Social Dimensions Of Health Research Articles

Assessment of healthy lifestyle and wellbeing status among the employees of a tertiary care hospital

Background and Aims: Individual barriers to change in lifestyle include lack of proper knowledge particularly about nutrition and physical activity, lack of acceptance to change behaviour, lack of self-motivation and lastly physical and socioeconomic limitations. Methods: This is a prospective, questionnaire based study conducted at a tertiary care hospital between May and August of 2019. A total of 777 employees working at different professional levels were enrolled in to the study. All the enrolled employees were subjected to a detailed questionnaire consisting of various dimensions of health which includes physical health, mental health, social health, spiritual health and intellectual health dimension. Results: The mean age of the study group was 37.38 ± 9.74 years (range: 17-68 years). Among the participants, 42.1% are male and 57.9% are female. Most of the study participants are practicing moderate physical activity (67.6%). Current smokers and alcoholics are 2.1% and 9.3% respectively. Diabetes and hypertension was seen in 7.3% and 9.7% respectively. The overall wellbeing showed that 40.8% of the staff are having good wellbeing and 31.5% showed some wellbeing risks. Outstanding wellbeing score was observed in 22.9% and only in 4.8% showed serious health risks related to their wellbeing. Conclusion: The overall wellbeing in healthcare staff is good at our tertiary care hospital. Majority of the staff showing risks with regards to their physical wellbeing due to poor exercise practices and abnormal food intake behaviour. Joint family system was found to be a factor for better mental health wellbeing among healthcare staff. Practicing exercise, meditation, yoga and controlling abnormal food intake leads to further wellbeing improvement.

Contextualizing Future Health: A Parent and Resident Discuss Down Syndrome.

When I saw an e-mail with the subject line “Pediatric Resident Interested in Down Syndrome,” I was intrigued but skeptical. As the parent of Henry, an 11-year-old with Down syndrome, I look for opportunities to learn about the latest research and health care recommendations, but I am also wary of medical approaches that diminish the personhood of people with intellectual disabilities. I was pleasantly surprised to find that the sender was less interested in etiology or treatments for Down syndrome than in studying the social dimensions of health. She had read an article I wrote about my son’s love of the Muppets. In the vibrant world he shares with the Muppets, Henry finds comfort and a sense of belonging; there is no disability because nobody is perfect, and difference is the norm.1 This resident realized the value of looking at patients as individuals embedded in families and lived environments, and she wanted to treat my son and me (his mother but also an English professor with a long-standing interest in disability culture) as collaborators rather than as research subjects. This was the promising beginning of my ongoing dialogue with Katharine Press Callahan, a small portion of which is represented below. As a pediatric resident pursuing neonatology, I have often wondered about the lives of patients beyond the NICU and what genetic findings can and cannot foretell about patients’ futures. Teaching about Down syndrome centers on acute health concerns, but we receive little information about living with disabilities during medical education. We learn that Down syndrome is caused by trisomy of the 21st chromosome, with consequences that … Address correspondence to Katharine Press Callahan, MD, Division of Neonatology, Children's Hospital of Philadelphia, 3401 Civic Center Blvd, 2NW53, Philadelphia, PA 19104. E-mail: kpresscallahan{at}gmail.com

HIV prevention cascade theory and its relation to social dimensions of health: a case for Nigeria.

BackgroundNigeria has the second largest HIV epidemic in the world and one of the highest rates of new infection in sub-Saharan Africa. Within the last three decades, majority of HIV programs in Nigeria were treatment strategies with few prevention approaches. The persistence of HIV prevalence despite the treatment blueprint has led to a concerted call to HIV Prevention Cascade (HPC) theory which ensures continuous sophisticated interrelationship that stretches beyond the biomedical interventions of treatment. To our knowledge, there is no previous review on HPC theory in Nigerian context.ObjectivesThe aim of this review was to explore and outline the HIV/AIDS prevention cascade theory in relation to the achievement of the global 90-90-90 target set by the United Nations Programme on HIV and AIDS and suggest possible avenues to maximize on strengths and weaknesses of HPC in Nigeria.MethodsIn this mini-review, the authors utilized standardized search measures in the review of published articles in credible domains across the HPC in PubMed, Research gate, Google Scholar, Mendeley Reference Manager and Cochrane Library from January 1980 to December 2018. Referenced sections of the articles identified were used to hand-search additional references not retrieved by the initial search engines. The authors performed an evaluation of selected studies on three cascade theories: epidemiological, behavioral and social science with an integration of the supply, demand and adherence sides.ResultsWe included nine review articles reporting three different cascade theories. Only one included study applied the cascade theories exclusively in Nigerian context. We could only conduct narrative synthesis.ConclusionThere is scarceness of currently published evidence on HPC in Nigerian context. HPC allows for a paradigm shift and sequential process of events to eliminate the epidemic of HIV using HIV prevention perspectives in Nigerian settings. Since data are sparse, more research is needed on HPC theory.

Studi Epidemiologi Kualitas Hidup Penderita Paska Stroke di RSUD Propinsi Nusa Tenggara Barat

troke is a leading cause of mortality and morbidity in Indonesia. Post stroke patients has a higher disability hence results in poor quality of life compared with normal population. In Indonesia, studies related to the quality of life of post-stroke patients are scarce, so studies are required to explore the quality of life of post-stroke patients, particularly in West Nusa Tenggara. Aim of this study is to determine the epidemiology of quality of life for post-stroke patients in West Nusa Tenggara. Methods of this study is An Observational with cross-sectional design was performed in population of post-stroke patients admitted to West Nusa Tenggara General Hospital. The quality of life of post stroke patient was evaluated with SSQOL (Stroke Specific Quality of Life) questionnaire. The collected data was analyzed by the appropriate test. Result of this study is the average age of subject is 60.33±10.68 years. Hypertension is a major risk factor of stroke. The average SSQOL score is 177.02±45.75. SSQOL assesses 4 dimension are physical, functional, psychological and social health. Based on the physical dimension, the average score is 17.00, the functional dimension, the average score is 14.91, the psychological dimension, the average score is 13.17 and the social health dimension the average score is 13.44. The quality of life for post-stroke patients in West Nusa Tenggara General Hospital is good.

Evaluasi Indeks Ketahanan Sosial Sebagai Bagian Dari Penerapan Program Indeks Desa Membangun di Kabupaten Ogan Ilir

Building Villages Index (IDM) has become a relatively new form of the program implemented by the government to find out the extent of village capacity development. One of the variables measured in IDM is Social Resilience Index (IKS) which is the main topic in this paper. The theoretical assumption applied is the measurement of social security in villages through IKS which is commonly carried out only on a nominal measurement scale, while IKS in this study was measured on an interval measurement scale to produce a gradual outcome of village social resilience. This study was conducted using a quantitative design by measuring the four dimensions of IKS in Lorok Village, Ogan Ilir Regency. Descriptive analysis and univariate analysis are part of the statistical calculations performed. The results again that only one out of 4 dimensions of IKS obtained the high-level category, namely the educational dimension. While the dimensions of social capital, health, and settlements only reached into the medium category. The following result shows that the level of achievement for the overall Social Resilience Index Variable is moderate, with a percentage of achievement of 57.79%

Collective health and regional integration in Latin America: An opportunity for building a new international health agenda

ABSTRACTFrom its origins, the Latin American Social Medicine and the Collective Health (LASM/CH) movements have focused on thinking about health from and for the region. After the implementation of neoliberal policies, social improvements and the geopolitical strengthening of the region became the roots of new regional integration projects in South America. The objective of this article is twofold. First, we explore the legacy of long-standing efforts in the region that address the social and political dimensions of health, associated with the LASM/CH movements and their influence on the contemporary regional health agenda. Second, we analyze the UNASUR Health policy, its role in the construction of a regional health agenda, and the principles of South-South cooperation it supports. In order to accomplish this, a qualitative analysis was conducted, involving primary and secondary data. Through UNASUR, a new framework of regional health integration and regional health diplomacy emerged in South America and a ‘window of opportunity’ opened for the ideas of Social Medicine and Collective Health to occupy a dominant place on the regional health agenda. It is possible to observe a confluence between the principles and values of these movements and those of the main constituent bases of UNASUR Health.

Implications of the Ebola virus disease outbreak in Guinea: Qualitative findings to inform future health and nutrition-related responses.

IntroductionDue to the close relationship between EVD and nutrition, the humanitarian community implemented various nutrition-specific and -sensitive interventions to stem the Ebola Virus Disease (EVD) outbreak in West Africa. Little, however, is known about stakeholder and community members’ perspectives toward this response in Guinea. Therefore, we aimed to firstly understand how EVD may have influenced the nutrition situation; and secondly to assess the perceived acceptability and effectiveness of the nutrition response.Materials and methodsUsing 27 in-depth interviews conducted in April–May 2016, this descriptive, qualitative study had three iterative phases in an emergent design. Phase 1 explored the perceptions of 11 high-level policy and management staff. Phase 2 assessed the views of 16 community members, survivors, and front-line workers. Phase 3 compared the qualitative findings to relevant nutrition indicators from secondary data for final interpretations. A systematic, team-based coding approach using Dedoose software identified key themes during textual analysis.ResultsOverall, several plausible pathways through an interrelated network of bio-social factors help describe EVD impacts on the nutrition situation of Guinea. At a basic level, complex social dimensions of health, response unpreparedness, and market disruptions were perceived to be major determinants affecting the nutrition situation, especially among IYC. At an underlying level, household food security was negatively impacted, along with weakened care-seeking practices, IYC feeding practices, and coping strategies. Consequently, treatment coverage for childhood illnesses and IYC diets were negatively impacted during the outbreak. In hindsight, most participants had positive perceptions toward the overall EVD response, but described salient considerations for improving upon this nutrition response during future outbreaks.DiscussionThis study highlighted the complex web of inter-related factors through which EVD was perceived to impact the nutrition situation in Guinea. Considering the multi-level social and behavioral dimensions of health and nutrition is critical for effectively responding to infectious disease outbreaks.

Transition in Adolescents: a Study on Changes in Social Cohesion

Human growth begins with conception and developed through different unique stages and ends with death. Each stage has its own characteristics. Adolescent period is also one of such unique period in Human Growth. Even though there are development in physical health of adolescent during these decades mental health of adolescent is not marked such evidential growth in overall mental health. Since Adolescent period is the important and crucial period of moulding mental health. Department of Health, Republic of South Africa in 2001 mentioned four dimensions of adolescent mental health. They are mental, emotional, social and spiritual. The study primarily focuses on the social dimension of adolescent mental health.

Proposta de indicadores de desenvolvimento socioeconômico e ambientalmente/ecologicamente sustentável – o IDHA e o IDHE

Este artigo visa propor o desenvolvimento de dois indicadores que incorporem a perspectiva sustentável em seu arcabouço metodológico, a partir da inclusão de uma dimensão ambiental/ecológica, conjuntamente às demais dimensões tradicionais do desenvolvimento humano (padrão de vida, expectativa de vida e acesso ao conhecimento), de modo a verificar a importância que essa métrica ambiental reflete nas análises de um desenvolvimento ampliado, preenchendo uma lacuna deixada pelos indicadores tradicionais, os quais não consideram a dimensão ambiental como parte integrante do instrumental analítico. A inclusão de tal dimensão é extremamente relevante na análise do desenvolvimento e sustentabilidade, já que tem um impacto direto na qualidade de vida das populações. Para tanto, propõe-se a quantificação ambiental através de dois índices: o Índice de Qualidade Ambiental e a Pegada Ecológica (Ecological Footprint), que verificam aspectos da qualidade do meio ambiente assim como aspectos biofísicos. Em seguida, incorporar-se-á tais índices ambientais às dimensões econômica (renda per capita) e social (educação e saúde), permitindo identificar o nível de desenvolvimento humano de uma determinada localidade. Os resultados do estudo permitem analisar o nível de qualidade ambiental, assim como permitem indicar o nível de desenvolvimento humano, mostrando a essencialidade da dimensão ambiental na construção de indicadores de desenvolvimento, principalmente de caráter sustentável, podendo este apresentar-se como um fator que reduz ou aumenta o nível do desenvolvimento de uma localidade quando comparada com outras distintas, possibilitando análises comparativas pelo método de ranking ou pela estimação de impacto através de modelagem econômica-ambiental.

A review on healthy ageing interventions addressing physical, mental and social health of independent community-dwelling older adults

Healthy ageing is a multi-dimensional concept which appertains to all older adults. This study reviewed the intervention characteristics, intervention content and effectiveness of multi-dimensional healthy ageing interventions (MHAIs) addressing physical, mental and social health among independent community-dwelling older adults. A search was conducted in PubMed, CINAHL, Embase, Scopus, and PsycINFO for studies published from Jan 2007 to October 2016. 18 publications were included, accounting for 15 studies. The review reflected the complexity, variations and methodological considerations of developing a comprehensive MHAI. It demonstrated the possibility of integrating person-focused to environment-focused content topics in future MHAIs, beyond the physical, mental and social health dimensions. Among the reviewed studies, health education programs reported improvements in quality of life and life satisfaction while health assessment and education programs promoted positive health behaviors. Future MHAIs studies need to employ more robust research methods and greater contextual information reports to build stronger evidence base.

The psychosocial diagnosis of gender in public health: propos and application through a case study

Abstract In this article, we present the development of a methodological diagnostic tool for the field of public health from an interdisciplinary perspective that articulates the biological, psychological, and social dimensions of human health from a post-structuralist and feminist perspective and epistemology. In prior research, we have developed a methodology for the study of chronic pain without an organic cause, or fibromyalgia (FM), that we call the psychosocial diagnosis of gender. That work addresses the analysis of the research object itself and, above all, a critical reconceptualization of health in general. We have also used qualitative fieldwork methods (life stories, discussion groups, and documentary material) in our study of people diagnosed with FM. Here, we present the actual tool we use in the Psychosocial Diagnosis of Gender, using a case study that enacts a displacement of the clinical diagnosis of FM towards its articulation with the psychosocial diagnosis of gender.

Integrating the social, hydrological and ecological dimensions of freshwater health: The Freshwater Health Index

Degradation of freshwater ecosystems and the services they provide is a primary cause of increasing water insecurity, raising the need for integrated solutions to freshwater management. While methods for characterizing the multi-faceted challenges of managing freshwater ecosystems abound, they tend to emphasize either social or ecological dimensions and fall short of being truly integrative. This paper suggests that management for sustainability of freshwater systems needs to consider the linkages between human water uses, freshwater ecosystems and governance. We present a conceptualization of freshwater resources as part of an integrated social-ecological system and propose a set of corresponding indicators to monitor freshwater ecosystem health and to highlight priorities for management. We demonstrate an application of this new framework —the Freshwater Health Index (FHI) — in the Dongjiang River Basin in southern China, where stakeholders are addressing multiple and conflicting freshwater demands. By combining empirical and modeled datasets with surveys to gauge stakeholders' preferences and elicit expert information about governance mechanisms, the FHI helps stakeholders understand the status of freshwater ecosystems in their basin, how ecosystems are being manipulated to enhance or decrease water-related services, and how well the existing water resource management regime is equipped to govern these dynamics over time. This framework helps to operationalize a truly integrated approach to water resource management by recognizing the interplay between governance, stakeholders, freshwater ecosystems and the services they provide.

Useful life lessons for health and well-being: adults’ reflections of childhood experiences illuminate the phenomenon of the inner child

ABSTRACT Purpose: The aim of this study was to describe and gain more knowledge about the phenomenon of the inner child in relation to health and well-being reflected in events during childhood experienced by adults. Method: In this hermeneutical phenomenological study, 20 adults, 10 men and 10 women aged 22–68, were interviewed. Results: The analysis of the data illuminated the phenomenon of the inner child in one theme: Gaining useful life lessons through childhood experiences, made up by four sub-themes: Sharing relationships, playing to heal, being strong or frail and supporting the next generation. Conclusion: The participants’ experiences of events during childhood were illuminating the phenomenon of the inner child as promoting or hindering health and well-being and impact human adaptation throughout life. Our findings indicate that the participants learned useful life lessons suggesting that experiences during childhood can help us to adapt across the life span and over generations, and this is the essence of the inner child. Our findings also contribute to the health literacy discussion and detail how knowledge and action competency is developed in mental, social and existential dimensions of health and well-being.

A Descriptive Study to Assess the Quality of Life in ESRD (End Stage Renal Disease) Patients Undergoing Hemodialysis in Selected Hospital of Mohali, Punjab

ESRD is one of the chronic diseases causing high level of disability in different domains of the patient's life. The experience of multiple losses, including kidney functions, family role, work role, sexual function, time and mobility impact significantly on the lives of these patients. So the present study was conducted to assess the quality of life in the end stage renal disease patients undergoing hemodialysis. Quality of life determines the effectiveness and outcome of different treatment method. According to the WHO, quality of life is define as the general perception of individual toward different aspects of life including the dominant culture, value system, goal and achievements, expectations, standards and priorities. The objectives of the present study were to (i) assess the quality of life in ESRD patients undergoing hemodialysis with references to their physical, psychological, social and environmental health dimensions and (ii) associate the quality of life in ESRD patients undergoing hemodialysis with selected socio-demographic variables. The study was conducted at Silver Oaks Hospital phase 9 Mohali. 50 ESRD patients were recruited for the study using convenient sampling technique. Quantitative research approach and non-experimental descriptive design was used. Pretested and validated modified WHO BREFF questionnaire was used to collect the data. The findings of the study revealed that majority (60%) of research participants had poor quality of life followed by (40%) who had very poor quality of life. It also concluded that quality of life in ESRD patients undergoing hemodialysis had no statistically significant association with any of the socio demographic variables.

Social dimensions of health across the life course: Narratives of Arab immigrant women ageing in Canada.

The increase in ethnically and linguistically diverse older adults in Canada necessitates attention to their experiences and needs for healthy ageing. Arab immigrant women often report challenges in maintaining health, but little is known about their ageing experiences. This interpretive descriptive study uses a transnational life course framework to understand Arab Muslim immigrant women's experiences of engaging in health-promoting practices as they age in Canada. Women's stories highlight social dimensions of health such social connectedness, social roles and social support that are constructed and maintained within different migration contexts across the life course. Barriers and facilitators to healthy ageing in this population centred around five themes: (i) the necessity of staying strong, (ii) caring for self while caring for others, (iii) double jeopardy of chronic illnesses and loneliness, (iv) inadequate support within large social networks and (v) navigating access to health-supporting resources. The findings point to transnational connections and post-migration social support as major influencers in creating facilitators and barriers to healthy ageing for Arab Muslim immigrant women.

The Impact of Injury on Health-Related Quality of Life in College Athletes.

Health-related quality of life (HRQOL) is a broad term for the impact of injury or illness on physical, psychological, and social health dimensions. Injury has been associated with decreased HRQOL in athletes. However, the influence of injury history, participation status, time since last injury, and injury severity on HRQOL remains unclear. To compare HRQOL in collegiate athletes based on injury history, participation status, time since last injury, and injury severity and to examine relationships between HRQOL outcomes. Cross-sectional. 3 National Collegiate Athletic Association (NCAA) institutions. 467 collegiate athletes (199 males, 268 females; 19.5 ± 1.3 y, 173.9 ± 10.5 cm, 71.9 ± 13.6 kg) were recruited from NCAA Division I (n = 299) and Division III (n = 168) institutions. Athletes were included regardless of participation status, which created a diverse sample of current and past injury histories. During a single session, participants completed an injury history form, the Disablement in the Physically Active Scale (DPA), and the Fear-Avoidance Beliefs Questionnaire (FABQ). Dependent variables included DPA-Physical Summary Component (DPA-PSC), DPA-Mental Summary Component (DPA-MSC), and FABQ Scores. HRQOL differences were detected between groups based on injury history, participation status, and time since last injury. No differences were detected for injury severity. A moderate correlation was identified between the DPA-PSC and FABQ (rs = 0.503, P < .001) and a weak relationship was identified between the DPA-MSC and FABQ (rs = 0.266, P < .001). Injury negatively influenced HRQOL in athletes with a current injury. While those individuals participating injured reported better HRQOL than the athletes sidelined due to injury, deficits were still present and should be monitored to ensure a complete recovery. Identifying the patient's perception of impairment will help facilitate evidencebased treatment and rehabilitation strategies that target the physical and psychosocial aspects of health.

The Social and Cultural Dimensions of Health as a Research Agenda: Establishing the Need for a Research Interest Group (RIG)in Social Medicine

<p class="Body"><em>&quot;Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity. The enjoyment of the highest attainable standard of health is one of the fundamental rights of every human being without distinction of race, religion, political belief, economic or social condition.&quot;)</em> <p class="Body"><em>-Constitution of the World Health Organization</em> <p class="Body">The terms <em>&quot;health inequities,&quot; &quot;health disparities,&quot; </em>and<em> &quot;health inequalities&quot;</em> reflect the magnitude of differences in health outcomes existing in populations unless we address the underlying causes of disease and I&#39;ll health. In the Philippines, Kalusugang Pangkalahatan (KP) or Universal Health Care (UHC) is the health reform agenda of the Aquino administration which has been implemented by the Department of Health (DOH) since 2011.

Local professionals\u2019 perceptions of health assets in a low-SES Dutch neighbourhood: a qualitative study

BackgroundAsset-based approaches have become popular in public health. As yet it is not known to what extent health and welfare professionals are able to identify and mobilise individual and community health assets. Therefore, the aim of this study was to understand professional’s perceptions of health and health assets.MethodsIn a low-SES neighbourhood, 21 health and welfare professionals were interviewed about their definition of health and their perceptions of the residents’ health status, assets available in the neighbourhood’s environment, and the way residents use these assets. A Nominal Group Technique (NGT) session was conducted for member check. Verbatim transcripts of the semi-structured interviews were coded and analysed using Atlas.ti.ResultsThe professionals used a broad health concept, emphasizing the social dimension of health as most important. They discussed the poor health of residents, mentioning multiple health problems and unmet health needs. They provided many examples of behaviour that they considered unhealthy, in particular unhealthy diet and lack of exercise. Professionals considered the green physical environment, as well as health and social services, including their own services, as important health enhancing factors, whereas social and economic factors were considered as major barriers for good health. Poor housing and litter in public space were considered as barriers as well. According to the professionals, residents underutilized neighbourhood health assets. They emphasised the impact of poverty on the residents and their health. Moreover, they felt that residents were lacking individual capabilities to lead a healthy life. Although committed to the wellbeing of the residents, some professionals seemed almost discouraged by the (perceived) situation. They looked for practical solutions by developing group-based approaches and supporting residents’ self-organisation.ConclusionsOur study shows, firstly, that professionals in the priority district Slotermeer rated the health of the residents as poor and their health behaviour as inadequate. They considered poverty and lack of education as important causes of this situation. Secondly, the professionals tended to talk about barriers in the neighbourhood rather than about neighbourhood health assets. As such, it seems challenging to implement asset-based approaches. However, the professionals, based on their own experiences, did perceive the development of collective approaches as a promising direction for future community health development.

Quality of Life in Childhood Epilepsy in pediatric patients enrolled in a prospective, open-label clinical study with cannabidiol.

Recent clinical trials indicate that cannabidiol (CBD) may reduce seizure frequency in pediatric patients with certain forms of treatment-resistant epilepsy. Many of these patients experience significant impairments in quality of life (QOL) in physical, mental, and social dimensions of health. In this study, we measured the caregiver-reported Quality of Life in Childhood Epilepsy (QOLCE) in a subset of patients enrolled in a prospective, open-label clinical study of CBD. Results from caregivers of 48 patients indicated an 8.2±9.9-point improvement in overall patient QOLCE (p<0.001) following 12weeks of CBD. Subscores with improvement included energy/fatigue, memory, control/helplessness, other cognitive functions, social interactions, behavior, and global QOL. These differences were not correlated to changes in seizure frequency or adverse events. The results suggest that CBD may have beneficial effects on patient QOL, distinct from its seizure-reducing effects; however, further studies in placebo-controlled, double-blind trials are necessary to confirm this finding.

Status investigation of information needs in patients undergoing hematopoietic stem cell transplantation

Objective To investigate the unmet information needs and similarities and differences of degree and dimension among patients undergoing hematopoietic stem cell transplantation (HSCT) with different characteristics so as to provide scientific evidences for those patients. Methods A total of 93 patients undergoing HSCT in laminar flow cabin were studied using normal information and INAS questionnaires. The associations of different characteristics and information needs as well as their dimensions were analyzed using Poisson linear regression models. Results Levels of information needs of patients undergoing HSCT in laminar flow cabin ranged from middle to high, among which female patients and patients with high incomes were high-risk groups of information needs. Patients without religious beliefs had more needs for disease diagnosis than those with religious beliefs. Non-malignant hematological patients had more needs for physical health dimension and social health dimension than malignant hematological patients. Conclusions HSCT patients in laminar flow cabin have high levels of information needs. It indicates that individually information support based on personal characteristics and differences is necessary and important. Key words: Hematopoietic stem cell transplantation; Information needs; Information support