Support Services For Children Research Articles

Исследование влияния аутизма ребёнка на бюджет семьи, в которой он растёт

This article examined the effect of presence of a child with autism spectrum disorders (ASD) on the family budget. The article presents the effect on the structure of expenses, reveals which main factors the budget depend. The article considers the results of the response of 629 respondents from 43 regions of the Russian Federation and the Republic of Belarus to one of the questionnaire questions (more than 20 items in total): «You have a child with ASD in your family. How does this affect the family budget»? 8.3% of respondents do not note any impact of the child’s autism on the family budget; 46.4% («does not influence» and «affects tolerably») do not consider this impact as negative, 53.6% — as negative to varying degrees (including «negative» — 24.5%, «very negative» — 16.8%, «catastrophically negative» — 12.5%). It has been shown that the dependence of the negative impact on the economy of a family in which there is a child with autism is weak, although statistically significant (polychoric indicator of the relationship K = 0.12, P < 0.05) depends on the region of residence, and the economic well-being of the region (donor/recipient) is more affected, but the quality and range of services provided in the region to children with ASD and the families in which they grow up. The need to develop the expert community and state certification of support services for children with ASD and the quality of their provision was noted.

Interprofessional Collaboration in the Care of Children With Complex Care Needs: The Experiences of Children, Their Families, and the Intersectoral Care Team

Introduction: Coordinated care has the potential to provide positive outcomes for children with complex care needs (CCN) and their caregivers. This population requires a multitude of services that are administered by various providers across sectors. Research has shown that care for this demographic can be improved through interprofessional care models and communication among providers. The primary objective of this study was to explore the barriers to collaboration among members of the care team. The second objective was to identify ways to improve coordination between caregivers and providers. Methods: This qualitative study focused on the perspectives of caregivers of children with CCN, health professionals, educators, and social care providers regarding their experiences with interprofessional collaboration in the care of children with CCN and their families in two Atlantic Canadian provinces (New Brunswick and Prince Edward Island). The study was conducted using semi-structured interviews of 32 family members and 88 stakeholders from the educational, health, and social sectors. Interview data were analyzed using thematic analysis (Braun & Clarke, 2006). Results: Participants included caregivers, health-care providers, educators, social workers, and therapists. All participants were involved in the care of children with CCN. Findings indicate that participants experience difficulties when accessing primary care and support services for children with CCN. These barriers were correlated with fragmented and uncoordinated care. Results were organized into three main themes: (a) Role Clarification, (b) Communication, and (c) Patient/Family-Centred Care. Each theme was explained through subthemes highlighting experiences of caregivers and care providers across sectors. Discussion: This study emphasized the need for increased research and evidence-based practices to address the current barriers to collaboration among care providers and caregivers when caring for children with CCN. By providing a patient-centred approach, there is opportunity to improve collaboration among providers and with caregivers while meeting the care needs of children with CCN.

Helen Milroy: pioneer in Indigenous and child mental health

In 1983, Helen Milroy became Australia's first Indigenous doctor to qualify medicine—a pivotal moment in the country's history. She never envisioned being a trailblazer, but her list of firsts in Australia includes being the first Indigenous psychiatrist and the first Indigenous Commissioner to the Australian Football League. Reflecting today as the Stan Perron Chair of Child and Adolescent Psychiatry at Perth Children's Hospital and the University of Western Australia (UWA) and the Co-Director of Embrace at Telethon Kids Institute, she says: “My passion is to make sure we get the best wellbeing and mental health outcomes for our kids right across Australia.” Pat Dudgeon, Professor of Indigenous Psychology at UWA, recognises her contribution to strengthening support services for children's mental health, and comments: “Helen has created a bridge between Aboriginal and mainstream mental health and understandings. Her pioneering work developing cultural models of care and healing, using art and narratives alongside psychiatric concepts, has enabled her to combine Aboriginal and western knowledge systems to train and educate mental health workers all over the world.”

Being a parent of a child with Down’s arthritis: an interpretative phenomenological analysis

Purpose To explore the parental impact and experiences of caring for a child with Down’s arthritis (DA), an aggressive, erosive form of arthritis affecting children with Down syndrome. Materials and methods Ten mothers of children with DA were interviewed via telephone. Interviews were guided using a semi-structured non-directive topic guide and ranged from 17 to 242 minutes in duration. Interpretative phenomenological analysis was the method of analysis. Results Three superordinate themes were identified: “Struggle for Help,” “Mothers Know Best,” and “Daily Impacts.” Common challenges included issues around child pain, communication, and challenges in accessing diagnoses and relevant healthcare services. Parents portrayed a reality characterised by ongoing struggles, particularly parents of nonverbal children and those living further from paediatric rheumatology services. Connecting with other parents of children with DA provided a vital source of emotional and informational support. Conclusions Findings provide novel insight into the experience of being mother of a child with DA, highlighting regional healthcare disparities, the need for upskilling of healthcare professionals, and for increased public awareness. Further research is needed to better understand the impact of DA on fathers and siblings. Findings can contribute to development and provision of supports to children with DA and their families. Implications for Rehabilitation Healthcare professionals need to be upskilled in the treatment of, and communication with, children with Down syndrome with chronic illnesses and their families. A specialised stream of care for children with Down’s arthritis (DA) within paediatric rheumatology services may facilitate timely diagnosis and treatment and minimise risk of future complications. Formalised support services for children with DA and their families are needed to minimise emotional distress.

Satisfaction with Child Support Services

AbstractAlthough previous qualitative research in the United States suggests that noncustodial parents have difficult experiences with the child support system, there is no large-scale study of sat...

Translation and cross-cultural adaptation of a Nepali version of the Dutch Participation and Activity Inventory for Children and Youth (PAI - CY) with visual impairment

BackgroundVisual impairment is an important cause of disability in children. There is a lack of information on rehabilitation needs and low vision support services for children with visual impairment in Nepal. This is a pilot study designed to translate, culturally adapt and pre-test the Dutch version of the Participation and Activity Inventory for Children and Youth (PAI-CY) with visual impairment aged 7–17 years to develop a Nepali version.Questionnaires (PAI-CY versions for 7–12 and 13–17 years) were translated using standardized methods and were culturally adapted by a panel of experts. They were pretested to evaluate comprehensibility and relevance among six children with visual impairment and blindness. Finally, participants completed a questionnaire evaluation form.ResultsThe translation and cultural adaptation process resulted in the adaptation of nine items to make them suitable for Nepali culture. Most children had comprehensibility problems with some specific items because of vocabulary, sentence structure and the composition of items. Most of the children were satisfied with the questionnaires.ConclusionThe study resulted in the development of a Nepali version of the PAI-CY. We worked with a small group of content experts and a small but representative sample of children which allowed us to use rigorous translation procedures to address language and cultural differences. A population based study has been planned to investigate the psychometric properties of these questionnaires.

Delivering behaviour support to children and adolescents with autism via telepractice: a narrative review

Access to timely behaviour support services for children and adolescents with a disability in rural and remote regions of Australia is problematic due to the inadequate supply of specialised staff providing complex behaviour support in their local area. Technology has the potential to provide a timely, quality, low-cost option that extends access to behaviour support services for these children and their support teams in rural and remote areas. The purpose of this narrative review was to explore policy and practice guidelines on the delivery of behaviour support via telepractice for children and adolescents with a disability in Australia, and more specifically for those on the autism spectrum. Secondly, the review aimed to establish the evidence base of this model of service for children and adolescents with autism, in order to reflect on how it aligns with current Australian policy and practice. Practice and policy documents were drawn from selected websites relevant to the delivery of behaviour support via telepractice in Australia. Peer-reviewed literature (2004–2019) on the delivery of behaviour support via telepractice was sourced via four databases. While telepractice appears to have promising utility for the provision of support for children and adolescents with autism who present with challenging behaviour, there was very little policy documentation or guidelines found that related specifically to the delivery of this support. There is a need for further rigorous research to inform policy, establish efficacy, and develop practice guidelines that ensure delivery of high quality telepractice behaviour supports under the National Disability Insurance Scheme.

A Theory of Change for Web-Based Therapy and Support Services for Children and Young People: Collaborative Qualitative Exploration.

BackgroundWeb-based counseling and support has become increasingly commonplace for children and young people (CYP). Currently, there is limited research that focuses on the mechanisms of change within complex telepsychology platforms, a factor that makes designing and implementing outcome measures challenging.ObjectiveThis project aims to articulate a theory of change (ToC) for Kooth, a web-based therapy and support platform for CYP.MethodsA collaborative qualitative research design involving professional staff, academic partners, and young people was used to develop the ToC. The following three major reflective phases were engaged: a scoping workshop involving professional staff and academic partners, a series of explorative projects were completed to inform the development of the ToC, and the draft ToC was reviewed for coherence by key stakeholders (young people, online professionals, and service managers).ResultsA collaboratively developed ToC was presented. This was divided into the conditions that lead to individuals wanting to access web-based therapy and support (eg, individuals wanting support there and then or quickly), the mode of service delivery (eg, skilled and experienced professionals able to build empathetic relationships with CYP), and the observed and reported changes that occur as a consequence of using the service (eg, individuals being better able to manage current and future situations).ConclusionsDeveloping the ToC helps to shed light on how web-based therapy and support services aid the mental health and well-being of CYP. Furthermore, it helps to understand the development of positive virtual ecosystems and can be used to devise evaluative tools for CYP telepsychology providers.

Inclusive education in the European Union: A fuzzy-set qualitative comparative analysis of education policy for autism

ABSTRACT Children with special education needs (SEN), such as children with autism, benefit from being included in education along with typical peers. However, development and implementation of inclusive education (IE) is considered difficult. This paper identifies conditions that facilitate IE development for children with autism in the European Union and benchmarks to track IE policy development. Education policy data from 30 legislative regions in the European Union were analyzed through a qualitative comparative analysis using eight conditions: a definition of SEN, the right to education for children with SEN, support for teaching staff, support services for children with SEN, individualized learning outcomes, parental involvement, and mixed mainstream classes. The right to education for children with SEN is implemented in all regions under study. Seven of the examined conditions were associated with IE: an established definition of SEN, support for teaching staff, support services for children with SEN, individualized learning outcomes, parental involvement, IE policies, and mixed mainstream classrooms. Mixed classrooms and support services for children with SEN were identified as necessary for IE. IE policies and support for teaching staff were present in all scenarios that facilitated IE. While the analysis was initially focused on autism, the policies consisted predominantly of general SEN policies, allowing the results to be interpreted in a wider context, beyond autism. Ultimately, mixed mainstream classrooms and support services for children with special needs were found essential for consistent IE development. Support for teaching staff and IE policies facilitate IE and should be further explored and implemented.

Testing, testing, one, two, three: Service user evaluation of three standard measures of mental health and well‐being in an online counselling and support service for children and young people

AbstractAssessment measures have been widely adopted into mental health settings incorporating idiographic (personalised) and nomothetic (standardised) approaches. Online mental health support services have developed significantly, but with very little testing of these measures. This study assesses the relative merits of acceptability, applicability and appropriateness of assessment measures online for children and young people. Acceptability was determined by whether users elected to complete the measure, applicability by whether they understood the questions, and appropriateness by their experience of completing the measure. Three measures, the Short Warwick‐Edinburgh Emotional and Mental Well‐Being Scale (SWEMWBS), the Young Person's Clinical Outcomes in Routine Evaluation (YP‐CORE) and the Strengths and Difficulties Questionnaire (SDQ), were randomly offered to 7,235 new registrations to assess relative acceptability of the measures, and two follow‐up questions were asked to assess applicability and appropriateness. The chi‐square tests of independence were calculated to compare response rates for each measure, followed by post hoc pairwise comparisons and effect size calculations. There was a high level of acceptability of the measures, with statistically significant differences between the less‐accepted SDQ and more‐accepted SWEMWBS. For applicability, the SWEMWBS was less understood and relatable than the other assessment measures. All the measures demonstrated a tolerable appropriateness. All differences were indicated at a small effect size. These findings support the acceptability, applicability and appropriateness of the use of assessment measures in an online setting. The SWEMWBS demonstrated surprisingly low applicability against the more clinical measures, suggesting further investigation into how young people ascribe meaning to the measures, and their motivations for completing them.

The experience of children with parents diagnosed with young onset dementia: a systematic literature review

Background: Young onset dementia (YOD) may develop rapidly and affect those who have dependent children. There remains a lack of understanding of the impact on children living with a parent with YOD. Aims: To explore published literature in order to understand the impact on children living with a parent with YOD. Methods: A systematic search of the following databases—Medline; PsychINFO; CINAHL; and Scopus—for literature published from 1 January 2013 to 31 December 2018. Findings: Three major themes were identified: first, coping, which comprised two sub-themes of avoiding the situation and being empowered. Second, change, which encompassed two sub-themes of change of personality and change of family role. The third was loss. Conclusions: There remains a need to raise awareness and develop support services for children of parents with YOD. Community nurses are the best place healthcare professionals to identify and support the needs of both the person with YOD and their children.

RESEARCH OF SATISFACTION OF POPULATION WITH THE STATUS OF SERVICES IN THE EDUCATION MARKET

The article discusses the problems of implementing state policy in the field of school education and preschool sphere. The article analyzes the results of a sociological study on the example of the educational services market Leningrad region. The results of a sociological study allow us to identify certain shortcomings in the organization of public services at the municipal level of government. The article discusses such aspects of organizing a competitive environment in the field of education as the number of organizations in the market, the representation of organizations in the market, the quality of services, price and the choice of organization. The results of the study allow us to note that more than a third of respondents are satisfied with the quality of services, and the choice of organization, and pricing policy. At the same time, the majority of respondents express certain doubts about these indicators, which is expressed in a small amount of differences between negative and positive values. The results of the study allow us to state the relevance of research on the quality of the organization of the provision of services in the field of preschool education, additional education of children, the market of psychological and pedagogical support services for children with disabilities. Studies show the high importance that households in the Leningrad Region attach to the education sector. This study allows us to identify areas of managerial impact to local authorities regulating these services. Monitoring the state of the market for services in the field of school and preschool education makes it possible to identify problem organizations and directions for solving social and economic problems in the field of educational organization. The education sector for all modern states is an important political component, the accessibility and universality of education is a constitutional indicator of the status - “social”, “rule of law”.

THE STUDY OF POPULATION SATISFACTION WITH THE STATE OF THE MARKETS OF PRESCHOOL EDUCATION, ADDITIONAL EDUCATION OF CHILDREN

The article discusses the problems of implementing state policy in the field of school education and preschool sphere. The article analyzes the results of a sociological study on the example of the educational services market Leningrad region. The results of a sociological study allow us to identify certain shortcomings in the organization of public services at the municipal level of government. The article discusses such aspects of organizing a competitive environment in the field of education as the number of organizations in the market, the representation of organizations in the market, the quality of services, price and the choice of organization. The results of the study allow us to note that more than a third of respondents are satisfied with the quality of services, and the choice of organization, and pricing policy. At the same time, the majority of respondents express certain doubts about these indicators, which is expressed in a small amount of differences between negative and positive values. The results of the study allow us to state the relevance of research on the quality of the organization of the provision of services in the field of preschool education, additional education of children, the market of psychological and pedagogical support services for children with disabilities. Studies show the high importance that households in the Leningrad Region attach to the education sector. This study allows us to identify areas of managerial impact to local authorities regulating these services.Monitoring the state of the market for services in the field of school and preschool education makes it possible to identify problem organizations and directions for solving social and economic problems in the field of educational organization. The education sector for all modern states is an important political component, the accessibility and universality of education is a constitutional indicator of the status - “social”, “rule of law”.

Исследование конкурентной среды рынков услуг дошкольного образования, детского отдыха и оздоровления, услуг психолого-педагогического сопровождения детей Ленинградской области и Республики Коми

Исследование конкурентной среды рынков услуг дошкольного образования, детского отдыха и оздоровления, услуг психолого-педагогического сопровождения детей Ленинградской области и Республики Коми

Curriculum in Action: Teaching Students to Combat Human Trafficking

Human trafficking severely endangers vulnerable individuals from around the globe. Schools play an important role to educate students the potential harms of human trafficking and should become more intentional in providing support services for children who fall victim to human trafficking. The purpose of this study was to examine how preventive curricula on human trafficking can be successfully implemented in schools because of the direct connection to teaching for social justice. Under the theoretical guise of teaching for social justice, researchers reviewed current literature trends on implementing social justice curricula and current models for teaching about human trafficking. Following the qualitative research case study method, interview data, classroom observation, interval recording, and reflexive notes were collected and analyzed for salient themes to emerge. Findings from this study support the notion that anti–human trafficking curriculum can be implemented in public school settings and yield high engagement among students.

Post-diagnostic management and follow-up care for autism spectrum disorder.

Paediatricians and other primary care providers are well positioned to provide or coordinate ongoing medical and psychosocial care and support services for children with autism spectrum disorder (ASD). This statement provides recommendations and information on a range of interventions and resources, to help paediatric care providers optimize care for children with ASD and support their families. The management of ASD includes treating medical and psychiatric co-morbidities, behavioural and developmental interventions, and providing supportive social care services to enhance quality of life for affected children and families.

잠재계층분석을 이용한 아동 · 청소년 심리지원서비스 시범사업 참여자 만족의 예측변인 탐색

잠재계층분석을 이용한 아동 · 청소년 심리지원서비스 시범사업 참여자 만족의 예측변인 탐색

Sexual Education for Parents and Teachers of Teenagers with Special Needs

Yayasan Wahana Inclusive Indonesia (YWII) is an institution engaged in providing services for children with special needs, people with disability, and inclusive society. YWII provides services that include counseling, development of individual learning programs (PPIs), support services for children with special needs, and training for educators, schools, parents, and communities. Educational and training activities are conducted by helping children with special needs to learn a few things they need most in their daily lives. Based on the children’s needs, the Master’s Program of Child and Adolescent Psychology Professionals, Faculty of Psychology, Atma Jaya Catholic University, designed training-based interventions to improve the knowledge of students, teachers, and parents about sexual behaviors. Prior to the intervention, the researcher conducted an assessment to determine the causes of "inapproriate" sexual behavior problems that occurred in the YWII environment. The data was collected through instruments such as interview, observation, and FGD. The collected data was then analyzed using the concepts of problem tree and destination tree. Based on the assessment results, it can be concluded that one of the challenges faced by YWII is related to the provision of sexual education to students or children. Adolescents with special needs have not yet had an awareness of their development from children to adolescents that is followed by sexual change or development and how they should respond to the changes. As a result, they are often considered to exhibit behaviors considered rude and vulnerable to sexual harassment. Training-based interventions were provided to parents and teachers at YWII to give them guidance and assistance to handle children with special needs on sexual education

Knowledge of basic school teachers on identification and support services for children with dyslexia

Background: Dyslexia is a specific learning disability that is characterized by difficulties with fluency, automaticity, and co-morbidity with learning. The study sought to assess the knowledge of basic school teachers on identification and support services for children with dyslexia. Method: A descriptive study design using a quantitative approach was employed for this study. The study population comprised of public basic school teachers who were selected using a simple random sampling technique. Data was collected by means of self-administered questionnaires and analysed with the aid of SPSS. Results: An average of 62% of the teachers had knowledge on dyslexia, 60.5% of teachers had knowledge on dyslexia identification and an average of 65% had knowledge on support services for children with dyslexia. There was a significant relationship between knowledge score and special education training as teachers with Bachelor’s Degree in Special Education were 1.75 times more likely to have higher knowledge score on dyslexia [(AOR) = 1.75 (95% CI; 0.74 to 4.14)]. The main barriers to teaching children with dyslexia included inadequate resources, lack of training on dyslexia, large class sizes making it difficult to recognize a dyslexic as well as time to develop dyslexia friendly instructions. Conclusion: Knowledge of dyslexia among public basic school teachers within the Asokwa Sub-Metropolis was found to be average. Therefore, more in-service training on dyslexia should be organized by the Ghana Education Service for all basic school teachers.

Japanese public library services for dyslexic children

In Japan, most public libraries do not provide sufficient easy-reading materials or offer reading facilities that are suitable for children with dyslexia. In contrast, in Europe, public libraries provide special facilities for children with reading disabilities, allowing them to see, read or listen to books in various ways. This study compares support services for children with reading disabilities at public libraries in Europe and Japan, focusing on support for children with dyslexia. Information was gathered through interviews with librarians. After interviewing European librarians working in children’s libraries, we found that each of them runs events for children, where the children have the opportunity to discover books. Children were able to acquire knowledge through these events and pursue knowledge using these newly-discovered books. It is suggested that adopting the concept of the European children’s library in Japanese libraries might give all Japanese children the opportunity to read more books.