Research examining factors that impact parents of children with medical complexity (CMC) who also have critical congenital heart disease (CCHD) is limited. We examined relationships among family resources and social support, and how these influence parents' workload and capacity to care for their CMC with CCHD. A non-experimental, cross-sectional design was conducted in a national sample of 106 parents of CMC with CCHD. Measures of family resources, social support, workload and capacity to care for these children were analyzed using correlation and multiple regression. The majority of CMC (40.6%) had between 1 and 3 health conditions requiring an average of 5 daily medications, and 2 medical technologies. Parents reported a mean of 72.25 weekly hours to care for their CMC, and a mean of 8.57 weekly hours to coordinate care. Higher family resources were associated with less workload (r=- 0.47, p<.001) and increased capacity (r=0.54, p<.001), while more social support was associated with higher capacity (r=0.44, p<.001). Decreased capacity was associated with increased workload (r=- 0.33, p<.001). Social support and family resources accounted for 24.5% of the variance in workload and accounted for 30.1% of the variance in capacity. Fewer resources, less social support, and less perceived capacity were associated with more perceived parental workload to care for their CMC with CCHD. Results emphasize the importance of universal screening for social support and family resources.
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