Support Services Research Articles

“It Would Be All-Consuming”: Community Parents' Perceptions of the Pediatric Intensive Care Unit

AbstractParents of children hospitalized in the pediatric intensive care unit (PICU) may have expectations which could contribute to their emotional experiences both during and after hospitalization. This study aimed to evaluate community parents' knowledge and perceptions of the PICU to enhance understanding of preexisting concerns that may influence PICU experiences. English-speaking parents who had a child between the ages of 6 and 12 years old participated. Participants (n = 211) were mostly female (77%), white (72%), and married (72%). Participants completed an online survey regarding demographics and PICU knowledge. Participants were randomized to read a vignette in which a friend disclosed their child's PICU hospitalization either due to surgery, an accident, or chronic health condition. After reading the vignette, participants reported on the expected length of stay (LOS), survival expectations, and expected level of distress. Parents responded to open-ended questions regarding anticipated stressors, parent needs, and PICU resources. Parents overestimated the LOS and underestimated the survival rate. They expected PICU hospitalization to be highly distressing, primarily due to concerns about their hospitalized child, and that parents would need and have emotional support available to them. Parents may come into the PICU with preexisting concerns regarding medical outcomes. It is important that PICU providers assess for and address any parent misperceptions about their child's illness immediately upon admission and frequently throughout hospitalization. It is important to offer and encourage the use of psychosocial support services.

Реализация междисциплинарного подхода в психолого-педагогическом сопровождении детей, нуждающихся в длительном лечении в медицинских стационарах

<p style="text-align: justify;">This article is aimed at updating the specifics of implementing an interdisciplinary approach in psychological and pedagogical support for children in need of long-term treatment in medical hospitals. The publication describes the importance and possibilities of team interaction between specialists of helping professions in providing psychological and pedagogical support for children in need of long-term treatment with chronic somatic diseases. To implement an interdisciplinary approach, it was found that it is important to take into account the special needs of children in need of long-term treatment, their psychological and social characteristics. An approach to determining the current emotional state, higher mental functions, and personal characteristics of young patients studying in hospital schools is presented. Based on identified current needs, a comprehensive system of pedagogical rehabilitation and psychological and pedagogical support in a hospital school was formed, and the specifics of correctional and developmental, educational, advisory and preventive work of employees of the psychological and pedagogical support service were determined.</p>

Problems of the transition of the Ukrainian economy to a “green economy” based on sustainable technological change

The article reveals the problems of the transition to a “green” economy based on sustainable technological changes, which are caused by global ecological pollution of the ecosystem, which leads to warming and ecological changes and the insufficiency of the natural resource potential to meet the needs of the population of the planet, which does not contribute to development. The essence of the study is to determine the impact of a green economy on economic growth and development, in which natural assets continue to provide resources and environmental services. It is shown that the green economy provides a practical and flexible approach to achieving concrete, measurable progress in all its economic and environmental principles, while at the same time fully taking into account the social consequences of greening the dynamics of economic growth. Green economy strategies aim to ensure that natural assets can fully realize their economic potential in a sustainable manner. This potential includes the provision of vital life support services—clean air and water, as well as the sustainable biodiversity needed to support food production and human health. Natural assets cannot be replaced indefinitely, so the policy of the green economy should take this into account. It is characterized that the green economy provides a practical and flexible approach to achieving concrete, measurable progress in all its economic and environmental principles, while at the same time fully taking into account the social consequences of greening the dynamics of economic growth. The problems of the post-war revival of Ukraine’s economy are systematized and proposals for their solution are substantiated, which is the scientific contribution of the authors to the coverage of this problem. The global problems of the transition to a green economy, which are closely related to Ukrainian realities, are revealed. The practical content is determined by the fact that the theoretical and methodological provisions, conclusions and scientific and practical recommendations constitute the scientific basis for the development of a new holistic concept of the development of the green economy of Ukraine. The conclusions that it is the “green” economy that is able to most closely link the ecological and economic aspects of the national economy, acting as a key direction for ensuring the sustainable “green” development of the region and the state as a whole, actualize the prospects of creating a green economy in Ukraine and become necessary and quite achievable in the post-war period.

Community Service Supports Coffee Cultivation and Post-Harvest in Hutabaringin Village, Sorik Marapi District, Madina

Hutabaringin Village Community, District. Sorik Merapi, Kab. Madina h sources of livelihood in the agricultural sector, namely: rice, vegetable crops, frui gelugor acid, and plantation crops, especially coffee. The problems identified ar limited capital, seeds, tools and agricultural machinery (alsintan) as well as farmer knowledge in managing coffee to obtain high productivity. Therefore, the Marsipatur Hutanabe Mono Year Service Team carries out outreach activities, training an provides donations in the form of coffee seeds and machinery in the form of mi drying houses and coffee roasting machines to support cultivation and post-harve to increase coffee productivity. This activity uses field survey methods, outreac training on controlling coffee plant pests, training on post-harvest processing coffee and focus group discussions (FGD). Next, the handover of coffee seeds, coffe drying house, coffee roasting machine and yellow trap was carried out. The activit went well and received a positive response from farmer groups in Hutabaringi Village, Puncak Sorik Marapi, Madina.

ARTIFICIAL INTELLIGENCE BASED RECOMMENDER SYSTEMS

Recommender systems anticipate customers' present preferences for certain items based on their past behavior, offering individualized service support to users. The evolution of recommender systems has naturally included artificial intelligence (AI), notably computational intelligence and machine learning techniques and algorithms to enhance prediction precision and resolve issues with cold start and data sparsity. This paper methodically examines the fundamental approaches and current practices in recommender systems.

Preliminary assessment of river ecosystem services in the volcanic area of Mount Merapi, Indonesia

AbstractRiver ecosystem services (RES) are vulnerable to landscape changes mainly by volcanic eruptions. Therefore, this study aims to assess RES in the volcanic area which was affected by the major and minor eruptions of Mount Merapi, Indonesia. The RES referred to the regulating and supporting services of the Krasak River in Jogjakarta. The research involved collecting water and biodiversity samples from two distinct Merapi’s hazard zones (KRB I and KRB II) along the river. Parameters related to regulating services, such as particulate, organic, and nutrient purification, biological control, as well as supporting services like primary productivity, were quantified. We conducted an analysis to understand how landscape conditions interacted with these parameters and employed the t-test to assess differences in RES between the two KRBs. Our findings revealed that the Krasak River exhibited a range of values, including 2.40–5.95 mg/l for Biological Oxygen Demand (BOD), 0.61–3.41 mg/l for nitrate, 0.02–0.11 mg/l for phosphate, 160–60,000 MPN/100 ml for coliform, and 156.3–937 µg/l for chlorophyll-A. These values demonstrated the river’s capacity to perform both regulation and support services. However, certain segments showed variations in ecosystem services, possibly due to the presence of autochthonous matter from aquatic organisms and decomposing organic matters. This showed that volcanic eruption and landscape are closely linked with the water quality and aquatic biodiversity, which affect the ecosystem services.

Reforming higher education in South Africa by addressing gender inequalities

Introduction: South Africa has a unique history of racial inequality, which in turn contributed to gender inequalities in the country – also within higher education. Gender equality is one of the United Nations’ Sustainable Development Goals (SDGs). Higher education can contribute to this SDG by setting an example in the community for creating healthy and socially just conditions for their female staff and students. Methods: Female employees from all staff components (academic, support services, and operational staff) of a South African University of Technology participated in focus group discussions to determine their gender equality experiences. Facilitating questions were used to guide the conversations. Thematic analyses of the transcribed focus group discussions were conducted, and emerging themes were explored. Results: Some male colleagues prefer to work solely with other male colleagues, resulting in women being sidelined and feeling voiceless. Female employees reported being harassed by students and having difficulty managing professional and family life. They were also concerned about their future based on their gender. Services staff had positive experiences engaging with male students, staff, and supervisors. Conclusion and implications: It is imperative for higher education institutions’ growth and development and fulfilling their role in contributing to the SDGs that gender equality be prioritised. The unique traditional and cultural burdens of South African women in higher education should be taken into consideration when re-imagining gender equality. By aligning their efforts with the SDGs, universities can contribute to a more equitable and sustainable future, paving the way for transformative change within society.

Exploring innovation in operations – the Multi-user Remote Operations Centre (MROC) concept

For new energy products to compete with hydrocarbons, the cost to the consumer must be equivalent or lower. To achieve this, producers require operational excellence at lowest possible cost. Innovation and improvements in data processing through the deployment of ‘intelligent’ software is just one of many solutions that can deliver this. Petrofac is constantly developing and applying innovative approaches in the energy landscape, the concept of a Multi-user Remote Operations Centre (MROC) is an extension of this innovation stream. It has been envisioned to lower capital expenditure (CapEx) and operational expenditure (OpEx) for both new market entrants and facilities and to improve safety and reduce emissions. The MROC is a purpose-built operating centre cluster that co-locates facilities such as the central control room, emergency response (ER), and engineering support. It would be owned and financed by a third party, the service provider would lease control facilities to separate clients and provide support services as necessary. This would allow multiple operators to unlock the financial, operational, safety and environmental benefits of remote operation without incurring the significant CapEx outlay normally associated with it. The number of personnel travelling to and from remote facilities would reduce, in turn reducing exposure to safety risks and lowering Scope III emissions. The MROC concept is particularly suited to Australia due to our geography and number of remote assets but could be adapted for other locations. The co-location of operation support engineering, procurement and ER would lead to increased business efficiencies, which would be reflected in a lower production cost.

Motherhood, Human Trafficking, and Asylum Seeking: The Experiences and Needs of Survivor Mothers in Birthing and Postnatal Care

This article aims to illuminate the little-studied phenomenon of asylum-seeking child-bearing women in the UK, survivors of violence and human trafficking. This is a significant issue in terms of the proportion of women affected and the paucity of care and support currently available to them as mother survivors. This study looked to examine the frontline support services of one project to survivor mothers through two collaborating organisations, Happy Baby Community and Hestia, and how their services support mothers’ experiences of perinatal mental health, infant feeding, and the general experiences of migrant women and trafficking survivors in maternity care in the UK. Using evidence collected from semi-structured service-users’ interviews and focus groups, and an anonymous online staff survey, this article shows the types of care and support that are required to address not only the challenges faced by any new mother, but also the additional challenges experienced with trafficking and seeking asylum such as mental health, housing, and legal and access to other support. This article illustrates the many complex and inter-related challenges these women face, and the way the project meets practical, informational, emotional, appraisal, and social needs. It concludes by identifying several implications of the support provided and/or needed, which could be considered by other services or policymakers looking to meet the fundamental needs and rights of this cohort.

Leveraging Project ECHO to Implement a Suite of Substance Use Learning Communities for Statewide Impact.

Overdoses and alcohol consumption rose during the pandemic. However, uptake of practices which reduce mortality (eg, medications for opioid use disorder, harm reduction practices) remains insufficient. Provider training and telementoring is needed to ensure sufficient capacity for treating substance use disorders (SUDs) with evidence-based practices. The Project ECHO (Extension for Community Healthcare Outcomes) model involves the use of web technologies to deliver didactic and case-based learning through a panel of experts to build such competency in a community of learners. Project ECHO was leveraged to implement a statewide telementoring center of addictions-focused ECHO programs, including programming in prescribing, harm reduction, recovery support services, collaborations with first responders, and systems-level challenges. Participants represented health and behavioral health disciplines practicing across the state of Texas in metropolitan and rural areas. Learners were administered: (1) an online registration form that inquired about basic demographics, (2) a post-session survey at the conclusion of each session capturing satisfaction and likelihood to implement, and (3) annual surveys measuring changes in knowledge and self-efficacy. Attendance and other learner data were stored and extracted from the partner relationship management database: iECHO. Training programs were attended by 968 learners, with an average of 48 learners per session. Geographic reach included 47 Texas cities. Post-training survey results indicated high rates of learner satisfaction, with an average rating of 4.68 on a 5-point Likert-like scale. Annual surveys indicated improvements in provider knowledge and self-confidence across all programs. Early results indicate robust uptake, wide geographic reach, high learner satisfaction, and provider knowledge and confidence gains. This preliminary evidence supports the use of the ECHO model as a potential tool for scaling comprehensive SUD telementoring centers to meet workforce development needs over large geographic areas.

The positive impact of legal advice and services on the mental wellbeing of UK veterans

ABSTRACT Law has been recognised as a significant social determinant of health, however, micro-level legal advice interventions are underexplored. The dearth of research concerning the experience of British veterans highlights the need for uniquely tailored support services. This need is emphasised by the pervasiveness of mental health issues amongst this population. We investigate the feasibility of remotely delivered legal advice as a social intervention for supporting the mental wellbeing of UK veterans. This is based on the Warwick-Edinburgh Mental Wellbeing Scale results from 67 participants, who completed a pre and post legal intervention survey. Average WEMWBS results were higher post-intervention, particularly in participants with pre-identified mental health issues. The difference in overall scores pre and post intervention is statistically significant (p = 0.034). A correlation matrix identifies two variables, with one contributing to 59% variance (LV2). These are identified as “Affective” (LV2), and “Cognitive” (LV1). The difference between LV2 results pre and post intervention was significant (p = 0.016). Findings highlight the importance of individualised interventions for veterans. Free, remotely delivered, tailored legal advice and support shows feasibility as a social intervention due to its ability to encourage emotional disclosure, something which the veteran population can struggle with.

Narrative review on the spectrum of diseases prevalent among substance-addicted populations and their interconnected health dynamics

Substance addiction is a complex phenomenon characterized by the dysfunction of the brain's reward system and neuroplasticity, leading individuals to lose control over their behaviour. This review explores the diverse health implications of addiction, including its impact on liver diseases, cardiovascular conditions, respiratory issues, cancers, infectious diseases, gastrointestinal problems, and mental disorders. Heavy alcohol consumption, tobacco use, illicit drug abuse, and prescription drug misuse contribute significantly to these health burdens, affecting various organs and systems in the body. Respiratory issues arise from tobacco smoking, inhalation of illicit drugs, and volatile chemicals, causing chronic obstructive pulmonary disease, lung cancers, and bronchial asthma. Substance addiction is also linked to various cancers, particularly lung cancer from tobacco, oral cancers from tobacco and alcohol, and oesophageal cancers from alcohol and prescription drugs. Furthermore, addictive substances impair immunity, making individuals more susceptible to infectious diseases like pneumonia, tuberculosis, and HIV/AIDS, especially among injection drug users. The interconnected nature of substance addiction with mental health disorders, genetic factors, environmental influences, and social determinants underscores the need for comprehensive public health strategies. These strategies should encompass education, prevention programs, access to treatment and support services, harm reduction approaches, and destigmatization efforts to address substance addiction comprehensively and improve overall health outcomes for individuals and communities.

Organisational Dynamics of University Social Capital: Developing Constructs Through Factor Analysis

<p style="text-align:justify">This study is designed to illuminate the role of four key constructs—teacher-student relationships, peer networks, satisfaction with support services, and employability trust—in shaping the social capital within universities. Utilising a sample of 1902 working students derived from the Eurostudent VII survey data, this research applies both exploratory and confirmatory factor analysis to validate the proposed model. The findings indicate that all four constructs demonstrate statistically significant and positive associations with university social capital. Crucially, the measures of reliability and validity are within an acceptable range, lending credibility to the findings. The teacher-student relationship was found to be the most influential factor, highlighting its crucial value in the functioning of social capital inside universities. Along with providing a framework for future studies on the ever-changing nature of social capital in universities, the results highlight the significance of cultivating an interconnected academic community, which enriches the educational organisation as a whole.</p>

Individualized Care Delivery for Children With Autism and Related Disabilities Undergoing Overnight Video Electroencephalography (EEG): One Hospital's Experience With a Coordinated Team Approach.

Background and Purpose: Children with developmental disabilities have increased risk of epilepsy and need for overnight video electroencephalographic (EEG) monitoring. However, video EEGs have historically been considered difficult to complete for this population. An autism support service at a pediatric tertiary care hospital implemented a coordinated team approach to help children with developmental disability tolerate overnight video EEGs. The project included completion of a caregiver-report preprocedure questionnaire that then was shared with the multidisciplinary team and used to create individualized care plans. The current study aims to describe rates of video EEG completion and need for lead placement under general anesthesia among children with autism and related disabilities who received these supports. Methods: Rates of video EEG completion and general anesthesia use were analyzed for children referred to the support service between April 2019 and November 2021. Results: A total of 182 children with developmental disability (mean age = 10.3 years, 54.9% diagnosed with autism) met inclusion criteria. 92.9% (n = 169) of children successfully completed EEG (leads on ≥12 hours). Only 19.2% (n = 35) required general anesthesia for video EEG lead placement. The majority (80.2%) of parents (n = 146) completed the preprocedure questionnaire. Video EEG outcomes did not differ based on completion of the questionnaire. Parent-reported challenges with communication and cooperation were associated with shorter video EEG duration and greater use of general anesthesia. Conclusions: These findings suggest that most children with developmental disability can complete video EEG with sufficient support. Preprocedure planning can identify children who would benefit from additional accommodations. Further research is necessary to clarify which supports are most helpful.

Care Relationships Between Support Staff and Adults With a Learning Disability in Long-Term Social Care Residential Settings in the United Kingdom: A Systematic Literature Review

Context: Research exploring care relationships between support staff (e.g., support workers) and adults with a learning disability in long-term social care residential settings in the United Kingdom is relatively neglected. This has potential theoretical and care practice implications. Objectives: This study sought to synthesise relevant literature, expand knowledge, and identify directions for future research. We investigated five questions about care relationships and what makes them positive, exploring definitions of care relationships, relational practices and processes, barriers and facilitators to good care relationships, the impact of relationships, and restoration of disrupted relationships. Methods: Following protocol registration in PROSPERO, a systematic literature review was conducted in June–July 2021. The review was informed by official guidelines and focused on the United Kingdom, covering 41 years of relevant work. Twelve databases and five websites were searched, and experts were contacted. Forty-five reports were included and synthesised using the narrative synthesis framework. Findings: Definitions of care relationships revolved around friendship, equality, professionalism, and power. Practices and processes underlying positive relationships included knowing the person, setting boundaries, and shifting power dynamics. Barriers to positive care relationships included staff interactional patterns, attributions, and staff dilemmas, whilst facilitators included receiving training and using communication tools. Good care relationships were key to effective support and ways to restore disrupted relationships included receiving input from systemic therapy. Limitations: Literature was limited for certain review questions and more extensive for others. Only a few reports addressed care relationships as such with the rest focusing on communication or interactions. Time constraints prevented us from including more kinds of reports. The voice of residents was limited. Implications: We hope that this review contributes to and expands knowledge around care relationships and shapes directions for future research. Findings can be used by support staff, service managers, residents, trainers, advocates, regulators, and researchers.

Bias-Based Bullying Among Sexual and Gender Minority Youth Living With Disabilities

Both sexual and gender minority youth (SGMY) and youth living with disabilities are disproportionately impacted by bias-based bullying in school settings. While research has separately examined how sexual and gender minority status and disability status are associated with experiences of bullying, very little research has explored the experiences of youth living with these identities simultaneously. This study examined to what extent SGMY report differential experiences of bias-based bullying depending on various identities and the type of disability an individual reports. Utilizing a diverse sample of SGMY aged 13–17 (N= 2,239), multinomial logistic regression analyses were conducted to test whether there were differences in the likelihood of being bullied for having specific identities, based on disability type, among SGMY. Results indicated a variety of differences in bullying based on gender expression, gender identity, sexual orientation, sexual and gender minority identity, and disability. Participants who reported having a mental disability were more likely to experience multiple forms of bias-based bullying surrounding their gender identity, gender expression, sexual orientation, sexual and gender minority status, and disability type when compared with other gender minority youth with disabilities. These findings may help to inform supportive services in school settings.

Collaborative scheduling method of active-reactive power for rural distribution systems with a high proportion of renewable energy

Large-scale distributed renewable energy connected to the rural distribution network has given birth to a new rural distribution system with a high proportion of new energy typical characteristics, and the optimal scheduling of the new rural distribution system has become an important issue to ensure the safe and stable operation of the power grid. This paper proposes a method of active-reactive power collaborative optimization scheduling for rural power distribution system with a high proportion of renewable energy. Firstly, the active support capability evaluation model is established, and the active power support capability and reactive power support capability of rural power distribution system are quantitatively evaluated, which provides data basis and boundary conditions for the scheduling part. Then, considering power-loss cost, distribution network operation cost, and penalty cost, a method of active-reactive power collaborative optimization scheduling for rural power distribution systems with a high proportion of renewable energy is proposed. Finally, the active support capability evaluation and regulation platform of the rural power distribution system is built to provide technical support services for the safe and stable operation of the rural power distribution system. Given the problems of overload and overvoltage faced by rural power distribution systems with a high proportion of renewable energy, this paper aims to solve the key technical challenges of optimization and regulation of new rural power distribution systems. The results show that the optimized control method proposed in this paper has better security and economy, and is conducive to promoting the construction and operation of the new rural power distribution system.

The Concerns of Community-Dwelling Older Women Living with Urinary Incontinence: Qualitative Research.

The world including Iran is facing population aging. Urinary incontinence (UI) is one of the most common health concerns of older women that can be accompanied by an increased sense of loneliness, social restrictions, and disruption in activities of daily living in addition to the regular challenges of old age. This study was aimed at explaining the concerns of community-dwelling older women living with UI. This study used the conventional, qualitative, content analysis approach with purposive sampling. Twenty interviews were conducted with 18 participants, including 15 community-dwelling older women with UI and three family members (a husband and two daughters), over the span of 14months (from August 2021 to October 2022). The data were collected via semi-structured, face-to-face interviews until data saturation was achieved, and were analyzed using Graneheim and Lundman's method. The findings revealed that the concerns of older women with UI include the impasse of UI, being powerless in life, distorted social identity, and marital frustration, which fell under the main theme of sense of inadequacy. Recognizing the concerns of older women with UI can make health care teams more sensitive to the importance of resolving these concerns and can offer some insight into how best to provide targeted training, support, and counseling services at individual, family, and society levels, to eventually resolve the older adult's sense of inadequacy.

Digital Adoption by an Organization Supporting Informal Caregivers During COVID-19 Pandemic Showing Impact on Service Use, Organizational Performance, and Carers' Well-Being: Retrospective Population-Based Database Study With Embedded User Survey.

The COVID-19 pandemic has catalyzed a move from face-to-face to digital delivery of services by hospitals and primary care. However, little is known about the impact of digital transformation on organizations supporting unpaid caregivers. Since the start of the COVID-19 pandemic, the value of care provided by such informal caregivers is estimated to be £111 billion (US$ 152.7 billion) in England. This study aims to analyze service uptake patterns (including digital service options) over the pandemic period in an English caregivers' support organization covering a population of 0.98 million; measure changes in organizational performance, service efficiency, and quality; and identify the views of caregivers on service provision and future digital delivery. This was a retrospective analysis of the use of digital versus nondigital support services (January 2019 to June 2021) by caregivers in city and rural geographic areas. We compared organizational performance and service quality indicators for 2 financial years (2019-2020 and 2020-2021). A survey was conducted to identify barriers and facilitators to digital service uptake, the computer proficiency of caregivers (the Computer Proficiency Questionnaire, 12-item version), and preferences for future digital service provision. Quantitative data were analyzed using Stata 13 (StataCorp LLC). Thematic analysis was used for open-text survey responses. The number of caregivers registered with the organization rose from 14,817 in 2019 to 20,237 in 2021. Monthly contacts rose from 1929 to 6741, with remote contacts increasing from 48.89% (943/1929) to 86.68% (5843/6741); distinctive patterns were observed for city versus rural caregivers. There was an increase in one-to-one contacts (88.8%) and caregiver assessments (20.9%), with no expansion in staffing. Service quality indicators showed an improvement in 5 of 8 variables (all P<.05). The 152 carers completing the survey had similar demographics to all registered caregivers. The Computer Proficiency Questionnaire, 12-item version, mean score of 25.61 (SD 4.40) indicated relatively high computer proficiency. The analysis of open-text responses identified a preference for the organization to continue to offer face-to-face services as well as web-based options. The digital services that were the most highly rated were carers' well-being assessments, support needs checks, and peer support groups. Our findings show that staff in the caregiver support organization were agile in adapting their services to digital delivery while dealing with increased numbers of registered clients and higher monthly contacts, all without obvious detriment to service quality. Caregivers indicated a preference for blended services, even while recording high computer proficiency. Considering the economic importance of unpaid caregivers, more attention should be given to organizations funded to provide support for them and to the potential for technology to enhance caregivers' access to, and engagement with, such services.

Psychosocial Experiences of Spanish-Speaking Parents of Children With Craniofacial Microsomia.

Craniofacial microsomia (CFM) and microtia psychosocial research in the US is primarily with English-speaking participants. Given that 19% of the US is Latino, and there is a higher prevalence of CFM in Latino populations, this study aims to describe psychosocial experiences related to CFM among Spanish-speaking Latino caregivers to better inform health care. Narrative interviews (mean 73±17min) were completed in Spanish with parents of children with CFM aged 3 to 17 (mean age 10.8±4.8years). Transcripts were analyzed using quantitative linguistic analyses and reflexive thematic analysis. Participants (N=12) were mostly mothers (83%) who had immigrated to the US and had low socioeconomic status. Based upon analysis of grouped word counts, participants spent approximately half of their narratives discussing the first two years of their child's life. Themes selected based on US Latino sociodemographics and cultural values included the Impact of Language, Healthcare Challenges, Supportive Healthcare Experiences, Caregiver Coping with CFM, Family Roles, and Addressing Social Implications of CFM. Results highlighted that the first years of care are of critical importance to parents and suggest this is an optimal time to focus on education and support services for families. Additional treatment suggestions include providing interpretation and informational materials in Spanish, addressing care barriers, supporting familial and child coping, accounting for the role of extended family, and helping address social concerns. Ongoing research with Latino families can further assist in guiding culturally sensitive CFM health care.