For Ethical Fundraising from Patients, Respect them as Partners Brendan D. Curti For over 25 years, grateful patient donors and their families have financed breakthroughs in cancer immunotherapy at Providence’s Earle A. Chiles Research Institute (EACRI) in Portland, Oregon. Patients and their families have given nearly $200 million to our community hospital-based program—and, while our researchers compete successfully for NIH and other public funding, grateful patient giving currently makes up nearly 70% of our budget. In my 20 years with EACRI, many of my own patients have become financial supporters of our research and volunteer to assist fellow patients in their cancer journey. One of them has contributed several hundred thousand dollars, spoken at events, and provided valuable advice as a member of one of Providence’s foundations, which works to connect the community to our research team. Never during my tenure with EACRI have I experienced medical ethical concerns about a grateful patient donor relationship. Foundation staff members have never asked me to invite a patient to an event or make any other fundraising “move” as part of a clinical visit, and none of my patients have suggested I give them access to a different treatment in exchange for a financial contribution. In fact, engaging patients in supporting our research has been remarkably uncomplicated and deeply rewarding, both professionally and personally. This engagement is not contrived. It doesn’t arise from any grateful patient fundraising training, which I’ve not received. It flows naturally out of my duty (and pleasure) to educate my patients about their disease and treatments, including research options—and out of an understanding shared by everyone in our institute that anyone can contribute to ending cancer. During clinical visits with my patients, my only role is to help them through what is probably the most difficult situation in their lives. But patients are naturally curious about cancer and its treatment, and, as a physician, I am both healer and teacher. Part of answering my patients’ questions is to tell them that we have a research program and that I spend most of my time doing research, along with a large number of PhD scientists. I never volunteer that they can contribute financially or that we have a foundation; if they do ask how we pay for our research, I tell them the truth, that it’s powered mostly by private philanthropy (including my own small gifts), peer-reviewed grants from places like the National Institutes of Health, American Cancer Society, the Susan B. Komen organization and pharmaceutical companies. If they ask how they can support the research, I let them know that there are brochures in the lobby or ask if they would like us to have a member of our foundation call them. (Our foundation has kindly provided us with stickers with its phone number on them for the backs of our cell phones!) If a patient—any patient, expresses a strong interest in learning more about our research, I ask them if they would like to tour our laboratories. Typically, the foundation handles scheduling without first investigating the patient’s giving capacity. I participate in tours whenever I can, again focusing on education. I talk about the history of the institute, how it came to be that we have world-class immunotherapy here, and some of the research underway. Frequently I tell the story of OX40, how it was derived from research spurred by a patient’s challenging question and received support from private donors before it won NIH funding and developed into a company founded by one of our institute members. If the patient says, “We didn’t know that cancer research was such an important part of the mission here to improve care for patients. How do we support it?” I smile and point to the foundation representative and she takes it from there. To maintain my role as healer and teacher, I never participate in any solicitations or discussions [End Page 9] with donors about potential gifts—though I may participate in reporting out to donors the impact of their giving. I do attend fundraising events with donors, some of whom are my patients. But I...
Read full abstract