Abstract
To design and evaluate psychometrics of adolescent self-report and parent proxy-report questionnaires assessing readiness for independent self-care in adolescents with type 1 diabetes (RISQ-T and RISQ-P). 178 adolescents with type 1 diabetes (ages 13-17years) and their parents completed the 20-item RISQ-T and 15-item RISQ-P, along with diabetes-specific measures of parent involvement, self-efficacy, burden, and treatment adherence. Evaluation of psychometric properties included calculation of internal consistency, adolescent and parent agreement, test-retest reliability, concurrent and predictive validity. The RISQ-T (α=0.78) and RISQ-P (α=0.77) demonstrated sound internal consistency. Higher RISQ-T and RISQ-P scores (indicating more adolescent readiness for independent self-care) showed significant associations with less parent involvement in diabetes care (adolescent r=-0.34; parent r=-0.47; p<.0001), greater adolescent diabetes self-efficacy (adolescent r=0.32; parent r=0.54; p<.0001), less parent-endorsed diabetes-related burden (parent r=-0.30; p<.0001), and greater treatment adherence (adolescent r=0.26, p=.0004; parent r=0.31, p<.0001). Adolescent and parent scores were significantly correlated (r=0.35; p<.0001); test-retest reliability was reasonable (ICC RISQ-T r=0.66; RISQ-P r=0.71). Higher baseline RISQ-P scores significantly predicted reduced family involvement after six months (β=-0.14, p=.02). RISQ-T and RISQ-P demonstrate sound psychometric properties. Surveys may help inform diabetes teams of the level of support needed to facilitate shift to independent self-management.
Accepted Version
Published Version
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