The Ethics of New Reproductive Technologies: Cases and Questions. Edited by Dolores Dooley, Panagiota Dalla-Vorgia, Tina Garanis-Papadatos, and Joan McCarthy. Berghahn Books, New York, 2003, 214 pp., $49.95. Ethics and Genetics: A Workbook for Practitioners and Students. Edited by Guido de Wert, Ruud ter Meulen, Roberto Mordacci, and Mariachiara Tallacchini. Berghahn Books, New York, 2003, 152 pp., $42.00. Issues in Medical Research Ethics: A Workbook for Practitioners and Students. Edited by Jürgen Boomgaarden, Pekka Louhiala, and Urban Wiesing. Berghahn Books, New York, 2003, 136 pp., $42.00. This is a three volume series of primarily teaching texts concentrating on three broad areas of bioethics reflecting major challenges to practitioners in Europe but the issues and discussions easily translate to the same areas of practice worldwide. The materials are designed for readers with no formal training in bioethics. The authors use case examples, challenging questions and expert commentary to direct the reader to contemplate the ethical issues common to the disciplines of genetics, reproductive technologies and medical research. These books are organized well for teaching purposes with illustrative examples of issues and interactive discussion activities sprinkled throughout background information and commentaries. Moreover, the challenges spotlighted would also serve as wonderful discussion material for peer supervision meetings, professional educational meetings or for personal reflection. I found the materials enjoyable, easily readable and very thought provoking forcing me to think about what I do or would do in certain situations and more importantly, why I would make those choices and others would choose differently. Volume 1 focuses on issues foremost in new reproductive technologies. The authors provide a way of presenting and discussing these issues that is respectful of differing opinions. They use the concept of moral responsibility to help the reader think about how people in different situations might not see things in the same way. Many of the case examples used are well related to the practice of genetic counseling. Volume 2 focuses on genetics, specifically genetics in medicine. Before reading these texts, I thought I would enjoy this volume the most as I believed I would be able to relate best to the issues discussed. It is true that the issues discussed in this volume are directly related to the practice of genetic counseling however, I found several instances of good, but not totally accurate or complete information about a disorder and this was very distracting to me. The authors used the example of an incidental finding of Klinefelter syndrome found on prenatal testing. The case made it clear that the parents were never told of anything other than Down syndrome prior to testing so the finding of another chromosome abnormality was quite a surprise. In addition, the description of Klinefelter syndrome was somewhat incomplete and I found this distressful especially because the couple was to use this information to decide about the management of the pregnancy. In another case, the authors use a very incomplete picture of Huntington disease to set the discussion about prenatal testing for late onset disease. I found myself thinking about how the arguments would be different if the information was more complete and this distracted me from thinking about the big picture that the authors were attempting to illustrate. Having said that, the case examples used are good ones right from the genetic counseling practice and the challenging questions and discussion sections were excellent. Again, the authors are careful and skilled at helping the reader understand differing points of view. Volume 3 centers on the ethical issues in medical research. Because the authors are using European case examples with European law and regulations in the discussions, some of the materials may not be directly transferable to US research practice however, the concepts are universal. The case examples are up-to-date and they challenge the reader to examine their beliefs about ethical behavior in research. The authors examine the subtleties involved in coercion and informed consent. Of particular interest to me was the discussion about blurred roles in research where the practitioner is both the researcher and professional providing medical care for the subject/patient. This dilemma is discussed in terms of conflicting obligations for the physician researcher but it is easy to see how this is a dilemma for any health care provider also involved in research. It is interesting to note that the discussion for this section is titled, “The irresolvable ethical dilemma of clinical research.” One cannot pass up a challenge like that. In summary, I very much enjoyed reading these texts. I found the case examples, challenging questions and discussions thought provoking and fun. I also believe much of the materials would be excellent for teaching students in a wide variety of settings. These books would be good additions to a genetic counseling teaching library.
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