Abstract

Background The Central Remedial Clinic (CRC) is a national organisation providing a range of specialised services for children and adults with physical disability. One such service provided is a specialist spina bifida service. The aims of the study were: 1. To assess the current level of need among school-going children and adolescents (aged 5–18 years) with spina bifida. 2. To obtain a measure of patient and parental satisfaction with the specialist spina bifida service provided by the CRC. 3. To implement improvements in the service.

Highlights

  • The Central Remedial Clinic (CRC) is a national organisation providing a range of specialised services for children and adults with physical disability

  • To obtain a measure of patient and parental satisfaction with the specialist spina bifida service provided by the CRC. 3

  • The key demand is improved coordination of services, among the services provided by the CRC, but among all care-givers providing services on multiple sites in the Dublin area

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Summary

Open Access

Cerebrospinal Fluid Research 2004, 1(Suppl 1):S44 doi:10.1186/1743-8454-1-S1-S44. This article is available from: http://www.cerebrospinalfluidresearch.com/content/1/S1/S44. 48th Annual Meeting of the Society for Research into Hydrocephalus and Spina Bifida Meeting abstracts

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