Background: According to international research, it has been found that women with metastatic breast cancer (MBC) have different needs and live different realities than other women. It has been our observation that this is also the case within the Cypriot community, where these realities are often overlooked and rarely discussed, as ignorance, stigma and cultural taboos make women with MBC hide in the shadows. Even though the Republic of Cyprus offers a high standard of medical services for cancer patients, it has been identified that there is more focus on primary breast cancer. Despite the high level of knowledge and advocacy in Cyprus the number of women living with MBC has not been recorded in the National Cancer Registry, therefore the general incidence of MBC in Cyprus remains unknown. Aim: The project recognizes the research gap in understanding the needs of women with MBC in Cyprus, and therefore aims to raise awareness and voice their experiences. The objective is to generate a databank of the experiences and needs of women with MBC that may be a stepping stone in ensuring that MBC is embedded in national cancer strategies. Also, the project aims to improve accessibility to information on MBC and contribute in the prevention, early detection and treatment of breast cancer in Cyprus. The knowledge obtained from this initiative aims to empower patients and advocacy groups. Methods: The project is based on a collaboration between researchers from Europa Donna Cyprus, the Bank of Cyprus Oncology Centre, and the University of Nicosia. This project will recruit MBC patients from all over Cyprus and will use a mixed methods approach. Initially, researchers will assess the quality of life of MBC patients using the SF-36 Measuring Quality of Life Questionnaire. Data analysis will be performed using IBM SPSS. In the second phase, patients will be invited to take part in a qualitative study based on individual interviews regarding their experience of living with MBC. The data obtained will be analyzed using the interpretive phenomenological analysis method. Results: We are currently in the process of data collection and we expect to obtain results by summer 2018. Conclusion: It is expected that the data analysis will offer insight into the lived experiences of women with MBC, identify any challenges that they might face, and what coping strategies women use to overcome them. This knowledge can then be translated and implemented into awareness campaigns, conferences, electronic and printed information materials, but more importantly used as leverage in advocating and influencing decision makers to take actions and adjust national strategies in relation to MBC. Finally, we expect that this project will motivate other researchers to engage into further research of the experience of MBC in Cyprus. Disclosure: Dr. S. Christodoulidou received grant/research sponsorship for this project by SPARC UICC/PFIZER.
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