Abstract
Abstract Aim This study aimed to understand the lived experience of patients with a parastomal hernia, including their perceptions, priorities and experiences of living with and having treatment for a parastomal hernia. Methods Semi-structured interviews were undertaken with patients living with an intestinal stoma who have either had surgical treatment or conservative management for a parastomal hernia. Interviews were audio recorded and professionally transcribed prior to framework analysis via NVivo. Patients were recruited via patient support charities and social media. Results Currently 21 participants have been interviewed (11 female, 10 male) age range 24–87. Indication for index surgery were: 7 colorectal cancer, 9 IBD, 2 incontinence, 3 other. 8 have had a PSH repair, 7 have had a recurrence. 4 have had more than one repair. Two have a bulge but have not had a PSH diagnosed by a healthcare professional. Median time from index surgery to developing a PSH was 2 years. Analysis of the transcript is currently ongoing, however initial themes include a lack of preparedness for development of a PSH, and for recurrence after surgical repair, as well as a sense of personal blame for development of a PSH. Conclusion This qualitative study has explored patients lived experience of parastomal hernia, and the impact that this may have on their quality of life. It has highlighted a number of areas that patients feel are important when discussing parastomal hernia and parastomal hernia treatment. This understanding can help healthcare professionals have better conversations with their patients.
Published Version
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