Self-perceived Burden In Patients Research Articles

The Relationship Between Facilitation of Patient Involvement and Self-Perceived Burden in Postoperative Lung Cancer Patients: The Mediating Role of Social Support.

Patients with lung cancer often experience a high level of self-perceived burden, which significantly affects their quality of life and psychological health. Social support is closely related to the self-perceived burden, yet there is scant research on the relationship between social support, facilitation of patient involvement, and self-perceived burden. This study aims to understand the current situation of self-perceived burden in postoperative lung cancer patients and to explore the mediating role of social support between facilitation of patient involvement and self-perceived burden. A cross-sectional design was used in this study. Using a convenience sampling method, a total of 331 lung cancer patients who were hospitalized for surgical treatment at a tertiary cancer hospital in Beijing, China, from August 2022 to May 2023, were selected to participate in this survey. The survey included a self-designed sociodemographic questionnaire, the Facilitation of Patient Involvement Scale (FPIS), the Perceived Social Support Scale (PSSS), and the Self-Perceived Burden Scale (SPBS). Data were analyzed using SPSS 24.0 for statistical description and Pearson correlation analysis, while AMOS 24.0 was utilized to construct a structural equation model to examine the mediation effect. The score of self-perceived burden in lung cancer patients was 26.42 ±8.23 points. Bot facilitation of patient involvement and social support was negatively correlated with self-perceived burden (r = -0.313, r = -0.332, P < 0.001). Social support plays a partially mediated role in the relationship between facilitation of patient involvement and self-perceived burden, accounting for 44.3% of the total effect. The self-perceived burden of patients after lung cancer surgery was at a moderate level, and social support partially mediates the relationship between facilitation of patient involvement and self-perceived burden. Medical staffshould encourage patient participation in their own treatment decisions and alleviate the burden associated with lung cancer and surgical treatment by enhancing their social support.

Intolerance of uncertainty, cognitive fusion, coping self-efficacy and self-perceived burden in patients diagnosed with cancer.

As the proportion of older people worldwide increases, cancer cases and deaths from cancer are rising. Suffering from cancer has a profound impact on the daily lives of patients and their families. Cancer patients often perceive themselves as a burden, which affects their quality of life; therefore, this study investigated the relationship between intolerance of uncertainty, cognitive fusion, and self-perception as burdens and the mediating role of coping self-efficacy in patients diagnosed with cancer. In this descriptive, correlational, and structural equation modeling study, 400 patient diagnosed with cancer who were hospitalized in the oncology ward of Imam Khomeini Hospital in Ardabil in the first half of 2022 were selected as the sample and answered Casino etal. self-perceived burden questionnaire, Gillanders etal. cognitive fusion questionnaire, Carleton etal. uncertainty intolerance scale, and Merleau etal. cancer behavior scale. Based on the results, the fitting indices of the research conceptual model were confirmed. Intolerance of uncertainty, cognitive fusion, and coping self-efficacy had a direct and significant relationship with self-perceived burden in patients diagnosed with cancer (p<0.01); also, intolerance of uncertainty and cognitive fusion through coping self-efficacy had an indirect effect on self-perceived burden in patients diagnosed with cancer (p<0.05). Therefore, intolerance of uncertainty, cognitive fusion, and coping self-efficacy plays a substantial role in the incidence of self-perceived burden in patients diagnosed with cancer and targeting these three components by psychological therapies can reduce the perception of self-perception as burden which is effective in patients diagnosed with cancer.

Influence of Self-Perceived Burden on Quality of Life in Patients with Urostomy Based on Structural Equation Model: The Mediating Effects of Resilience and Social Support.

To investigate the current situation of self-perceived burden in patients with urostomy, analyze the correlation between self-perceived burden and quality of life, and explore the intermediary role of resilience and social support. The convenience sampling method was used to select 303 patients with urostomy of outpatient departments of the three tertiary hospitals in Yinchuan, Ningxia region, China, from April 1, 2020, to October 1, 2020, who then completed a survey questionnaire. The survey questionnaire contained a general data questionnaire and self-perceived burden scale, city of hope-quality of life-ostomy questionnaire, Connor-Davidson resilience scale, and social support rating scale. Self-perceived burden was present among 89.8% patients with urostomy; the quality of life of patients with urostomy is low. The results showed that the self-perceived burden and quality of life, resilience, and social support are related in pairs; self-perceived burden was significantly negatively correlated with quality of life，resilience, and social support; there was a significant positive correlation between quality of life, resilience, and social support; resilience and social support were parallel mediators. Patients with urostomy had a heavy self-perceived burden and low quality of life. Reducing the self-perceived burden of patients with urostomy by improving the level of resilience and social support, could raise the level of quality of life. This study could provide empirical basis for nurses to take continuous nursing intervention measures in order to reduce the self-perceived burden of patients with urostomy and ultimately to improve the quality of life.

A Negative Effect of Post-Traumatic Growth on Self-perceived Burden of Patients with Lung Cancer During Chemotherapy in China: A Cross-sectional Survey

Background: self-perceived burden (SPB) is widespread in cancer patients, which is related to some physical symptoms, but more to psychological ones. Patients with lung cancer have a severe sense of self-burden and post-traumatic growth at different levels. As a protective factor of mental health, post-traumatic growth (PTG) how to influence SPB in cancer patients is rarely reported in the relevant literature. Purpose: To explore the effect of PTG on SPB and its influencing pathway of patients with lung cancer during chemotherapy, and to understand the potential mechanism, the indirect effect of PTG on SPB through illness perception and resilience was also studied. Methods: A total of 345 hospitalized chemotherapy patients with pathological diagnosis of lung cancer were enrolled as subjects. The level of illness perception, resilience, PTG and SPB were measured by the Brief Illness Perception Questionnaire (BIPQ), 10 item Connor Davidson Resilience Scale (CD RISC 10), Posttraumatic Growth Inventory (PTGI) and Self-Perceived Burden Scale for Cancer Patients (SPBS-CP), respectively. And they were analyzed that the effect of PTG on patients' SPB and its influence path. Results: Structural equation modeling results supported the hypothesis mediation model in predicting SPB (χ2=65.456, df=34, χ2/df=1.925, RMSEA=0.052, TLI=0.980, CFI=0.987) with fit indices. It showed that PTG had both direct effect (β=-0.437) and indirect effect via illness perception and resilience (95% confidence interval was - 1.183 to - 0.616, excluding 0, total indirect effect was - 0.212) on SPB of lung cancer patients during chemotherapy. Conclusions: PTG plays an obviously negative role in the SPB of patients with lung cancer during chemotherapy, and also has indirect effects on SPB through illness perception and resilience. It is necessary to strengthen multi-disciplinary cooperation and formulate relevant interventions to alleviate SPB by reducing patients' negative illness perception and improving their PTG and resilience.

Application of dignity therapy in patients with palliative care for advanced lung cancer

Objective To investigate the effect of dignity therapy on self-perceived burden and death attitude in patients with palliative care for advanced lung cancer. Methods By convenience sampling, 96 patients who received palliative care for advanced lung cancer in Changzhou Cancer Hospital from January 2017 to June 2018 were selected and divided into the intervention group and control group with 48 cases in each group based on the random number table. The control group was given the routine nursing intervention for advanced lung cancer palliative care patients including health education, psychological intervention, diet guidance, medication instruction, complication prevention. The intervention group was given the routine care combined with the dignity therapy. Follow-up visit was carried out for one month and the self-perceived burden and death attitude of the two groups of patients were evaluated using the Chinese Self-Perceived Burden Scale for Cancer Patients (SPBS-CP) , the Chinese version of the Death Attitude Profile-Revised (DAP-R) . Results There was no significant difference in self-perceived burden and attitude to death between the two groups before intervention (P>0.05) . After intervention, the total score of self-perceived burden in the intervention group was (62.25±2.75) , lower than that in the control group (69.34±3.18) ; the scores of death fear and escape acceptance were (24.48±3.52) , (17.25±3.16) respectively, lower than those in the control group [ (28.16±4.20) , (19.45±3.23) ], and the score of natural acceptance was (21.52±3.25) , higher than the control group with (18.54±3.21) ; the differences were statistically significant (P<0.05) . Conclusions Dignity therapy is helpful to alleviate the self-perceived burden of patients with advanced lung cancer treated by palliative care, improve the attitude of patients to death. Key words: Lung neoplasms; Palliative care; Dignity therapy; Self-perceived burden; Attitude to death

Effects of spouse synchronous therapeutic communication on self-perceived burden in patients with permanent colostomy

Objective To investigate the effect of spouse synchronous therapeutic communication on self-perceived burden (SPB) in patients with permanent colostomy. Methods A total of 56 patients with permanent colostomy of rectal cancer admitted to the hospital from December 2015 to June 2017 were selected and were randomly divided into the control group and the experimental group, 28 cases of each group.Patients in the control group were given routine nursing and general communication intervention for permanent colostomy.Patients in the experimental group received therapeutic communication intervention simultaneously with their spouses on the basis of those in the control group.Before and after the intervention, the self-perceived burden scale (SPBS) was used to evaluate the self-perceived burden of patients, and the SPB changes in the two groups were observed. Results Before intervention, there was no significant difference in SPBS scores and total scores between the two groups in all dimensions.After the intervention, SPBS scores of all dimensions and total scores of patients in the two groups decreased, but those in the experimental group decreased more significantly than those in the control group, with statistically significant differences(P<0.05). SPB degree of patients in the experimental group was significantly better than that in the control group, and the difference was statistically significant(P<0.05). Conclusions The simultaneous implementation of therapeutic communication intervention for patients with permanent colostomy and their spouses can help patients establish a social-family support system, improve the level of social support, effectively alleviate negative emotions of patients and their spouses, improve their coping ability, and thus reduce SPB. Key words: Spouse synchronization; Therapeutic communication; Permanent colostomy; Self-perceived burden (SPB); Self-perceived burden scale (SPBS)

The effect of self-care agency on self-perceived burden of patients with permanent bladder fistula

Objective To explore the effect of self-care agency on the self-perceived burden of patients with permanent bladder fistula. Methods From January 2016 to January 2017, the general data questionnaire, the Self-Perceived Burden Scale(SPBS), the Exercise of Self-Care Agency Scale(ESCA) was used to investigate 388 cases of permanent bladder fistula in 2 hospitals in Lanzhou, Baiyin and Dingxi city, and the results were statistically analyzed. Results The total score of SPBS was (36.01±1.34) points, which was in the middle level. The total score of ESCA was (51.05±10.23) points, which was in low level. The total score of SPBS was negatively correlated with the total score of ESCA and each dimension (r=-0.496--0.168, P<0.01 or 0.05). Stratified regression analysis showed that self-care skills, self-responsibility, self-concept and health knowledge level in self-care ability were important influencing factors (P<0.05). Conclusions Nursing staff can improve the self-care ability, reduce the self-perceived burden, and improve the quality of life of patients. Key words: Cystostomy; Self-care agency; Self-perceived burden

Physical and Cognitive Factors Associated with Self-Perceived Burden in Patients with Advanced Cancer

This study is part of research conducted with a 2011−2013 Grant-in-Aid for Scientific Research (B) (grant number 23792591).

Analysis on the correlation between self-perceived burden, self-efficacy and emotion of anxiety and depression among patients with end-stage renal disease

Objective To explore the relationships between self-perceived burden (SPB) , self-efficacy and the emotion of anxiety and depression among patients with end-stage renal disease to provide references for nurses to implement psychological nursing and provide the corresponding nursing measures for patients. Methods A total of 296 patients with end-stage renal disease were chosen by convenience sampling method.The relationships between self-perceived burden, self-efficacy and the emotion of anxiety and depression among patients with end-stage renal disease were investigated by self-perceived burden scale, the general self-efficacy scale and the hospital anxiety and depression scale. Results 96.62% of the patients with end-stage renal disease beard the self-perceived burden and the mean score of SPB was (29.75±5.41)points, which was at the middle level.The mean score of self-efficacy of patients was(16.04±2.96)points, which was below the middle level, and the self-efficacy was negatively correlated with SPB (P<0.05).39.19% of the patients were possibly or certainly suffering from anxiety, 41.89% of the patients were possibly or certainly suffering from depression.The emotion of anxiety and depression was positively correlated with SPB(P<0.05). Conclusion The self-perceived burden of patients with end-stage renal disease was shown different degree of correlation with self-efficacy and the emotion of anxiety and depression.The nurses can improve patients' self-efficacy and reduce the emotion of anxiety and depression through motivation and psychological counseling to alleviate SPB of patients. Key words: End-stage renal disease; Self-perceived burden; Self-efficacy; Anxiety; Depression

終末期がん患者の家族介護者へのSelf-Perceived Burden

終末期がん患者の家族介護者へのSelf-Perceived Burden

Investigation and analysis of patients′ self-perceived burden after diabetic retinopathy surgery

Objective To investigate the self-perceived burden (SPB) of diabetic retinopathy (DR) patients after diabetic retinopathy and its influencing factors, and analyze the correlation between them. Methods Self-designed general questionnaire and self-rating questionnaires including SPB scale, etc. were used in the survey. All survey information was imported into Excel database. SPSS 18.0 statistical software was used for the descriptive analysis, single-factor analysis and multiple-factor analysis. Results The average SPB score of DR patients after surgery was (28.22±7.11) points, and was in a mild level. Working condition, children condition, the time span since diagnosis and the knowledge of vitrectomy all had positive effect on SPB. Conclusions The SPB of DR patients after surgery is at a mild level. The SPB of patients after DR surgery is mainly influenced by their working condition, children condition, the time span since diagnosis and the knowledge of vitrectomy. Key words: Diabetic retinopathy (DR); Postoperative period; Self-perceived burden

Correlation analysis among self-perceived burden, coping style and social support in patients with colostomy after Miles operation

Objective To investigate the current status of self-perceived burden (SPB), social support and coping style in patients with colostomy after Miles operation, and explore the relationship among them. Methods A total of 129 patients with colostomy after Miles operation who returned visit and hospitalized in two tertiary hospitals of Liaoning province from February 2015 to March 2016 were investigated by self-perceived burden scale (SPBS), medical coping modes questionnaire (MCMQ) and social support revalued scale (SSRS). Correlation among patients′ self-perceived burden, coping style and social support, and the effects of coping style and social support on self-perceived burden were analyzed by Pearson analysis and multiple stepwise regression analysis. Results The total score of SPB in patients with colostomy after Miles operation was at a moderate level and the average score was (31.19±4.07). The level of SPB was negatively correlated with the face of coping styles (P<0.01); it was positively correlated with the avoidance and yield of coping styles (P<0.01); it was negatively correlated with social support and the utilization degree of social support (P<0.01). The utilization degree of social support, the avoidance and yield of coping styles can explain 21.8% of the total variance of patients self-perceived burden. Conclusions Nursing staff should guide the patients to take positive coping styles, improve the level of social support and make full use of social support, in order to reduce the level of SPB and improve the quality of life. Key words: Colostomy; Self-perceived burden; Coping style; Social support

The research about relationship among social support, coping styles and self-perceived burden of elderly patients with peritoneal dialysis

Objective To examine the status of self-perceived burden in patients with continuous ambulatory peritoneal dialysis and explore the relationships among social support, coping styles and self-perceived burden. Methods 103 elderly patients with peritoneal dialysis of outpatient follow-up were recruited. They were investigated using Self-Perceived Burden Scale, Social Support Rating Scale, and Simplified Coping Style Questionnaire. Results The total score of self-perceived burden was at a moderate level and the average score was (36.67±3.67). The total score of social support, the average score of positive coping and negative coping were (40.27±5.83), (1.69±0.26), (1.80±0.40), then the difference was statistically significant when compared with domestic norm (34.56±3.73), (1.78±0.52), (1.59±0.66) (P<0.05). The analysis found that self-perceived burden was negatively correlated with positive coping styles, social support and each dimension (r = -0.239, -0.668, -0.725, -0.252, -0.647,P<0.05). Conclusions Medical personnel should inspire elderly patients to make full use of social resources and guide them to take positive attitude to deal with dialysis event. It would help them maintain well psychological condition for a long time and reduce the self-perceived burden of patients. Key words: Aged; Peritoneal dialysis; Social support; Self-perceived burden; Coping style

A qualitative study of the experience of self-perceived burden in patients with chronic obstructive pulmonary disease

Objective To explore the experience of self-perceived burden in patients with chronic obstructive pulmonary disease (COPD) and provide evidence for clinical nursing interventions.Methods Indepth interviews were conducted among 17 patients with COPD using phenomenological method of qualitative research.Data were analyzed with the Colaizzi's method.Results 3 themes was identified:self-accusation and guilt,loss of dignity and powerlessness,concern and insecurity.Conclusions Nurses should take the experience of SPB in patients with COPD seriously and take the influence of SPB into account during the process of nursing interventions and evaluation. Key words: COPD; Self-perceived burden; Qualitative research; Clinical nursing research

Study on the effect of health education and behavioral intervention on the self-perceived burden of patients with gastrointestinal malignant tumor at end-stage

Objective To investigate the effect of health education and behavioral intervention on the self-perceived burden of patients with gastrointestinal malignant tumor at end-stage.Methods From March 2012 to April 2013,70 patients with gastrointestinal malignant tumor whose lifetime was estimated to be within 6 months were extracted from five general hospitals in Tangshan.70 patients were randomly divided into the intervention group and the control group with 35 cases in each group.The two groups samely received routine nursing care,while the intervention group was given health education and behavioral intervention.Both groups were evaluated by SPBS-CP before and after intervention.Results The scores of the intervention group after intervention were lower than before intervention and the control group,which were reflected in 3 dimensions such as care burden,psychological and emotional burden and treatment burden.Conclusions Health education and behavioral intervention can effectively relieve self-perceived burden of patients with gastrointestinal malignant tumor at end-stage. Key words: Self-perceived burden; Health education; Behavioral intervention; End-stage

Clinical research in influencing factors of self-perceived burden among patients with cerebral infarction

Objective To explore the influencing factors of self-perceived burden(SPB) among patients with cerebral infarction.Methods A total of 108 patients were included in the study,they were investigated by a self-designed demographic questionnaire and Self-Perceived Burden Scale(SPBS).Chisquare analysis,t test and multiple regression analysis were used to explore the influencing factors of SPB.Results The SPB of patients with cerebral infarction was (36.72±4.23) points.Self-care ability,hemiple-gia,language barriers and times of hospitslization were the influencing factors of SPB according to the mul-tiple regression analysis.Conclusions The patients with cerebral infarction have obvious SPB,which is influenced by multiple factors.Nurses should take proper measures to alleviate the patients' SPB. Key words: Self-perceived burden; Cerebral infarction; Influencing factors

Self-perceived burden in patients with cancer: Scale development and descriptive study

PurposeThe purpose of this study was to develop a Japanese version of the Self-Perceived Burden Scale (SPBS) for patients with cancer, to confirm its validity and reliability, and to elucidate the features of Self-Perceived Burden in Japanese patients with cancer. MethodsFirstly, study team members carried out repeated translation and back translation. After that, scale development involved several phases including item development, construct validity testing, criterion-related validity testing, and reliability testing. A questionnaire that included the SPBS was distributed to 310 patients with cancer. Responses were received from 226 (72.9%) patients and final analysis was performed on data from 210 of these. ResultsExploratory factor analysis indicated that the 18-item version (α = 0.96) of the scale consisted of a single main factor. A 9-item abbreviation (α = 0.93) was therefore proposed. The convergent correlations of the SPBS with the FACIT-Sp and GHQ-12 scales showed significant correspondence. The construct of SPB was distinct from the "social and family well-being" FACIT-Sp subscale. Performance status, disease duration, living arrangement, and main caregiver were significantly related to the SPBS. ConclusionWe developed a Japanese version of the SPBS for cancer patients and demonstrated its validity and reliability, which makes it possible to study SPB in cancer patients in Japan. Our study revealed that cancer patients in Japan also feel SPB, in a way that relates specifically to their cultural background.