Intercultural adaptation of the PUKSoPC in German language : A scale for perceived control in patients with Parkinson's disease

Abstract

The level of perceived control in people with Parkinson's disease plays asignificant role in affecting their quality of life. Simpson etal. developed ascale of perceived control specific to Parkinson's disease called the Parkinson's UK Scale of Perceived Control (PUKSoPC). In this work, we present across-culturally adapted German translation of the original English version. After receiving approval by the original authors, an internationally established procedure was used for cross-cultural adaptation. Firstly, the original English version was translated into German independently by two bilingual neuroscientists, who then agreed on aconsensus version. This was tested on 10people with Parkinson's disease and independently back translated into English by two different neuroscientists. After forming aconsensus version, this English version was compared with the original version by all four translators. Differences between the versions resulted in modifications to the German translation so that the back translation matched the original as closely as possible. The final version was approved by two of the original authors and clinically tested on 50people with Parkinson's disease. During the translation process, the four translators agreed on aculturally adapted German version of the PUKSoPC. Testing of the final version on 50people with Parkinson's disease did not reveal any linguistic or content-related problems. The linguistically validated German version of the PUKSoPC presented in this paper is now freely available for measuring the levels of perceived control in people with Parkinson's disease to advance both research and clinical practice.