Parental Resources Research Articles

The Role of the Church in Teaching Effective Parenting Methods to Protect the Alpha Generation from the Dangers of Gadget Addiction

This research explores the church's role in supporting parents of Generation Alpha and implementing effective parenting methods to prevent gadget addiction. This research collected and analyzed secondary data from relevant scientific journals, books, and news articles through a literature study approach. The results show that churches are important in providing education and resources for parents to face parenting challenges in the digital age. The research suggests that the integration of spiritual values and faith-based parenting guidelines can help parents in guiding their children to face the risks of device addiction. Furthermore, the study identified the need for educational programs specifically designed to equip parents with practical strategies in regulating their children's use of technology. The results of this study contribute to the understanding of the importance of synergy between church and family in educating children in the digital age.

The Reliability of YouTube as an Information Resource for Parents About Retinopathy of Prematurity.

To investigate the quality and reliability of YouTube videos about retinopathy of prematurity (ROP) to direct parents of infants with the disease to access more accurate content. The term "retinopathy of prematurity" has been searched on YouTube containing all of the videos between January 2 and February 2, 2024. The first 200 videos were evaluated by two ophthalmologists. Duplicated-split videos, videos shorter than 60 seconds, videos presented in languages other than English or with an incomprehensible accent, and videos unrelated to ROP were excluded. Video uploaders, types, continental origins, durations, and viewer interactions were noted. DISCERN, The Journal of the American Medical Association (JAMA), and the Global Quality Score (GQS) scoring systems were used to evaluate the quality of the videos. The mean quality of all videos was poor in all scoring systems. Academic societies and medical institutes scored highest in video uploaders, followed by physicians; patient experience videos had the lowest quality. Of the video types, the medical education seminars were of the highest quality. Although a strong positive correlation was detected between video duration and video quality, this same strong correlation was not observed between viewer interactions and video quality. There was no significant difference between video origins in terms of video quality. It would be wiser to direct the parents of patients with ROP to watch longer videos uploaded by the academic community, medical institute, or physicians, and to watch the medical training seminars. Also, it might be important to warn them not to take user interactions too seriously. [J Pediatr Ophthalmol Strabismus. 20XX;XX(X):XXX-XXX.].

Exploring Pain Adaptation in Youth With Juvenile Idiopathic Arthritis: Identifying Youth and Parent Resilience Resources and Mechanisms.

Although juvenile idiopathic arthritis (JIA) is often associated with pain, this experience does not necessitate negative outcomes (eg, depression, functional impairment). Little research has explored youth and parent resilience resources (ie, stable traits) and mechanisms (ie, dynamic processes) in this context, and studies have focused on their contributions independently rather than collectively. This study, informed by the Ecological Resilience-Risk Model in Pediatric Chronic Pain, sought to (1) explore the relationships among youth and parent resilience resources and mechanisms and (2) identify the relative importance (RI; ie, independent contributions when entered simultaneously) of evidence-based youth and parent resources and mechanisms in contributing to youth-reported recovery, sustainability, and growth outcomes. Youth (13-18 years) with JIA and their parents (156 dyads) completed a battery of online questionnaires assessing resilience resources (optimism, resilience), mechanisms (psychological flexibility, pain acceptance, self-efficacy), recovery and sustainability (pain intensity, functional disability, health-related quality of life), and growth (benefit finding) outcomes. Analyses demonstrated significant positive correlations across within-person resources and mechanisms and weaker correlations across within-dyad resources and mechanisms. Although the RI of predictors varied by outcome, youth pain acceptance was the most robust predictor across models (RI = 0.03-0.15). Some predictors (eg, parent psychological flexibility and pain acceptance) were generally categorized as "Not Important," whereas others (eg, youth resilience) had "Inconclusive" results, suggesting construct overlap. Although additional research is needed to further understand resilience, results highlight the importance of fostering pain acceptance in youth and incorporating parents in psychosocial interventions to optimize living with JIA.

Transmigration Stressors, Parent Mental Health, Resource Utilisation and Family Functioning Among Sri Lankan Camp Refugees in India

Transmigration Stressors, Parent Mental Health, Resource Utilisation and Family Functioning Among Sri Lankan Camp Refugees in India

Second Wave Positive Psychology in the Prevention and Reduction of Parental Burnout: The CARE Intervention

Positive psychology interventions aim to enhance individuals’ resilience, mental health, and well-being. This study ( N = 34) aimed to assess whether the CARE (Coherence, Attention, Relationship, Engagement) intervention tailored to enhance parental strengths and resources may contribute to the prevention and reduction of parental burnout. We tested the hypothesis that, compared to a waiting-list control group, parents attending the intervention would present lower scores of parental burnout postintervention (T2). The results of the study showed that compared to the control group the CARE program contributed to the significant reduction of parental burnout within the intervention group, with a large effect size ( F(1, 32) = 7.74 , p = .01, η2p = 0.20). Within the CARE group, the severity of parental burnout significantly decreased ( t(32) = 3.87, Mdiff = 16.71, SEdiff = 4.32, p = .01), whereas there was no statistically significant difference in parental burnout symptoms between T1 and T2 among the participants from the control group ( t(32) = −0.07, Mdiff = −0.29, SEdiff = 4.32, p = 1.00). In conclusion, the findings of the present study suggest that the CARE intervention may significantly contribute to the reduction of parental burnout.

Interactive effects of nitrogen and genotype on maize rough dwarf disease

AbstractNitrogen and genotype play vital roles in modulating plant disease resistance. Maize (Zea mays L.) rough dwarf disease (MRDD) is a global viral disease that has caused serious yield losses. However, it is not clear how nitrogen and genotype interact to affect MRDD. We conducted field experiments in 2011 and 2013 to investigate the MRDD incidence, yield, and yield loss rate of 59 maize hybrids under high nitrogen (HN) and low nitrogen (LN). Compared with HN, the MRDD incidence and yield loss rate of S‐sensitive hybrids (nitrogen significantly influenced MRDD incidence in susceptible genotypes) could be significantly reduced by 50.6% and 35.5%, respectively, in LN without compromising maize yield. In contrast, R‐insensitive types (resistant hybrids in which MRDD incidence was unresponsive to nitrogen treatment) could maintain high MRDD resistance and yield at HN. US hybrid 78599 and inbred line Dan340 were the main parental resources of the resistant genotypes, and inbred lines Huangzao4 and Ye478 were the main parental resources of the susceptible genotypes. The physiological mechanism leading to increased MRDD incidence was thought to be higher nitrogen concentrations in the stalks. This study provided theoretical support for using reasonable nitrogen management to control MRDD and breeding MRDD‐resistant maize hybrids.

The U-turn in educational inequality. Why a multidimensional approach matters for measuring social inequalities in tertiary educational attainment.

This study examines the evolution in the association between social origins and tertiary educational attainment in Belgium, from post-World War II to the millennium’s onset. For this, we rely on a multidimensional measurement of social origins that accounts for interaction mechanisms between parental class and educational resources. We analyse 13 803 individuals over four birth cohorts. In contrast to previous studies, we find a decline in social inequalities for cohorts born before 1975, followed by a resurgence among those born afterwards. This U-turn in social inequalities of tertiary educational attainment is only observable when social origins are measured multidimensionally. Additionally, we investigate the interaction effects between parental resources, revealing divergent evolutions in accumulation, and compensation mechanisms. Our findings underscore the renewed importance of combining parental education with parental social class for generations born after 1975.

Practical Resources for Effective Postpartum Parenting (PREPP): a randomized controlled trial of a novel parent-infant dyadic intervention to reduce symptoms of postpartum depression: RCT of the PREPP intervention for postpartum depression

BackgroundThere is little known about the effectiveness of psychological interventions to prevent postpartum depression that focus on the birthing parent and infant dyad. Risk factors for PPD include depression during pregnancy, low parenting self-efficacy, and disrupted parental nocturnal sleep. The brief Practical Resources for Effective Postpartum Parenting (PREPP) intervention is designed for pregnant individuals at-risk for postpartum depression, providing them with 1) caregiving strategies aimed at reducing infant fuss and cry behavior and increasing infant sleep, 2) self-reflection and mindfulness skills and 3) psychoeducation about the postpartum period and infant behavior. The aims are to set more realistic postpartum expectations, enhance parenting confidence and sleep via supporting infant regulatory behavior, improve parental affect regulation and ultimately reduce the risk of postpartum depression. ObjectivesAssess the effectiveness of PREPP compared to enhanced treatment as usual in reducing symptoms of depression and anxiety and episodes of infant fuss and cry behavior and improving parental and infant sleep in the early postpartum. Study designA randomized controlled trial was conducted of 175 pregnant individuals. Inclusion criteria were standard prenatal care for a singleton pregnancy, aged 18 to 45 and at increased risk of PPD as determined by a score of ≥19 on the Predictive Index of Postnatal Depression or ≥7 on the Edinburgh Postnatal Depression Scale. Participants assigned to the PREPP group (n=88) received three coaching sessions and two phone check-ins. Participants assigned to the enhanced treatment as usual group (n=87) received three sessions which included psychoeducation, mood assessments, and clinical referral and follow-up as indicated. Assessments were conducted at 28 to 32 weeks and 34 to 39 weeks gestation, and at six, 12 and 16 weeks postpartum and included measures of parental depression, anxiety and sleep (Edinburgh Postnatal Depression Scale, Patient Health Questionnaire (PHQ-9), Hamilton Rating Scales of Depression and Anxiety and Pittsburgh Sleep Quality Index) and infant sleep and fuss and cry behavior (Baby Day Diary). ResultsCompared to enhanced treatment as usual, PREPP significantly reduced depressive symptoms at six, 12 and 16 weeks postpartum with medium to large effect sizes (d=0.7-0.98). Compared to enhanced treatment as usual, participants receiving PREPP reported less of a decline in sleep quality at six weeks postpartum (p=0.035) and the effect size was large (d=0.83). Moreover, parents receiving the PREPP intervention reported less infant fussing and crying, with the largest effect for morning crying (p<0.001; d=-1.48). ConclusionsThe results provide evidence that PREPP, initiated during pregnancy, reduced symptoms of parental depression and infant fuss and cry behavior in the early postpartum, compared to enhanced treatment as usual, in a sample at-risk for postpartum depression.

Male Reproductive Traits Display Increased Phenotypic Variation in Response to Resource Quality and Parental Provisioning in a Tropical Rainforest Dung Beetle, Onthophagus c.f. babirussa.

Reproductive traits that mediate differential fitness associated with mate acquisition and fertilisation success are often strongly linked to the overall condition. We investigated the effects of resource quality and parental provisioning in the phenotypic expression of sexual and non-sexual traits in a rainforest dung beetle, Onthophagus c.f. babirussa (Eschscholtz, 1822) from Singapore. F1 individuals were reared from wild-caught beetles and paired up to produce offspring (F2), and F2 larvae from the same F1 parents were reared on two dung substrates (herbivore and omnivore) in a full-sib design. Sexual traits displayed greater phenotypic variation in response to dung resource quality, with the precopulatory trait (horn length) responding more than the postcopulatory trait (testes weight). Notably, genotype-by-environment interactions between parental lines (genotype) and dung type (environment) affected male body size and horn length only, suggesting sex-specific variance in plasticity associated with sexually selected precopulatory traits. Dung type had significant effects on all measured traits. Offspring that were provisioned higher quality resource (omnivore dung) had larger absolute and relative trait values. Parental lines only significantly affected female body size but none of the male traits, suggesting an important role of environment and resource partitioning in determining precopulatory success of male offspring. Parental provisioning of larval resource varied with resource quality and brood sequence. Parents provisioned more dung when herbivore dung was presented than when they were given omnivore dung and provisioned more dung for their earlier broods when using herbivore dung but not omnivore dung. This suggests a trade-off between early offspring fitness and resource quality. We tested directly for genotype-by-environment (G × E) interactions in the expression of several morphological traits relevant to dung beetle fitness and documented that offspring with similar phenotypes may result from completely different parental resource allocation strategies. We discuss the importance of studying parental investment on trait variation and its implications on dung beetle ecology.

Urban family with minor children: resources, moral guidelines and social adaptation of working parents. Part one

The first part of the article presents the results of studying the daily activities of working parents in the field of caring for minor children and their upbringing. Data from monitoring studies of the daily activities and time budget of urban residents carried out during 1986-2020 were used. The composition of families with children is considered and the resource characteristics of parents are analyzed, which turned out to be very similar for fathers and mothers. The relationship of parents' time spent on caring for children and their upbringing with parents' belonging to fathers and mothers, with their age, level of education, religious identity and income level in parents' families, as well as with some value orientations of fathers and mothers, is investigated. The analysis showed that the objective picture of working parents using time resources for activities with children does not agree with their subjective opinion that “activities with their childre n, their upbringing is the most important thing in the life of both spouses”. At the same time, most working fathers and mothers are satisfied with the time spent both on caring for children and on their upbringing as time resources. The characteristics of the provision of fathers and mothers with other resources do not affect their satisfaction with time spent. There is a direct relationship between satisfaction with the time spent on raising children and parents' satisfaction with life in general. An analysis of the moral guidelines of parents, which are the moral basis for the process of socialization of minor children in the family, has shown that more than half of the moral qualities related to virtues are the norm for the vast majority of fathers and to a somewhat lesser extent for mothers. At the same time, there is a tendency to blur parents' ideas about qualities-virtues and anti-virtues as a norm and deviation from it. In addition, a trend is emerging in which, judging by estimates, a considerable part of parents do not see a positive life prospect for their children, in terms of their social adaptation, if children in life are guided by the same virtues as the parents themselves. The first part in the article analyzes the composition and resource potential and the use of time resources of parents for child care and upbringing. The second part will be about the moral guidelines and the results of social adaptation of working parents. The numbering of tables and figures is continuous in both parts.

The Role of Parents in Preventing Teenage Pregnancy in Rural Areas of Banyumas District

Background:One of the factors contributing to Indonesia's high maternal mortality rate is the high incidence of teenage pregnancy in Banyumas. The family, particularly parents, plays a crucial role in influencing teenage pregnancy, as they are expected to act as educators, motivators, supervisors, communicators, and counselors for their teenagers. Objective:The purpose of this study was to identify the factors that influence the role of parents in the prevention of teenage pregnancy. Methods:A cross-sectional study design was employed, focusing on female participants. A cluster random sampling technique was used to obtain a sample size of 150 parents from the study population, using the proportion estimation formula. The validity and reliability of the questionnaire used were tested. Data were analyzed using logistic regression. Results:The univariate analysis revealed that 93.2% of respondents were female, 25.3% were aged between 38 and 42, 61.3% had only completed elementary school, 63.3% were housewives, 58% had incomes below IDR 1.350.000, 52% had monthly family expenses under IDR 1.350.000, and 42.7% had five or more dependents. The bivariate chi-square test showed an association between parental resources, the role of health professionals, knowledge, attitudes, and societal values in the prevention of teenage pregnancy. The multivariate analysis using logistic regression indicated that the value of people and resources significantly impacts the role of parents in this regard. Conclusion:The role of parents in preventing teenage pregnancy is influenced by the value placed on people and resources. Keywords: Maternal mortality; adolescent pregnancy; role of parents; knowledge; attitudes

Caring for a Child with a Cleft Lip and/or Palate: A Narrative Review.

Raising a child with healthcare needs places additional demands on caregivers. In 2012, Nelson and colleagues authored a review of 57 papers pertaining to parents' experiences of caring for a child with cleft lip and/or palate (CL/P). Thanks in large part to this review, available literature on this topic has grown considerably. The aim of the present review was to update and critically appraise recent literature, with the wider goal of assessing progress in the field and setting recommendations for future work. All original, peer-reviewed articles pertaining to the psychological adjustment of parents of children with CL/P living in high-income countries (published May 2009 to May 2024) were examined. A total of 126 articles were included. Findings were narratively synthesised according to three salient themes: Emotional Impact; Social Experiences; and Care Delivery. Recent research has built on Nelson et al.'s recommendations, addressing some prior gaps in knowledge. Nonetheless, some areas remained largely unexplored and critical methodological limitations were still evident. Recommendations for clinical practice include: improved informational resources for parents and non-specialist health professionals, regular audit of services in collaboration with parents and families, routine psychological screening for known risk factors and integrated psychological support from diagnosis onward. Recommendations for future research include the design of multicentre, prospective, longitudinal studies with sufficient sample sizes and appropriate control/reference groups, inclusion of families from diverse ethnic and socioeconomic backgrounds, further examination of factors contributing to psychological growth, the development and evaluation of psychological interventions, and cross-condition learning.

Wypalenie rodzicielskie a osobowość matek dzieci z centralnymi zaburzeniami przetwarzania słuchowego (APD)

Introduction: Parental burnout is the condition related to emotional and/or physical exhaustion caused by excessive chronic stress experienced as a parent. Parental burnout is personality-conditioned, and, in the first place, it is related to higher neuroticism. Co-occurrence of other personality traits with parental burnout depends on the characteristics of the studied population of parents and cultural conditionings. Research Aim: Assessment of the intensity of parental burnout in mothers of children with central auditory processing disorder (APD) compared to mothers of children with disabilities as well as investigation of its relation to the Big Five personality traits and the sociodemographic factors. Methods: The study involved 75 mothers of children with APD. Questionnaires used included the Parental Burnout Measure (PBM-12), the Short IPIP-BFM-20 Questionnaire for measuring the Big Five personality, and the Data Collection Survey. Results: The results show that the level of parental burnout in mothers of children with APD is generally similar to that in mothers of children with various impairments. However, its intensity in the dimension of emotional exhaustion is significantly lower. Three personality traits may have a protective function: (higher) emotional stability, conscientiousness and extraversion, and agreeableness in relation to feelings of helplessness. Emotional stability was found to be a predicting factor for parental burnout, while (higher) agreeableness allows only predicting (lower) helplessness experienced by mothers of children with APD. Conclusions: Mothers of children with APD experiencing parental burnout should have access to different forms of psychological intervention that would allow them to increase their parental resources, especially those conditioned by emotional stability, as well as those related to conscientiousness, extraversion, and agreeableness.

Introducing a self-managed early communication resource for parents – A mixed methods feasibility study of the Swedish “ComAlong online”

Background Web-based programmes offer parents of children with communication difficulties promising access to parent-mediated, early interventions. However, empirical evaluations of such programmes are limited. This study focused on parents and used mixed methods to examine the feasibility of ComAlong online. Methods ComAlong online is a Swedish, self-managed web-resource teaching parents supportive strategies to promote child communication. Data of different types were collected from a total of 71 parents: ten individual parent interviews, 21 pre-questionnaires and 10 post-questionnaires, and finally 50 anonymous digital evaluation surveys. Descriptive statistics and deductive qualitative content analysis were used. Results Findings indicate that parents perceived improved child communication and own competence after using the ComAlong online. The most valued parts included podcasts with experts and videos of parent-child interaction. Parents reported that the resource was easy to use, but they wanted to have gained access to the resource when the child was younger. Suggestions for changes included adding a chat function with experts, a parent net forum, and the possibility of creating personalised playlists of videos and podcasts. Evaluation of the research process revealed difficulties in recruiting parents from local child healthcare services and parents of children not yet with a diagnosis. Conclusions This study supports the potential for self-managed, web-based resources to disseminate evidence-based parent training for supporting early communication development. Importantly, parents lack individual guidance from experts and contact with other parents. Also, measures need to be made to disseminate the resources within local child healthcare services.

O41 - ‘Growing Together’ – An evaluation of an innovative pregnancy and early parenting resource: a cluster randomised trial conducted in Melbourne, Australia

O41 - ‘Growing Together’ – An evaluation of an innovative pregnancy and early parenting resource: a cluster randomised trial conducted in Melbourne, Australia

Cultural Adaptation of Child Discipline Measures for Puerto Rican Mothers: Enhancing the Cultural Sensitivity of Parenting Assessments.

Puerto Ricans (PRs) face significant challenges in accessing essential parenting resources and support due to language barriers and lack of culturally appropriate healthcare services, perpetuating health disparities. Cultural adaptation of psychosocial measurement tools is crucial for promoting health equity and improving health outcomes. This study describes the cultural adaptation of two parenting discipline assessment measures for use with Spanish-speaking PR mothers of 2-4-year-old children. We used a community-engaged, mixed-methods approach to measurement adaptation that involved independent translations (n = 2), back-translations (n = 2), and an adaptation committee (n = 6, including all translators) who reviewed, appraised, and modified survey versions. We conducted cognitive interviews (n = 20) to pretest the semi-finalized Spanish measures and assess mothers' understanding of survey items. Mothers had a mean age of 28.6 years. Most were married/cohabitating (70%), had a high school diploma or GED (90%), and a household income of less than $40,000 (68%). Indexed children's mean age was 2.9 years, with most identified by mothers as female (60%). Feedback from the adaptation committee and pretesting participants led to specific changes like rephrasing culturally specific terms and adjusting examples to better fit the daily experiences of PR mothers. Most mothers found the Spanish version of the measures to be clear and culturally relevant. This cultural adaptation process addressed translation inconsistencies and design issues, and better captured culturally relevant discipline practices. Engaging communities in measurement adaptations ensures culturally and linguistically tailored measures that respect participant preferences, strengthen partnerships, and enable interventions to address health disparities, thereby promoting child health.

A mixed methods study of early childhood providers’ perceptions of the acceptability and feasibility of parenting for lifelong Health tip sheets in Ontario, Canada

BackgroundUniversal parenting campaigns are efficient, cost-effective and can eliminate barriers to accessing conventional, face-to-face parenting interventions. The aims of the CHAMPP4KIDS study were to assess Canadian early childhood providers’ perceptions of the acceptability and feasibility of implementing a universal parenting resource, the Parenting for Lifelong Health tip sheets.MethodsUsing a convergent mixed method design, an online survey of providers working with families with young children in Ontario, Canada was followed by focus group discussions with a subset of providers to explore their perceptions of using the tip sheets in their professional practice.ResultsProviders generally perceived the tip sheets to be acceptable but had reservations with respect to the feasibility of distributing the sheets to their clients as standalone, universal parenting resources. Providers agreed the tip sheets covered topics pertinent to caregivers’ concerns, offered useful strategies and, therefore, had the potential to be valuable, engaging resources for families. However, many providers said the sheets would only be effective as complementary resources to facilitated in-person sessions, especially for high-needs families.ConclusionProviders suggested that future iterations of these resources take into consideration more accessible design and formatting, literacy levels, word choice and further cultural adaptation. Insight into the nuances and potential divergence between provider perceptions of universal materials’ acceptability and feasibility can help adapt materials to pre-emptively respond to potential implementation barriers, facilitate intervention fidelity and, ultimately, increase the likelihood of intervention acceptability and feasibility of both providers and caregivers.

Predictors of early child development for screening pregnant women most in need of support in Brazil.

Home visiting programmes can support child development and reduce inequalities, but failure to identify the most vulnerable families can undermine such efforts. We examined whether there are strong predictors of poor child development that could be used to screen pregnant women in primary health care settings to target early interventions in a Brazilian population. Considering selected predictors, we assessed coverage and focus of a large-scale home visiting programme named Primeira Infância Melhor (PIM). We undertook a prospective cohort study on 3603 children whom we followed from gestation to age four years. We then used 27 potential socioeconomic, psychosocial, and clinical risk factors measurable during pregnancy to predict child development, which was assessed by the Battelle Developmental Inventory (BDI) at the age of four years. We compared the results from a Bonferroni-adjusted conditional inference tree with exploratory linear regression and principal component analysis (PCA), and we conducted external validation using data from a second cohort from the same population. Lastly, we assessed PIM coverage and focus by linking 2015 cohort data with PIM databases. The decision tree analyses identified maternal schooling as the most important variable for predicting BDI, followed by paternal schooling. Based on these variables, a group of 214 children who had the lowest mean BDI (BDI = -0.48; 95% confidence interval (CI) = -0.63, -0.33) was defined by mothers with ≤5 years and fathers with ≤4 years of schooling. Maternal and paternal schooling were also the strongest predictors in the exploratory analysis using regression and PCA, showing linear associations with the outcome. However, their capacity to explain outcome variance was low, with an adjusted R2 of 5.3% and an area under the receiver operating characteristic curve of 0.62 (95% CI = 0.60, 0.64). External validation showed consistent results. We also provided an online screening tool using parental schooling data to support programme's targeting. PIM coverage during pregnancy was low, but the focus was adequate, especially among families with longer enrolment, indicating families most in need received higher dosage. Information on maternal and paternal schooling can improve the focus of home visiting programmes if used for initial population-level screening of pregnant women in Brazil. However, enrolment decisions require complementary information on parental resources and direct interactions with families to jointly decide on inclusion.

The Impact of the Level and Timing of Parental Resources on Child Development and Intergenerational Mobility

The Impact of the Level and Timing of Parental Resources on Child Development and Intergenerational Mobility

Non-Genetic Healthcare Providers' Experiences and Perspectives with Rapid Genome-Wide Sequencing in Canadian Neonatal Intensive Care Units.

Rapid genome-wide sequencing (rGWS) continues to transform the care provided to infants with genetic conditions in neonatal intensive care units (NICUs). Previous research has demonstrated that rGWS has immense benefits on patient care; however, little is known about non-genetic healthcare providers' (HCPs) experiences and perspectives of working with rGWS and supporting families through the rGWS testing process in Canadian NICU facilities. To address this gap, we surveyed and conducted semi-structured interviews with non-genetic HCPs of diverse professions from NICUs in British Columbia. An interpretive description approach was used to analyze interview transcripts to identify patterns and variations in non-genetic HCPs' experiences and perceptions with rGWS. Participants had varying degrees of exposure to rGWS and levels of comfort with the testing process. Numerous barriers affecting the implementation of rGWS were identified, including low levels of comprehension of rGWS, longer turn-around times than expected, and having to apply for provincial government approval to access testing. Participants desired more education on rGWS, clear guidelines on the use of rGWS in NICUs, and resources for non-genetic HCPs and parents to support implementation. The results from this study can inform the development of workflows and educational resources on the use of rGWS in NICUs, helping to ensure that the NICU team is supported to optimize rGWS implementation.