Parent Themes Research Articles

Inequities in food access during the COVID19 pandemic: a multilevel, mixed methods pilot study.

Innovative data integration may serve to inform rapid, local responses to community needs. We conducted a mixed methods pilot study among communities of color or low-income in the San Francisco Bay Area amid the COVID-19 pandemic to assess a hypothesized data model to inform rapid response efforts. Between 2020-2021, we collected (1) qualitative data through neighborhood reports submitted via Streetwyze, a mobile neighborhood mapping platform; (2) survey data on social and economic circumstances; and (3) geospatial data among residents of three counties. Qualitative data were coded and then integrated with survey and geospatial data. We used descriptive analyses to examine participants' experiences with food in their neighborhoods. Seventy percent of participants reported food insecurity before and after the pandemic began in March 2020. Within neighborhood reports, food was the most frequently occurring sub-theme within the Goods and Resources parent themes (68% and 49% of reports, respectively). Security (88%), resource programs (88%), outdoor space (84%), and equity (83%) were more likely to be mentioned by participants who were food insecure compared to those who were not (12%, 12%, 16%, 17%, respectively). Mentions of food in neighborhood reports more often occurred in census tracts with lower socioeconomic status and more area-level food insecurity. Individuals who were food insecure reported a constellation of needs beyond food, including needs related to safety and greater social equity. Our data model illustrates the potential for rapid assessment of community residents' experiences to provide enhanced understanding of community-level needs and effective support in the face of changing circumstances.

Health literacy and non-communicable disease knowledge of pregnant women and mothers in Tasmania: Qualitative exploration.

The World Health Organisation is prioritising health literacy development to address the growing burden of non-communicable diseases (NCDs). Empowering pregnant women and mothers through health literacy development may help to reduce the intergenerational impact of NCDs. However, significant gaps exist in understanding the health literacy needs of this priority population globally. This study aimed to qualitatively explore the health literacy strengths and challenges as well as NCDs knowledge and beliefs of pregnant women and mothers with young children (0-8 years) in Tasmania. Data were collected online using in-depth semi-structured interviews and analysed inductively using reflexive thematic analysis. Twenty women (mean age 35.5 years, standard deviation 5.13) participated. Four parent themes were generated from the data: perceived knowledge and awareness of NCDs and their causative factors; social determinants of health and the surrounding environment; social networks and peer support as health navigator; and trust in health services and social connections. These themes highlighted diverse factors that influenced the participant's access and use of health information and services and their engagement in healthy lifestyle practices and active health management. Participants demonstrated good knowledge and awareness about NCDs and associated risk factors but experienced numerous health literacy strengths and challenges which influenced their access to health care and engagement in healthy lifestyle practices. This study highlights the need to address the diverse health literacy needs of pregnant women and mothers through codesigning locally informed health literacy development strategies combined with the creation of enabling service environments to reduce the growing burden of NCDs.

Playing Russian Roulette: Parent and Adolescent Perspectives on Tumor Surveillance for Adolescents with Cancer Predisposition Syndromes.

Cancer predisposition syndrome (CPS) surveillance allows for the early detection and treatment of neoplasms; however, the psychosocial impact of tumor surveillance is poorly understood for cancer-affected adolescents with CPS and their parents. To gain further insight, we qualitatively characterized the affective and cognitive experience of adolescents undergoing tumor surveillance. Adolescents with a history of cancer and their parents independently completed semistructured interviews querying their experience with the adolescent's tumor surveillance. Interviews were coded using emotion coding and content analysis before developing themes using thematic analysis. Eight adolescents and 11 parents (seven mothers, four fathers) completed interviews. Parent themes included maternal anxiety, relief following surveillance, fathers' positive expectations and emotions surrounding surveillance results, coping strategies, and perception of going through surveillance together with their child. Adolescent themes included normalization of surveillance, indifference about surveillance but excitement to return to the hospital, focus on physical and logistic aspects, relief focused on being done with scans, and belief that outcomes would be good. Past scans/surveillance experiences influencing surveillance feelings were a theme across both parents and adolescents. Our findings suggest that tumor surveillance is not causing marked emotional distress for cancer-affected adolescents with CPS. In contrast, mothers of cancer-affected adolescents undergoing surveillance may present with anxiety leading up to tumor surveillance and, for a subset, in between surveillance appointments. These observations highlight a need for ongoing psychosocial screening for families of children with CPS and a role for psychosocial providers in the multidisciplinary management of CPS.

Taking emic and etic to the family level: interlinking parents’ and children’s COVID-19 views and experiences in Germany

BackgroundCOVID-19 impacted families globally, restricting movement, and changing daily routines and family dynamics. In order to explore and contrast children’s and parents’ experiences and perceptions of life during COVID-19, we used Pike’s distinction of emic (an insider’s view) and etic (an outsider’s view) and adapted the concept to the family level to differentiate between children’s and parents’ own perspectives (emic) and their view of other family members (etic).MethodsOur qualitative study is based on face-to-face in-depth individual interviews with parents (n = 13) and their children (n = 16) and included migrant families as a hitherto underrepresented group in COVID-19 research in Germany. Interviews were recorded, transcribed in NVivo and quality-checked. We employed thematic analysis to explore similarities and differences in perceptions and experiences of children and parents at the family level and across the entire data set.ResultsWe identified the following major themes in parents’ and children’s experiences: managing role and relationship changes within the nuclear family, coping with social expectations and demands, and re-evaluations of life’s priorities. Parents’ etic views on children showed strong overlap with children’s emic view in terms of physical movement restrictions, experiencing good and tense family times, and internalizing rules. For issues such as experiencing stigma, divorce or language acquisition, parents’ views were not reflected in children’s accounts. Children’s testing experience, by contrast, was more nuanced than parents’ perceptions of it. Children’s etic views of parents, a perspective rarely found in qualitative research with children, overlapped with mothers’ experiences of role strain.ConclusionsThe consideration of parents’ and children’s emic and etic perspectives provided deeper insights into family members’ experiences, navigation, and views of COVID-19 measures. Applying the emic/etic distinction to the family context enriches the sociology of childhood studies and enables a more nuanced understanding of diverging experiences within families and should thus be further explored within and beyond epidemics in order to guide future pandemic measures.

Clinicians’ experience with technology within the physical environment of trauma rooms: a focus group study

PurposeThis study aims to investigate how trauma team members perceive technological equipment and tools in the trauma room (TR) environment and to identify how the technological equipment could be optimized in relation to the TR’s space.Design/methodology/approachA total of 21 focus group sessions were conducted with 69 trauma team members, all of whom worked in Level I TRs from six teaching hospitals in the USA.FindingsThe collected data was analyzed and categorized into three parent themes: imaging equipment, assistive devices and room features. The results of the study suggest that trauma team members place high importance on the availability and versatility of the technological equipment in the TR environment. Although CT scans are a usual procedure necessity in TRs, few facilities were optimized for easy access to CT-scanners for the TR. The implementation of cameras and screens was suggested as an improvement to accommodate situational awareness. Rapid sharing of data, such as imaging results, was highly sought after. Unorthodox approaches, such as the use of automatic doors, were associated with slowing down the course of actions.Practical implicationsThis study provides health-care designers with the knowledge they need to make informed decisions when designing TRs. It will cover key considerations such as room layout, equipment selection, lighting and controls. Implementing the strategies will help minimize negative patient outcomes.Originality/valueLevel I TRs are a critical element of emergency departments and designing them correctly can significantly impact patient outcomes. However, designing a TR can be a complex process that requires careful consideration of various factors, including patient safety, workflow efficiency, equipment placement and infection control. This study suggests multiple considerations when designing TRs.

Health Care Professionals' and Parents' Perspectives on the Use of AI for Pain Monitoring in the Neonatal Intensive Care Unit: Multisite Qualitative Study.

The use of artificial intelligence (AI) for pain assessment has the potential to address historical challenges in infant pain assessment. There is a dearth of information on the perceived benefits and barriers to the implementation of AI for neonatal pain monitoring in the neonatal intensive care unit (NICU) from the perspective of health care professionals (HCPs) and parents. This qualitative analysis provides novel data obtained from 2 large tertiary care hospitals in Canada and the United Kingdom. The aim of the study is to explore the perspectives of HCPs and parents regarding the use of AI for pain assessment in the NICU. In total, 20 HCPs and 20 parents of preterm infants were recruited and consented to participate from February 2020 to October 2022 in interviews asking about AI use for pain assessment in the NICU, potential benefits of the technology, and potential barriers to use. The 40 participants included 20 HCPs (17 women and 3 men) with an average of 19.4 (SD 10.69) years of experience in the NICU and 20 parents (mean age 34.4, SD 5.42 years) of preterm infants who were on average 43 (SD 30.34) days old. Six themes from the perspective of HCPs were identified: regular use of technology in the NICU, concerns with regard to AI integration, the potential to improve patient care, requirements for implementation, AI as a tool for pain assessment, and ethical considerations. Seven parent themes included the potential for improved care, increased parental distress, support for parents regarding AI, the impact on parent engagement, the importance of human care, requirements for integration, and the desire for choice in its use. A consistent theme was the importance of AI as a tool to inform clinical decision-making and not replace it. HCPs and parents expressed generally positive sentiments about the potential use of AI for pain assessment in the NICU, with HCPs highlighting important ethical considerations. This study identifies critical methodological and ethical perspectives from key stakeholders that should be noted by any team considering the creation and implementation of AI for pain monitoring in the NICU.

Patient, Caregiver, and Provider Perceptions of Quality Care for Inpatient Sickle Cell Disease Care: A Scoping Review of Qualitative Literature

Background: The experiences of patients with sickle cell disease (SCD) who receive care in the outpatient and emergency department settings have been well-explored, resulting in the implementation of guidelines ensuring that patients with SCD receive high-quality care in those healthcare settings. However, there remains limited guidance on what constitutes high quality inpatient SCD care despite most patients with SCD of all ages having at least one hospitalization per year. Our overall goal is to use mixed methods scoping review methodology to identify potential inpatient SCD quality of care indicators. The goal of this study is to identify qualitative research examining inpatient SCD care, focusing on the experiences of patients with SCD, their caregivers, and their healthcare providers that should inform inpatient SCD care quality of care indicators. Methods: We search seven databases including CINAHL, Embase, PsycINFO, PubMed, Scopus, Web of Science, and World Health Organization for relevant articles using a search algorithm developed by a research librarian. Using an online collaborative software designed for conducting literature reviews, a team of independent reviewers screened the titles and abstracts of 9,938 articles for inclusion, with two reviewers screening each article. Articles were selected for inclusion if they were qualitative in nature and related to the experiences of patients (or their family members/providers) with SCD while admitted to an inpatient service. Articles were excluded if they related to the care of patients with SCD solely within the ED, or if they related to the care of pregnant patients with SCD. We resolved discrepancies by discussion among reviewers, with final decisions on inclusion made by the senior author. We completed full text review of included articles with manual data extraction (Table). We plan to next conduct a thematic analysis by organizing all identified themes from the included articles into sub-themes, which will then be categorized into parent themes as defined by the Donabedian Model. Decisions for clusters of sub-themes will be reached by team consensus. Results: Initial literature search retrieved 20,819 studies with removal of 10,906 duplicates (Figure). Of the remaining 9,913 studies that underwent title and abstract review, we identified 186 for inclusion in full text review. Fourty-three studies were included in data extraction, of which only 13 were recent (published between 2013-2023). The majority of studies explored patient perspectives on inpatient care of SCD (n=31), whereas a smaller number of studies included caregiver (n=12) and healthcare provider (n=10) perspectives. Several studies explored multiple stakeholder perspectives (n=8). Of the studies that explored healthcare provider perspectives, both nurses (n=7) and physicians (n=9) were represented. Only two studies included social workers in their study population, and none included case managers or pharmacists. Of the studies that explored caregiver perspectives, a majority focused on caregivers of children with SCD (n=10), while fewer focused on caregivers of adults with SCD (n=4). The majority of studies addressed adult SCD care only (n=24), while 11 studies included only pediatric inpatient SCD care. 8 studies included both pediatric and adult patient populations. The most common study locations were the United States (n=25) and the United Kingdom (n=11). Other study locations included Brazil (n=3), Bahrain (n=2), Uganda (n=2), Canada (n=2), Cameroon (n=1), and Jamaica (n=1). Some studies included multiple countries. Conclusions: Existing qualitative literature about inpatient SCD care is concentrated on the patient experience. Studies regarding healthcare providers' perspectives primarily included nursing and physician perspectives with a notable absence or underrepresentation of other interdisciplinary team members. It is notable that while African countries have the highest global burden of SCD, only a small number of qualitative studies examined inpatient SCD care in those countries. In next steps, we will use deductive thematic analysis of extracted qualitative data to identify potential structural, process, and outcome measures for inpatient SCD care from patient, caregiver, and healthcare provider perspectives.

Positive and challenging themes in parents' perceptions of their relationships with their child with autism: Comparison between mothers and fathers.

Most studies of how parents of children with autism see the parent-child relationship used questionnaires completed by the parents and focused on challenges. This study broadened the lens by interviewing parents using open-ended questions that provide an opportunity to raise challenging but also positive experiences. Seventy-five mother-father dyads were interviewed individually about their own and their spouses' relationships with their preschooler, and we found nine relationship themes. In descending order, the themes mentioned most frequently by mothers were "Security and Closeness," "Love," and "Tenderness and Sensitivity," and by fathers were "Pleasure in Joint Activities," "Security and Closeness," and "Guidance." Positive themes were more common than challenging themes. Finally, more mothers mentioned the themes "Love," "Tenderness and Sensitivity," "High Involvement and Care," and "Difficulties" than did fathers, whereas more fathers mentioned the themes "Guidance" and "Pleasure in Joint Activities" than did mothers. The findings portray a nuanced view of the parenting experience of mothers and fathers of preschoolers with autism.

To summarise the approach to and findings of the PPIE undertaken as part of a programme of secondary research with a vulnerable, hard to reach population during the COVID-19 pandemic

BackgroundPublic and patient involvement and engagement (PPIE) is an important part of research. The inclusion of PPIE in research is becoming more widespread, however, there are some areas where it is still uncommon. For example, undertaking PPIE in secondary analysis projects is uncommon and PPIE with difficult to reach populations and vulnerable groups can be seen as being too difficult to facilitate. The aim was to summarise the approach to and findings of the PPIE undertaken as part of a programme of secondary analysis with a vulnerable, hard to reach population; residents of residential care facilities (RCFs), during the COVID-19 pandemic.MethodsAs part of a project to develop a publically available database of statutory notifications of adverse events from RCFs in Ireland, residents (n = 9) from RCFs for older people and people with disability were telephone interviewed. Residents were engaged through gatekeepers and posted participant information and consent forms. Themes were identified using content analyses of interview notes.ResultsThree parent themes were identified, each with two subthemes: privacy concerns, enthusiasm and dissemination of research findings. Residents highlighted the importance that no personal information be shared in the database. Once data were anonymized, residents thought that the database should be published and shared. Residents reported being happy about research being undertaken using the data and thought that publishing the database would help inform the public about RCFs. Completing a PPIE project with a vulnerable group during the global COVID-19 pandemic required planning and resources. Resources included finances, time and expertise.ConclusionsThe involvement of residents informed the data inclusion in the published database and the approach taken in the protection of personal data. Enthusiasm for publication and research using the database by residents encouraged the developers as it was considered something that was wanted by residents. The benefits of PPIE can be achieved with vulnerable groups during unprecedented times with the appropriate planning. It requires dedication of time, finances and expertise. Overcoming the obstacles was achievable and worthwhile. The approach outlined can be used as an example to support PPIE in secondary analysis projects and or with vulnerable groups.

Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit.

This study aimed to evaluate the impact of advance care planning (ACP) on parent-reported end-of-life (EOL) outcomes in the neonatal intensive care unit (NICU). Single-center, cross-sectional mixed-methods survey study of bereaved parents who experienced the death of a child in the Boston Children's Hospital NICU between 2010 and 2021. Logistic regression, chi-square test, Fisher's exact test, and Wilcoxon rank-sum test were used to evaluate the relationship between ACP and parent-reported EOL outcomes. Qualitative content was analyzed through inductive coding. A total of 40/146 (27%) of eligible parents responded to our survey. There was a significant association between ACP and improved EOL care processes and parental satisfaction with communication. Parents with ACP were more likely to report goal-concordant care and higher levels of perceived shared decision-making. Qualitatively, emerging themes in parents' descriptions of goal-concordant care included misaligned expectations and communication. Emerging themes for parental preparedness included infant symptoms, logistical aspects, impact on parents, and degrees of preparedness. For decisional regret, the primary theme was reevaluating supports. ACP is associated with improved EOL care outcomes and parents qualitatively conceptualize goal-concordant care, preparedness for their child's death, and decisional regret in nuanced ways. Families should have the opportunity to participate in ACP discussions that meet their unique communication and decision-making needs. · ACP is associated with improved parent-reported end-of-life outcomes.. · Parents conceptualize end-of-life care outcomes in nuanced ways.. · Families should have the opportunity to participate in ACP discussions that meet their unique needs..

Live‐streaming webcam technology in the neonatal unit: A systematic review and thematic analysis

AbstractBackgroundAdmission of a baby for neonatal care represents a deeply traumatic time for parents. Webcam technology facilitating live‐streaming of the baby when the parents are unable to be physically present has been introduced to support bonding and parental engagement in care.AimThis systematic review explores the impact and experiences of webcam technology upon parents of babies in the neonatal unit and neonatal health care professionals.Study DesignA systematic search of Embase, Medline and Scopus was conducted using the keywords ‘video technology’, ‘newborn’ and ‘neonatal intensive care.’ Studies written in English and exploring live‐stream technology were included. Thematic analysis per group (parents and health care professionals) was undertaken to identify similarities between themes across published studies.ResultsTen studies were included. Six studies explored the impact of webcam technology on parents only, two on both parents and health care professionals and two on health care professionals only. Thematic analysis per group identified three themes for parents, including parental well‐being, parent‐infant bonding and quality of care. Two themes were identified for neonatal health care professionals, including quality of care and feasibility of webcam technology.ConclusionsWebcam technology has many documented benefits for parental well‐being. However, new technology requires adequate staff training, support and plans for ongoing maintenance. Further research is required to explore the long‐term impacts on breast‐milk production and infant neurological development.Relevance to Clinical PracticeThe use of webcam technology in neonatal units can potentially improve the mental health and well‐being of the parents and promote bonding between the infant, their parents and wider family members. Specialist roles to support advancing technology in the neonatal unit may allow parents and professionals to integrate webcams into practice and enhance care.

Diné (Navajo) Traditional Knowledge Holders' Perspective of COVID-19.

From the start of the COVID-19 pandemic on the Navajo Nation, Diné (Navajo) traditional knowledge holders (TKHs), such as medicine men and women and traditional practitioners, contributed their services and healing practices. Although TKHs are not always fully acknowledged in the western health care system, they have an established role to protect and promote the health of Diné people. To date, their roles in mitigating the COVID-19 pandemic have not been fully explored. The purpose of this research was to understand the social and cultural contexts of the COVID-19 pandemic and vaccines based on the roles and perspectives of Diné TKHs. A multi-investigator consensus analysis was conducted by six American Indian researchers using interviews with TKHs collected between December 2021-January 2022. The Hózhó Resilience Model was used as a framework to analyze the data using four parent themes: COVID-19, harmony and relationships, spirituality, and respect for self and discipline. These parent themes were further organized into promoters and/or barriers for 12 sub-themes that emerged from the data, such as traditional knowledge, Diné identity, and vaccine. Overall, the analysis showed key factors that could be applied in pandemic planning and public health mitigation efforts based on the cultural perspective of TKHs.

Impact of COVID-19 on alcohol use disorder recovery: A qualitative study.

In March 2020, restrictions on in-person gatherings were introduced due to the coronavirus disease (COVID-19) pandemic, requiring alcohol use disorder (AUD) recovery resources to migrate to virtual platforms. This study investigated how these restrictions impacted recovery attempts and explored participant experiences with virtual resources using a qualitative approach. Participants attempting recovery from AUD (N = 62; Mage = 48.2; F = 53.2%; 71% White) completed virtual semistructured interviews from July 2020 to August 2020 on their experience during the COVID-19 lockdown, impacts on recovery, and experiences with online resources. Interviews were recorded, transcribed, and analyzed using a thematic coding process. Three overarching themes were identified: Effect on Recovery, Virtual Recovery Resources, and Effect on General Life. Within each overarching theme, lower order parent themes and subthemes reflected varied participant experiences. Specifically, one group of participants cited negative impacts due to COVID-19, a second group reported positive impacts, and a third group reported experiencing both positive and negative impacts. Participants reported both positive and negative experiences with virtual resources, identifying suggestions for improvement and other resources. Findings suggest that while individuals in AUD recovery experienced significant hardships, a proportion experienced positive impacts as well, and the positive and negative consequences were not mutually exclusive. Additionally, the results highlight the limitations of existing virtual resources. (PsycInfo Database Record (c) 2023 APA, all rights reserved).

코로나-19팬데믹으로 인한 직무소진 보육교사들의 별-파도 그림검사(SWT) 경험에 관한 현상학적 연구

The purpose of this study is to conduct a phenomenological study by finding out the meaning through the experiences of the star-wave drawing test(SWT) of job burnout child care teachers in the COVID-19 pandemic. 10 child care teachers who took care of infants and toddlers were selected and 'intentional sampling' was conducted as a childcare program at S workplace daycare center located in Seoul. (SWT) The participants were divided into two groups, A and B, and a star-wave drawing test(SWT) was conducted to see depression and anxiety, and individual interviews and group in-depth counseling were conducted. As a qualitative research, van Manen's hermeneutic and phenomenological research method was conducted to study the essence of the phenomenon, and 681 units of individual meaning of the research participants were derived. 6 essential themes and 18 common parent themes were derived. The research participants showed the conflict and loneliness felt unconsciously in the COVID-19 pandemic, the burden of the work of childcare teachers to do, and felt a sense of loss in the situation where they could not do their job. The experience of the Star-Wave drawing Test(SWT) relieved the difficulties of job burnout and gave psychological stability. Suggestions for phenomenological research on the experience of the star-wave drawing test(SWT) were discussed, and the significance of the study and suggestions for follow-up studies were made.

The Importance of Embodiment and Agency in Parents’ Positive Attitudes Towards Shared Reading with Their Children

Parents’ attitudes are an important indicator of whether and how parents engage in shared book reading (SBR) at home. This study analysed Norwegian parents’ attitudes towards reading books with their children aged between 1–4.5 years. Thematic analysis of data from 24 interviews revealed two main themes in parents’ accounts: agency (the child’s independence, the adult’s control as well as their shared control during SBR) and embodiment (physical presence and intimate experience of a SBR session). Both themes correspond to parents’ preference for reading print rather than digital books with their children. Findings are discussed from the socio-material theoretical perspective, with attention to their practical and policy implications.

Responding to the psychological needs of children following admission to paediatric Intensive Care for paediatric inflammatory multisystem syndrome: A Narrative Therapy based Photography Workshop.

This article briefly describes the development of a novel narrative therapy-based photography workshop group for children following acute hospital admission for Paediatric Inflammatory Multisystem Syndrome temporally associated with SARS-CoV-2 (PIMS-TS). The workshop was a collaboration between the psychology team, an artist and the medical multi-disciplinary team (MDT) to develop a group during the COVID-19 pandemic. The aims were to reduce isolation and promote resilience and psychological recovery post discharge from hospital. Nine children aged 8-11 years joined the photography group. Parents (n = 8) and children (n = 8) provided feedback on the group through semi-structured telephone interviews. Thematic analysis of the interviews identified three narrative themes for parents: reducing isolation through shared experience, creative activity as a different experience of hospital, and the positive sharing of experiences after the day. The resulting narrative themes for the children included that the workshop was a fun and interactive day and an opportunity to share in hospital experience with peers.

Every Family Succeeds: The Contrast between Title I and Non-Title I Schools in Terms of Limited-English Proficient Parents’ Engagement Experiences in their Children’s Education

This qualitative phenomenological study aimed to compare the engagement experiences of Limited-English Proficient (LEP) parents in urban public schools receiving Title I funds under the Every Student Succeeds Act of 2015 with those in non-Title I schools within the same school district in the Midwestern US. Data were analyzed thematically and comparatively to explore the experiences of the participants. A major theme of LEP parents’ lack of engagement in their children’s education was revealed in non-Title I schools versus those in Title I schools. The study calls for a schemed federal monitoring process and a restructuring to schools’ funding allocation in order to uphold LEP parents’ civil rights and ensure the fulfillment of their needs as a matter of social justice.

Universal Design for Learning in a Music Camp: Perspectives and Musical Self-Efficacy of Children With Disabilities

The purpose of this qualitative study was to evaluate a summer music camp, designed using principles of Universal Design for Learning, for children with disabilities. Data included one parent–child group interview, a children’s musical self-efficacy rating scale, children’s drawings, and children’s explanations of their drawings. Participants were elementary school children with disabilities ( n = 4) and their mothers ( n = 4). The children were all male, aged 5 to 8 years. Three children had Autism Spectrum Disorder; one had a diagnosis not specified by his mother. Three themes for children’s perceptions of the camp (social interaction/play, enjoyment of making music, and positive representation) and three themes for parents’ perceptions (camp structure, camp teachers, and benefits for the children) emerged. Musical self-efficacy ratings did not change, but the children’s explanations of the sources of musical self-efficacy indicated that two children may have experienced positive changes in musical self-efficacy.

‘He’s out of control, I’m out of control, it’s just – I’ve got to do something’: a narrative inquiry of child to parent violence

Families globally experience child to parent violence (CPV). Stories of CPV have been considered at an individual and collective level to ascertain themes in parents’ accounts to identify enabling and restraining factors for CPV. However, understanding the societal narratives, defined as discourses, which have a multi-directional and entangled relationship with individual recounts of CPV have yet to be investigated. This research utilizes Narrative Inquiry with participatory approaches to explicate the societal narratives within mothers’ recounts of CPV. This analysis, guided by the interactional and discursive view of violence, and response-based practice, identifies societal narratives which set the conditions for what is possible and impossible in relation to CPV. The analysis contributes to understanding the attitudes of minimization and concealment of violence within parents’ accounts of CPV. The mothers’ recounts were constrained and made possible by the ‘good’ mother narrative and narratives of adolescence and gender. This research examines the intra-actions mothers’ recounts have with the societal narratives, and the performance of their roles as (en)actors of the subject positions ‘mother’ and ‘child’. Implications for practice and research include: consideration to practitioner’s views of power and subject positions in a parent and child relationship when working with CPV; and practitioners to be critical of essentialism and gender in working with CPV. This study posits a practical demonstration for using the response-based practice approach in research; and a way of viewing stories which can be incorporated in working with families experiencing CPV.

Management and reporting of safety incidents by residential care facilities in Ireland: A thematic analysis of statutory notifications.

The prevention of safety incidents (SI) in health and social care settings is an ongoing undertaking. Limited research has been conducted on SIs outside of acute care. Internationally residential care facilities (RCFs) are typically regulated to promote quality and safeguarding. A part of this regulation is the statutory responsibility of RCFs to notify the regulator about SIs. Notifications include details surrounding SIs and are used to inform the regulatory monitoring approach. The recent development of the Database of Statutory Notifications from Social Care in Ireland facilitates in-depth analysis of notifications which can be used to inform the management of SIs and thus, improve quality and safety. The aim of this study was to analyse narratives provided in statutory notifications for older persons and people with disability, in order to identify current management of SIs, system vulnerabilities and reporting practices. A Qualitative Descriptive approach was taken. A random sample of notifications received in 2018 was drawn and stratified by service-type and notification-type. Data extraction was conducted against priori agreed target areas of management, system vulnerabilities and reporting practices. Inductive thematic analysis was used identifying two parent themes: 'chronology' and 'regulatory input'. 'Chronology' subthemes included 'pre-event', 'immediate response' and 'continued response'. Measures that are resident focused and follow policies and protocols in RCFs to prevent or mitigate the seriousness of SIs were evident in the immediate response and continued response. The actions taken in the immediate and continued response in turn became part of the pre-event of future SIs. Under 'regulatory input' subthemes included 'inaccurate reporting', 'lines of inquiry', 'requests for further information', 'identification of repetitive patterns' and 'satisfactory conclusion'. In conclusion, RCFs manage SIs with short and longer term actions focused on resident wellbeing. These actions in turn become part of the pre-event of future SIs. Regulatory input highlighted regulatory burden.