Qualitative Data Sets Research Articles

Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3-13.

This work describes a secondary analysis of a qualitative data set originally used to understand parent participants' preferences for the design and implementation of a screening programme for paediatric Type 1 diabetes (T1D). From this, their spontaneous preferences for peer support emerged, described here in the context of existing peer support programmes for the newly diagnosed alongside suggestions for their incorporation into screening programmes for T1D and a range of other conditions. Data were collected from semi-structured interviews conducted with parents of children aged 3-13 years to explore their expectations, perceptions and preferences of a T1D paediatric screening programme. A secondary analysis of interviews from participants who spontaneously raised preferences for peer support was used to populate a novel framework informed by NHS England's key principles for the same, namely, Shared experiences and reciprocated support, Accessibility and inclusivity and Person-centred and integrated peer support. Parents in 29 of 33 interviews spontaneously described the potential value of peer support if receiving a result indicating a positive (presymptomatic T1D result) from a screening programme. Specifically, the value of 'Shared experiences and reciprocated support' in terms of emotional support and reassurance, and access to more directly interpretable and relevant information related to the condition; 'Accessibility and inclusivity' relating to access to a community of similar individuals, whether in person or online; 'Person-centred and integrated peer-support' and the need for support reflecting the changing need of the child and the integration of peer support with clinical care. The needs of peer support described by parents involved in T1D paediatric screening appear to be shared with those of families with children diagnosed with a range of life-altering conditions. Although the needs of peer support for paediatric screening may differ across conditions, our findings are a valuable starting point for its design both in T1D and other examples of similar population screening programmes. Patients and the public have been involved throughout the design of the ELSA study and have worked with us to inform the study process. They contributed to the design and content of patient-facing materials, the content of our topic guides and the analysis and interpretation of our findings.

Medical X-ray images enhancement based on super resolution convolution neural network

<p>Pneumonia is a severe lung infection, chest X-ray (CXR) image preferred to find infection. Real images lost its quality, resolution and other feature due to transmission. So good qualitative datasets are very limited. Quality enhancement in medical images is challenging task for researchers. And quality in clinical diagnosis of any disease in deep learning play a very important role. So, this paper presents an aspect with importance of quality in medical images CXR of a particular dataset and how to enhance and create new images with high quality resolution, that is re-used for classification in deep learning. Super resolution convolutional neural netwok (SRCNN) is deep learning based method, which is used for improving resolution in image. Super resolution means low resolution (LR) images from dataset is to be reconstructed or magnified into high resolution (HR). The objective behind this study is to measure the effect of super resolution with quality index, peak signal-to-noise ratio (PSNR), mean squared error (MSE), and structural similarity index measure (SSIM). This experinment performed on 200 images with 10 batches, each batch has 20 images from Kermany dataset, select LR images and converted into HR with SRCNN. Then we find PSNR value of image is increase upto 2 to 5 DB, and MSE of qood quality images is near to zero and MSE decrease up to 20-25, SSIM value have little variation due to same pattern is found in input and output images. Enhancement means highlight or improve the region of interest of pneumonic images. Main goal of this study is to preapare a modified dataset which is further used for classification.</p>

Managing Brand Relationship Plurality: Insights From the Nonprofit Sector

The nonprofit sector is home to some of the most recognized and trustworthy brands, all competing for financial resources and volunteers. Akin to consumers, volunteers have relationships with nonprofit brands. These relationships have recently become more diverse as individuals increasingly look for more ephemeral and distant forms of involvement. Drawing on an extensive qualitative dataset of the Vienna Red Cross comprising participant observation, archival data, and in-depth interviews, the authors conceptualize this nonescalating, episodic engagement as a neither-growing-nor-fading (NGNF) relationship. This theorization adds to the literature on consumer–brand relationships, which has predominantly focused on the cultivation of strong relationships. Informed by practice theory, the authors elaborate distinct brand relationship practices key to successfully maintaining NGNF relationships (acquiring and activating) while catering to volunteers following the traditional path of relationship intensification (building and cultivating). The analysis identifies constellations of practice elements conducive to managing both types of brand relationships in a symbiotic manner. The authors argue for the importance of moving beyond an exclusive focus on relationship growth and embracing nonescalating relationships. This study thus contributes to nascent theorizing on brand relationships that do not follow an axiology that values growth and intensification.

Technology Use for Home-Based Stroke Rehabilitation in Switzerland From the Perspectives of Persons Living With Stroke, Informal Caregivers, and Therapists: Qualitative Interview and Focus Group Study.

Stroke is a leading cause for long-term disability, requiring both inpatient and outpatient rehabilitation and self-training in the home environment. Technology-based tools are gradually gaining acceptance as additional and suitable options for extending the rehabilitation process. While the experiences of persons living with stroke, therapists, and informal caregivers with respect to technology use have already been investigated in other countries, this topic is underexplored in the Swiss context. We aimed to explore the experiences and needs of persons living with stroke, informal caregivers, and therapists in using technology-based tools in a home environment for stroke rehabilitation in Switzerland. This study followed a qualitative descriptive methodology, including semistructured interviews and focus group discussions. We applied a deductive template analysis alongside the accessibility, adaptability, accountability, and engagement framework to analyze the qualitative data sets for technology-assisted solutions for poststroke rehabilitation. We collected the experiences and needs of persons living with stroke (7/23, 30%), informal caregivers (4/23, 17%), and therapists (occupational and physical therapists; 12/23, 52%). The 4 categories we used to organize the analysis and results were accessibility to quality rehabilitation, adaptability to patient differences, accountability or compliance with rehabilitation, and engagement with rehabilitation. Persons living with stroke stated that they use various tools within their rehabilitation process depending on their specific needs. They felt that there is a plethora of tools available but sometimes felt overwhelmed with the selection process. Informal caregivers indicated that they generally felt underserved and insufficiently informed throughout the rehabilitation process. They reported that they use technology-based tools to support their relatives affected by stroke in becoming more independent. Therapists appreciate the numerous possible applications of technology-based tools in rehabilitation. At the same time, however, they express dissatisfaction with the lack of clarity in Switzerland regarding cost coverage, recommendations, and training opportunities. Persons living with stroke, informal caregivers, and therapists in Switzerland reported varied and unique experiences and needs with the use of technology-based tools in outpatient stroke rehabilitation. Written recommendations, the assumption of financial costs, and the provision of information and education could foster increased confidence in the use of technology-based tools for patients and therapists.

“Male athletes play well to feel good, and female athletes feel good to play well”: Attitudes, beliefs, and practices pertaining to perceived sex-related differences in communication and interpersonal approach of strength and conditioning coaches in international women’s rugby union

ABSTRACT Effective communication and rapport building with athletes are key tenets of coaching. As the majority of empirical evidence to date has adopted an androcentric view of strength and conditioning, a potential knowledge gap exists regarding sex-related differences in physical preparation and coaching approaches. Therefore, this study explored the attitudes, beliefs and practices of strength and conditioning coaches (n = 8; M/F, 6/2) in elite level (international) women’s rugby union using semi-structured interviews (mean ±standard deviation duration 59 ± 15 min). The interviews explored differences in coaching practices for elite female rugby players compared to males, with a specific focus on the interpersonal aspects of the athlete-coach relationship. Reflexive thematic analysis was used to generate a rich qualitative dataset. The analysis resulted in the identification of higher order themes: athlete engagement, and interpersonal approach. The coaches in this study consistently perceived important differences between male and female players in factors related to engagement and interpersonal approach. Coaches adopted differing coaching practices for male and female athletes. This study provides important contextual evidence for the understanding of differences in the interpersonal relationships of female rugby players compared to male athletes from the perspective of elite-level strength coaches.

The Impact of Structural and Meso-Level Factors on Caregiver Coping Abilities When Supporting a Child with Cancer: A Qualitative Study.

Family caregivers of children diagnosed with cancer often experience periods of significant stress. We provide an in-depth examination of the impacts of structural (health care and leave policies) and meso-level (organizations and communities/social networks) factors on caregiver coping during childhood cancer treatment. We conducted a secondary analysis of a comprehensive qualitative dataset examining the impacts of structural and meso-level factors on caregiver coping from in-depth, semi-structured interviews with 49 caregivers representing 38 unique cases of childhood cancer. Using a modified grounded theory approach, transcripts were analyzed using inductive thematic analysis. Caregivers experienced multiple and often intersecting structural and meso-level factors, both facilitating and impeding their ability to cope during their child's cancer treatment. Our analysis revealed the following themes: having few out-of-pocket medical expenses, access to paid time off from employment, and support from one's health system, organizations, or community/social networks fostered caregiver coping. Significant financial burdens due to cancer treatment, having to take unpaid leave from employment, remaining employed regardless of one's circumstances, and lack of support from one's health system, organizations, or community/social networks hindered caregiver coping. Our findings point to several policies that may ease caregiver burden and facilitate caregiver coping during childhood cancer treatment.

Why and How Consumers Perform Online Reviewing Differently

Abstract Reviewing products and services is a widespread consumer activity in which millions engage. Why and how do consumers review differently from one another? Prior work assumes that consumers commonly understand what reviewing is. Consequently, it attributes differences in reviewing to individual variations in psychological, motivational, and sociodemographic characteristics, consumption experiences, and expertise. This central assumption is problematic because it fails to consider that differences in how consumers understand reviewing may explain why they approach and perform reviewing differently. To address this gap, we analyze a large qualitative dataset composed of reviews and interviews with their authors. Our insights complement prior work by theorizing the sociocultural shaping of reviewing. We answer why consumers review differently by inductively theorizing the concept of reviewing orientation—a cultural model comprising a set of interconnected characteristics that shapes how consumers review and translates into a distinct reviewer voice—a reviewer’s standpoint expressed within a review. We answer how consumers review differently by developing three reviewing orientations: communal sharing, systemic evaluation, and competitive punditry. Finally, we discuss the transferability of the findings, the role of institutional dynamics in reviewing, and recommendations for online review platforms and marketers.

Co-designing of a prototype mobile application for fetal radiation dose monitoring among pregnant radiographers using a design thinking approach.

This study aimed to develop a prototype mobile application to enhance fetal dosimetry among pregnant radiographers in #### through a design thinking approach. Eleven participants were recruited to engage in a participatory design workshop, which encompassed five stages: Empathise, Ideate, Define, Prototype and Test. The participants were divided into two teams. Qualitative datasets from the workshop included field notes and FIGMA screens. The data were analysed through thematic analysis, from which three major themes emerged: (1) Unsafe working environments for pregnant radiographers, (2) The need for enhanced fetal radiation dose monitoring by pregnant radiographers as an occupational health and safety requirement, and (3) Co-designing of the prototype mobile application, PregiDose. The participants contributed towards a prototype mobile application which addressed challenges experienced in the real-life setting. Hence, the prototype can be used as an effective framework by which to guide the development of the final artefact.

An alternative macro‐Raman mapping algorithm, adapting the numbers of accumulations

AbstractMacro‐Raman mapping is an approach that is well suited to study the distribution of molecules over a surface of typically several cm2, such as the pigment distribution on a painting. During such an experiment, thousands Raman spectra are recorded in a predefined array of points. As there can be a huge difference in Raman sensitivity between different molecules, an alternative approach is proposed, where measurement times are adapted according to the quality of the Raman scatterer. Therefore, an iterative process is implemented, involving recording short accumulations, followed by a quick evaluation. As soon as the accumulated spectrum reaches a quality criterium, measurement of the next point is started, while in the other case further accumulations are added. The influence of using multiple accumulations opposite to a single measurement for a prolonged period has been assessed by comparing the overall measurement time and the spectral intensity of the main Raman band (520.5 cm−1) of silicon. Another prerequisite for this algorithm to be successful is the need for a quick and reliable evaluation of the spectral quality. This was examined by applying this function on the accumulations of Raman spectra of 49 paint samples from a colour chart. Finally, the variable‐accumulation algorithm is applied during a macro‐Raman mapping experiment of a watercolour painting on paper. Despite a significant gain in overall measuring time, this novel approach yields a qualitative data set that can be used for creating clear Raman maps, using different data processing methods.

What constitutes an employer of choice? A qualitative triangulation investigation

Employer of choice (EOC) is a relatively new phenomenon, particularly in Human Resources Management. Existing employees and prospective talent have reasons and expectations to designate an employer as an EOC. While EOC has received extensive attention from both academics and practitioners over the past few years, the work has mostly focused on managerial and marketing perspectives, and thus far lacks a strong theoretical foundation. Drawing on Social Exchange Theory (SET), based on Human Resources and employees’ perceptions and experiences, this research aims to explore and investigate the factors that constitute/designate an employer as an Employer of Choice EOC. Two qualitative triangulated data sets were collected from existing full-time employees at a Saudi multinational corporation: open interviews and document analysis (cross-sectional and longitudinal). Thematic analysis (TA) was employed to analyze both methods. The findings reveal that company image, training, and development, satisfaction, involvement and commitment, fairness, work culture, reward, opportunities for growth, teamwork, motivation, and corporate social responsibility are the factors that lead employees to designate an employer as an EOC. This research contributes to knowledge conceptually, theoretically, and empirically, mainly in the area of Human Resources Management. This research represents one of the first studies to empirically identify and investigate employee-related factors and evaluate them all together in a multinational Saudi organization. Recognizing the findings of this empirical-based research assists HR managers in designating their organizations as an EOC for current employees and prospective talents.

Balancing Depth and Breadth to Understand Macro Phenomena: Some Advice for Analyzing Global Qualitative Datasets

For qualitative scholars, achieving interpretive depth when analyzing large global datasets represents a particular challenge. It is, however, a challenge worth navigating given the power of such datasets to provide a depth of insight into large-scale societal issues. Building on existing insights about qualitative analysis and examples from my own experience of large global research projects, here I seek to offer some advice in this regard. I provide three general heuristics that scholars can keep in mind as characterizing this endeavor: the hermeneutic circle, distributed cognition; and embracing doubt. I then show how these heuristics unfold practically, illustrating a four-step process that I hope is helpful for qualitative researchers seeking to balance depth and breadth to understand macro phenomena.

An Ethnographic Study of Patient Life Experience in Early-Stage Parkinson's Disease in the United States and Germany.

Existing qualitative research on early-stage Parkinson's disease draws on patients' reported disease experience, aiming to capture the symptoms and impacts most relevant to patients living with the disease. As a complement to this research, the present study investigated the patient experience of early-stage Parkinson's disease from a holistic, ethnographic perspective. We explored the attitudes, beliefs, and social structures that shape how people understand and adapt to life with early-stage Parkinson's disease. Researchers interviewed 30 people with early-stage Parkinson's disease, 10 relatives, and 10 neurologists and movement disorder specialists in the USA and Germany. Many of these interviews took place in-person, allowing researchers to spend time in participants' homes and witness their daily lives. A multidisciplinary team of social scientists, clinical researchers, and patient organization representatives led the mixed-methods study design and analysis. In-depth ethnographic interviews yielded qualitative insights, with a quantitative survey following to assess their prevalence in a larger sample of 150 patients. In addition to developing a patient life experience pathway of early-stage Parkinson's disease, we identified five key thematic findings that provide insight into how the clinical features of the disease become meaningful to patients on the context of their daily lives, family relations, and subjective well-being: (1) People with early-stage Parkinson's disease start coming to terms with their disease before receiving a medical diagnosis; (2) Acceptance is not a finalized achievement, but a cyclical process; (3) People with early-stage Parkinson's disease "live in the moment" to make the future more manageable; (4) Slowing disease progression is an important goal driving the actions of people with early-stage Parkinson's; and (5) People with early-stage Parkinson's disease value information that is grounded in lived experience and relevant to their stage of disease progression. This holistic, ethnographic approach to patient life experience provided five key thematic findings that complement insights from qualitative and quantitative datasets on early-stage Parkinson's disease. An enhanced understanding of how early-stage Parkinson's symptoms impact patients' health-related quality of life and their broader social lives can help us better understand how patients make decisions about their usage of healthcare services and therapies.

Network architecture for single image super‐resolution: A comprehensive review and comparison

AbstractSingle image super‐resolution (SISR) is a promising research direction in computer vision and image processing for improving the visual perception of low‐quality images. In recent years, deep learning algorithms have driven tremendous development in SR, and SR methods based on various network architectures have significantly improved the quality of reconstructed images. Although there has been a large amount of reviews focusing on SISR, few studies have focused specifically on network architectures for SISR. This paper aims to provide a systematic overview of the design ideas of SISR using multiple architectures, including Convolutional Neural Networks (CNN), Generative Adversarial Networks (GAN), Transformer, and Diffusion model. In addition, an experimental analysis and comparison of state‐of‐the‐art SR algorithms have been performed on publicly available quantitative and qualitative datasets. Finally, some future directions are discussed that may help other community researchers.

“You’re free from just a girl or a boy”: Nonbinary children’s understanding of their gender

Background In recent years, research on gender diversity in early childhood has increased significantly. However, much of the published literature still focuses on children whose experiences align with binary gender norms, inadvertently excluding nonbinary experiences from analysis. Aims We seek to explore how nonbinary children, aged five to eight, perceive and understand their gender modality and experiences. Methods Nine American nonbinary children were interviewed using a semi-structured approach, which included two book readings, a drawing activity, and approximately 23 pre-determined questions. Inductive reflexive thematic analysis was utilized for developing, analyzing, and interpreting patterns across a qualitative dataset. All authors engaged in various aspects of reflexivity throughout the process, including personal, functional, and disciplinary reflexivity. Analysis We constructed five themes, which were evident across the accounts of participating children. The first one, Being nonbinary has different meanings for different people, illustrates the diverse interpretations of nonbinary identities. Gender is hard to describe but my pronouns help me make sense of it, highlights the challenges of explaining gender, yet pronouns help participants lucidly put their and others’ gender into words. People can change their gender for good or just for a little while, reflect participants’ view of gender as dynamic and fluid. “I have the agency to decide who I am with a little help of others”: feeling, learning, choosing and telling, explores participants’ journey in adopting the label “nonbinary”. Lastly, Being nonbinary is both easy and hard: easy because I am myself, hard because of other people, depicts the multifaceted experiences of being nonbinary, from the affirmation to bullying. Discussion In an era marked by a contentious political climate and ongoing debates about trans/nonbinary individuals, these young children defy conventional norms and establish themselves as active architects of their identity narratives, driven by their agency and self-determination.

Particularity, Engagement, Actionable Inferences, Reflexivity, and Legitimation tool for rigor in mixed methods implementation research.

Implementation science helps generate approaches to expedite the uptake of evidence in practice. Mixed methods are commonly used in implementation research because they allow researchers to integrate distinct qualitative and quantitative methods and data sets to unravel the implementation process and context and design contextual tools for optimizing the implementation. To date, there has been limited discussion on how to ensure rigor in mixed methods implementation research. To present Particularity, Engagement, Actionable Inferences, Reflexivity, and Legitimation (PEARL) as a practical tool for understanding various components of rigor in mixed methods implementation research. This methodological discussion is based on a nurse-led mixed methods implementation study. The PEARL tool was developed based on an interpretive, critical reflection, and purposive reading of selected literature sources drawn from the researchers' knowledge, experiences of designing and conducting mixed methods implementation research, and published methodological papers about mixed methods, implementation science, and research rigor. An exemplar exploratory sequential mixed methods study in nursing is provided to illustrate the application of the PEARL tool. The proposed tool can be a useful and innovative tool for researchers and students intending to use mixed methods in implementation research. The tool offers a straightforward approach to learning the key rigor components of mixed methods implementation research for application in designing and conducting implementation research using mixed methods. Rigorous implementation research is critical for effective uptake of innovations and evidence-based knowledge into practice and policymaking. The proposed tool can be used as the means to establish rigor in mixed methods implementation research in nursing and health sciences.

Evaluation of self-regulation by the hunting community: A case study on the voluntary restraint of woodcock hunting in the UK.

Behaviour change through voluntary action can be an important approach to reducing human impacts on biodiversity. One example is self-regulation in hunting, potentially a vital contributory factor in improving the sustainability of wild bird harvest. There has been a growing realisation among woodcock Scolopax rusticola hunters, reinforced by advice from sector organisations, that components of the UK woodcock populations are declining and that some aspects of woodcock hunting, specifically timing of harvest, may contribute to these. This study utilised five qualitative and quantitative data sets, collected for different purposes, to assess the behaviour and attitudes of woodcock hunters, both currently and over the past century. In the UK, relatively few woodcock are harvested and few hunters or species-specific shoots target them. An estimated 26%-29% of lowland shoots advertise or harvest woodcock, with fewer than 5% of shoots or hunters participating in 'woodcock specific' shoot days. The number of birds harvested has fallen in recent years and is estimated to be between 62,000 and 140,000. Qualitative data suggests that over 90% of hunters now report shooting woodcock only after the recommended date of 1st December, or not at all. This is reflected in bag data which shows that, since 2018, fewer than 3%-13% of woodcock shot were harvested prior to 1st December. Around a third of hunters have reported stopping shooting woodcock and it is likely the harvest will decline in coming years due to voluntary restraint. This work demonstrates both through self-report data and independent harvest data that behaviour change among hunters can be effected. This provides a working example where self-regulation in response to a collective sector-led effort has the potential to conserve wild quarry.

Artificial Fingertip with Embedded Fiber-Shaped Sensing Arrays for High Resolution Tactile Sensing.

Replication of the human sense of touch would be highly advantageous for robots or prostheses as it would allow an agile and dexterous interaction with the environment. The article presents an approach for the integration of a micro-electromechanical system sensing skin with 144 tactile sensors on a soft, human-sized artificial fingertip. The sensing technology consists of thin, 1D sensing strips which are wrapped around the soft and curved fingertip. The sensing strips include 0.5 mm diameter capacitive sensors which measure touch, vibrations, and strain at a resolution of 1 sensor/mm2. The method allows to leverage the advantages of sensing skins over other tactile sensing technologies while showing a solution to integrate such skins on a soft three-dimensional body. The adaptable sensing characteristics are dominated by the thickness of a spray coated silicone layer, encapsulating the sensors in a sturdy material. We characterized the static and dynamic sensing capabilities of the encapsulated taxels up to skin thicknesses of 600 μm. Taxels with 600 μm skin layers have a sensitivity of 6 fF/mN, corresponding to an ∼5 times higher sensitivity than a human finger if combined with the developed electronics. They can detect vibrations in the full tested range of 0-600 Hz. The softness of a human finger was measured to build an artificial sensing finger of similar conformity. Miniaturized readout electronics allow the readout of the full finger with 220 Hz, which enables the observation of touch and slipping events on the artificial finger, as well as the estimation of the contact force. Slipping events can be observed as vibrations registered by single sensors, whereas the contact force can be extracted by averaging sensor array readouts. We verified the sturdiness of the sensing technology by testing single coated sensors on a chip, as well as the completely integrated sensing fingertip by applying 15 N for 10,000 times. Qualitative datasets show the response of the fingertip to the touch of various objects. The focus of this article is the development of the sensing hardware and the basic characterization of the sensing performance.

Leading the post-industrial revolution? Policy windows, issue linkage and decarbonization dynamics in the UK’s net-zero strategy (2010–2022)

Abstract Industrial decarbonization and the net-zero climate strategy has arisen as one of the most important policy challenges of the modern era. But how do industrial decarbonization policy efforts link with other issues? The UK claims to be the first major economy in the world to posit a net-zero target. In this paper, drawn from an original qualitative dataset involving expert interviews (N = 46), site visits (N = 20), and a review of the literature, we explore ongoing policy windows and efforts to decarbonize both the Humber and Merseyside. These regions have aggressive implementation plans in place for the deployment of net-zero infrastructure, with Zero Carbon Humber and HyNet seeking billions of dollars of investment to build green and blue hydrogen facilities coupled with carbon storage networks. These two clusters are leading national net-zero ambitions, with actual, enforceable timetables to achieve decarbonization. Investigating the unfolding efforts being undertaken by these two regions to decarbonize industry offers insight into the “green gold rush” and nascent business opportunities in the so-called carbon economy, including large-scale investment of capital into the policies nominally designed to tackle climate change. Through the identification of 24 different issues linked to decarbonization, the paper also offers more conceptual depth into the interplay between policy windows and issue linkage, which coevolve and shape each other as net-zero ambitions solidify.

Access and triage in contemporary general practice: A novel theory of digital candidacy

To access contemporary healthcare, patients must find and navigate a complex socio-technical network of human and digital actors linked in multi-modal pathways. Asynchronous, digitally-mediated triage decisions have largely replaced synchronous conversations between humans. In this paper, we draw on a large qualitative dataset from a multi-site study of remote and digital technologies in general practice to understand widening inequities of access.We theorise our data by bringing together traditional candidacy theory (in particular, concepts of self-assessment, help-seeking, adjudication and negotiation) and socio-technical and technology structuration theories (in particular, concepts of user configuration, articulation, distanciation, disembedding, and recursivity), thus producing a novel theory of digital candidacy.We propose that both human and technological actors (in different ways) embody social structures which affect how they ‘act’ in social situations. Digital technologies contain inbuilt assumptions about users' capabilities, needs, rights, and skills. Patients' ability to self-assess as sick, access digital platforms, self-advocate, and navigate multiple stages in the pathway, including adapting to and compensating for limitations in the technology, vary widely and are markedly patterned by disadvantage. Not every patient can craft an accurate digital facsimile on which the subsequent adjudication decision will be made; those who create incomplete, flawed or unpersuasive digital facsimiles may be deprioritised or misdirected. Staff who know about such patients may use articulation measures to ensure a personalised and appropriate access package, but they cannot identify or fully mitigate all such cases. The decisions and actions of human and technological agents at the time of an attempt to access care can significantly influence, disrupt, and reconstitute candidacy both immediately and recursively over time, and also recursively shape the system itself.These findings underscore the need for services to be (co-)designed with attention to the exclusionary tendencies of digital technologies and technology-supported processes and pathways.

Transnational citizenship: political practices of Kurdish migrants’ descendants in France and Germany

ABSTRACT Over the last decades, scholars have increasingly called for the ‘deterritorialization’ of the notion of citizenship. The realities concerning citizenship have changed with new expressions of transnationalism. However, whereas the main body of research has focused on the transnational aspects of citizenship among migrants in the form of their transnational political practices and dual nationalities, their descendants have received far less attention. This paper examines the political practices of Kurdish migrants’ descendants in France and Germany and their narratives of identity and citizenship. We employ migrant descendants’ political activism as an empirical entry point to gain insight into the meanings they attach to citizenship. The paper draws from two qualitative datasets collected in France (2015–2017) and Germany (2015–2023) with individuals of Kurdish background, who were born to migrant families arriving from Turkey in the 1980s and 1990s. The findings show that national contexts – both in grandparents’/parents’ country of departure and the country of arrival – and the transnational, diasporic and even supranational space (EU) shape migrant descendants’ political activism, identity construction and consequently resonate in the meanings they attach to citizenship. This study highlights the need to approach migrants’ descendants as transnational citizens in their own right.