Recruitment of caregivers of persons living with dementia for an Online Support Group Programme– Learnings from India

Abstract

AbstractBackgroundCaregivers of persons living with dementia (CGPwD) tend to have limited access to dementia care‐oriented support group and relevant resources. The disparity in the ratio of mental health professionals available and the number of people with dementia plays a pivotal role in care and services. Support group interventions may not be available or accessible to the vast majority, more so in the Indian context. Hence, the need to test feasibility of providingsupport via using video‐conferencing software were explored.MethodFamily caregivers of those persons living with dementia who had accessed an out‐patient facility at a Geriatric Clinic as part of a tertiary care center between January 2020 – January 2023 was screened for recruitment into a single group quasi‐experimental study (n = 341). The responses of the family caregivers were noted down along with the experience of the mental health professionals involved in the process. Content analysis (Krippendorff, 2004, Neuendorf, 2002) was carried out using Atlas.ti.9 web version.ResultThe mean age of the CGPwD was 42.5 ± 8.5 years and the mean years spent in care‐giving was 4.02 ± 1.5 years; 42.8% of the persons living with dementia had a definitive diagnosis of Alzheimer’s Disease and majority were in the moderate stage of illness. One‐fourth of the caregivers showed interest to sign up for the support group with the first invitation. Of them, Spousal caregivers were noted to show more interest; followed by daughters‐in‐law. Apart from technological challenges, a good number of caregivers measured d that their loved one with dementia has “improved” due to decline in challenging behaviours.ConclusionUse of technology in psychosocial interventions is a relatively new concept in LAMIC countries such as India. Therefore, familiarization and orientation of such services may pave way to increase in demand for video‐conferencing based support groups at a larger level in the near future.