Parent Report Research Articles

A - 56 Cumulative Childhood Adversity Is Linked with Reduced Cognitive Performance during Late Childhood to Adolescence

Abstract Objective History of adverse childhood experiences (ACEs) has been linked with poorer cognitive performance in young adulthood and cognitive decline in older adults; however, few studies have examined these relationships during childhood and adolescence, which are key periods for neurocognitive development. The current study investigated the longitudinal relationships between ACEs and cognitive performance during late childhood/adolescence. Method 10,827 participants (ages = 9–15.5 years old; 48% female) were included from the Adolescent Brain Cognitive Development Study. Cumulative ACE scores were created using annual parent and child reports of youth’s exposure to ACEs from baseline (ages 9–10) to Year 4 follow-up (ages 13–15). Cognitive performance was assessed using the NIH Toolbox (completed at baseline, Year 2, and Year 4). Separate linear mixed-effects models examined associations between ACEs and cognitive performance while accounting for time, age, sex assigned at birth, caregiver education, household income, pubertal status, internalizing and externalizing symptoms, and random effects of subject and family/twin status. Additional analyses tested for interactions with time. Results Greater ACEs were associated with poorer cognitive performance on tasks measuring verbal (p’s < 0.001) and visual (p < 0.001) memory, working memory (p = 0.01), cognitive flexibility (p = 0.004), processing speed (p < 0.001), and language (p’s < 0.001), above and beyond covariates. ACEs were not associated with attention (p = 0.09). Cognitive performance improved over time; however, compared to baseline, youth with greater ACE history at Year 4 demonstrated poorer attentional performance (p = 0.008). Conclusions Findings suggest that ACEs influence cognitive performance during key neurodevelopmental periods, and future work should assess clinical utility of targeted cognitive remediation in youth with adversity history.

A - 49 The Role of the Tuberous Sclerosis Associated Neuropsychiatric Disorders Checklist in Pediatric Neuropsychological Assessment: a Case Study

Abstract Objective The Tuberous Sclerosis Associated Neuropsychiatric Disorders (TAND) checklist is a screening tool developed to assist in clarifying behavioral, psychiatric, neuropsychological, and psychosocial manifestations experienced by individuals with Tuberous Sclerosis Complex (TSC). TSC is a multisystem disorder, impacting 1 in 6000 children annually, caused by mutations in the TSC1/TSC2 genes that results in tumor growth throughout the body associated with widespread adverse medical and neurological outcomes including cognition. We present the use of the TAND checklist in a child referred for cognitive evaluation in the context of TSC to explore its potential use within neuropsychological assessment. Method Eleven-year-old female with TSC, referred by neurology, was seen for outpatient neuropsychological evaluation. Comprehensive neuropsychological testing and completion of the TAND checklist with parent were completed. Results Evaluation revealed variable cognitive performances with strengths in fluid reasoning and relative weakness in working memory. Academic performances were low average with weakness in reading. Overall slowed and disrupted processing impacted performance across domains. TAND checklist helped elucidate parental report about cognitive and psychological difficulties. Conclusions This eleven-year-old girl’s profile was variable across domains, consistent with research findings that TSC is a multisystemic disorder presenting in widespread dysfunction. Implementing the TAND checklist was helpful in efficiently eliciting symptomology across domains from parent collateral informant, demonstrating its augmentative value to comprehensive neuropsychological assessment in children with TSC. This is an important next step in validating the TAND checklist in neuropsychological settings.

Anchoring Vignettes: A Useful Tool to Measure and Correct for Cultural Bias in Parent Reports on Their Child's Mental Health?

Parent report measures developed in the Western world are commonly used to assess children's mental health, but their cross-cultural comparability is questionable. The present study examines the use of anchoring vignettes to assess and adjust for bias in five countries: the United States, Mexico, Germany, China, and Russia. Parents (N = 500) rated their child's mental health and vignettes depicting internalizing and externalizing problem behaviors in an online survey. Vignette ratings were used to assess bias and for rescaling. Cross-national comparisons of vignette scores revealed differences in the use of the scale range and overall level of vignette scores. Measurement invariance across countries improved after rescaling, resulting in weak invariance for internalizing and strong invariance for externalizing problem behavior. Rescaled scores revealed cross-national differences that were masked using the raw score. Results confirm the lacking cross-national comparability in parent reports of child mental health, and anchoring vignettes appear to be a useful tool for reducing bias.

Feeding and Swallowing Disorders and Related Factors in Iranian Children with Cerebral Palsy

Background: Children with cerebral palsy (CP) are at a heightened risk of developing feeding and swallowing disorders, which are influenced by a variety of medical, cultural, psychosocial, and nutritional factors. The prevalence rates of these disorders vary widely across different studies, highlighting the complexity and multifaceted nature of these challenges. Objectives: This study aimed to determine the prevalence of feeding and swallowing disorders and to explore the factors associated with the severity of swallowing issues in Iranian children with CP. Methods: A cross-sectional study was conducted with a convenience sample of 111 Iranian children with CP. The study assessed feeding and swallowing problems through clinical evaluations and parental reports. Data analysis was performed using IBM SPSS version 20, utilizing chi-square and Spearman's correlation coefficient tests. Results: The study found that feeding and swallowing problems are common among Iranian children with CP, with 79.2% of children having feeding disorders and 78.3% experiencing swallowing difficulties. Of particular concern, 40.5% of the children showed issues during the pharyngeal phase of swallowing, and 12.6% exhibited unsafe swallowing patterns. There were significant correlations between the severity of swallowing issues and several factors: Malnutrition (P ≤ 0.001), gastroesophageal reflux disease (GERD) (P = 0.007), motor impairment (P ≤ 0.001), and caregiver concern (P ≤ 0.001). Malnutrition was found in 60% of the children, yet only 23% were receiving dietary supplements, and a mere 2.7% were using tube feeding. Conclusions: Feeding and swallowing disorders, along with malnutrition, are highly prevalent in Iranian children with CP. The positive correlation between the severity of swallowing issues and malnutrition underscores the critical need for early, multidisciplinary interventions to address these challenges.

Profiles of nonverbal skills used by young pre-verbal children with autism on the ADOS-2: Relation to screening disposition and outcomes.

Autistic individuals exhibit differences in their use and understanding of nonverbal communication; however, individual patterns of nonverbal strengths and challenges vary significantly. This heterogeneity can complicate the diagnostic and screening processes and can result in delayed or missed diagnoses. In this study, we characterize various profiles of nonverbal communication skills among 215 pre-verbal children with autism (Mage = 36.27 months, range = 18-70) and explore how these profiles are related to screening outcomes, diagnostic certainty, and developmental and behavioral features. We conducted a latent class analysis of nine items assessing nonverbal communication skills from the Toddler Module and Module 1 of the Autism Diagnostic Observation Schedule, 2nd Edition. Five nonverbal profiles were identified that differentiated children based on the form, function, and frequency of their nonverbal communication skills. Furthermore, screening outcomes and clinician certainty in autism diagnosis varied by nonverbal profile. False negative screening outcomes based on parent report were highest for children who used a range of nonverbal skills but with limited frequency or consistency. Clinicians, on the other hand, tended to have high certainty in an autism diagnosis for children with this profile, and instead rated their lowest certainty in diagnosing children who demonstrated consistent integration of eye contact with their nonverbal communication. The profiles identified in this study could be clinically useful in helping to identify children at highest likelihood of being overlooked during the screening or diagnostic processes, providing an opportunity to improve early identification and intervention for autism.

Alterations in fear learning as a mechanism linking childhood exposure to violence with PTSD symptoms: a longitudinal study.

Fear learning is a core component of conceptual models of how adverse experiences may influence psychopathology. Specifically, existing theories posit that childhood experiences involving childhood trauma are associated with altered fear learning processes, while experiences involving deprivation are not. Several studies have found altered fear acquisition in youth exposed to trauma, but not deprivation, although the specific patterns have varied across studies. The present study utilizes a longitudinal sample of children with variability in adversity experiences to examine associations among childhood trauma, fear learning, and psychopathology in youth. The sample includes 170 youths aged 10-13 years (M = 11.56, s.d. = 0.47, 48.24% female). Children completed a fear conditioning task while skin conductance responses (SCR) were obtained, which included both acquisition and extinction. Childhood trauma and deprivation severity were measured using both parent and youth report. Symptoms of anxiety, externalizing problems, and post-traumatic stress disorder (PTSD) were assessed at baseline and again two-years later. Greater trauma-related experiences were associated with greater SCR to the threat cue (CS+) relative to the safety cue (CS-) in early fear acquisition, controlling for deprivation, age, and sex. Deprivation was unrelated to fear learning. Greater SCR to the threat cue during early acquisition was associated with increased PTSD symptoms over time controlling for baseline symptoms and mediated the relationship between trauma and prospective changes in PTSD symptoms. Childhood trauma is associated with altered fear learning in youth, which may be one mechanism linking exposure to violence with the emergence of PTSD symptoms in adolescence.

Childhood Adversity and Adolescent Epigenetic Age Acceleration: The Role of Adolescent Sleep Health.

We investigated how a dimension of early life adversity (ELA) capturing threat in the home relates to later epigenetic age acceleration in adolescence through sleep (duration, efficiency, and timing), to empirically test theoretical models suggesting the importance of sleep as a key mechanism linking ELA with poor health outcomes, and to expand the limited literature on sleep and epigenetic aging among youth. We utilized data from 861 participants from the Future of Families and Child Wellbeing Study (FFCWS) who participated in the actigraphy sub study at age 15. Sleep variables used were average total sleep time (TST), sleep efficiency (SE), and sleep onset timing. Home threat was determined at ages 3, 5, and 9 from parent reports on the Child Conflict Tactics Scale (CTS-PC), and epigenetic aging was measured through DNA methylation analyses of saliva samples collected at age 15. Higher levels of childhood home threat exposure were associated with less adolescent TST, lower SE, and later sleep onset timing. Adolescent SE and timing were associated with a faster pace of aging and epigenetic age acceleration. Sleep efficiency and timing mediated the link between childhood home threat exposure and adolescent epigenetic aging. Epigenetic embedding of childhood threat exposure in the home may occur through adversity-related sleep disturbances in adolescence. Findings warrant greater attention to pediatric sleep health in theoretical models of biological embedding of adversity and point to the examination of improving sleep health as a potential way to prevent adversity-related epigenetic age acceleration.

Error Rates in Race and Ethnicity Designation Across Large Pediatric Health Systems

Without knowledge of the degree of misattribution in racial and ethnic designations in data, studies run the risk of missing existing inequities and disparities and identifying others that do not exist. Further, accuracy of racial and ethnic designations is important to clinical care improvement efforts and health outcomes. To determine the error rate of racial and ethnic attribution in the electronic medical records (EMRs) across the 3 largest pediatric health systems in Michigan. This cross-sectional study collected race and ethnicity data from parents in outpatient clinics, emergency departments, and inpatient units at the 3 largest pediatric health systems in Michigan. A total of 1594 parents or guardians participated at health system A, 1537 at health system B, and 1202 at health system C from September 1, 2023, to January 31, 2024. Parent or guardian report of race and ethnicity for a child was used as the gold standard for comparison with the designation in the EMR. Race and ethnicity designations in the EMR. Options for race designation across the health systems ranged from 6 to 49; options for ethnicity, from 2 to 10. Matching occurred in 3 stages. First, the exact racial and ethnic designations made by parents for their child were compared with what was found in the EMR. Second, for any child whose parent selected more than 1 racial category or for whom more than 1 appeared in the EMR, the designation of a minoritized racial group was used for matching purposes. Third, starting with the product of stage 2, racial designations were combined or collapsed into 6 (health systems A and C) or 5 (health system B) designations. A total of 4333 survey responses were included in the analysis. The greatest error rate across the health systems occurred with the exact match of parental report of racial designation with the EMR, which ranged from 41% to 78% across the health systems. Improvement in the matching rate for each health system occurred with consolidation of race options provided. Differences between the health systems narrowed at the final consolidation to varying from 79% to 88% matching. Ethnicity matching between the EMR and the parental report ranged from 65% to 95% across the health systems. Missing race or ethnicity data in the EMR was counted as a nonmatch. Rates of missing racial data varied across the health systems from 2% to 10%. The health system with the greatest number of options for race and ethnicity had the highest error rates. Although there will always be some misattribution of race and ethnicity in the EMR, the results of this cross-sectional study suggest that significant error in these data may undermine strategies to improve care. It is unclear whether those in an organization who determine the number of potential categories are the same persons who use those data to investigate potential disparities and inequities.

Is There an Increase in Possible Sleep Bruxism in Children Over Time? A Longitudinal Study.

Bruxism is a behaviour that has several consequences in an individual's life, especially when it starts in childhood. However, bruxism can be a potential protective factor, which is an attribute that reduces the chance of a negative health outcome. To evaluate the incidence of sleep bruxism (SB) and dental wear in children and adolescents. This longitudinal study began in 2014 and 2016 (baseline) with initial 1816 children followed for 5 and 3 years, respectively. The follow-up data collection started in 2019. The diagnosis of SB was parents report (baseline) and self-report (follow-up) due to age groups of each phase, and questions related to symptoms of SB were collected. Five calibrated examiners (kappa >0.7) collected the clinical data. The clinical variables were dental erosion and dental wear. Contextual, individual, behaviour and clinical characteristics were collected. A multilevel logistic regression model was used to investigate the association of contextual, individual, behaviour and clinical characteristics with SB. Poisson regression for repeated measures was performed to evaluate the incidence of SB and dental wear (incidence rate ratio-IRR and confidence interval-95% CI). Two hundred and fifty-three children and adolescents answered questionnaires and were clinically examined. The mean age of the follow-up in 2019 was 11.25 years old (±2.19). There was no increase in the incidence of SB (95% CI: 0.74-1.35). Children/adolescents had a 2.2 higher risk to present dental wear (95% CI: 1.89-2.60). SB at the follow-up was associated with the contextual variable, earache, erosion and awake bruxism. In this population, children with SB remained with this behaviour and showed higher dental wear over the years.

Behavioral characteristics of toddlers later identified with an autism diagnosis, ADHD symptoms, or combined autism and ADHD symptoms.

Autism commonly co-occurs with attention-deficit/hyperactivity disorder (ADHD), but less is known regarding how ADHD symptoms impact the early presentation of autism. This study examined early behavioral characteristics of a community sample of toddlers later identified with autism diagnosis, ADHD symptoms, combined autism and ADHD symptoms, or neither condition. Participants were 506 toddlers who were part of a longitudinal study of children's behavioral development. Parents completed questionnaires about their children's behavior at two time points. Four groups were identified based on study measures or medical record: autism diagnosis (n = 45), elevated ADHD symptoms (n = 70), autism and ADHD symptoms (n = 30), or neurotypical development (n = 361). Relationships between early parent report of autism- and ADHD-related behaviors, social-emotional and behavioral functioning, and caregiver experience and subsequent group designation were evaluated with adjusted linear regression models controlling for sex. Significant group differences were found in measures of autism-related behaviors, ADHD-related behaviors, externalizing and internalizing behaviors, and parent support needs (p < .0001). Pairwise comparisons indicated toddlers later identified with combined autism diagnosis and ADHD symptoms had higher levels of autism-related behaviors, externalizing and internalizing behaviors, and autism-related parent support needs compared to the other groups. Toddlers with subsequent elevated ADHD symptoms or combined autism diagnosis and ADHD symptoms exhibited similar levels of ADHD-related behaviors, while both groups displayed more ADHD-related behaviors than toddlers subsequently identified with autism or those with neither condition. In this community sample, toddlers for whomcombined autism diagnosis and ADHD symptoms were subsequently identified showed a distinct presentationcharacterized by higher early autism-related behaviors, broader behavioral concerns, and higherparent support needs. Presence of ADHD symptoms (alone or in combination with autism) was associated with higher parent-reported ADHD-related behaviors during toddlerhood. Results indicate that ADHD-related behaviors are manifest by toddlerhood, supporting screening for both autism and ADHD during early childhood.

Longitudinal Changes in Preschoolers' Self-reported Psychological and Social Problems: Feasibility, Reliability, and Cross-informant Agreement.

For decades, parental report was used to assess children's psychological symptoms and social problems. The Berkeley Puppet Interview (BPI) utilizes hand puppets to collect questionnaire-style data from children, allowing consideration of children's own perspective. The current longitudinal study compared the feasibility and reliability of preschoolers' self-report with BPI at age 4 (M = 4.03, SD =0.16; 52% boy, 82% White American) and 5 (M = 5.22, SD = 0.36; 51% boy, 85% White American) as well as cross-informant agreement among children, mothers (74% above college education), alternate caregivers (>90% biological fathers), and coders. Children completed symptomatology, social, and parenting scales of BPI and their parents completed surveys assessing similar constructs. Our findings revealed both similarities and changes across ages. Specifically, the reliability and cross-informant agreement of the broad symptomatology and parenting scales were promising at both timepoints; however, 4-year-olds showed lower internal consistency in social scales.

When do parents report their child's administrative ADHD diagnosis? A utilisation-based analysis from the consortium project INTEGRATE-ADHD.

This article examines discrepancies in the frequency of diagnoses of attention-deficit/hyperactivity disorder (ADHD) in children and adolescents in Germany using information on health care utilisation from both administrative and parent-reported survey data linked at person level. 5,461 parents of 0- to 17-year-olds insured with DAK-Gesundheit in 2020 and being registered with a confirmed administrative ADHD diagnosis (ICD-10 F90.0-9) in at least one quarter in 2020 (M1Q criterion) were surveyed online on their child's ADHD diagnosis, utilisation of specialist care and therapeutic service providers. With regard to the presence of a parental report of the child's documented ADHD diagnosis, administrative data and survey data were bi- and multivariately analysed. The response rate was 21.5 %. ADHD diagnoses were given more frequently in the context of paediatric care, but in the multivariable model with the administrative data only the diagnosis made by mental health professionals (OR = 2.78), in the model with the survey data only utilisation of mental health professionals (OR = 2.99) positively predicted the parental diagnostic report. With regard to the utilisation of therapeutic service providers, only the utilisation of occupational therapy was associated with the parental report of the diagnosis in both data sources. Parental non-reporting of a child's administrative ADHD diagnosis in survey studies can be in part be explained by utilisation characteristics.

Differences in frequency between administrative and parent-reported ADHD diagnosis data of children and adolescents taking sociodemographic characteristics into account - Results from the consortium project INTEGRATE-ADHD.

In the project INTEGRATE-ADHD, administrative and parent-reported ADHD diagnosis data of children and adolescents were linked at person level for the first time in Germany. This contribution analyses discrepancies between the data sources, considering sociodemographic characteristics. Parents of 5,461 0- to 17-year-olds insured with the German statutory health insurance company DAK-Gesundheit in 2020, who had a confirmed administrative diagnosis of ADHD (ICD-10 F90.0-9) in at least one quarter (M1Q criterion), were surveyed online about their child's ADHD diagnosis and other health and care-related topics. Using logistic regression, associations between the presence of a parental report of the child's administrative ADHD diagnosis and sociodemographic predictors were analysed. 71.6 % of parents reported their child's administrative diagnosis of ADHD in the survey. The diagnosis was significantly less likely to be reported by parents of girls, younger children, children with a migration background and children from nuclear families with both biological parents. There were no differences with regard to parental education, urbanisation (urban/rural) or density of care. Bivariate findings were confirmed in the multivariable model. Approximately one third of parents do not report their child's administrative diagnosis of ADHD. The likelihood of parental reporting varies according to sociodemographic factors. This should be considered when contextualising the data sources in the future.

The Balance N1 Is Larger in Children With Anxiety and Associated With the Error-Related Negativity

BackgroundThe error-related negativity (ERN) is a brain response evoked by mistakes on cognitive tasks that is enhanced with anxiety and can predict the subsequent onset or exacerbation of anxiety in children and adolescents. A physical disturbance to standing balance evokes a brain response called the balance N1 that resembles the ERN in scalp topography and in response to a variety of moderating factors. We recently found that the balance N1 and ERN correlate in amplitude across small adult samples. MethodsIn the current study, we tested the effect of anxiety on the balance N1 in children (ages 9–12 years) with and without diagnosed anxiety disorders (38 children with generalized anxiety, social anxiety, and/or obsessive-compulsive disorder and 50 children without these disorders). We measured the balance N1 in response to sudden release of support from a forward leaning posture, the ERN in response to mistakes on a Go/NoGo task, and anxiety symptoms using child- and parent-report forms of the Screen for Child Anxiety and Related Emotional Disorders. ResultsBoth the balance N1 and the ERN were larger in the anxious group. The balance N1 was also associated with both the ERN and parent report of child anxiety symptom severity across individuals. ConclusionsThe higher measurement reliability of the balance N1 than the ERN and greater experimental control over errors suggest that balance paradigms may provide a more powerful method for investigating individual differences in error-related brain activity related to anxiety.

Socio-demographic and other factors contributing to excessive leisure screen time in preadolescent children.

Excessive screen use in early school age is associated with worsened health habits and negative child development in later age. We aimed to assess the time spent on modern and traditional screen-based devices and examine its associations with socio-demographic characteristics. This population-based cross-sectional observation study was conducted in Czechia, Slovakia and Finland between April and June 2021. Participants (N = 1,915) were parents/caregivers of children attending elementary school grades 1 to 3, selected by stratified random sampling. Children's daily leisure screen time (LST) based on parental reports was the main outcome. Descriptive statistics, mean comparison and linear regression analysis were used for the analysis. The average daily LST was found to be as high as 3.5 hours and significantly associated with most socio-demographic variables. Eighty percent of children exceeded the threshold of two hours of LST per day, which was formerly introduced by the American Academy of Pediatrics. The most important predictor of LST in children was having their screen-based device(s) for their exclusive personal use (EPU). Linear regression with all predictors assessed together confirmed the significant effect of the screen-based devices' EPU, the child's sex and grade, the child's birth order and the parent's education, even when controlled for media parenting practices. Given the widespread availability of smartphones for exclusive personal use among young children, the regulation of EPU and the reinforcement of effective media parenting practices, particularly in families with lower education and income, are critical public health strategies to mitigate the negative impact of excessive screen time on child development and overall well-being.

Analyzing the Effectiveness of Family-Based Interventions in Promoting Healthy Behaviors among Children in China

Objectives: The children's health has become every society's priority to promote a healthy future generation. In China, different measures are being taken by the government and other associated organizations to promote important family-based interventions to improve healthy behaviors among Children. Methods: This study has also focused on evaluating the effectiveness of a family-based (REDUCE) intervention in promoting health behaviors among children in China. For this study, a randomized-controlled trial (RCT) was implemented for the parents and children (with age of 7 to 10 years). These children were obese or overweight. Face-to-face sessions and social media were used for conducting the associated intervention. The "child eating behaviors questionnaire (CEBQ)" was used for assessing the children's eating behaviours. In contrast, a parental report was used for determining the dietary consumption of fruits and unhealthy snacks among the children for three days. The significance level was &lt; 0.05. About 124 parents participated in this study. Results: The results obtained show that at six-month of post-training, there was significant differences in the mean of food (p &lt; 0.0011), intake of fruits and vegetables (p &lt; 0.0011) and intake of unhealthy snacks (p &lt; 0.011) within the context of control and intervention groups. Conclusion: The current study provides important implications, focusing on improving the literature review concerning family-based intervention in improving the health behaviors among children.

Evaluating the Link between Visual Attention Bias and Emotion Dysregulation of Young Children.

The ability to regulate emotions is vital to successful social interactions. This study explores whether visual attention bias is associated with emotion dysregulation (ED) in early childhood. Parental reports of child ED (Child Behaviour Checklist (CBCL)andTemper Tantrum Scale) wereexamined in relation to child visual attention bias whilst viewing emotional faces. Results indicated that the level of eye gaze fixation towards emotional images and faces was associated with ED when social function (measured with the Social Responsiveness Scale), gender, age, and attention problems (measured from the CBCL subscale), were adjusted. The modifying effect on visual attention bias was evaluated using interaction analysis in the generalized linear model. The level of visual attention bias, indicated by the proportion of eye gaze fixation time on areas of interest (AOIs) in images displaying unpleasant emotions (such as anger), was inversely associated with the level of externalising problem behaviours (p = .014). Additionally, the association of eye gaze fixation time for AOIs displaying negative emotional cues with the level of externalising problem behaviours varied by age (p = .04), with younger children (aged < 70months) demonstrating a stronger association than older children (aged 70months). Findings suggest that young children with greater ED symptoms look less at unpleasant emotional cues. However, this relationship is attenuated as children become older. Further research to identify objective biomarkers that incorporate eye-tracking tasks may support prediction of ED-related mental health issues in the early years.

Differences in parent and youth reported parenting strategies and the relationship with youth reported resilience: Who you ask matters

BackgroundIt is common in parenting research for parents to report on the parenting strategies they utilize rather than soliciting children and youths’ experiences of being parented. Who we include in research may change our understanding of parent-child relationships and related outcomes for children and youth. ObjectiveTo: a) examine similarities and differences among 21 parent- and youth-reported parenting strategies and b) examine the differences in trends for each parenting strategy and youth-reported resilience depending on who reported the parenting strategies. Participants and settingData were from the Well-being and Experiences (WE) Study (n = 1000 youth/parent dyads), a community sample of youth aged 14–17 years and parents from Canada collected from 2017 to 2018. MethodsDescriptive statistics, McNemar's test, and linear regression models were used to analyze the data. FindingsThe prevalence of five parenting strategies were statistically similar when reported by youth and parents, while three parenting strategies were statistically higher among youth reports compared to parent reports, and 13 parenting strategies were statistically higher among parent reports compared to youth reports. Only one parent-reported parenting strategy was associated with decreased youth-reported resilience. No parent-reported strategies were associated with increased youth-reported resilience. For youth-reports, five parenting strategies were significantly related to increased youth resilience and three parenting strategies were significantly related to decreased youth resilience. Findings indicate that children's and youths' voices should be prioritized in future parenting research, which may inform parenting supports and interventions to prevent child maltreatment and to promote resilience for children and youth.

Discrepancy between parent report and clinician observation of symptoms in children with autism spectrum disorders

Discrepancy between parent report and clinician observation of symptoms in children with autism spectrum disorders

Quality of Life in Children with Neurofibromatosis Type 1: Agreement between Parents and Patients, and the Role of Disease Severity and Visibility.

Neurofibromatosis type 1 (NF1) is a genetic disorder that affects multiple systems in the body, often leading to physical disfigurements and a wide range of clinical symptoms. This study aims to investigate the relationship between NF1 severity and visibility and the quality of life (QoL) in children. The Pediatric Quality of Life Inventory (PedsQL) and a modified version of the Ablon scale were used to assess QoL and NF1 severity and visibility, respectively. Self-reported and parent-reported QoL scores were compared, and the associations between NF1 severity/visibility and QoL were explored. Thirty-eight pediatric NF1 patients and their parents were enrolled. QoL scores did not differ significantly between patient self-reports and parent reports. However, correlational analyses revealed that higher NF1 severity was associated with lower physical QoL in patients, and greater NF1 visibility was linked to lower physical and social QoL. For parents, higher NF1 severity correlated with lower school functioning, whereas NF1 visibility did not show a significant correlation with QoL. The severity and visibility of NF1 have distinct impacts on various aspects of QoL in children, highlighting the need for tailored interventions that address both physical and psychological challenges. These findings underscore the importance of comprehensive care approaches in managing NF1 in pediatric populations.