Support Group Program Research Articles

Trying to find Safety, to make it Speakable, and to Mourn the Losses – Children’s Recovery from Domestic Abuse

Abstract Purpose This article addresses a gap in our understanding of children’s ‘recovery’ from domestic abuse. Whilst the impacts of domestic abuse on children have been well-documented and researched, their recovery from it has been under-theorized. By analyzing qualitative accounts on children’s participation in recovery programmes, the article uses Judith Herman’s trauma recovery model, to make the how of children’s recovery explicit. Methods Conducted in Scotland, the research involved individual qualitative interviews with 14 children (aged 7-15 years) and their 14 mothers, who had completed Cedar, a 12-week therapeutic and peer support group programme. A co-produced approach to initial data analysis foregrounded children and mothers’ own priorities for children’s recovery and afforded findings greater rigor. These priorities were then further analyzed using Herman’s trauma recovery framework. Findings Findings offer insight on the ways in which structures, resources, and values designed into the recovery programmes can mobilize children’s experiences of domestic abuse to help them find safety; make domestic abuse ‘speakable’; as well as provide space for children to mourn the losses resulting from domestic abuse. Findings further indicate the power of group-based interventions and the ways in which they can promote recovery through ideas of nurture and care. Conclusions By using Herman’s theoretical lens for recovery, the article makes a new contribution to understandings of children’s recovery from domestic abuse. It identifies key factors that contribute to children’s ability to recover including: their sense of safety, the role of the mother–child relationship and significance of the child-father relationship.

Supporting caregivers of children living with disability in a humanitarian context: realist-informed evaluation of the ‘Mighty Children’ programme in Afghanistan

IntroductionTo ensure that humanitarian action is disability-inclusive, evidence is needed to understand how different strategies to support children living with disabilities and their families can work in these settings. Evidence...

The Effectiveness of Support Group Program in Improving Self -Efficacy among Diabetic Support Group Members in Saudi Arabia

The Effectiveness of Support Group Program in Improving Self -Efficacy among Diabetic Support Group Members in Saudi Arabia

Addressing the Gap: A Pilot Study to Improve Graduate Student's Counseling Self-Efficacy Through Online Support Groups for Care Partners of People With Acquired Brain Injuries

Purpose: The purpose of this technical report is to (a) describe the development and pilot testing of a university training initiative for graduate students in speech-language pathology to conduct online support groups for care partners of individuals with acquired brain injuries and (b) share preliminary data on students' self-efficacy in their counseling skills as a result of training. Method: Four graduate students completed an intensive summer counseling training program consisting of two 90-min student orientations to counseling skills and two online support group sessions for care partners of people with acquired brain injuries. A mixed methods analysis of pilot data collected over the summer of 2023 was conducted. Students completed the modified Counselor Activity Self-Efficacy Scales for speech-language pathologists within 1 week of beginning their counseling training and within 1 week after their clinical training experience. Students also submitted a short reflection paper within 24 hr of their two support group sessions to discuss their overall performance within the session and assess their self-efficacy in their counseling skills. Results: Preliminary data evidenced significant pre- to posttraining gains in two primary counseling areas: (a) psychoeducation (i.e., students' ability to provide information to care partners) and (b) empathy when addressing care partners' concerns regarding their loved one's communication disorder. Students' reflection papers illustrated their sense of growth as clinicians and paralleled the findings from their questionnaires. Conclusions: Our preliminary results highlight the importance of providing counseling opportunities for student clinicians in speech-language pathology graduate programs. Our online clinical model offers an example for replicability across universities to foster self-efficacy in students' counseling skills as part of their graduate studies. “Key” ingredients are provided for replication when developing a student-led online support group program for care partners of individuals with acquired brain injuries.

Specificity and integration of meaning in self-defining memories of breast cancer survivors: clinical reflections to promote a narrative identity integration.

Potential traumatic events, such as breast cancer, can influence autobiographical memory (AM), interrupting the continuity of narrative identity. AM is based on a hierarchical search across different levels of specificity that are indexed from top to bottom when a memory is retrieved. In the breast cancer field, non-specific AMs are an observed clinical phenomenon. In particular, breast cancer survivors report issues related to self-defining memories (SDMs), specific and significant AMs that evoke strong emotions and sensory details at the time of memory. SDMs are linked to life goals and facilitate adaptation to critical experiences, preserving the continuity of identity. This study explored the narrative identity integration process of breast cancer survivors, analyzing themes, specificity, and integrative meaning in SDMs. Ten women participated in an online group support program centered on the integration of AMs linked to the cancer journey. Participants were asked to assess their body image perceptions, filling out an online survey three times, in which they had to report three SDMs each time. A reflexive thematic analysis of the SDMs identified three main themes: the onset of breast cancer; the labeling of negative emotions, and changes in the body. The results indicated inhibited retrieval of specific episodes, fostering a progressive failure in memory characterization and the concurrent meaning-making process. Participants struggled with connecting the memories to insights regarding their self and life, as well as relating the memories to external conditions and other individuals. Further studies might examine the impact of these difficulties on the psychological adjustment of BC long-term survivors. They could also explore cognitive reconstruction by reframing the memories and re-evaluating their traumatic meanings.

Health literacy and its determinants among school-going children: a school-based cross-sectional study in Nepal.

Limited health literacy is linked to unhealthy behaviors, adverse health outcomes, poor quality of life and financial burdens on society. However, little is known about the level of health literacy, especially among school-going children. This cross-sectional study assesses health literacy levels and their determinants in 354 school children from Kathmandu Metropolitan City, utilizing a multi-stage cluster sampling method. The 10-item Health Literacy for School-Aged Children was used to measure the student's literacy levels. Bivariate analysis and multivariable logistic regression at the significance level of 0.05 were performed to determine factors associated with limited health literacy. The majority of participants (76.6%) had moderate health literacy, while 13.8% had a high level and 9.6% had a low level of health literacy. Students from nuclear families had lower odds [adjusted odds ratio (aOR): 0.4; 95% CI: 0.2-0.8] of having limited health literacy. Students whose mother education was up to secondary school (aOR: 10.1; 95% CI: 1.3-78.9), students with pre-existing mental health conditions (aOR: 3.7; 95% CI: 1.4-9.6) and students with unsatisfactory health status (aOR: 3.9; 95% CI: 1.5-10.5) had higher odds to have limited health literacy. These results suggest the importance of prioritizing school health promotion and education activities for students with pre-existing mental health conditions and mothers with low educational attainment. Implementing peer support group programs for children with mental illnesses, mobilizing school health professionals and introducing interventions such as vocational training of mothers can collectively improve health literacy among school-going children.

Consistent Support Group Attendance is Vital for Clinically Sustained Weight Loss in a Community Gastroenterology Clinic

Introduction: The increasing prevalence of obesity places a high burden on the economy with annual medical expenses approximating 150 billion dollars. Obesity-related gastrointestinal disorders, including non-alcoholic fatty liver disease (NAFLD), account for over 30% of patient visits to community GI practices. Total body weight loss (TBWL) of 10% or more is associated with reversal of NAFLD-associated fibrosis and steatosis. However, achieving this goal alone can be difficult. Support groups have proven to be vital in allowing individuals to recover from other lifestyle diseases like alcohol overuse. The aim of this study was to assess the impact of support group attendance on a patient achieving 10% TBWL while enrolled in a structured, community-based weight loss program. Methods: Patients enrolled in the weight-loss program participated in a 6 month support group with weekly online meetings. These sessions included discussions of shared experiences and education on the 4 pillars of the program - nutrition, exercise, sleep, and mindfulness. TBWL was calculated by taking the difference of the patients starting weight and their 6 month weight divided by the starting weight. Data was collected retrospectively through chart review. By April 2023, a total of 95 patients completed the support group program. Statistical analysis was performed using ANOVA and Tukey-Kramer post-hoc tests. Results: The mean percent weight loss was 6.30% for the group with 0-50% attendance, 9.30% for the group with 51-75% attendance, and 13.15% for the group with 76-100% attendance. A one-way ANOVA revealed a statistically significant difference in the percent weight loss across the three groups (F(2,92) = 8.66, p <0.001). Further analysis with a Tukey-Kramer post-hoc test revealed a significant difference in percent weight loss between the group with 76-100% attendance and groups with 0-50% attendance (p<0.05) and 51-75% attendance (p<0.05). There was no significant difference in percent weight loss between the groups with 0-50% and 51-75% attendance (p>0.05). Conclusions: The results of this study indicate that patients with more than 75% attendance at support group meetings across a six-month period reported significantly higher percent weight loss than patients with lower attendance. This study supports the efficacy of support group meetings toward achieving weight loss. Further studies with larger sample sizes are ongoing to measure the efficacy of support groups on a long-term basis.

‘I take the drugs… to make the sickness to move out of me’: key populations’ and service provider perspectives about facilitators and barriers to ART adherence and retention in care in Nigeria

BackgroundAdherence to antiretroviral therapy (ART) has individual and public health benefits and is critical to improving life expectancy, achieving viral suppression, and reducing the risk of HIV transmission. This qualitative study explored the experience of receiving care as well as perceived facilitators and barriers of treatment initiation, retention in ART care, and adherence to treatment.MethodsIn-depth interviews were conducted among 28 men who have sex with men (MSM) and female sex workers (FSWs) receiving ART services in Lagos and Benue states. Key informant interviews were also conducted among 16 service providers engaged in counselling, clinical care, and ART treatment for MSM and FSWs. The Social Ecology Model guided the exploration of perceived barriers and facilitators of treatment initiation, retention in ART care and adherence to treatment. Qualitative data analysis was managed using NVIVO 11 software and themes were analysed using thematic analysis.ResultsWe found that the key barriers to ART adherence were low motivation to comply with medication regimen, work commitments, socioeconomic factors, stigma, negative provider attitude and distance to health facilities. Facilitators of adherence identified include the desire to live a productive life, strong family support and participation in support group programs. Comprehensive adherence counselling, support group programs and an effective follow-up system were factors identified by service providers as key to facilitating adherence.ConclusionTo be effective, ART programs must address the unique challenges key populations face in accessing treatment and achieving optimal adherence regarding establishing a strong support system and follow-up. Community level interventions that support a stigma-free environment are critical to sustaining engagement in care.

The Role of the Community in Preventing Stunting Through the Bintan Regency DP3KB Family Assistance Team (TPK) Program

Stunting is a chronic nutritional problem characterized by a child's height being below the expected standard for their age. Stunting can have negative impacts on children's physical and mental development. This community service aims to increase the role of the community in preventing stunting through the Family Support Group (TPK) program of the Bintan DP3KB. The results of this community service activity show that the active role of the community in preventing stunting is essential. Through an approach that includes socialization, direct support, skill development, and continuous monitoring, the community can be better educated and more actively involved in ensuring adequate nutrition for healthy living and optimal child development.

The experiences of family members attending an online addiction education program: a qualitative study

Family members of people experiencing addiction may experience increased stress and have difficulty coping with disrupted relationships, stigma, and isolation. Education programs for affected family members aim to assist in improving coping skills, understanding of addiction, and provide support, yet these have not been subjected to in-depth research, especially programs delivered by peers, or people with lived experience. This study explored the experiences of participants attending a BreakThrough online group education and support program for family members of people experiencing addiction. Twenty-one affected family members were interviewed and reflexive thematic analysis was used to develop three themes: experience of validation; not fixing, stepping back; and, education to help make sense of experiences. A topic summary was used to present data relating to the experiences of attending online. Participants experienced the group as validating and de-stigmatizing, thereby helping shift their approach to coping and consolidating their understanding of addiction. Participants reported being able to harness the collective insights of peers and make sense of their experiences through education and support. Education programs for affected family members, facilitated by peers, provide an opportunity for validation and ultimately serve to de-stigmatize addiction.

Recruitment of caregivers of persons living with dementia for an Online Support Group Programme– Learnings from India

AbstractBackgroundCaregivers of persons living with dementia (CGPwD) tend to have limited access to dementia care‐oriented support group and relevant resources. The disparity in the ratio of mental health professionals available and the number of people with dementia plays a pivotal role in care and services. Support group interventions may not be available or accessible to the vast majority, more so in the Indian context. Hence, the need to test feasibility of providingsupport via using video‐conferencing software were explored.MethodFamily caregivers of those persons living with dementia who had accessed an out‐patient facility at a Geriatric Clinic as part of a tertiary care center between January 2020 – January 2023 was screened for recruitment into a single group quasi‐experimental study (n = 341). The responses of the family caregivers were noted down along with the experience of the mental health professionals involved in the process. Content analysis (Krippendorff, 2004, Neuendorf, 2002) was carried out using Atlas.ti.9 web version.ResultThe mean age of the CGPwD was 42.5 ± 8.5 years and the mean years spent in care‐giving was 4.02 ± 1.5 years; 42.8% of the persons living with dementia had a definitive diagnosis of Alzheimer’s Disease and majority were in the moderate stage of illness. One‐fourth of the caregivers showed interest to sign up for the support group with the first invitation. Of them, Spousal caregivers were noted to show more interest; followed by daughters‐in‐law. Apart from technological challenges, a good number of caregivers measured d that their loved one with dementia has “improved” due to decline in challenging behaviours.ConclusionUse of technology in psychosocial interventions is a relatively new concept in LAMIC countries such as India. Therefore, familiarization and orientation of such services may pave way to increase in demand for video‐conferencing based support groups at a larger level in the near future.

The Development of a Bereavement Support Group Curriculum for Bereaved Parents of Young Adult Children: Bridging the Gap.

Purpose: There is limited research addressing the bereavement needs of parents whose young adult (YA) children have died from cancer. Research within oncology about the impact of child loss has tended to focus on parents of pediatric aged children. We adapted a general bereavement support group curriculum used with adults to address the unique needs of bereaved parents of YAs. Methods: Using a quality improvement framework, 25 bereaved parents of YA children participated in one of three 6-session bereavement support group programs during 2020 and 2021. Due to the coronavirus disease 2019 (COVID-19) pandemic, the programs were offered virtually. The participants provided feedback and completed an evaluation. Results: Nineteen mothers and six fathers participated with 20 (80%) completing the evaluation. The median time since the death of their child was 6 months. The participants evaluated the program highly, reporting that they felt less isolated (4.25/5 on a 5-point Likert scale); that their concerns were similar to others (4.45/5); and the discussion topics were relevant (4.20/5). Other topics that were identified included the impact on the family of losing a YA child, and how other relationships change. Forty-five percent of participants expressed a preference for a hybrid delivery model, incorporating in-person and virtual sessions. The majority also wished to continue meeting monthly, given they had little contact with other bereaved parents of YAs. Conclusion: The general bereavement support group curriculum was readily adapted for use with bereaved parents of YA children who died from cancer. A hybrid delivery model was the preferred method for future groups.

Acceptability and Feasibility of Online Support Groups for Mental Health Promotion in Brazilian Graduate Students During the COVID-19 Pandemic: Longitudinal Observational Study.

The outbreak of the COVID-19 pandemic in 2020 aggravated already existing difficulties and added new challenges for students. Owing to the gap between needed and available psychological services, group interventions may offer a helpful strategy for student mental health promotion. This study aimed to investigate the acceptability and feasibility of a 4-week online support group program designed for mental health promotion tailored to graduate students at a Brazilian public university in the context of the COVID-19 pandemic (May 2022 to June 2022). Participants in the program took part in online support groups based on a pilot group facilitated by a trained clinical psychologist. Self-administered, standardized web-based questionnaires were assessed at the baseline (T0; before the intervention), postintervention (T2), and follow-up (T3; after 4-6 weeks) time points. We measured sociodemographic variables, treatment credibility and expectancy (Credibility and Expectancy Questionnaire), satisfaction (Client Satisfaction Questionnaire), negative effects of the intervention (Negative Effects Questionnaire), depressive symptoms (Patient Health Questionnaire-9 [PHQ-9]), and participants' quality of life (abbreviated World Health Organization Quality of Life assessment). A 9-answer option questionnaire and open-ended questions also assessed the group's perceived positive and negative outcomes. The total sample comprised 32 participants. Most (23/32, 72%) were doctoral students. Credibility and expectancy scores were high. Participants' satisfaction (Client Satisfaction Questionnaire) with the program was high at the postintervention (T2) and follow-up (T3) evaluations (T2: mean 28.66, SD 3.02; T3: mean 27.91, SD 3.02). Most participants reported that they could learn from other participants' experiences (T2: 29/32, 91%; T3: 27/32, 84%) and felt encouraged to take better care of themselves (T2: 22/32, 69%; T3: 24/32, 75%). None of the participants reported that they had no benefits from the program. The PHQ-9 scores showed mild to moderate depressive symptoms (mean 9.59, SD 6.34), whereas the answers of 9% (3/32) of the participants to the PHQ-9 item 9 indicated suicidality at baseline (T0). Finally, the 4 domains of quality of life (physical: P=.01; psychological: P=.004; social: P=.02; and environmental: P<.001) showed a slight and statistically significant improvement at the postintervention evaluation (T0: mean 57.03, SD 15.39 to 59.64, SD 17.21; T2: mean 64.32, SD 11.97 to 68.75, SD 8.87). Online support groups for the mental health promotion of graduate students are feasible and can be especially useful for universities with students allocated to different cities. They are also satisfactory and may positively influence participants' quality of life. Therefore, they can be considered a helpful mental health promotion strategy in the educational context. Further studies could evaluate these (or similar) programs under nonpandemic circumstances.

"It just made me feel better": qualitative examination of the implementation of a novel virtual psychosocial support program for adolescents with cancer.

Adolescents with cancer routinely report feelings of isolation and exclusion, including from medical decision-making. To address this problem and support adolescents, we designed and implemented the novel, virtual, weekly Teens4Teens peer support group and patient education program. We examined the views of participating adolescents, program guest speakers, and program moderators as they pertained to the need for the program, its feasibility, acceptability, and perceived impact. We recruited all available adolescents, moderators, and guest speakers who participated in Teens4Teens to take part in audio-recorded, semi-structured interviews. Interviews were transcribed, coded, and analyzed using thematic analysis. We conducted 21 interviews across participant groups. We identified four broad themes: pathways into the Teen4Teens program, Teens4Teens implementation capacity, perspectives of the positive impact of Teens4Teens, and suggestions to improve Teens4Teens. These themes described a perceived need for adolescent-centered psychosocial programming in pediatric cancer care, provided lessons on how best to build and apply such a program, and highlighted the value of the program for both adolescents' and clinicians' acceptability, feasibility, and perceived utility. Adolescents, guest speakers, and moderators valued Teens4Teens and made suggestions to improve capacity to routinely implement the program. Adolescent-tailored psychosocial programming, such as Teens4Teens, is positioned to be integrated into clinical care with relative ease and may serve to improve the cancer care experience of adolescents and their families. This study has potential to provide researchers and clinicians with valuable information about the content, design, and delivery of virtual peer support programming for adolescents with cancer.

Traditional support groups for women with breast cancer: A review of the literature

Background and objective: Breast cancer is the most common cancer among women worldwide and it is by far the most common cancer of women in Qatar. Nurses can play an important role in developing and implementing support groups for women with breast cancer. The main objective of this literature review was to identify the context of information to develop a support group to meet the needs of women with breast cancer in Qatar.Methods: The following databases were searched: Cumulative Index to Nursing and Allied Health Literature (CINAHL), PubMed, MEDLINE, EMBASE, and PsycINFO. After applying the inclusion and exclusion criteria, 25 studies were retained for this review. Results: The synthesis and integration of the literature revealed that traditional support groups can impact women with breast cancer across the physical, psychological, spiritual, and social domains. Various outcomes such as fatigue and anxiety were measured and several different types of interventions were used such as education, relaxation, and goal setting. Overall, the interventions had a positive impact on some of the outcomes.Conclusions: This review highlights the need to develop and implement a support group program for women with breast cancer in Qatar.

Sickle Cell Virtual Support Group Program for Adults: An Implementation Evaluation

Sickle cell disease (SCD) is associated with medical and psychosocial challenges. SCD in adulthood is characterized by increased morbidity and mortality, vulnerability, inadequate self-management preparation, and limited social support. This study evaluated the implementation of a virtual support group during the COVID-19 pandemic using an intervention parameters framework evaluation. Participants included six adults living with SCD. Content analysis was conducted for each of the six intervention parameters, and satisfaction scores were summarized. Participants positively evaluated all intervention parameters of the virtual support group. Findings confirmed that a community-engaged intervention supports self-management and establishes key social networks for adult participants.

Understanding the experience of family caregivers of people with dementia in a culturally tailored support group programme: A qualitative study

Studies on support group interventions for family caregivers of people with dementia have not explicitly reported on the incorporation of cultural elements. This study evaluates the impact of a culturally tailored intervention (a six-session programme called ‘Cultivate Yourself: Support for Caregivers of Persons with Dementia’) that integrates Chinese philosophies for psychosocial well-being among target caregivers in Hong Kong. Thirty-three family caregivers of people with dementia from two older adult centres in Hong Kong participated in the programme from October 2020 to September 2021. Multiple benefits from the programme, namely improvements in family caregivers’ psychosocial well-being, caring process and supporting values, were identified during six focus group interviews with 29 participants who attended at least four of the six sessions. Our findings provide insight into strategies for developing a culturally tailored support group programme for Chinese caregivers.

THE INFLUENCE OF EDUCATION AND SUPPORT GROUP BASED ON SELF-EFFICACY THEORY ON THE QUALITY OF LIFE AMONG CHRONIC KIDNEY DISEASE PATIENTS UNDERGOING HEMODIALYSIS: A NARRATIVE REVIEW

Background: Support group is a therapeutic process in a group that has the same problems to condition and provide reinforcement to the group or individual in the group according to the problem so as to achieve effective coping skills against the problem or trauma experienced and improve the patient’s quality of life. Objective: This review was to summarize and identify the current literature related to the influence of education and support group based on self-efficacy theory on the quality of life among chronic kidney disease patients undergoing hemodialysis. Methods: Data sources included two electronics databases: Google Scholar and Elsevier to search literature published between 2015 and 2022. A narrative review process was extract and analyze the data of all included studies. Result: The search found three articles that met the inclusion and exclusion criteria, including articles published in 2015 until 2022 and full-text form. Articles that meet the criteria are then analyzed narratively. Data search using keywords and criteria in the electronic data based above, resulted in 3 articles. From these articles, the interventions carried out, namely the Education, Support Group, Hemodialysis, Chronic Kidney Disease. Conclusion: The support group program has proven to be effective in increasing the patient’s ability to manage his condition and improve the quality of life.

Evaluating a culturally sensitive support group program for Arab–Australian people affected by cancer

Evaluating a culturally sensitive support group program for Arab–Australian people affected by cancer

Trauma support in your pocket

Abstract Background Research indicates that technological approaches to the delivery of trauma-based support can help address structural and perceptual barriers. Yet, there is a lack of research on digital trauma support for children and adolescents. A systematic review of trauma apps identified 2 of 69 were for children, of which neither were evidence based. The aim of this project was to develop a trauma support app, co-designed with and for children and young people, based on a community-based group support program called Teaching Recovery Techniques. Methods In a series of workshops utilising the Design Studio method, a team of 7 young people between 14-20 years (3 boys and 4 girls) co-created the app. The team were recruited via youth organisations and self-reported having experienced (undisclosed) trauma. The techniques presented in the manual have been prioritised via stepwise consideration of content session by session. Prototypes were developed based on the generated ideas and shared with the team for feedback. Results Contributions of the young people to the design can be considered in three categories: mechanics, dynamics and aesthetics. Mechanics are the rules and interactions that inform the structure of the app. Dynamics refers to what the user can actually see, e.g. the outcome when the user presses a button. Aesthetics relate to the desirable emotional responses evoked in the user when they interact with the app. Beyond influence on basic aesthetics, such as fonts and symbols, the young people actively contributed to the user experience and gave great consideration to the emotional responses that could be evoked. Conclusions Young people with personal experience of trauma can actively engage in the development of a digital trauma intervention. Design Studio was an effective method for the co-creation process, enabling the generating and converging of young peoples’ ideas. Key messages • Co-creating an app for trauma support with youth with experience of trauma was a feasible process for both researchers and youth. • Using Design Studio, a collaborative workshop method, facilitated the co-creative process, allowing the youth to contribute to the mechanics, dynamics and aesthetics factors of the app.