Source Of Information For Parents Research Articles

ChatGPT: Artificial Intelligence as a Potential Tool for Parents Seeking Information About Autism.

Autism Spectrum Disorder has seen a drastic increase in prevalence over the past two decades, along with discourse rife with debates and misinformation. This discourse has primarily taken place online, the main source of information for parents seeking information about autism. One potential tool for navigating information is ChatGPT-4, an artificial intelligence question and answer-style communication program. Although ChatGPT shows great promise, no empirical work has evaluated its viability as a tool for providing information about autism to caregivers. The current study evaluated answers provided by ChatGPT, including basic information about autism, myths/misconceptions, and resources. Our results suggested that ChatGPT was largely correct, concise, and clear, but did not provide much actionable advice, which was further limited by inaccurate references and hyperlinks. The authors conclude that ChatGPT-4 is a viable tool for parents seeking accurate information about autism, with opportunities for improvement in actionability and reference accuracy.

Evaluation of the usefulness and quality of YouTube™ videos about children's electric toothbrushes.

The effectiveness of mechanical tooth cleaning, which plays a crucial role in biofilm control, depends on the type of brush and technique. Parents can refer to websites such as YouTube™ for guidance on the selection and use of electric toothbrushes. The objective of this study was to examine the usefulness, quality and accuracy of the information on YouTube™ videos about electric toothbrushes for children. A search was performed on YouTube™ for English language videos using the terms 'electric toothbrush for kids' and 'kids' electric toothbrush'. From the first 100 results, 64 videos were selected for further analysis. The videos were analysed for views, likes/dislikes, number of comments, upload source, duration and time since video upload. The usefulness and the quality of the selected videos were also measured. The majority of the videos mentioned toothbrush design (71.9%, n = 46) and toothbrush heads (62.5%, n = 40). The videos were generally determined to be moderately useful (46.9%), whereas very useful videos were found less frequently (12.5%). Slightly useful videos were mostly uploaded by laypeople. Very useful videos had significantly higher video durations than moderately and slightly useful videos (p = 0.029 and p = 0.002, respectively). YouTube™ can be an important source of information for parents to learn about electric toothbrushes for their children. However, watching videos based on upload source and length of time may provide more accurate information on this topic. Also, dental healthcare professionals could be included more often to improve the usefulness and quality of the videos.

Acquiring Financial Support for Children's Sports Participation: Co-Creating a Socially Safe Environment for Parents from Low-Income Families.

Despite the many benefits of club-organized sports participation for children, sports participation is lower among children from low-income families than among those from middle- or high-income families. Social safety experienced by parents from low-income families is an important facilitator for parents to request financial support for their children's sports participation. Therefore, the first aim of this study was to better understand parental social (un)safety in the context of acquiring financial support for children's sports participation and how to create a safe social environment for low-income parents to request and receive this financial support. The second aim was to describe the co-creation process, which was organized to contribute to social safety solutions. To reach these goals, we applied a participatory action research method in the form of four co-creation sessions with professionals and an expert-by-experience, as well as a group interview with parents from low-income families. The data analysis included a thematic analysis of the qualitative data. The results showed that from the perspective of parents, social safety encompassed various aspects such as understandable information, procedures based on trust, and efficient referral processes. Sport clubs were identified as the primary source of information for parents. Regarding the co-creation process, the study found that stakeholders tended to overestimate parental social safety levels. Although the stakeholders enjoyed and learned from the sessions, differences in prior knowledge and a lack of a shared perspective on the purpose of the sessions made it challenging to collaboratively create solutions. The study's recommendations include strategies for increasing parental social safety and facilitating more effective co-creation processes. The findings of this study can be used to inform the development of interventions that contribute to a social environment in which parents from low-income families feel safe to request and receive financial support for their children's sports participation.

Parental COVID-19 Vaccine Hesitancy for Children and Its Influencing Factors: A Riyadh-Based Cross-Sectional Study

It is well known that vaccination is the best clinical approach for successfully controlling COVID-19 infection. Understanding the disparities in COVID-19 vaccination apprehension among parents in different societies is crucial for effectively implementing COVID-19 vaccination programs. This observational cross-sectional study was carried out in the Riyadh region of Saudi Arabia between February and April 2022. The validated questionnaire was shared with parents who had children between the ages of five and eleven years. The collected data were analyzed using descriptive and inferential statistical methods. Multinomial regression analysis was conducted to determine the factors significantly affecting vaccine-use decisions. Of the 699 participants, 83% of the mothers were between the ages of 35 and 44 years, 67% were university educated, and only 14% were healthcare workers. A large proportion of parents, with an age range of 18-34 years (p = 0.001), and those with a higher income group (p = 0.014), demonstrated significant vaccine hesitancy. Further, parents who received one or two vaccination doses were significantly (p = 0.02) more hesitant than those who received more than two doses of the vaccine. Furthermore, a significantly (p = 0.002) high percentage of parents who follow the Ministry of Health (MOH) guidelines for personal preventive measures were hesitant about their children's vaccination. Concerns about side effects (31.4%) and a lack of safety data (31.2%) on the COVID-19 vaccines were the two most significant reasons for parents to develop vaccine hesitancy. Social media (24.3%), poor perceived immunity (16.3 %), and news articles (15.5%) were the top three contributors to this hesitancy. Vaccinated parents were 8.21 times more likely to be vaccination-hesitant than non-vaccinated parents. Additionally, parents with less education and a COVID-19-positive child at home increased the odds of vaccine hesitancy by 1.66 and 1.48 times, respectively. Overall, one-third of the parents were not prepared to vaccinate their children, and one-quarter of the respondents had not decided about vaccination. This study shows that parents in Riyadh are generally reluctant to vaccinate their children against COVID-19. As social media is a primary source of information for parents, public health professionals should utilize the platform to encourage parents to support vaccine acceptance.

Tingkat Pemanfaatan Bahan Koleksi sebagai Pemenuhan Kebutuhan Informasi pada Anak di Rumah Literasi Ranggi Sumatera Utara

Reading books for children is very important for a child's growth and development, especially when entering a formal educational environment such as elementary school. This activity aims to explore the benefits of having a literacy house, especially to improve children's learning abilities. Using participatory rural appraisal methods or techniques and data collection techniques through interviews, observation, focus group discussions and literature review. The results of the study show that the Ranggi Literacy House at the PWI Complex, Percut Sei Tuan, Deli Serdang acts as a source of learning for children, especially underprivileged children, a place for character formation, and a source of information for parents. in child care, community recreation and training facilities, even facilities for mothers to express their talents. The results of the study indicate that the availability of children's literature in the mother and child library services is quite adequate. Judging from the suitability of literature for the age level and information needs of children, it is in accordance with the availability of 3D collections for children who cannot read, and the availability of fairy tales, comics, religious books, history books, and other textbooks. The use of children's literature at the Ranggi Literacy House is quite good. This is shown by the enthusiasm of users in reading literature and utilizing the available facilities. Obstacles faced by the Ranggi Literacy House in improving the reading culture of its users: they do not yet have an audio-visual collection, even though audio-visual collections can contribute to improving children's reading culture because in reality children tend to prefer using technology and prefer to see and hear. However, in fulfillment of this, the Ranggi Literacy House also often holds watching folklore or other stories together as a form of character education for children.
 Keywords: Reading garden, learning resources, educational-recreational information sources.

Tingkat Pemanfaatan Bahan Koleksi sebagai Pemenuhan Kebutuhan Informasi pada Anak di Rumah Literasi Ranggi Sumatera Utara

Reading books for children is very important for a child's growth and development, especially when entering a formal educational environment such as elementary school. This activity aims to explore the benefits of having a literacy house, especially to improve children's learning abilities. Using participatory rural appraisal methods or techniques and data collection techniques through interviews, observation, focus group discussions and literature review. The results of the study show that the Ranggi Literacy House at the PWI Complex, Percut Sei Tuan, Deli Serdang acts as a source of learning for children, especially underprivileged children, a place for character formation, and a source of information for parents. in child care, community recreation and training facilities, even facilities for mothers to express their talents. The results of the study indicate that the availability of children's literature in the mother and child library services is quite adequate. Judging from the suitability of literature for the age level and information needs of children, it is in accordance with the availability of 3D collections for children who cannot read, and the availability of fairy tales, comics, religious books, history books, and other textbooks. The use of children's literature at the Ranggi Literacy House is quite good. This is shown by the enthusiasm of users in reading literature and utilizing the available facilities. Obstacles faced by the Ranggi Literacy House in improving the reading culture of its users: they do not yet have an audio-visual collection, even though audio-visual collections can contribute to improving children's reading culture because in reality children tend to prefer using technology and prefer to see and hear. However, in fulfillment of this, the Ranggi Literacy House also often holds watching folklore or other stories together as a form of character education for children.
 Keywords: Reading garden, learning resources, educational-recreational information sources.

The experiences of families receiving a diagnosis of 22q11.2 deletion syndrome in Ireland.

Families in Ireland often wait over 1 year to see a genetic counselor (GC). This qualitative study aimed to explore the views of families who received a diagnosis of 22q11DS in Ireland regarding the need for timely access to genetic counseling at the point of diagnosis. Twenty participants were recruited through the '22q Ireland' support group, giving a response rate of approximately 10% of the total support group members. Semi-structured interviews were conducted online and by telephone which explored experiences of receiving diagnoses, medical care, genetic counseling, mental health, and coping with the diagnosis. Interviews were transcribed verbatim and analyzed using thematic analysis. The experiences of 20 participants were classified into five main themes: Receiving Diagnosis, Interactions with Healthcare Professionals (HCPs, excluding GCs), Medical Care, Information, and Impact of Condition. Participants reported receiving diagnoses for their children in a sub-optimal manner due to inappropriate settings and insufficient information, support, and pre-test counseling. Parents reported feeling responsible for managing their child's complex and fragmented medical care. Participants reported insufficient empathy and little awareness of 22q11DS among HCPs. Participants perceived genetic counseling to be associated with family planning and reported delayed, if any, access to services. Mental health was a particular worry among participants. Conferences about 22q11DS are the main source of information for parents. Participants reported a range of emotions after diagnosis and described the family impact. The findings suggest both an association between HCPs' poor understanding of 22q11DS and the perceived lack of empathy from HCPs and fragmented medical care. There is an identified need for advocacy of the GC profession in Ireland to support these families. Increased awareness of 22q11DS among HCPs and the development of a coordinated care pathway for 22q11DS, with timely access to genetic counseling, may improve care and lead to better outcomes.

PEMBINAAN KELOMPOK BINA KELUARGA REMAJA SEBAGAI UPAYA PENINGKATAN PENGETAHUAN REMAJA TENTANG PENDEWASAAN USIA PERKAWINAN

Maturation of the age of marriage (PUP) through the youth family development program (BKR) which is intended for families with teenage children as a forum and source of information for parents and adolescents to gain knowledge about PUP. Therefore, it is necessary to develop a youth family development group as an effort to increase adolescents' understanding of PUP. This community service activity aims to increase adolescent knowledge through fostering adolescent family development groups as a forum for youth in Sukaraja District Seluma Regency. The community service method is through regional development with activity stages including identification of potential partners, identification of stakeholder involvement, preparation, implementation and evaluation stages as well as follow-up. The results of this activity resulted in an increase in the average score of knowledge and attitudes of adolescents towards the acceptance of the concept of maturation of marriage age in Sukaraja District Seluma Regency. The activity went smoothly with good support and 100% attendance. It is hoped that partners will continue the activities in the form of monitoring and evaluating cadres and parents who already have the ability by involving village midwives.

Using Publicly Available Reddit Data to Understand How Parents Choose Pediatricians

Parents are increasingly using online physician rating sites to select a pediatrician. However, no studies have examined the role of social media in influencing parents’ choice of a pediatrician. The objective of this study was to qualitatively analyze what factors influence the choice of a pediatrician in an online peer support community. We retrieved retrospective data of all threads made to 4 subreddits on the Reddit social media platform between January 1, 2018 and December 31, 2019. We performed qualitative analysis using an inductive approach on threads related to choosing a pediatrician. We identified several codes which were grouped into subcategories/categories and finally abstracted into themes. We retrieved a total of 179 threads and included 30 for qualitative analysis. Thematic analysis led to identification of four major themes that influence how parents choose pediatricians on a social media platform—pediatrician-specific factors, office-related factors, parent/patient factors, and social factors. An online peer support community can serve as an important source of information for parents when searching for a pediatrician. Pediatric practices should focus on providing unmet information needs to parents that will ease the burden of the search process.

Recipe Components and Parents' Infant and Young Child Feeding Concerns: A Mixed-Methods Study of Recipe Posts Shared in Thai Facebook Groups for Parents.

Social media is increasingly becoming a significant source of information for parents, including about feeding young children. However, little attention has been given to the characteristics of recipes for infants and young children and how they interact with parental perceptions regarding food decisions shared by users on social media. Building on findings related to shared recipe components and parental food choices, between December 2019 and July 2020, this study retrospectively collected 80 shared recipes each from five Thai Facebook groups. This extraction created 379 shared recipes with 1751 peers’ commentaries on the shared recipes’ posts. The shared recipes were classified and components quantified across child age groups, then the textual contents around the reasons behind the food choices were described qualitatively. The results showed that there were differences in meal types, food ingredients, and seasoning used across child age groups. Further analysis found that food allergy awareness was one driving concern behind parental perceptions on food choices in children’s diets. These concerns resulted in delays in the introduction of animal-source foods. Moreover, peers’ commentaries on shared recipes offered a venue for exchanging experiences with food products. Because of the potential influence on parental beliefs and perceptions, further studies are required to understand the impact of existing online communities on actual feeding practices.

A Critical Evaluation of Dyslexia Information on the Internet

The internet is a common source of information for parents, educators, and the general public. However, researchers who analyze the quality of internet sources have found they often contain inaccurate and misleading information. Here, we present an analysis of dyslexia on the internet. Employing disability studies in education (DSE), disability critical race studies (DisCrit), and Bakhtin’s construct of ideological becoming, we examined the credibility of sources, the quality of information, and the discourse in which the information is presented. We found the majority of webpages do not meet basic source credibility criteria, much of the content contradicts or is unsupported by research, and most pages convey information in an authoritative discourse, making it seem irreproachable. Building on the findings, we offer criteria for evaluating dyslexia information and suggestions for research and practice. We focus on the need for less divisive, more collaborative dialogue, along with research among stakeholders with multiple perspectives.

Taman Baca Masyarakat “Tholabul’ilmi” Sebagai Sarana Meningkatkan Literasi Desa Panduman Kecamatan Jelbuk

Literacy is the ability to access, understand, and use something intelligently through various activities, including reading, listening, writing and speaking. The purpose of choosing the provision of community reading parks is that to see from the reading interest of the Panduman community is very minimal, especially among adolescent and children communities. An example is the existence of TBM or community reading corner, based on socio-cultural values that are designed to know people's interest in reading by using an approach to the socio-cultural values of the communities where TBM is located. Purpose The implementation of community reading corner is intended to provide access to learning facilities that provide reading service, widespread and affordable by the community easily. Because community of reading corner has a role as a source of learning for young children, a source of information for parents in fostering early childhood, and recreational and educational facilities for the community.

Temperamental risk factors in young adults with ADHD symptoms

Abstract Introduction: In recent years, numerous studies have focused on the analysis of the primary mechanisms and forms of therapy in children and adolescents with attention deficit hyperactivity disorder (ADHD). The analysis of such topics among similarly diagnosed young adults is only beginning to gain popularity. The present article attempts to answer the question of whether the level of individual temperament traits will predict an increase in the severity of ADHD symptoms in young adults. Materials and methods: The questionnaire study involved 111 young adults aged from 18 to 28 (M= 23; SD= 2.12; 70 women and 41 men). Fifty-one people were included in the clinical group, and sixty were qualified for the control one. The participants of the study completed a health questionnaire and a structured diagnostic interview on ADHD symptoms in adults (DIVA 2.0) and a questionnaire for the diagnosis of basic, biologically determined dimensions of human personality (FCZ-KT (R)). Results: The results indicate a significant role of four temperament traits that may be considered as specific risk factors for the aggravation of ADHD symptoms. These include briskness, rhythm, endurance and activity. Conclusions: In Strelau’s Regulatory Theory of Temperament, the variability of temperament traits (in the Polish population) is attributed in 44% to genetic factors. The remaining 56% indicate non-genetic factors. The obtained results may indicate which factors are important in therapeutic work both in the group of young adults with ADHD symptoms, and may also constitute a source of information for parents or teachers regarding younger children with these symptoms.

Attitudes towards varicella vaccination in parents and paediatric healthcare providers in Hungary

BackgroundVaricella vaccination is important in prevention of childhood infection. Aim of this cross-sectional study was to survey attitudes and determinants of support or refusal of varicella vaccination in parents and in paediatric healthcare professionals, mainly health visitors in Hungary prior to the introduction of this vaccine in National Immunization Program in 2019. MethodsBetween October 2018 and February 2019, 1042 parents and 198 healthcare professionals completed a self-administered anonymous questionnaire regarding sociodemographic background, knowledge and attitudes towards varicella vaccination, and reasons for non-vaccination. ResultsFrom the participating parents 53.3% have vaccinated at least one of their children. Vaccination rate was significantly higher in families with <3 children, living in the capital, among those who have seen complications of varicella and among parents with university degree. Most important positive determinant was recommendation of the vaccine by healthcare professionals: 77.8% of parents accepted vaccination when recommended by the paediatrician, despite the cost of the vaccine, whereas only 17.3% of parents vaccinated their children when the vaccine was not recommended by paediatrician. Most important reasons for non-vaccination was finding the vaccine unnecessary, concerns regarding side effects, and not believing in the vaccine’s effectiveness. Among paediatric healthcare professionals, support rate of universal varicella vaccination was 76.3%. Support rate was higher among those who have seen complications of varicella more often and those who consider varicella a severe infection. Reasons of professionals who do not support universal varicella vaccination were similar to those of vaccine hesitant parents. Practice of intentional exposure of non-immune child to infected ones still exist. ConclusionsEducational programs are needed for parents and health visitors to address concerns regarding vaccination. Paediatricians are the most trusted source of information for parents hence they have a significant responsibility and parents likely follow their recommendations.

Quality, Trustworthiness, Readability, and Accuracy of Medical Information Regarding Common Pediatric Emergency Medicine-Related Complaints on the Web.

The Internet is a universal source of information for parents of children with acute complaints. We sought to analyze information directed at parents regarding common acute pediatric complaints. Authors searched three search engines for four complaints (child+fever, vomiting, cough, stomach pain), assessing the first 20 results for each query. Readability was evaluated using: Flesch-Kincaid Grade Level, Gunning Fog, Simple Measure of Gobbledygook, and the Coleman-Liau Index. Two reviewers independently evaluated Journal of the American Medical Association (JAMA) Benchmark Criteria and National Library of Medicine (NLM) Trustworthy scores. Two physicians (emergency medicine/EM, pediatric EM) analyzed text accuracy (number correct divided by total number of facts). Disagreements were settled by a third physician. Accuracy was defined as ≥ 95% correct, readability as an 8th-grade reading level, high quality as at least three JAMA criteria, and trustworthiness as an NLM score ≥ 3. Accurate and inaccurate websites were compared using chi-squared analysis and Mann-Whitney U test. Eighty-seven websites (60%) were accurate (k=0.94). Sixty (42%) of 144 evaluable websites were readable, 38 (26%) had high-quality JAMA criteria (kappa/k=0.68), and 44 (31%) had reliable NLM trustworthy scores (k=0.66). Accurate websites were more frequently published by professional medical organizations (hospitals, academic societies, governments) compared with inaccurate websites (63% vs. 33%, p<0.01). There was no association between accuracy and physician authorship, search rank, quality, trustworthiness, or readability. Many studied websites had inadequate accuracy, quality, trustworthiness, and readability. Measures should be taken to improve web-based information related to acute pediatric complaints.

Parental internet search in the field of pediatric orthopedics.

Parents whose children are affected by systemic diseases, anomalies, deformities, or further orthopedic defective positions use the Internet to increase their knowledge. However, there have been few studies that focus, as this one does, on Internet enquiries done before the parents contact the pediatric orthopedic surgeon. This study analyzed data gathered through a standardized questionnaire on general habits of Internet use, parents' hardware, age, and educational background of the parents. A total of 521 questionnaires were completed for a response rate of 96%. One-quarter of parents (n = 127) attended the consultation because of a gait anomaly or foot deformity, followed by children with DDH (20%, n = 99), clubfoot (9%, n = 47), and scoliosis (6%, n = 29). Parents of children with clubfoot were especially likely to look for health information online (84%, n = 38), followed by parents of children with scoliosis (69%, n = 20), with DDH (67%, n = 66), and with foot deformity/gait anomaly (49%, n = 62). Most people (97%, n = 295) using the Internet for health research purposes made use of a search engine. Concerning use of social media, respondents with clubfoot children were the most numerous (38%, n = 18). There were 35 parents who intended to discuss the results of their Internet research with the pediatric orthopedic surgeon. Most (84%, n = 254) of the respondents who used the Internet for health research planned to do so again.Conclusion: This study documented that the Internet is an important and popular source of information for parents or caregivers in the field of pediatric orthopedics.Level of evidence: Level II; prospective study What is known: •Parents and caregivers often search the Internet for information, particularly before an upcoming operation in the field of orthopedic disorders. What is new: •This study provides recent data on parental Internet research in a large study population.

One Institution - 2 Podcasts - Our experience

Objectives: Podcasts have increased in popularity since the early 2000s. The number of medical podcasts created by physicians for patients and/or health care providers is increasing. With the increase in podcasts' popularity and their convenience, podcasts have significant potential for use as an educational tool. Methods: Faculty at the Children's Hospital of Pittsburgh of UPMC have created two podcasts, the Pediatric Hospital Medicine (PHM) podcast and the Down Syndrome Center (DSC) of Western Pennsylvania Podcast. This paper is a descriptive review of both podcasts. The PHM podcast was created for health care providers who care for hospitalized children. The DSC podcast was started as a source of reliable information for parents of children with Down syndrome. Results: The PHM podcast has over seventeen thousand downloads in over sixty-seven countries. The DSC podcast has over twenty-three thousand downloads in over sixty-nine countries. The PHM podcast has an option for listeners to get CME credit after they listen to the podcast if they click on a link at the University of Pittsburgh website and answer a few questions. Data from responses to these questions demonstrates that 83% of the respondents reported that the podcast either highly or very highly enhanced their knowledge of the subject matter, and 86.8% reported that the content of the podcast was highly or very highly relevant to their work. Conclusion: These results suggest podcasts are a popular and useful tool for disseminating information to families and health care professionals.

Znanje, stavovi i praksa roditelja i pedijatara u vezi sa imunizacijom - Kraljevo, Raška, Vrnjačka Banja

Due to decreased immunization coverage and ongoing public discussions about vaccines, we have decided to conduct a survey on knowledge, attitude and practice among parents and pediatricians. The survey was conducted in Kraljevo, Raska and Vrnjacka Banja during November and December 2016. About 22% of parents think that vaccines are not efficient in disease prevention or are not certain about effects, while 43% do not know against what diseases children are immunized. The most important source of information for parents are pediatricians, followed by Internet. Around 26% parents find some vaccines harmful and 15.7% think some of the vaccines are not needed. Some 13% has an opinion that vaccines are not properly tested; while one half of parents are certain that there is a difference in safety between domestic and imported vaccines. The decision to stop vaccination of their children was made by 1% of parents, and additional 4% were still considering that option at the time of survey. We have found that certain doubts about immunization are present in pediatricians, too. One of respondents in the survey expressed clearly negative attitude towards immunization. None of pediatricians have diagnosed serious adverse events following immunization during their carreer so far. The survey proved that there is a lack of trust in vaccines in general and that for some vaccines it impacts collective immunity to the level that enables outbreaks of vaccine preventable infections.

How online ADHD-related information affects Chinese parents\u2019 decisions?

BackgroundAttention deficit hyperactivity disorder (ADHD) is a major public health problem in China. Parents of children with confirmed, or suspected ADHD often face a difficult process in making decisions concerning diagnosis and treatment. The internet is a major source of information for parents. The purpose of this study is to survey Chinese parental motivation and experience in using the internet to retrieve ADHD-related information, and how well online information is associated with making decisions.MethodsParents were recruited to fill out an online questionnaire in the health portal. A total of 404 valid questionnaires were collected.ResultsA total of 47.8% of parents agree that the internet helps them to understand the potential treatment options, but 77.7% of all parents still have conflict during decision-making.ConclusionsParents search for ADHD-related information online, but their acquisition skills need to be improved. Internet information affects their health decisions. Parents still have highly conflicting decision-making. Improving the ability of parents to obtain information on the Internet may reduce the conflict in decision-making.

Online information for parents caring for their premature baby at home: A focus group study and systematic web search.

BackgroundOnline resources are a source of information for parents of premature babies when their baby is discharged from hospital.ObjectivesTo explore what topics parents deemed important after returning home from hospital with their premature baby and to evaluate the quality of existing websites that provide information for parents post‐discharge.MethodsIn stage 1, 23 parents living in Northern Ireland participated in three focus groups and shared their information and support needs following the discharge of their infant(s). In stage 2, a World Wide Web (WWW) search was conducted using Google, Yahoo and Bing search engines. Websites meeting pre‐specified inclusion criteria were reviewed using two website assessment tools and by calculating a readability score. Website content was compared to the topics identified by parents in the focus groups.ResultsFive overarching topics were identified across the three focus groups: life at home after neonatal care, taking care of our family, taking care of our premature baby, baby's growth and development and help with getting support and advice. Twenty‐nine sites were identified that met the systematic web search inclusion criteria. Fifteen (52%) covered all five topics identified by parents to some extent and 9 (31%) provided current, accurate and relevant information based on the assessment criteria.ConclusionParents reported the need for information and support post‐discharge from hospital. This was not always available to them, and relevant online resources were of varying quality. Listening to parents needs and preferences can facilitate the development of high‐quality, evidence‐based, parent‐centred resources.