Chất lượng cuộc sống của bệnh nhân Hemophilia điều trị tại viện Huyết học – truyền máu trung ương năm 2020

Abstract

Objectives: To describe the quality of life (QoL) of 185 Hemophilia patients treated in NIHBT in 2020. Methods: A quantitative, cross-sectional descriptive study, using the SF-36 toolkit describing 185 male Hemophilia patients aged 18 years and older, treatment at the Hemophilia Center, NIHBT, in 2020. Results: The QoL score of Hemophilia patients had a average level (51.6 points), in which, the PCS was significantly lower than the MCS (38 points and 65.2 points). Patients aged 45 years and older had a lower QoL score than younger patients. Patients diagnosed for the first time from 0 to 12 months had a higher QoL score than those diagnosed after 12 months. In contrast, the QoL score was higher when the patient had a higher education level. There was a difference in QoL score between the occupational groups of patients. Hemophilia A patients had lower QoL scores than Hemophilia B patients, severe patients have lower QoL scores than moderate and mild patients. Conclusion: The QoL score of Hemophilia patients at the NIHBT was at an average level, in which the PCS was significantly lower than the MCS. The QoL score of patients differed between age groups, age at first diagnosis, occupation, education, disease type and disease severity. Keywords: Quality of life, Hemophilia, SF-36.