Social Participation Research Articles

Associations of caring for grandchildren and great-grandparents with depressive symptoms and life satisfaction in Chinese grandparents: The moderating roles of urban-rural residence and social participation.

This study aims to investigate the associations of caring for grandchildren and/or great-grandparents with depressive symptoms, as well as life satisfaction in Chinese grandparents, and analyze the moderating roles of urban-rural residence and social participation. A nationally representative sample of 2973 grandparents in families with great-grandparents and grandchildren were selected from the 2018 China Health and Retirement Longitudinal Study (CHARLS). The Center for Epidemiologic Studies Depression (CESD-10) and the single-item were used to measure depressive symptoms and life satisfaction. Social participation included participation in social and intellectual activities. The binary logistic regression model was employed to explore the relationship between caring and depressive symptoms, as well as life satisfaction in the whole participants, different urban-rural residence, and social participation groups, respectively. Caring was associated with depressive symptoms and life satisfaction (p < 0.05). A significant interaction existed between caring and urban-rural residence for depressive symptoms (interaction p = 0.029) and life satisfaction (interaction p = 0.027). Significant interactions were also found among caring, urban-rural residence, and social activities with depressive symptoms (interaction p = 0.025). In urban, caring for both was negatively related to depressive symptoms for the non-social activists, while in rural, caring for great-grandparents was positively associated with depressive symptoms for social activists (p < 0.05). Any new policy design related to preventing and reducing the possibility of mental disorders in Chinese grandparents should be tailored to heterogeneous subgroups who live in different rural-urban and social activities participation.

Animal-assisted services for adults with acquired neurogenic communication disorders: A scoping review.

There is increasing interest in the incorporation of animal-assisted services (AAS) in therapy for adults with acquired neurogenic communication disorders. AAS have the potential to enhance speech and language therapy engagement and outcomes. However, a greater understanding of the nature and potential benefits of these interventions is needed. To describe the existing evidence for the incorporation of AAS in therapy with adults with acquired neurogenic communication disorders and to identify areas for future research. A scoping review was conducted and reported in alignment with the Preferred Reporting Items for Systematic Reviews and Meta-analyses checklist extension for scoping reviews (PRISMA-ScR). Seven databases (PubMed, Embase, CINAHL, PsycINFO, Cochrane, Scopus, Web of Science) and grey literature (Google) were searched. Two reviewers independently screened titles, abstracts and full texts against eligibility criteria using Covidence software. The Template for Intervention Description and Replication (TIDieR) checklist guided extraction of intervention data. A total of 17 studies with adults with aphasia, apraxia of speech and cognitive-communication disorders were included. While terminology varied, most interventions met the definition of animal-assisted therapy or animal-assisted activity and used therapy dogs. Across studies, a range of outcomes were targeted, and positive benefits were reported for participant mood, emotions, motivation and satisfaction. There were mixed, but mostly positive, benefits on social behaviour, communication and participation. AAS has been incorporated in therapy for adults with acquired neurogenic communication disorders, predominately with people with dementia. Across studies, communication impairments and AAS interventions were insufficiently or inconsistently described. Improved reporting would assist understanding of the potential benefits of AAS as an adjunct therapy. A quality appraisal of existing studies, and meta-analysis of findings, is needed to draw conclusions about the effectiveness of AAS as a complementary therapy for people with acquired neurogenic communication disorders. What is already known on this subject There is increasing interest and research in AAS as an adjunct to traditional speech and language therapy. Several clinical populations have been shown to benefit from the incorporation of AAS as a complementary therapy approach, including adults with acquired neurogenic communication disorders. To date there has not been a comprehensive review of literature in the area. What this paper adds to the existing knowledge This review aimed to describe what is known about AAS as an adjunct intervention for adults with acquired neurogenic communication disorders. A total of 17 studies were identified, the majority conducted with people living with dementia. Overall, consistent positive benefits of AAS were reported on participant mood, positive emotions, motivation, and satisfaction. There were mixed, but mostly positive, benefits of AAS on social behaviour, including both verbal and non-verbal communication outcomes, and participation. What are the practical and clinical implications of this work? These results suggest a potential therapeutic benefit for the inclusion of AAS into traditional modalities used by speech-language therapists with people with acquired neurogenic communication disorders. However, clinicians should view these findings with caution. Studies were often insufficiently or inconsistently reported, and a quality appraisal and meta-analysis of existing studies would be needed to draw clear conclusions on the effectiveness of AAS as a complementary approach for people with acquired neurogenic communication disorders.

Comparison of participation in out-of-school activities, activity preferences and quality of life of children with cerebral palsy and typical development

ABSTRACT The aim of this correlational study was to compare the participation in out of school activities, activity preferences, and quality of life (QoL) of children between 8 and 12 years of age with cerebral palsy (CP) (n = 30) and typical development (n = 60) in Turkey. Outcome measures included the Children’s Assessment of Participation and Enjoyment, Preferences for Activity of Children, and the Health-Related Quality of Life Questionnaire. Results suggest children with CP were at a disadvantage compared to their typically developing peers in participating in out-of-school activities, however they tended to report greater preference for these activities than their typically developing peers. Based on these findings, we recommended health professionals aim to increase the quality of life for clients with CP by including social participation as one component of rehabilitation.

Psychosocial Determinants for Self-Reported Health Status in Hemodialysis Patients: A Cohort Analysis of the CONVINCE Randomized Trial.

We investigated whether psychosocial determinants self-efficacy and social support are associated with Health-Related Quality of Life in hemodialysis patients enrolled in the CONVINCE trial. We used baseline data from the cohort of patients involved in the CONVINCE randomized trial of hemodiafiltration versus hemodialysis. Measures included age, gender, relationship status, children, housing, education, employment, comorbidities, dialysis schedules, time of first dialysis, residual kidney function, general self-efficacy and social support scores, and PROMIS measurements for health-related quality of life. Associations were analyzed using hierarchical regression. One thousand three hundred and sixty patients from CONVINCE were the cohort of interest. Mean age was 62±13.5 years (range 20-92), and 66.9% were men. Self-efficacy was a significant predictor for all health-related quality of life domains: depression (β = -0.36, p < 0.001), anxiety (β = -0.35, p < 0.001), social participation (β = 0.32, p < 0.001), cognition (β = 0.29, p < 0.001), fatigue (β = -0.29, p < 0.001), physical function (β = 0.27, p < 0.001), sleep disturbance (β = -0.23, p < 0.001), pain interference (β = 0.21, p < 0.001), pain intensity (β = -0.17, p < 0.001), interdialytic symptoms (β = -0.14, p = 0.002) and intradialytic symptoms (β = -0.14, p = 0.002). Social support was a significant predictor for cognition (β = 0.21, p < 0.001), sleep disturbance (β = -0.11, p = 0.017) and intradialytic symptoms (β =- 0.11, p = 0.02). Higher general self-efficacy scale scores are associated with improvements in cognition, depression, anxiety, social participation, fatigue, physical function, sleep disturbance, pain interference, interdialytic symptoms, pain intensity and intradialytic symptoms. Associations for self-efficacy are larger than those for social support and stronger than previously reported. It is plausible that targeted psychosocial interventions may improve health outcomes in people on hemodialysis.

Heatwaves and its impact on the depressive symptoms among Chinese community-dwelling older adults: examining the role of social participation

ObjectivesBased on the Environment-Person Fit Perspective, this study explores the relationship between heatwaves and subsequent depressive symptoms among older Chinese community dwellers. Additionally, the study investigates if this association varies among older adults with different levels of social participation. MethodsHeatwaves were defined as the frequency of occurrences where daily maximum temperature exceeded 35°C for 3 consecutive days. A sample including 7124 older adults aged 55 and above was selected from the 2018 China Health and Retirement Longitudinal Study. Depressive symptoms were measured by the 10-item Centre for Epidemiological Studies Depression Scale. Social participation was measured by volunteer participation and leisure participation. Multilevel fixed effect model was employed to investigate the temporal association between heatwaves and depressive symptoms, as well as the moderating effect of social participation. ResultsThis study found that older adults who had experienced a greater number of heatwaves presented more severe depressive symptoms (b = 0.66, p < 0.001). However, a high level of leisure participation buffered the effect of heatwaves on depressive symptoms (b = ̶ 0.52, p < 0.05). ConclusionsThis study highlighted the differential impact of heatwaves on mental health outcomes among older adults depending on their levels of social participation. Our findings provide valuable insights into designing an integrative heatwave adaption scheme that simultaneously focuses on temperature adjustment and social participation enhancement.

Association between different patterns of social participation and loneliness among the Chinese older people: is there a local-migrant gap?

BackgroundLittle empirical evidences were provided on the disparity in the level of loneliness between the migrant older with children (MOC) and their local counterpart in China. This study aimed to explore the association between social participation and loneliness and verify whether there was a local-migrant difference in this association.MethodsA total of 1332 older people (60 +) were included in this study with 656 MOC and 676 natives. Loneliness was assessed by the University of California Los Angeles Loneliness Scale with eight items (ULS-8). Social participation was evaluated by three kinds of social activities concerning sports activities, hobby activities and community resident interaction. Univariate analysis was conducted to compare the local-migrant disparity as well as the level of loneliness between different subgroups. Hierarchical multiple linear regression analysis was used to examine the proposed relationship and the moderating influence of migration status.ResultsThe average ULS-8 scores were 11.73 ± 4.02 for local subjects and 12.82 ± 4.05 for MOC respectively, indicating a lower level of loneliness among local older people. Participating in hobby activities (β = -0.092, P = 0.003) and interacting with residents (β = -0.216, P = 0.001) more frequently were related to lower level of loneliness while participating in square dancing was related to higher level of loneliness (β = 0.087, P = 0.001). The negative relationships between hobby activities as well as resident interaction and loneliness were more profound in migrants than natives.ConclusionsOnly two types of social participation could help alleviate loneliness. More attention to older migrants’ loneliness and extending the scale and types of social activities were recommended for policymakers.

Evaluation of "Age-Friendly City" Indicators in Golestan Province From the Perspective of the Older Adult Population

Objectives: To evaluate age-friendly city indicators from the perspective of the older adults in Golestan province in 2023. Design: A descriptive-analytical cross-sectional study. Setting(s): Golestan province, Iran. Participants: Individuals aged 60 years and above. Outcome measures: A sample of 310 participants was selected using proportional stratified sampling. Data were collected with a validated age-friendly city questionnaire. Results: The mean age of the participants in this study was 70.34±7.73 years (ranging from 60 to 99), with 64.5% being male. Among the three examined components, the component of respect and social security had the highest average among the older adults (4.65±17.72), followed by social participation (4.79±16.30) and civic engagement and employment (4.052±12.20). Agefriendly city indicators demonstrated statistically significant differences in variables such as city of residence (P=0.02), support source (P=0.009), income level (P=0.001), and marital status (P=0.05). Conclusions: None of the examined age-friendly city components in Golestan province met the necessary standards. Recommendations include enhancing efforts by service organizations to improve conditions for older adults.

ANALYZING INTERGENERATIONAL SOCIAL PERCEPTIONS IN AN ENERGY CLUSTER LOCATION

This article focuses on the multi-generational social analysis of a region in Mexico that represents an important energy cluster. In general, social participation in energy sector projects needs to be strengthened to increase regional competitiveness. Data collection was carried out through a representative sample survey. Important findings on social confidence and energy poverty were obtained, which serve as a starting point for the design of new competitiveness initiatives for the energy cluster.

96P The impact of losing the ability to sit to stand on social participation in people with dysferlinopathy: clinical outcome study for dysferlinopathy

96P The impact of losing the ability to sit to stand on social participation in people with dysferlinopathy: clinical outcome study for dysferlinopathy

Identification of relevant mental health indicators for European community-based health enhancing physical activity initiatives: An adapted Delphi study

Health enhancing physical activity (HEPA) initiatives can improve mental health; however there is a lack of standardised measures to evaluate mental health impact. This study aimed to identify the relevant indicators of mental health and well-being in community-based HEPA initiatives in Europe as determined by specialists and practitioners in the field, and understand assessment methods commonly used.An adapted, two round, Delphi method was conducted with N = 20 specialists (practitioners and academics) in the field of mental health and physical activity from Denmark, the Netherlands, the UK, and Ireland. Specialists selected the most important indicators and agreed consensus on definitions and operationalisation, where consensus ≥50% signified important indicators.Specialists compiled 66 (n = 21 outcome, n = 45 determinant) indicators. Top rated indicators for the evaluation of HEPA initiatives were self-rated mental health (69.2%), physical activity (69.2%) life satisfaction (53.8%), stress (53.8%), loneliness (53.8%), social participation, network, connection and support (53.8%). Consensus on definition and application of the nine indicators varied (44.4%–100%), with no consensus on a standardised measurement tool reached, although specialists pointed to the need for culturally sensitive measurement tools.While this study highlights a lack of conformity for evaluating mental health and wellbeing outcomes, it suggests utility in an agreed definition and application of nine indicators for the evaluation of HEPA initiatives, with social determinants of particularly high importance across the relevant contexts. Further research is recommended to develop guidance on pragmatic measurement tools that can be utilised across other (European) countries and their implementation tested.

Menstrual hygiene management among reproductive-aged women with disabilities in Bangladesh.

Women with disabilities in low- and middle-income countries face unique challenges in managing menstruation, affecting their health, dignity, and quality of life. This study aimed to explore menstrual hygiene management (MHM) practices among reproductive-aged women with disabilities in Bangladesh and its impact on social participation. We analyzed data from 51,535 women from the 2019 Multiple Indicator Cluster Survey (MICS). The outcome variables were: (i) material used to manage blood flow while menstruating (appropriate, inappropriate), (ii) availability of a private place for washing and changing menstruation rags (yes, no), and (iii) impact on attendance of social activities, school, or work during menstruation (yes, no). Disability status was considered as a major explanatory variable and categorized as no disabilities, moderate disabilities, and severe disabilities. Associations of outcome variables with explanatory variables were determined using a multilevel mixed-effects binary logistic regression model adjusted for individual-level factors, household-level factors, and community-level factors. Among the sample, 2.7% reported severe disability and 19.2% moderate disabilities, with vision-related disabilities (12.2%) being the most prevalent, followed by cognitive (9.5%) and walking disabilities (8.2%). Overall, 4% reported using inappropriate materials for menstrual flow, rising to 8.0% among those with severe disabilities and 5.8% for moderate disabilities. Women with moderate to severe disabilities had 33%-47% lower odds of using appropriate materials and 34%-44% lower odds of having a private place to change at home. Additionally, women with severe disabilities were 1.66 times more likely to report that menstruation impacted their social activities. Women with disabilities in Bangladesh face significant barriers to effective MHM. Addressing these issues requires targeted interventions, including disability-inclusive menstrual health education, improved access to menstrual products and sanitation facilities, and community initiatives to reduce stigma.

Pain Interference and Social Participation among Kidney Transplant Recipients

Pain Interference and Social Participation among Kidney Transplant Recipients

Current state of tourism services for tourists: a study in Hanoi City, Vietnam

Assessing tourist satisfaction has become a hot topic for tourism research in recent years. Many studies have shown that improving tourist satisfaction not only has a positive impact on service providers and destination reputation, but also increases tourist loyalty, lowers price elasticity, lowers future transaction costs, and increases production efficiency (Chen et al., 2012; Nguyen Trong Nhan et al., 2014). Some other studies have also shown that improving tourist satisfaction will stimulate word-of-mouth advertising (Ekinci, 2004; Gonzalez et al., 2007; cited by Chen et al., 2012). Therefore, assessing tourist satisfaction is very important, it helps to find out the existing problems, limitations or strengths of service quality from the perspective of tourists, thereby finding solutions to contribute to improving the ability to provide better and better services. Hanoi as the capital, the economic - political - social center of Vietnam. Therefore, the tourism - hotel industry not only attracts tourists but also diplomatic, business and economic - political - social event participants. Hanoi has great potential for tourism - hotel with hundreds of famous landscapes, historical and cultural relics, traditional craft villages, festivals. In terms of natural tourism resources, Hanoi is famous for Huong Tich as "Nam Thien De Nhat Dong". A series of lakes such as West Lake, Hoan Kiem Lake, Dong Mo, Suoi Hai, Quan Son, not to mention the potential of mineral water resources. Hanoi also has many scenic spots around the foot of Ba Vi mountain, creating branded eco-tourism resorts such as Ao Vua, Vua Ba, Khoang Xanh, Suoi Tien, Thac Da, Thac Nga, Ba Vi National Park, etc. Keywords: Satisfaction, Tourists, Service Quality.

Governance intricacies in implementing regional shared care records: A qualitative study in the national health service, England.

This study explores the governance intricacies in establishing a large-scale information infrastructure for integrated care within the National Health Service of England. By focusing on the initial 5years of a regional interoperability program, we examine the challenges and dynamics of creating a unified system across organizational boundaries. A longitudinal multi-methods approach was utilized, collecting data through interviews with health and social care personnel involved in project governance, meeting observations, and document analysis. This provided an in-depth understanding of the processes and challenges of developing the regional interoperability program. This study reveals a dynamic negotiation process and evolving governance structures that must continuously adapt to integrate diverse systems. Key findings include challenges in reconciling multiplicity and heterogeneity, the importance of social learning and stakeholder adaptation, and the role of ongoing negotiation and collaborative group construction in implementing interorganizational infrastructures. This study underscores the necessity of continuous adaptation and negotiation among stakeholders in establishing effective governance of integrated care infrastructures. Social learning and active participation play pivotal roles in overcoming the challenges associated with system integration. Strategic insights from this research can guide stakeholders in developing sociotechnical solutions for digital interorganizational infrastructures in integrated care.

Digitalization And Participation In Education: Opportunities, Challenges, And Initiatives In The Digital World

Background: Digitalization has become a central element in the transformation of the educational sector, offering opportunities to enhance the participation of students and educators while making access to education more equitable. However, this transition also presents significant challenges that must be overcome to ensure that all students can benefit from digital technologies. Materials and Methods: This article investigates the research perspectives and applications in the field of digitalization in education, focusing on initiatives that promote digital inclusion. The methodology employed followed a qualitative approach, adopting a literature review to critically analyze relevant works in the field. Results: The general objective of the study is to analyze the opportunities and challenges of digitalization in the educational sector, highlighting the participation of students and educators in this context and the initiatives that promote digital inclusion. Conclusion: In conclusion, this study reaffirms the relevance of digitalization in education as a promising pathway to increase social participation and foster meaningful learning. However, it is essential that educational policies are implemented in a way that addresses existing inequalities and ensures that all students have accessto the same opportunities.

An Inclusive Framework for Public Space: A Study of Design Strategies to Promote the Social Participation of People with Dementia

China has the largest and fastest-growing population of people with dementia in the world. It has become urgent to create environments in urban areas where these populations can live and thrive. This paper provides an in-depth case study of dementia activity centres and dementia cafes in public spaces in China. It highlights contemporary social issues, such as the lack of universal education and dementia-friendly spaces. Through an examination of these challenges from the perspective of the built environment, this paper proposes cognitively friendly design strategies at the levels of appearance and function. It also incorporates principles of inclusive design, together with a theoretical framework for the construction of the construction of cognitively dementia-friendly spaces. Finally, this paper explores these strategies from the perspectives of spatial transformation, people&amp;#39;s aspirations and social support.

The Role of Age-friendly City Indicators in Predicting Social Belonging in Older Adults Residing in Mohammadiyeh County, Qazvin, Iran

Objectives A strong sense of belonging is crucial for the physical and mental health of older adults and their social interactions. The age-friendly city offers various opportunities for social participation of older adults. The present study aims to determine the role of age friendly-city indicators in predicting social belonging of older adults residing in Mohammadiyeh County, Qazvin Province, Iran. Methods &amp; Materials This descriptive-analytical study was conducted on 300 older adults in 2022, who were selected by a cluster sampling method from six municipal districts of Mohammadiyeh County. Data were collected using a demographic checklist, an age-friendly city scale, and a social belonging scale. Data analysis was conducted in SPSS software version 23 using multivariate linear regression analysis. The significance level was set at 0.05. Results The mean age of participants was 67.55±6 years, ranging from 60 to 84 years. The majority of them were male (n=157, 52.33%), married (n=216, 72%), and illiterate (n=157, 52.33%). Among the age-friendly city indicators, the highest score was related to the safety/ease of transportation (16.86±4.51) and open public spaces (45.61±11.47) indicators. The results of multivariate regression analysis showed that marital status (β=-0.150, P=0.006), lower than high school education (β=0.170, P=0.003) and high school diploma (β=0.192, P=0.001), and the age-friendly city indicator of safety/ease of transportation (β=0.328, P&lt;0.001) were predictors of social belonging in older adults. Conclusion The majority of older adults in Mohammadiyeh County are dissatisfied with age-friendly indicators. Those who feel safe and have easy access to public transportation are more likely to have a stronger sense of social belonging. The results of this study can effectively help policymakers and city managers in proper planning in order to develop an age-friendly city.

Levels of Social Participation among Silver-Age Citizens and Factors of its Activation in the Region of Russia (Case of the Sverdlovsk Region)

Introduction. The quality of life of silver-age people is associated not only with psychological, economic and physical well-being, but also with the peculiarities of interpersonal relations and the diversity of their social activity. The widespread ideology of active or “delayed aging” actualizes the study of the nature of inclusion of elderly citizens in various practices of social participation that fill their daily lives. The aim of the study is to reveal the level characteristics of social participation of citizens of silver age in the Sverdlovsk Oblast and the factors that determine them. Materials and Methods. The article analyses the data from the survey of residents of the Sverdlovsk Region over the age of 60, the sample is structured by gender, age, and place of residence of the respondents (type of settlement). The authors’ survey method was used to determine the nature and frequency, level and type of social participation of the Urals elderly, to identify factors that contribute to or impede activity in old age. Results. The study showed that socio-consumer participation characterized by activities “for oneself” and collective participation aimed at social integration “together with others” constitute the main content of social participation of the studied cohort. The participation of the elderly in the practices aimed at helping and caring (“for others”) is significantly lower, and a radical decrease in the activity of the elderly Urals residents is revealed when they switch to “civic participation”. It has been proved that the intensity of social participation of silver-age citizens living in cities is higher than in rural areas. The only exception is participation in civic activities. The same influence on the intensity of the different practices of social participation at all levels is exerted by the status of residence (independent or in a residential institution), the presence of close relatives and the frequency of Internet use. Discussion and Conclusion. The identification of the levels and factors of social participation of older citizens creates an evidence base on the processes of active aging in a typical Russian region. The results of the study demonstrate the relevance of focusing regional social policy on aging and the non-profit sector on increasing the social participation of people and groups of the “silver” age. The article may be of interest to regional authorities, social protection and service institutions, the regional non-profit sector, offering tools for the development and implementation of effective social aging policies aimed at implementing resources and supporting the social participation of the older generation.

Advancing SDG 16 through political participation on social media: A Comparative Study of Social Capital between South Korea and the United States

The United Nations' Sustainable Development Goal 16 (SDG 16) aims to promote peaceful, inclusive societies and build effective, accountable institutions. Despite the growing influence of online media on political activities in the digital age and the increasing importance of achieving SDG 16 through political participation, there has been a lack of empirical research on this topic. This cross-cultural comparative study investigates the relationships among online communication, social capital, and political participation in South Korea and the United States. Online surveys were conducted in both countries, focusing on people's interest and trust in online communication, types of online social capital (bonding and bridging), and engagement in conventional and unconventional forms of political participation. Our findings underscore the pivotal role of social media as a platform for citizens to voice their political opinions and partake in democratic processes. We discovered a significant correlation between heightened interest and trust in online communication and increased political participation in both countries. This correlation is instrumental in achieving SDG 16.7, which advocates for inclusive and participatory decision-making. This study also highlights the nuanced differences in the relationship between online social capital and political participation. In South Korea, bridging online social capital is associated with unconventional political activities, whereas in the United States, bonding online social capital is linked to these forms of engagement. However, in both countries, participation in presidential elections is associated with bridging online social capital, providing a deeper understanding of the complex dynamics at play. The potential of social media to expand opportunities for citizens to participate in the political process and hold their governments accountable contributes to achieving SDG 16.6, which aims to develop effective, accountable, and transparent institutions. However, the study also serves as a reminder of the challenges posed by online polarization and misinformation. To fully realize the benefits of social media in promoting inclusive and sustainable social development, addressing these issues and fostering healthy online communities are essential.In conclusion, this study underscores the importance of promoting online communication and building robust online communities as key strategies for achieving SDG 16, engaging a wide range of stakeholders in the process of building a more equitable and sustainable future.

Sjögren’s disease, occupational performance and quality of life

Introduction: Sjögren’s disease is an autoimmune disease with dry eyes and mouth and chronic pain, more frequent in middle-aged women. The aim of this study is to understand the impact of Sjögren’s disease on quality of life and occupational health. Method: Quantitative and qualitative comparative study, with 20 Sjögren’s disease and 25 healthy controls. Questionnaires and interviews were applied to assess occupational performance, quality of life, mood disorders, and sleep. Results: The combined major diagnostic parameters for Sjögren’s disease (focus score and anti-SSA/Ro positivity) were present in 85% of the Sjögren’s disease group. There was a correlation between the sicca symptom measured by the European League Against Rheumatism Sjögren’s Syndrome Patient Reported Index (ESSPRI), anxiety, and depression measured by the Hospital Anxiety and Depression Scale (HADS; r = 0.56; p = 0.009), as well as fatigue measured by the Profile of fatigue and discomfort questionnaire (PROFAD) ( r = 0.78; p &lt; 0.0001). Sjögren’s disease patients reported a loss of physical abilities, sleep disturbance, change in mood, social and occupational participation, and lower quality of life. Conclusions: Sjögren’s disease patients have poorer quality of life, loss of competencies, and sleep disturbances compared to controls. Novel strategies are necessary to improve occupational health in SjD.