Abstract
Resumo Objetivo: Conhecer a percepcao do familiar/cuidador de pacientes com diagnostico de câncer terminal em atendimento domiciliar sobre cuidados paliativos. Metodos: Pesquisa descritiva, abordagem qualitativa realizada junto a seis cuidadores familiares de pacientes que recebem atendimento domiciliar em cuidados paliativos exclusivos prestados pela Unidade de Cuidados Paliativos de um hospital de referencia. Os dados foram coletados no periodo de setembro a outubro de 2015, por meio de entrevista semiestruturada analisada a luz da Analise de Conteudo de Bardin. Resultados: Emergiram-se as seguintes tematicas: Rotina do familiar/cuidador diante dos cuidados paliativos; Equipe de cuidados paliativos: Apoio ao familiar/cuidador; Entendimento do familiar/cuidador sobre cuidados paliativos; Sentimentos do familiar/cuidador em cuidados paliativos; Vivencia do familiar/cuidador acerca dos cuidados paliativos em domicilio. Conclusao: Foi possivel resgatar a importância dos cuidados paliativos no domicilio como possibilidade de minimizar o impacto do sofrimento com a doenca e assegurar a dignidade no processo de morrer.
Highlights
According to the World Health Organization (WHO), cancer will become a greater problem in the decades; the estimated number of new cases will increase from ten million in 2000 to 27 million in 2030, in addition to 17 million deaths and 75 million individuals living with malignant neoplasms, the majority of which in low-income countries
According to the World Health Organization (WHO), in a concept updated in 2002, palliative care consists in health services provided by a multi-disciplinary team that aim to improve the quality of life of patients and their family members, when coping with a disease that threatens their life, through prevention and reduction in suffering, early identification, effective assessment and treatment of pain and other physical, social, psychological and spiritual symptoms.[5]
The guiding question was as follows: What is the family members/'caregivers' perspective of palliative care for patients diagnosed with terminal cancer who receive in-home health services exclusively provided by the Palliative Care Unit (PCU)? Visits had been previously set up with family members/caregivers
Summary
According to the World Health Organization (WHO), cancer will become a greater problem in the decades; the estimated number of new cases will increase from ten million in 2000 to 27 million in 2030, in addition to 17 million deaths and 75 million individuals living with malignant neoplasms, the majority of which in low-income countries. Family members/caregivers and health professionals need to work together as a team to provide comprehensive care.
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