Purpose: Emerging evidence suggests that people with dementia may experience episodes of lucidity (ELs) near the end of life, characterized by a temporary recovery of function, communication abilities, and/or awareness of surroundings. This scoping review aims to identify the available evidence on EL, clarify its key concepts and characteristics, identify knowledge gaps, describe the disciplines involved in EL research, and provide recommendations for speech-language pathologists (SLPs) working with people with dementia at the end of life. The ultimate goal is to guide future research and develop clinical strategies for SLPs involved in end-of-life care for this population. Method: A scoping review was conducted with a systematic literature search across five major databases using relevant terms such as “dementia,” “end-of-life,” and “lucidity,” covering all records up to May 2023. The review included quantitative, qualitative, and mixed-methods studies focused on lucid episodes at the end of life. Results: Of 5,780 articles screened by two independent reviewers, 10 met the criteria and were synthesized using narrative methods. Data extraction and quality assessment were independently performed by these reviewers. Among the selected studies, three were case reports, while the remaining seven employed qualitative assessments based on caregiver or informant reports. Most studies involved disciplines such as nursing, medicine, and psychology. All definitions and reports of lucidity involved aspects of verbal and nonverbal communication by individuals living with dementia. Conclusions: The scoping review provides a valuable synthesis of evidence on lucid episodes in people with severe dementia near the end of life, highlighting an area of growing research interest. Exploring the neurobiological and behavioral aspects of lucidity in dementia can lead to enhanced care for older adults. Given the fundamental role of communication in defining lucidity, SLPs are well positioned to contribute to this research and care continuum.
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