Abstract
The aim of this study was to evaluate the quality of life of primary caregivers of children with CP, correlating with the presence of low back pain and motor impairment level of the child. For this research to have been carried out there was the participation of 55 primary caregivers that completed the questionnaires of Roland & Morris (QRM) and WHOQOL-Bref. The evaluation of children's motor impairment was measured by Gross Motor function Classification System (GMFCS). The results show that primary caregivers of children with CP had a loss in their quality of life, especially in the environmental domain and facet pain and discomfort (30.45), negative feelings (34.09), and recreation and leisure (37.27). There were no significant correlations between motor impairment in children with CP, the quality of life of their primary caregivers, and the symptoms of low back pain. However, it was observed that the average symptoms of low back pain are lower in caregivers of children with minor motor impairment (p=0.488), and that there is a significant negative correlation (r=-0.508, p<0.001) between the symptoms of back pain and quality of life of caregivers.
Highlights
Cerebral palsy (PC) is a permanent development impairment, but it is not a progressive disorder[1,2]
The WHOQOL questionnaire was developed by the World Health Organization (WHO), and it is frequently used to measure the quality of life in several populations, presenting an evaluation of the QoL in four domains[11]
It was observed that the domain of quality of life evaluated by the WHOQOL-Bref with the lower score among the primary caregivers of children with cerebral palsy was the environment
Summary
Cerebral palsy (PC) is a permanent development impairment, but it is not a progressive disorder[1,2]. Cerebral palsy is one of the most common infant disorders, having an incidence of 2 to 2.5 per 1,000 live births in developed countries and about 7 each 1,000 newborns in underdeveloped countries[4] Primary caregivers dedicate their time to take care of such child, and do not have time to satisfy their own social needs, causing them to bear a feeling of overload and tension, besides having an impact on physical and emotional health, well-being, marital relations, employment, and the financial situation, and might even compromise their psychic well-being[5]. The WHO defines health in three dimensions: physical, mental, and social well-beingl[4,6]
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