Research Team Research Articles

Advanced documentation technologies for people-centred preparedness and re-construction in Bela, India

PurposeDespite the recurrence of earthquakes, responses are usually triggered afterwards, lacking mitigation strategies to diminish risks. Damaged dwellings cannot be immediately reinforced to continue inhabitation, generating disruption. Repairs are usually costly, as large numbers of affected constructions make damage assessment difficult, and post-earthquake reconstruction programmes often lack a heritage-specific approach. This research seeks to address these issues through a methodology based on high-end documentation technologies applied to built heritage and local community engagement.Design/methodology/approach The methodology proposed combines different recording tools to capture social and built environment data, such as interviews, mapping, drone capture, photography and 3D laser scanning, in the pilot case study of Bela, a historical settlement in the seismic region of Kutch in Gujarat, India, affected by the 2001 Bhuj earthquake. This paper particularly discusses aspects of community engagement around data capture and representation processes.FindingsThe introduction of advanced documentation technologies can help speed up the process of damage assessment, analyse social aspects that are key to a respectful re-construction, and enhance community engagement through visual representations, which are relevant to social acceptance and understanding towards a meaningful introduction and sustained use in earthquake risk management.Research limitations/implicationsThe methodology proposed can inform similar cases in seismic areas and enhance engagement, helping to develop a sense of awareness in the community regarding the need for preparedness in the face of earthquakes. However, there are technical challenges in using advanced recording technologies in terms of equipment accessibility, skills, knowledge and future uses of the data. Social and cultural aspects, such as caste and gender divisions, also implied disparity in accessing the data and relating it to the research team, bringing forward the need to tailor public engagement to achieve inclusivity. Practical implicationsThis study has practical implications. The most relevant one is how the process of carrying out the research served as a way to raise awareness for future seismic events. In this regard, local academic institutions and non-governmental organisations (NGOs) are critical mediators in reaching the community in greater depth, from which to bridge to external and/or governmental agencies based on existing links and trust.Social implicationsThis study also shows social implications. As a case study-based research, the link developed with the local community will help coordinate actions in case an earthquake occurs and increase cohesion within the community towards a joint aim, in this case, to reduce the risk of disasters due to seismic events.Originality/valueThis paper accounts for a novel approach to documenting buildings in heritage settlements prone to earthquakes that uses the digital record as (1) a basis to assess and intervene in the built environment and better understand how it supports the local community’s ways of living and maintaining buildings; and (2) a platform for local engagement and agency in planning and re-construction as a post-disaster mitigation measure.

Activity Identification, Classification, and Representation of Wheelchair Sport Court Tasks: A Method Proposal.

Monitoring player mobility in wheelchair sports is crucial for helping coaches understand activity dynamics and optimize training programs. However, the lack of data from monitoring tools, combined with a lack of standardized processing approaches and ineffective data presentation, limits their usability outside of research teams. To address these issues, this study aimed to propose a simple and efficient algorithm for identifying locomotor tasks (static, forward/backward propulsion, pivot/tight/wide rotation) during wheelchair movements, utilizing kinematic data from standard wheelchair mobility tests. Each participant's wheelchair was equipped with inertial measurement units-two on the wheel axes and one on the frame. A total of 36 wheelchair tennis and badminton players completed at least one of three proposed tests: the star test, the figure-of-eight test, and the forward/backward test. Locomotor tasks were identified using a five-step procedure involving data reduction, symbolic approximation, and logical pattern searching. This method successfully identified 99% of locomotor tasks for the star test, 95% for the figure-of-eight test, and 100% for the forward/backward test. The proposed method offers a valuable tool for the simple and clear identification and representation of locomotor tasks over extended periods. Future research should focus on applying this method to wheelchair court sports matches and daily life scenarios.

Factors that facilitate or hinder the use of the facial rehabilitation webtool MEPP 2.0: a comparative study in the Quebecer health system

BackgroundRecently, our research team developed an open source and free website called the MEPP website (for the Mirror Effect Plus Protocol) to efficiently provide mirror therapy for patients with facial palsy. Previous studies demonstrated that the first version of the MEPP website improved user experience and likely optimized patients’ performance during facial therapy. Nevertheless, compliance was found to be low despite a generally positive opinion of the website, and in light of our earlier findings, MEPP 2.0—a revised and enhanced version of the MEPP 0.1—was created. The purpose of this study was to examine and contrast various factors that help or impede institutional partners of the Quebec health care system from using the MEPP 2.0 website in comparison to its initial version.MethodsForty-one patients with facial palsy and nineteen clinicians working with this population were enrolled in a within-subject crossover study. For both the MEPP 1.0 and MEPP 2.0, user experience was assessed for all participants. Embodiment was assessed in patients, and factors influencing clinical use were assessed by clinicians. Qualitative comments about their experiences were also gathered. Descriptive statistics and reliability measures were calculated. Differences between the two MEPP versions were assessed using the linear mixed model.ResultsOverall, patients appreciated more the MEPP 2.0 (OR = 4.57; p < 0.001), and all clinicians preferred the MEPP 2.0 over the MEPP 1.0. For patients, it seems that facial ownership, as well as possession and control of facial movements, was significantly better with the MEPP 2.0. For clinicians, the MEPP 2.0 specifically allowed them to self-evaluate their intervention and follow up with more objectivity. The use of the MEPP 2.0 was also modulated by what their patients reported. Qualitatively, options to access an Android app and needs for improving the exercises bank were mentioned as hindering factors.ConclusionsThe updated version of the MEPP website, the MEPP 2.0, was preferred by our different partners.Trial registrationhttps://www.isrctn.com/ISRCTN10885397. The trial was registered before the start of the study on the 1st December 2023

Developing the ‘Life Threads’ approach to support families after traumatic brain injury in UK community settings: protocol for a qualitative prefeasibility study

IntroductionTraumatic brain injury (TBI) brings about inevitable and significant changes for family members. Mental health effects for family members are well documented but there are significant gaps in support options...

3D biological scaffold delivers Bergenin to reduce neuroinflammation in rats with cerebral hemorrhage

BackgroundIntracerebral hemorrhage (ICH) is a severe form of stroke characterized by high incidence and mortality rates. Currently, there is a significant lack of effective treatments aimed at improving clinical outcomes. Our research team has developed a three-dimensional (3D) biological scaffold that incorporates Bergenin, allowing for the sustained release of the compound.MethodsThis 3D biological scaffold was fabricated using a combination of photoinitiator, GEMA, silk fibroin, and decellularized brain matrix (dECM) to encapsulate Bergenin through advanced 3D bioprinting techniques. The kinetics of drug release were evaluated through both in vivo and in vitro studies. A cerebral hemorrhage model was established, and a 3D biological scaffold containing Bergenin was transplanted in situ. Levels of inflammatory response, oxidative stress, and apoptosis were quantified. The neurological function of rats with cerebral hemorrhage was assessed on days 1, 3, and 5 using the turning test, forelimb placement test, Longa score, and Bederson score.ResultsThe 3D biological scaffold incorporating Bergenin significantly enhances the maintenance of drug concentration in the bloodstream, leading to a marked reduction in inflammatory markers such as IL-6, iNOS, and COX-2 levels in a cerebral hemorrhage model, primarily through the inhibition of the NF-κB pathway. Additionally, the scaffold effectively reduces the expression of hypoxia-inducible factor 1-alpha (HIF-1α) in primary cultured astrocytes, which in turn decreases the production of reactive oxygen species (ROS) and inhibits IL-6 production induced by hemin. Subsequent experiments reveal that the 3D biological scaffold containing Bergenin promotes the activation of the Nrf-2/HO-1 signaling pathway, both in vivo and in vitro, thereby preventing cell death. Moreover, the application of this 3D biological scaffold has been demonstrated to improve drug retention in the bloodstream.ConclusionThis strategy effectively mitigates inflammation, oxidative stress, and cell death in rats with cerebral hemorrhage by inhibiting the NF-κB pathway while concurrently activating the Nrf-2/HO-1 pathway.

Attending to Power: Stakeholder Perspectives on Training Physicians to Address Intimate Partner Violence.

Intimate partner violence (IPV) is associated with a wide range of mental and physical health concerns. Research suggests that many physicians lack knowledge and skills to adequately respond to patients experiencing IPV. In order to better integrate physicians' contributions into intersectoral responses to IPV, we asked stakeholders with expertise and experience related to IPV about the knowledge, skills, attitudes, and behaviors they wanted them to have. Guided by principles of interpretive description, and using a key informant method, we conducted unstructured interviews with 18 stakeholders in IPV-related frontline, managerial, or policy roles in Ontario, Canada. Data collection and analysis proceeded iteratively through 2022; "thoughtful practitioners" outside the research team were recruited at key junctures to provide feedback on formative findings. Stakeholders suggested that "attending to power" should be a core principle for medical practice related to IPV. Attending to power encompassed understanding interactional, organizational, and structural power dynamics related to IPV and purposefully engaging with power, by taking action to empower people subjected to violence. Specific recommendations for practice concerned four focal contexts: relationships between partners, between patients and providers, between providers, and in social systems and structures. Strengthening physicians' capacity to attend to power dynamics relevant to their IPV practice is an important step in both improving medical care for people experiencing IPV and integrating physician contributions into other services and supports.

Coproduction in Social Prescribing Initiatives: Protocol for a Scoping Review.

Social prescribing (SP) takes a holistic approach to health by linking clients from clinical settings to community programs to address their nonmedical needs. The emerging evidence base for SP demonstrates variability in the design and implementation of different SP initiatives. To effectively address these needs, coproduction among clients, communities, stakeholders, and policy makers is important for tailoring SP initiatives for optimal uptake. This study aims to explore the role of coproduction in SP initiatives. The research question is as follows: How and for what purpose has coproduction been incorporated across a range of SP initiatives for different clients? A review of international literature will be conducted following the JBI guidelines for scoping reviews. We will search multiple databases including Scopus, MEDLINE, and the PAIS Index, as well as gray literature, from 2000 to 2023. The primary studies included will describe a nonmedical need for clients, a nonmedical SP program or initiative, coproduction of the SP program, and any follow-up. Review articles and commentaries will be excluded. Titles, abstracts, and full-text articles will be screened, and data will be extracted by at least 2 research team members using Covidence and a pilot-tested extraction template. Clients with lived experience will also participate in the research process. Findings will be descriptively summarized and thematically synthesized to answer the research question. The project was funded in 2023, and the results are expected to be submitted for publication in early 2025. Descriptions of what coproduction is meant to accomplish may differ from theoretical aspirations. Continued understanding of how coproduction has been designed and executed across varied international SP models is important for framing engagement in practice for future SP arrangements and their evaluation. We anticipate this review will guide clients, communities, stakeholders, and policy makers in further developing SP practice within health care systems. Open Science Framework Registries B8U4Z; https://osf.io/b8u4z. DERR1-10.2196/57062.

The translation and validation of the surgical anxiety questionnaire into the modern standard Arabic language: results from classical test theory and item response theory analyses

BackgroundPreoperative anxiety is commonly found in patients who are waiting for surgery and can lead to negative surgical outcomes. Understanding the sources of surgical anxiety allows healthcare providers to identify at-risk patients and implement psychosocial interventions such as counseling, relaxation techniques, and cognitive‒behavioral therapy to minimize anxiety. Few comprehensive psychiatric measures are available to assess preoperative anxiety in Arabic.ObjectiveOur study aimed to translate, adapt, and validate the Surgical Anxiety Questionnaire (SAQ) into the modern standard Arabic language, also known as Fusha al-Asr Arabic.MethodsTo translate the questionnaire, the research team used the gold standard process of forward translation by two independent translators along with back translation evaluation by four trained medical doctors. A cross-sectional study was conducted using an online survey completed by 208 Arabic speakers (mean age 38 years, 44% women) from four countries. Psychometric analyses, which included internal consistency, test-retest reliability, convergent validity, confirmatory factor analysis, and item response analysis, were performed. Convergent validity tests were performed against the Generalized Anxiety Disorder 2-item Scale (GAD-2), Patient Health Questionnaire-4 (PHQ-2), Perceived Stress Scale 4 (PSS-4), and Arabic version of the Visual Analog Scale for anxiety (VAS-A).ResultsThe mean SAQ of our sample was 19.38 ± 12.63 (possible range 0–68). The Arabic SAQ translation demonstrated excellent internal consistency, with McDonald’s omega and a Cronbach’s alpha of approximately 0.90. The test-retest reliability was also high, with an intraclass coefficient of 0.94. The SAQ showed strong convergent validity against the GAD-2 (r = 0.94, p < 0.01). The SAQ also showed weak-moderate correlations with the PHQ-2 (r = 0.26, p < 0.01), PSS-4 (r = 43, p < 0.01), and VAS-A (r = 0.36, p < 0.01) scores. The original three-factor structure was supported by confirmatory factor analysis, confirming the original structure reported in the original English language version. The results for fitness indices showed acceptable preliminary results (CFI/TLI approximately 0.90), and deleting some items improved the model fit (CFI/TLI > 0.90, RMSEA < 0.08). We suggest retaining the original factorial solution until further validation studies can be conducted. The item response theory (IRT) results identified no items that were excessively difficult or subject to guessing. The multidimensional IRT provided evidence that the SAQ items form a multidimensional scale assessing surgical anxiety that fits the classical model reasonably well.ConclusionThe SAQ has demonstrated acceptable reliability and validity; thus, it is a trustworthy and valid tool for evaluating preoperative anxiety in Arabic speakers. Future research could benefit from using the SAQ in both surgical and psychiatric research.

Intervention Development for Tailored Education for Aging and Cognitive Health (TEACH) for Dementia Prevention in Midlife Adults: Protocol for a Randomized Controlled Trial.

A total of 12 modifiable risk factors account for 40% of dementia cases globally, yet population adherence to health behaviors associated with these factors is low. Midlife is a critical window for dementia prevention, as brain pathology often begins to accumulate years or decades before the onset of symptoms. Although multidomain behavioral interventions have been efficacious in reducing the risk of cognitive decline, adherence is low. Intrapersonal factors, such as health beliefs, are known mediators of the relationship between knowledge and health behavior. In keeping with stage I of the National Institutes of Health (NIH) Stage Model for Behavioral Intervention Development, this study will use mixed methods to (1) develop an enhanced health education intervention, including an explanatory method for communicating information about dementia risk and personal health beliefs, and (2) conduct a pilot randomized controlled trial (n=20 per intervention arm) over 8 weeks to assess the feasibility of delivering the enhanced intervention versus basic health education alone. Phase 1 will involve focus groups and individual qualitative interviews. Focus groups will be analyzed using (1) a descriptive framework matrix analysis and (2) interpretive data review by the research team. Individual qualitative interviews will be coded using applied thematic analysis using a phenomenographic approach. Phase 2 will involve a pilot randomized controlled trial. Proximal outcomes (measured at baseline, 4 weeks, and 8 weeks) include the perceived threat of Alzheimer disease, dementia awareness, and self-efficacy. This project was funded in August 2022. Data collection began in 2023 and is projected to be completed in 2025. Study findings will reveal the feasibility of delivering an 8-week multidomain health education intervention for primary prevention of dementia in midlife and will provide preliminary evidence of mechanisms of change. ClinicalTrials.gov NCT05599425; https://clinicaltrials.gov/study/NCT05599425. DERR1-10.2196/60395.

Hear our Stories: A Call to Action for Indigenizing Information Educational Spaces

This panel will present a case study of the lived experiences of Native North American Indigenous (NNAI) students and faculty at the University of Washington’s Information School (UW iSchool). NNAI students, both a racialized and politicized group (Brayboy, 2005), are the most underrepresented and underserved within higher educational institutions (Fish &amp; Syed, 2018; Shield, 2004), representing both faculty and students. Overall, less than 0.3% of Native Americans represent the field of information science (Poole et al., 2021). The numbers of NNAI Peoples in information science fields are the most underrepresented of any racialized group (Ball &amp; Lar-Son, 2021; Kim, 2023). Currently, the UW iSchool supports a community of six NNAI PhD students and three NNAI faculty members. Through their personal narratives the UW iSchool Native students and faculty panel will share strengths, strategies, and resources for navigating the multifaceted challenges they have encountered during their academic journeys. The experiences of NNAI academics have revolved around the historical injustices and institutional biases which contribute to disproportionately higher dropout rates, lower graduation and retention rates, and limited access to culturally relevant resources (Braine &amp; Segundo, (2015). Although it is imperative to identify and address these challenges to uphold principles of justice and promote equitable educational opportunities, this panel will take on a strength-based approach to highlight the successes of the NNAI students and faculty. Our panel session will be moderated by Dr. Miranda Belarde-Lewis and will start with an overview of our topic, an introduction to the panelists and a briefing on the UW iSchool. The iSchool is interdisciplinary in nature which is also reflected by the diversity of research specializations within our panel. Due to having a large number of presenters, each individual will have five minutes to share their story. First, two out of the three faculty members will share their pathway from being a former PhD student at the iSchool to a current faculty member today. These faculty witnessed and participated in the initial development of Indigenous research groups and initiatives at the iSchool which provided support, resources, and mentorship opportunities for the NNAI community. Examples of these will be showcased in the panel examples such as iNative, the Indigenous Information Research Group (IIRG) and the Native North American Indigenous Knowledge (NNAIK) Initiative which address the information challenges within NNAI communities in support of tribal sovereignty and Indigenous empowerment. These faculty members will discuss how they were supported and mentored during their PhD journeys and how they are passing the baton onto the next generation of future Native faculty and researchers. Second, four of the six students will share their journey of transitioning from a master’s student in one of the programs at the iSchool to becoming a PhD student. These individuals will share their personal experience of mentorship and support received from the faculty members. The students will discuss the challenges they had to overcome during their transition. Third, the last two students and one faculty member will discuss their experience coming from interdisciplinary backgrounds and how their experience has been supported within a field that incorporates other fields. Their experiences of being part of a Directed Research Knowledge Family will be discussed. At its core, the yearlong DRG Knowledge Family revolved around an Indigenous Health Equity research team. This group prioritized Indigenous research methodologies and approaches. This panel will provide a platform and space for NNAI academics to amplify their voices and perspectives to share strategies to promote equitable educational experiences for the NNAI experience in diverse areas of the field. Through the fostering of dialogue and sharing encouraging personal experiences and stories encountered at the UW iSchool, the aim is to develop solutions in order to create an inclusive and supportive space for NNAI academics to thrive. Cultural identity and tribal sovereignty are central to the academic success and well-being of NNAI academics (Isaacs et al., 2020). Therefore, the panel will discuss the importance of culturally relevant education and community engagement initiatives. Through the incorporation of authentic and relevant Indigenous perspectives into the curriculum, the fostering of mentorship opportunities and the support for cultural revitalization efforts, academic institutions can create more inclusive learning environments which accurately represent the cultural identities of NNAI students and embrace their sense of belonging. Through discussions using Dr. Littletree’s “kitchen table methodology, participants will share best practices, have networking opportunities, and give guidance for other information schools to develop action plans in order to help foster a supportive educational environment for Indigenous scholarship. By leveraging collective expertise, resources, and advocacy efforts, we can drive meaningful change and advance support for NNAI students in academia and beyond, in person and in virtual settings. Together, we attend to a critical call to justice and ensure that the NNAI community receives the respect, dignity, and opportunities they deserve in pursuit of their education.

Development of a toolkit to help parents/caregivers manage feeding problems in autistic children: A protocol for a realist synthesis and toolkit co-design.

Many autistic children have feeding problems, typically eating a limited range of foods. Feeding problems affect quality of life, health, and development. Research suggests that parents are often unsure when to or whether to seek help. When they do, local provision of help across the UK is often lacking. A toolkit could offer a tailored, accessible, and scalable early intervention to support parents. We aim to develop the blueprint of a toolkit to help parents/caregivers manage feeding problems in their autistic children. Medical Research Council guidance on developing complex interventions informs three successive work packages: Realist review: a literature search and analysis using realist theory of logic to construct programme theory(s) in line with RAMESES (Realist And Meta-narrative Evidence Syntheses: Evolving Standards) guidance.Realist evaluation: interviews of three groups: autistic children, young people and adults (experts), parents/caregivers of autistic children (parents), and professionals who help parents manage feeding problems (professionals) across the UK. Analysis of verbatim interview transcripts using realist theory of logic to refine programme theory(s).Co-design of the toolkit blueprint: behaviour change theory applied to the programme theory(s) will generate candidate components for the online tool. A blueprint (a detailed textual outline) will be co-designed. A participatory research team of experts, parents, and professionals will be involved in each work package. Where consensus is needed it will be reached by asynchronous nominal group technique. A PPI (public and patient involvement) advisory group of experts and parents will ensure the project is relevant, respectful, and accessible. Findings of each step will be disseminated via journal publications, conferences, social media, as well as PPI-co-produced webinars and a dissemination event. On completion, this project will provide the foundation for the subsequent development and refinement of the prototype toolkit.

Engaging primary care patients at risk for suicide in mental health treatment: user insights to inform implementation strategy design

BackgroundGiven that the majority of suicide decedents visit primary care in the year preceding death, primary care has been identified as a key setting in which to engage patients at risk for suicide in mental health services. The objective of this research was to identify barriers and facilitators to engagement in mental health services among primary care patients at risk for suicide to inform the development of strategies to increase engagement.MethodsSeventy-four semi-structured qualitative interviews were conducted with primary care patients (n = 20), primary care (n = 18) and behavioral health (n = 12) clinicians, mental health intake coordinators (n = 4), and health system and clinic leaders (n = 20). Patients who had been referred for mental health services from primary care and reported an elevated score (≥ 1) on item 9 on the Patient Health Questionnaire at the time of referral were eligible to participate. Eligible clinicians and leaders were employed in a primary care or behavioral health setting in a single large health system with an integrated mental health program. Interviews typically lasted 30–60 min, were completed over video conference or phone, and were coded by members of the research team using a rapid qualitative analysis procedure.ResultsParticipants were primarily female (64.9%), white (70.3%) and non-Hispanic/Latine (91.9%). The most identified barriers to mental health care engagement were waitlists, capacity limits, insurance, patient characteristics, communication, collaboration, and/or difficulties surrounding travel. The most commonly cited facilitators of engagement included telehealth, integrated care models, reminders, case management support, psychoeducation, motivational enhancement, and scheduling flexibility. Concrete suggestions for improving engagement in mental health services included increasing communication between providers, streamlining referral and intake processes, providing reminders and follow ups, and advocacy for increased reimbursement for suicide risk assessment.ConclusionsResults underscore the myriad barriers patients at risk for suicide encounter when attempting to engage in mental health care in a primary care setting. Facilitators of engagement and suggestions for improving connections to care were also identified, which can inform the design of implementation strategies to improve engagement in mental health services among primary care patients at risk for suicide.Trial registrationClinicalTrials.gov Identifier: NCT05021224 (Registered August 19, 2021).

Compliance With Accreditation Standards on Diversity: Is Institutional Support the Missing Link?

The role of accreditation standards in fostering diversity and inclusion in academic programs remains poorly understood. Accreditation is one approach to increasing diversity through Standard A1.11. This study investigates the impact of the Accreditation Review Commission-Physician Assistant (ARC-PA) standards on diversity and inclusion in physician assistant (PA) programs and explores challenges faced by programs in achieving compliance. This qualitative exploratory study first reviewed diversity standards in accreditation documents among selected health professions; second, data on the frequency of citations from ARC-PA related to diversity were gathered and analyzed; finally, opinions from 23 PA faculty and leaders were solicited through semistructured interviews. Two research team members analyzed the data to identify themes. Most institutions sponsoring PA programs had preexisting diversity policies before the inception of standard A1.11 of the ARC-PA. Between June 2020 and March 2023, seven programs received 16 citations related to Standard A1.11. Interviews with faculty revealed 4 major themes: (1) the importance of institutional support, (2) early pipeline development of applicants, (3) prioritizing faculty and/or student diversity as key program goals, and (4) local context, with institutional support and pipeline development being most prominent. The inclusion of Standard A1.11 in the ARC-PA Standards signifies the growing recognition of diversity, equity, and inclusion (DEI) in PA education. Institutions can advance DEI in the PA profession by leveraging accreditation-related activities through leadership, partnerships, and accountability measures consistent with the institution's mission and applicable laws. Institutional support emerged as an important factor in compliance with diversity-related accreditation standards.

Learning From Community-Based Efforts Toward Shared Responsibility for Climate and Environmental Justice

In this exploratory inquiry, the research team investigates community-based data practices in climate and environmental justice initiatives. We set out to learn from the long history and current activities of communities seeking to hold corporate and government actors responsible to enact care for the climate and environment (e.g., monitoring air quality and waterways affected by petrochemical industries). Through a critical intersectional care ethics lens, we follow how groups respond to harms to ecosystems and seek healing, positioning their epistemic authority as they work with data (e.g., Ottinger, 2023; Puig de la Bellacasa, 2017). This work draws insights from inquiries which have examined how communities engage with climate action and efforts toward environmental sustainability (e.g., dos Santos et al., 2024; Kaczmarek, 2023; Nathan, 2012). Through a poster reporting on preliminary research, we share early analyses highlighting communities’ labor of resisting corporate delay, denial, and other dis- and mal-information practices, which slow or block urgently needed action and truth-telling. Methods involve analysis of archival records created by and about communities affected by the Love Canal toxic waste crisis in Western New York. The project aims to appreciate differences and similarities in community-based data practices, identifying further possibilities for information professionals and libraries, archives, and museums to uphold these data practices and associated knowledge and memory work, research, and storytelling. In turn, the team proposes future work to trace the development of community-based practices with climate and environmental data over time.

Erratum] Brain Imaging and neurostimulation in health and disorders: status report

INTRODUCTION: Despite being considered least important for clinical practice in the pyramid of evidence for recommendations, sometimes scientists' expert opinions could help to better understand the summarization of updated publications. OBJECTIVE: To provide a major summarized update about brain imaging and stimulation of the nervous system in health and disease. METHODS: Comprehensive review developed by experts in each subarea of knowledge in neuroimaging and non-invasive stimulation of the nervous system. A team of researchers and clinic experts was invited to present an update on their area of expertise. RESULTS: In basics on brain imaging techniques, we approach general and quantitative electroencephalography, functional magnetic resonance imaging, functional near-infrared spectroscopy, and experimental paradigms in brain imaging studies. Were included associations between transcranial magnetic stimulation and electromyography, electroencephalography, and functional near-infrared stimulation to evaluate brain activity. Furthermore, we showed several actualized central and peripheral neuromodulation techniques. And finally, we presented different clinical and performance uses of non-invasive neuromodulation. CONCLUSION: To our knowledge, this is a major summarized and concentrated update about brain imaging and stimulation that can benefit neuroscience researchers and clinicians from different levels of experience.

Zoom to the Virtual Room: The Shift to Remote Early Childhood Observational Assessments.

The COVID-19 pandemic has led prevention researchers to increasingly use remote observational procedures given social distancing directives associated with the pandemic. However, few studies have used remote observational procedures with children and their caregivers, with scant literature describing procedures with socioeconomically, racially, and ethnically diverse families. This manuscript describes processes to pivot to remote assessment of parent and child observations in the context of a longitudinal study examining the effects of a postpartum depression preventive intervention on responsive parenting and child self-regulation. We conducted remote assessments across three timepoints-42, 48, and 54 months-with 133 low-income and racially and ethnically diverse parent-child dyads. Details are provided on remote observation preparation and setup, as well as adaptation of observational assessments. Lessons learned are shared on the use of technology, scheduling considerations, parent's role as facilitator, maintaining child engagement, and cost considerations. We demonstrated excellent inter-rater reliability between independent coders on all assessments, suggesting the quality of remote assessments was conducive for analysis. Surveys with families completing a remote assessment found that most felt it was easy to participate in remote assessments and their child had a positive experience. Most parents preferred virtual visits if given an option for future assessments. Much prevention research utilizes observational measures that are less subject to bias. Our study demonstrated that research teams can effectively and reliably pivot to remote assessment with racially and ethnically diverse, low socioeconomic families, thereby providing guidance to other prevention researchers considering similar remote assessments with diverse samples.

Perspectives on Long-Term Follow-Up Among Living Kidney Donors

Background: The long-term follow-up of living kidney donors is highly variable in Canada. Methods: We surveyed perspectives on post-donation follow-up among 685 living donors in the two largest transplant programs in Canada (43% survey response rate). The anonymous survey was informed by semi-structured interviews with 12 living kidney donors. The survey was developed based on themes identified in the semi-structured interviews, guidance from the research and clinical teams, and feedback from pilot testing with six previous donors. Results: Most (73%) respondents received follow-up after the first donation year from a primary care provider, and 70% reported annual follow-up visits including blood and urine tests. Most (71%) received a follow-up reminder from their transplant center, and follow-up was higher (86% versus 68%) among those receiving reminders. Donors wanted specialist involvement if new health or kidney-related events occurred. Most (70%) were satisfied with their follow-up, and 66% endorsed annual life-long follow-up. Donors wanted more information about lifestyle and living donor outcomes and wanted to contribute to research to increase understanding of long-term donor health outcomes. Conclusions: Donors wanted annual lifelong follow-up including clinical assessment and laboratory tests and more information about their post-donation health. A transplant center led, primary care provider administered model of long-term follow-up may best meet the care and information needs of most donors.

Designing the Urban Smart Futures Agenda for Lancaster, UK

The smart city concept has garnered a lot of interest; however, it often falls short when it comes to providing clarity on the benefits it can offer. Discussing smartness in the context of cities and their inhabitants requires the involvement of a wide range of stakeholders in decision-making. Similarly, the decision-making process is often unclear and can lack integrity. For this reason, in this research, we clarify this process and establish a smart agenda for urban areas. Specifically, this study focusses on the existing research in truly smart cities (where liveability is at the heart of decision-making). The research team implemented the assessment model (SMART) during a facilitated workshop under COVID-19 restrictions. Taking societal, environmental, health, economic, and governance liveability perspectives into account, the results yielded a set of recommendations for designing the smart urban agenda, which can support cities that aspire to become smart.

Application of surgical revascularization technique in giant aneurysm of the extracranial internal carotid artery: technical report.

The purpose of this study is to illustrate the diagnostic and therapeutic value and clinical significance of surgical revascularization in giant aneurysms of the extracranial internal carotid artery. The research team screened a group of cases of giant aneurysms of the extracranial internal carotid artery and analyzed the detailed information of the enrolled patients in terms of their basic clinical characteristics, surgical approaches and clinical prognosis. All patients had a good prognosis, except for one patient who was left with only mild facial nerve palsy (grade II facial paralysis). The results demonstrate that surgical revascularization is effective and safe in the treatment of giant aneurysms of the extracranial internal carotid artery. The significant conclusion of this study is to provide an ideal alternative treatment for the treatment of giant aneurysms of the extracranial internal carotid artery. The surgical revascularization technique is a powerful tool for vascular neurosurgeons in the management of complex cerebrovascular diseases when traditional surgical clipping or endovascular interventions encounter bottlenecks.

Exploring self-care and self-development practices among refugee adolescents through photos: An art-based participatory qualitative study

Introduction Photovoice and photo-elicitation are art-based participatory methods aiming to enable community members to create powerful visual representations to highlight the community issues/manners. This paper attempted to investigate self-care/self-development (SC/SD) practices among refugee adolescents in Germany, as part of a needs assessment based on triangulation (including three qualitative datasets from in-depth interviews, focus group discussions, and photographic data). Methods Sixteen male and female refugee adolescents (aged 14–19) from 4 countries participated in the study. Before research implementation, a briefing session was held to explain the details of the project. Participants were asked to take their photos within 6 weeks and send them to the research team along with the answers to 5 questions, following a modified version of PHOTO protocol. For the photo-elicitation study, the participants were invited to join a group discussion session. Results From the collected data including 41 photos and their related statements, four major themes of: “I adapt to the new situation”, “I start to learn again”, “I find new opportunities”, and “I love myself” emerged, illustrating how the refugee adolescents visualized their perspective and practices toward SC/SD. In the group discussion session, the participants mainly emphasized the importance of keeping the good aspects of the original culture in their SC/SD practices. Conclusions The results of this study improve the understanding about SC/SD practices among refugee adolescents and provide a support to the existing literatures for using art-based methods as an effective participatory tool to communicate with adolescents, especially in hard-to-reach populations. The findings also reveal the capacity of refugee adolescents to be involved in youth-based program planning, which can be a significant potential in health care services for this population.