Primary Caregivers Of Patients Research Articles

Knowledge about Ataxia and Caregiver Burden: Cross Sectional Survey among Primary Care Givers of Patients with Spinocerebellar Ataxia and Parkinsonism

Knowledge about Ataxia and Caregiver Burden: Cross Sectional Survey among Primary Care Givers of Patients with Spinocerebellar Ataxia and Parkinsonism

Effectiveness of standardized psycho-education for primary caregivers of patients in Tertiary Care Hospital

Background: Many people are still unaware that there are effective treatments for schizophrenia. A combination of regular medication, family education and support can reduce the relapse rate from 50% to10%. Aim: To assess effectiveness of standardized psycho-education for primary caregivers on care of chronic mentally ill patients. Method: One group pre-test post-test design with pre-experimental approach was used. 50 primary caregivers of patient with schizophrenia were selected using purposive sampling technique. Data was collected using structured knowledge questionnaire from two selected hospitals of Mangalore. A 45 minutes standardized psycho education was given to primary caregivers in small group of three.Results: Mean knowledge score at pre-test was 25.82±5.35 and 36.28±3.607 at post-test. There was significant difference in knowledge scores of pre-test and post-test (t= 21.676, p

The Relationship Between the Burden of Caregiving and Loneliness in Primary Caregivers of Patıents with Schizophrenia

Objective: This study aims to determine the relationship between the burden of caregiving, and loneliness in primary caregivers of patients with schizophrenia. Method: The study was conducted at the Community Mental Health Center of a university hospital. The sample of the study was found to be 58 primary caregivers. The data were collected using an introductory information form that was prepared by the researchers to inquire about socio-demographic characteristics. The Zarit Caregiver Burden Scale and UCLA Loneliness Scale. Results and Discussion: Participants’ burden of care and loneliness scores are higher than average. Due to the burden of care, women, marriages, literate and mothers have formed a risk group? There is a weak correlation between the burden of care and loneliness in the direction of the results obtained from study, and the burden of the caregivers has reached the result that they feel more alone. Conclusion: There is a weak correlation between the burden of care and loneliness in the direction of the results obtained without the work, and the burden of the caregivers has reached the result that they feel more alone.

Relation Among Anxiety and Family Burden in Primary First-Degree Caregivers of Outpatients with Mental Disorders in Turkey

ABSTRACTThe aim of this study was to determine the relation among anxiety and family burden in primary first-degree relative caregivers of outpatients with mental disorders in Turkey. Data were collected with patients' primary first-degree relative caregivers via the Information Form, Beck Anxiety Inventory (BAI), and Perceived Family Burden Scale (PFBS). In all, 481 caregivers (325 women and 156 men) participated in this study. Based on this study's results, primary caregivers of patients with mental disorders had a moderate level anxiety, and as anxiety increased, family burden also increased. Those results suggest that mental health nurses should plan interventions not only for patients, but also for their family member or their caregivers to decrease anxiety level.

The Relationship Between the Burden of Caregiving, Submissive Behaviors and Depressive Symptoms in Primary Caregivers of Patients With Schizophrenia

The Relationship Between the Burden of Caregiving, Submissive Behaviors and Depressive Symptoms in Primary Caregivers of Patients With Schizophrenia

Explanatory models and distress in primary caregivers of patients with acute psychotic presentations: A study from South India.

Emotional distress among caregivers of people with mental illness is common, changes overtime and requires appropriate coping strategies to prevent long-term disability. Explanatory models, which underpin understanding of disease and illness, are crucial to coping. To study the association of explanatory models and distress among caregivers of people with acute psychotic illness. A total of 60 consecutive patients and their primary caregivers who presented to the Department of Psychiatry, Christian Medical College, Vellore, were recruited for the study. Positive and Negative Syndrome Scale (PANSS), Short Explanatory Model Interview (SEMI) and the General Health Questionnaire-12 (GHQ-12) were used to assess severity of psychosis, explanatory models of illness and emotional distress. Standard bivariate and multivariable statistics were employed. Majority of the caregivers simultaneously held multiple models of illness, which included medical and non-medical perspectives. The GHQ-12 score were significantly lower in people who held multiple explanatory models of illness when compared to the caregivers who believed single explanations. Explanatory models affect coping in caregivers of patients with acute psychotic presentations. There is a need to have a broad-based approach to recovery and care.

Level of depression among primary caregivers of patients with substance abuse

Level of depression among primary caregivers of patients with substance abuse

Effect of VAPE about mother and infant health on knowledge among primary caregivers of patients with postpartum psychiatric illness:- A pre-experimental study.

Post partum psychiatric illnesses are quiet common nowadays, which can interfere with postnatal care of both mother and infant. The present study was a one group pre-test - post-test design, adopted with an aim to enhance the knowledge on mother infant health among primary caregivers of mothers with postpartum psychiatric illnesses conducted in the mother-baby unit, NIMHANS, Bengaluru. Twenty five subjects who met the inclusion criteria were recruited through convenience sampling. After the pilot study, data was collected with a researcher developed tool. The Video Assisted Psycho-Education [VAPE] consisted of three sessions lasting for thirty minutes, taken over three consecutive days following the pre-test. Post-test was done immediately after the last session. Effectiveness of the intervention was established by McNemar test, Paired t-test and Wilcoxon Sign Ranks test. Analysis revealed statistically significant (p<0.001) increase in the post-test mean knowledge scores following the VAPE sessions. There was no statistically significant association between the pre-intervention knowledge score and the socio-demographic variables of the study subjects. The study findings revealed that the VAPE programme was effective in increasing the knowledge of the primary caregivers on mother infant health.

Prevalence of depression and its associated factors among primary caregivers of patients with severe mental illness in southwest, Ethiopia

BackgroundDepression is a serious mental illness that affects patients’ treatment outcome and caregiver’s day to day life. The prevalence of depression among caregivers of patients with severe mental illness is greater than the general population. Little is known about depression among primary caregivers of patients with severe mental illness in Ethiopia. This study is aimed at assessing prevalence of depression and associated factors among primary caregivers of patients with mental illness.MethodsA cross-sectional study was conducted among primary caregivers of patients with severe mental illness in Jimma University Teaching Hospital. Patient health questionnaire (PHQ-9) was used to assess depression. A multidimensional scale of perceived social support (MSPSS) was used to assess perceived social support; Cut down, Annoyed, Guilty, Eye opener (CAGE) scale was used to assess alcohol use disorder. After conducting descriptive analyses, logistic regression analysis was finally used for bivariate and multivariable analysis.ResultThe overall prevalence of depression among primary caregivers of patients with mental illness was 12 (19%). Out of those caregivers with depressions, 11.3, 3.5 and 4.2% had moderate, moderately severe and severe types of depression respectively. The prevalence of depression among female primary caregivers was 25% (n = 40). Being single (aOR 2.62, 95% CI = 1.07, 6.41), giving care more than six hours per day (aOR 3.75, 95% CI = 1.51, 9.33) and caring for a patient who had more than once episodes of suicidal attempts (aOR 1.48, 95% CI = 1.07, 3.42) were positively associated with depression among caregivers of patients with mental illness.ConclusionWe found that the prevalence of depression among primary caregivers was high. Depression among caregivers was associated with giving care more than six hours per day and caring for a patient who had two or more episodes of suicidal attempts. The prevalence of depression among female caregivers was higher than that of the male caregivers. Therefore, special focus should be given to primary caregivers spending long hours for providing care, those with low perceived social support; caregivers of patients with suicidal ideation and female caregivers.

Testing the feasibility of using the Edmonton Symptom Assessment System (ESAS) to assess caregiver symptom burden.

Caregiver symptom assessment is not part of regular clinical cancer care. The ESAS (Edmonton Symptom Assessment System) is a multidimensional tool regularly used to measure symptom burden in patients but not caregivers. The objectives of the present study were to determine the feasibility of the ESAS in caregiver completion (defined as ≥ 9 of 12 items) and determine its concurrent validity with the Zarit Burden Interview-12 (ZBI-12). We conducted a prospective study on 90 patient-primary caregiver dyads seen in an outpatient supportive care center in a cancer center. The 12 item ESAS-FS (financial-spiritual) was completed by the dyads along with other clinical and psychosocial measures. The caregiver ESAS was found to be feasible (90/90 caregivers, 100% completed ≥ 9/12 items) and useful (66/90 caregivers, 73%) by caregivers to report their symptom burden. Some 68 of 90 (76%) caregivers had symptom distress scores ≥ 4 on at least one symptom. A significant association was found between the ESAS scores of caregivers and patients for fatigue (0.03), depression (<0.01), anxiety (<0.01), sleep (0.05), well-being (<0.01), financial distress (<0.01), spiritual pain (<0.01), and total ESAS score (<0.01). Concurrent validity with the ZBI-12 was not achieved (r = 0.53, p = 0.74). A significant correlation was found between caregiver ESAS scores and time spent feeding, housekeeping, total combined caregiver activities, and total ZBI-12 scores. The caregiver ESAS is a feasible tool and was found useful by our caregivers. Further research is needed to modify the ESAS based on caregivers' recommendations, and further psychometric studies need to be conducted.

Posttraumatic growth and its correlates in primary caregivers of schizophrenic patients.

Context:The concept of posttraumatic growth (PTG) is important to focus on positive outcomes of a challenging process like caregiving.Aims:The aim of the present study is to investigate the factors inclusively considered to be related to PTG in primary caregivers of schizophrenic patients.Settings and Design:This cross-sectional study was conducted with caregivers of patients with schizophrenia between January 2013 and February 2014 at a mental health hospital.Materials and Methods:The study was carried out on 109 schizophrenic patients followed up at Bakirkoy Prof. Dr. Mazhar Osman Research and Training Hospital for Psychiatry, Neurology, and Neurosurgery, and 109 family members who are the primary caregivers of the patients. All caregivers were evaluated with Posttraumatic Growth Inventory, Multidimensional Scale of Perceived Social Support, Ways of Coping Inventory, and the Basic Personality Traits Inventory and Religious Orientation Scale.Statistical Analysis:Kruskal–Wallis and Mann–Whitney U-test were used in quantitative analysis of data. Spearman's correlation analysis was used in the determination of correlation between variables. Linear regression analysis was used in the determination of predictors of PTG.Results:Optimistic and problem-focused coping, perceived social support (total and all three - family, friends, significant others - domains), personality traits such as extraversion, conscientiousness, and openness to experience, and religiousness were found to be related with PTG. Religiousness, perceived social support, and openness to experience were independent predictors of PTG.Conclusions:Interventions to caregivers of schizophrenic patients on the domains of social support and coping strategies may contribute to caring process in a positive change.

Impact of WeChat platform-based nursing care on digestive system symptoms and care burden of primary caregivers of patients with lung cancer on chemotherapy

Impact of WeChat platform-based nursing care on digestive system symptoms and care burden of primary caregivers of patients with lung cancer on chemotherapy

Assessing the Correlations between the Caregiver Burden Scale, Mood, Life Satisfaction, and Coping Skills in Traumatic Brain Injury (TBI) Patients

This study assessed caregiver burden experienced by primary caregivers of patients with acquired brain injury (ABI) and determined the correlations between caregiver burden and behavior change after ABI in a sample of patients seeking treatment.

Assessment of distress in primary caregivers of patients with advanced cancer.

e21540Background: Primary caregivers of cancer patients deal with enormous physical and emotional burden without any training or support. Inevitable consequences include impaired individual well-be...

Impact on health status's primary caregivers of patients with cancer at National Cancer Institute Mexico an unmet need.

e18019Background:In developing countries most of the cancer patients (CP) are diagnosed in advanced stages. So they loosed their independence and the participation of the primary caregivers (PC) is...

The Edinburgh Cognitive and Behavioural ALS Screen in a Chinese Amyotrophic Lateral Sclerosis Population.

ObjectiveThe existing screening batteries assessing multiple neuropsychological functions are not specific to amyotrophic lateral sclerosis (ALS) patients and are limited to their physical dysfunctions, whereas category cognitive tests are too time-consuming to assess all the domains. The Edinburgh Cognitive and Behavioural ALS Screen (ECAS) was recently developed as a fast and easy cognitive screening tool specifically designed for patients. The purpose of the study was to validate the effectiveness of the Chinese version in Chinese ALS populations.MethodsEighty-four ALS patients and 84 age-, gender- and education-matched healthy controls were included in this cross-sectional study. All the participants took the ECAS, Mini-Mental State Examination (MMSE) and Frontal Assessment Battery (FAB). Primary caregivers of patients were interviewed for behavioural and psychiatric changes.ResultsSignificant differences were noted in language (p = 0.01), fluency, executive function, ALS-specific functions, and ECAS total score (p<0.01) between ALS patients and controls. The cut-off value of the total ECAS score was 81.92. Cognitive impairment was observed in 35.71% of patients, and 27.38% exhibited behavioural abnormalities. The ECAS total score had a medium correlation with education year. Memory was more easily impaired in the lower education group, whereas verbal fluency and language function tended to be preserved in the higher education group. The average time of ECAS was only 18 minutes.ConclusionThe Chinese version of the ECAS is the first screening battery assessing multiple neuropsychological functions specially designed for the ALS population in China, which provides an effective and rapid tool to screen cognitive and behavioural impairments.

Knowledge And Attitude on Electro Convulsive Therapy Among Primary Care Givers

1 M.Sc(N), M.sc(Psy), PGD(Guidance & Counseling ) 2 S, M.Sc(N)., Ph.D Abstract: Background & objectives: Electro Convulsive Therapy (ECT) is used frequently in developing countries, but investigations of care givers Knowledge and Attitude towards ECT are rare. The present study thus attempted a comprehensive examination of care givers knowledge, and attitudes towards ECT. Methods: Descriptive study was employed to study the level of knowledge and attitude towards ECT among the primary care givers of patients who are receivingECT. A sample of 30 consecutive primary care givers of patients who received ECT was recruited for the study. Results: Care Givers mainly middle aged, males, Hindus, educated up to secondary level, doing unskilled works and were parents. There was significant relationship between adequate knowledge and the positive attitude.(p=0.001).There is a significant relationship between the Number of Hospitalization with Level of Knowledge (p=0.018), Knowledge level and Religion (p=0.047), knowledge level andthe number of hospitalization. (p=0.009).There is a positive correlation (r=0.576) between the knowledge and attitude towardsECT; primary care givers, who have adequate knowledge aboutECT, have a positive attitude towards it. On the other hand those who don't know much about ECT have an ambivalent and negative attitude towardsECT.

Caregiver Burden in End-Stage Ovarian Cancer.

Caregiver burden associated with caring for women with ovarian cancer has received limited focus. However, these patients often have complex needs, requiring a high level of care at home and imposing substantial burdens on caregivers. This pilot study assessed the level of caregiver burden experienced by the primary caregivers of patients with end-stage ovarian cancer and identified variables associated with caregiver burden. Caregiver burden was assessed using the Caregiver Reaction Assessment. Fifty caregivers completed an anonymous and voluntary survey. Pearson correlations and independent samples t tests were used to analyze data. Most participants were Caucasian, married or living with a partner, and college graduates, with an annual household income of less than $90,000. Caregiver ages ranged from 29-81 years. Participants agreed most with the self-esteem scale, indicating they had pride in caring for their loved ones. Disrupted schedules and financial problems were the most burdensome factors in providing care. Because financial issues affected caregiver burden, nurses should facilitate interdisciplinary support. Future research is needed to determine the impact of nurse-led interventions to reduce caregiver burden.

Correlation analysis of family caregivers′ burden and fatigue condition of home-living patients with Parkinson′s disease

Objective To investigate family caregivers′ burden and fatigue condition of home-living patients with Parkinson′s disease and to explore the relationship between the burden of care and the condition of fatigue. Methods By convenience sampling methods, 136 family caregivers, who took care of Parkinson′s disease patients, were investigated. Caregiver burden scale and fatigue self rating scale were used to investigate the burden and fatigue status of primary caregivers of patients with Parkinson′s disease. Results The total score of home caregiver′s burden was (37.54±8.15) and the total score of fatigue was (53.18±11.62). The total score of the care burden was positively correlated with the total score of fatigue of primary caregivers of home Parkinson patients (P<0.05); personal burden and physical fatigue, mental fatigue, fatigue total score was positively correlated (P<0.05); the burden of responsibility and the decrease in the dynamics, mental fatigue was positively correlated (P<0.05). Conclusions The burden of family caregivers of home-living patients with Parkinson′s disease is moderate, and the fatigue condition is in the moderate level of fatigue. Nurses should strengthen the evaluation of the family caregivers′ burden of home-living patients with Parkinson′s disease, in order to relieve their fatigue status. Key words: Parkinson; Caregiver; Burden of care; Fatigue condition

Stigma Associated with Electroconvulsive Therapy among Primary Care Givers of Patients Who Received ECT

The purpose of this study was to assess the stigma associated with ECT among primary care givers of patients who received ECT at Department of Psychiatry, Christian Medical College, Vellore. A sample of 50 primary caregivers are selected using total enumeration sampling technique. Data were collected by interviewing the subjects with Stigma assessment scale. The mean age of primary care givers was 46.40 years. The findings of the study revealed that majority of the primary care givers(76%) still holds ECT as a stigmatizing treatment option. The findings of the study demonstrate the need for adequate psycho education to the primary care givers in reducing stigma and could be utilized in clinical areas by nurses in improving the effective care to patients undergoing ECT.