Non-Provision of Mental Health Services To Parents/Caregivers of Patients with Thalassemia Major in Southeast Asian Countries Despite High Prevalence: A Concerning Dilemma.

Abstract

Composing this correspondence to bring to your notice a significant matter that impacts the psychological health of parents and caretakers of individuals with thalassemia major in South Asian Countries: the absence of the availability of mental health provisions for this susceptible and vulnerable community.Thalassemia major is a genetic blood disorder that requires lifelong medical treatment and management. Caring for a child with thalassemia major can be emotionally and finan- cially challenging for parents and caregivers.1 Research has shown that parents of children with chronic illnesses like thalassemia major are at increased risk for physical distress, psychological ailment, and self-negligence.2 Caregivers are more prone to developing stress due to uncertainty of outcomes,financial burdens, hopelessness, lack of education regarding the treatment process, and deteriorating condition of their child.3