sharing in community-based participatory research

Equitable health research requires actively engaging communities in producing new knowledge to advocate for their health needs. Community-based participatory research (CBPR) relies on the coproduction of contextual and grounded knowledge between researchers, programme implementers and community partners with the aim of catalysing action for change. Improving coproduction competencies can support research quality and validity. Yet, frameworks and guidance highlighting the ideal competencies and conditions needed for all research partners to contribute meaningfully and equitably are lacking. This paper aims to advance CBPR by laying out seven core competencies and conditions that can promote power sharing in knowledge production, application and dissemination at the individual, community, organisational and systems levels.Competencies were developed through an iterative process, that synthesised pre-existing literature and frameworks with a wide range of tacit knowledge from researchers, activists, implementation partners and community researchers from Bangladesh, India, Kenya, Sierra Leone and the UK.The seven core competencies and conditions are: (1) capacity to interpret and respond to individual and relational identity, connection, uniqueness and inequities; (2) ability of communities and partners to work in the most suitable, inclusive and synergistic way; (3) aptitude for generating safe and inclusive spaces for multidirectional knowledge and skills exchange that goes beyond the research focus; (4) expertise in democratic leadership and/or facilitation to balance competing priorities and ensure shared decision-making; (5) capacity to analyse readiness for action, successes and areas for improvements throughout the research process; (6) ability to instigate sustainable change processes within the political dimensions of systems, policies and practices using advocacy, lobbying or activism approaches and (7) skills to interpret and disseminate findings and outputs that are understandable, respectful and promote community ownership. We present core competency and condition areas, individual and collective expertise associated with competencies, likely outcomes, examples of activities and sources of evidence.

Using Social Network Analysis to Identify Influential Community Organizations

BackgroundWe used a social network approach to identify influential community organizations within integrated public health networks in three regions in Texas, US: Houston/Harris County, Cameron County, and Northeast Texas. The study aimed to understand how network structures influence organizational performance in COVID-19 response. MethodsIn collaboration with community partners in each region, we administered a snowball sampling network data collection. Initial seed sets for the regions of 23, 25, and 55 organizations identified other organizations that then responded to the survey, which expanded the sets to 268, 145, and 138, respectively. Principal component analysis (PCA) identified key network structures—centrality and brokerage—and we introduced two network-based performance measures: Fulfillment Rate (FR), which measures securing needed resources, and Provision Rate (PR), which measures providing resources to others. We tested hypotheses to examine the associations between these network structures and organizational performance. FindingsCentrality consistently emerged as a predictor of organizational performance across all three regions. Community organizations that are more centrally positioned, rather than broker organizations, play a critical role in meeting resource needs and providing services to other organizations. Centrally positioned organizations conducted more COVID-19 tests, whereas brokers administered fewer vaccines. InterpretationsThis study suggests that public health interventions should prioritize central organizations for resource allocation and distribution. Our network-based performance metrics offer new avenues for evaluating organizational effectiveness in networked public health systems, with broader applicability to future crises and public health planning.

Using Sudden Unexpected Infant Death-Case Registry Data to Drive Prevention.

Sudden unexpected infant death (SUID) is a major contributor to infant death and a persistent public health issue. After an initial decline after the 1994 "Back to Sleep" campaign, SUID numbers plateaued. Currently, ∼10 infants die suddenly and unexpectedly each day in the United States. In 2019, we established a surveillance system for SUID in Cook County, Illinois, partnering our academic medical center, the Cook County Medical Examiner's Office, and child death review to create the Cook County SUID Case Registry. Our data show that, in Cook County, including the city of Chicago, ∼1 infant dies unexpectedly during sleep every week. Of these SUID, ∼25% were because of suffocation/possible suffocation. SUID peaks at 30 to 60 days old. SUID rates are 15 times higher in non-Hispanic Black infants and 3 times higher in Hispanic infants, compared with white infants. Nearly all involved 1 or more unsafe sleep factors. SUID are concentrated in community areas experiencing high hardship. Through our Community Partnership Approaches for Safe Sleep-Chicago team, we have developed collaborative prevention approaches in affected communities, allowing for conversations with families and those who support them to better understand barriers to safe sleep that they experience. These partnerships and our data allow for tailoring of informed prevention approaches to address upstream factors driving disproportionate infant mortality in historically disinvested communities, as well as optimizing the immediate risks posed by the infant sleep environment. Data from our system show the number of SUID declining modestly since our prevention work began.

Campus–Community Partnership to Characterize Air Pollution in a Neighborhood Impacted by Major Transportation Infrastructure

Campus–Community Partnership to Characterize Air Pollution in a Neighborhood Impacted by Major Transportation Infrastructure

The AIDS Memorial Quilt as Radical Public History

Radical public history relies on reflective practices that include formal and experientially acquired knowledge within a broad interdisciplinary framework. Using material culture methodologies from history and anthropology, we present the AIDS Memorial Quilt as an example of radical public history in action. We recount the history and meaning of the Quilt and share quantitative survey information based on college students’ responses to six Quilt blocks displayed with supplemental informational banners. Embracing a core pillar of radical public history—shared authority—our authors include interdisciplinary academic and non-academic community partners whose combined skills, lived experiences, and expertise are critical to this movement and this paper. We finish with insights for those wishing to host Quilt blocks in their community.

Reach and Engagement With Population Health Management Interventions to Address COVID-19 Among Safety-Net Health Care Systems.

Interventions designed to address COVID-19 needed to be rapidly scaled up to the population level, and to address health equity by reaching historically marginalized populations most affected by the pandemic (e.g., racial/ethnic minorities and rural and low socioeconomic status populations). From February 2021 to June 2022, SCALE-UP Utah used text messaging interventions to reach 107 846 patients from 28 clinics within seven safety-net health care systems. Interventions provided informational and motivational messaging regarding COVID-19 testing and vaccination, and were developed using extensive community partner input. (Am J Public Health. 2024;114(11):1207-1211. https://doi.org/10.2105/AJPH.2024.307770).