Abstract
ABSTRACT Background The lack of validated clinical tools to assess the complaint related to anomia in patients with degenerative aphasia is a shortcoming despite recommendations in favour of a patient-centred approach. Aims We aimed to develop and validate a Self- and Hetero-assessment Questionnaire for Anomia (S.H.Q.A.) to be used by patients, caregivers and speech-language pathologists (SLPs). Methods & Procedures The development of the questionnaire was carried out following a six-stage methodology. Psychometric analysis was carried out on 27 patients with primary progressive aphasia (PPA), 53 patients with Alzheimer’s disease (AD), their caregivers and their SLPs. Outcomes & Results Composed of 41 questions, it explores five domains: the contexts and evolution of the severity of the word-finding difficulty, the types of errors and difficulties, the discourse consequences, the strategies employed and their effectiveness, the consequences on social life. Psychometric analysis revealed moderate validity (r < −0.50) and excellent sensitivity (>0.95) for both populations. Fidelity was moderate to excellent for the PPA patient, caregiver and SLP versions of the questionnaire (0.74 < r < 0.92) and satisfactory for the AD patient version (r = 0.49). Conclusions The S.H.Q.A. meets the validation criteria for application as a tool to assess anomia complaints in patients with PPA and AD. Its use will complement objective assessments, integrating the anomia-related complaint into therapeutic choices and fostering partnership with caregivers. It could also be useful in assessing the effectiveness of interventions for daily communication and changes in patients’ needs.
Published Version
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