Racism impacts all aspects of patient care, not least for those with Sickle Cell Disease (SCD). Minimal research exists in this area, despite being long identified as a compelling issue for patients [1], and highlighted as a “Top 10” Priority in a workshop during ASCAT 2019. In response, we conducted a series of workshops to explore how race and racism impacts the quality of care in the SCD community and to identify actionable areas of change. This comprised three 90 minute sessions held over Zoom in May, June and July 2021. Attendees included people living with SCD, doctors, nurses, medical students, and members of the local community. Outcomes broadly centred around the themes of medical education; public education; and ways of better supporting the SCD patient community. However, we were struck by a rich discussion on how the name ‘Sickle Cell Disease’ may, in itself, influence the mindset of caregivers and perpetuate stigma in both clinical and social settings. The term ‘Sickle Cell Anaemia’ traditionally refers to HbSS only, though OMIM uses it to cover all genotypes [2]. Meanwhile the ICD-10 classification code D57 refers to ‘Sickle Cell Disorders’, with sub-categories using ‘Disease’ and divided by genotype [3].From the workshops, the patient group shared a strong consensus view that Sickle Cell Disorder, rather than ‘Disease’, would be preferable as a more neutral term of reference. To verify the results of the workshop in an independent sample, a questionnaire was circulated to a small SCD patient support group (12 individuals) to assess their preference for one or other label. 9/12 (75%) preferred ‘Disorder’, one preferred ‘Disease’ and two expressed no preference. Which label was used by patients themselves, their families and friends, and their medical teams was important to patients, with 67% expressing a wish that this issue be pursued further. Interestingly, the acceptability of Disorder/Disease showed some variation by the patient’s country of birth. These findings point towards a pressing need for increased sensitivity around the language used to talk about illness, particularly where the condition has been historically stigmatised.