Perspectives Of Young Adults Research Articles

The Impact of an Intensive Summer Treatment Program for Adolescents with ADHD: A Qualitative Study of Parent and Young Adult Perspectives

The Impact of an Intensive Summer Treatment Program for Adolescents with ADHD: A Qualitative Study of Parent and Young Adult Perspectives

Balancing Protection and Progress in Pediatric Palliative Care Research: Stakeholder Perspectives.

Pediatric palliative care, including end-of-life care, remains a relatively new area of interdisciplinary clinical practice and research. Improving the multifaceted and complex care of children and their families involves research that (1) documents the experiences of children with serious illness, their families, and clinicians; (2) evaluates relationships between contextual factors and health outcomes; and (3) establishes a stronger foundation for child- and family-focused interventions to improve care. Partnership among stakeholders in family-focused research begins from design through conduct of the study. This partnership is the foundation of a dynamic research process that illuminates critical perspectives. We present a hypothetical pediatric palliative study; a qualitative descriptive study of the perspectives of adolescents and young adults with life-limiting illnesses and their parents after a discussion about an end-of-life decision. Pediatric palliative care researchers, institutional review board leaders, and the parent of a child who died comment on how to balance the obligations to improve clinical care and to protect participants in research. Their recommendations include recruiting a wide range of participants, differentiating emotional responses from harm, approaching potential participants as individuals, and seeking feedback from family advisory boards and designated reviewers with content expertise.

“It cannot be boring!”: Developing a measure of function for young adults accessing integrated youth services

BackgroundIn Canada, the prevalence of mental health challenges is highest in young people aged 12–24. Mental health challenges frequently cause marked functional impairment. Despite this, we are unaware of any existing conceptualization and/or measures of function that has been developed from the perspective of young people. The objective of this paper is to develop a conceptual and measurement model, including a preliminary set of items, for an outcome measure of function for young adults accessing mental health services.MethodsWe conducted this study in three phases. In phase 1, we conducted three focus groups to conceptualize function as a construct from the perspective of young adults. In phase 2, we co-designed a set of items with youth (n = 4) to capture the construct. In phase 3, we invited young people (n = 12) accessing mental health services to complete workbooks and participate in one of two focus groups to evaluate whether items were clear, captured function comprehensively, and were relevant. We transcribed and compiled all data to eliminate, refine and generate new items.ResultsIn phase 1, a conceptual model of function was developed with three main themes: basic needs, roles and responsibilities, and social connections. In phase 2, 97 candidate items were developed, and in phase 3, a candidate pool of 50 items resulted for psychometric testing.ConclusionThis youth-centred conceptualization of function and preliminary item bank has the potential to advance person-centred care, outcomes, and experiences for youth seeking mental health services.

“AİLE” KURUMUNA ATFEDİLEN ANLAMLARIN ZİHİN HARİTALARINA YANSIMALARI

Today, with the effect of modernization, important changes have occurred in family structures. Many factors such as the roles of individuals in the family, functions of the family, family structure, and intra-family communication have been affected by this change. The perspective of young adults towards the family is also significantly affected by this difference in family structures.In this study, it is aimed to examine the family perceptions of preschool teacher candidates through mind maps. 50 preschool teacher candidates, who took effective communication and parent education course, participated in the study designed with a qualitative research design. With the mind maps used as a data collection tool, the mental images of the preschool teacher candidates about the concept of "family" were tried to be determined. The themes obtained from the mind maps of preschool teacher candidates were grouped under seven headings. These titles are it was determined as "basic concepts about family types, basic concepts about family functions, basic concepts about family members, basic concepts about feelings towards family, basic concepts about family values, basic concepts about communication, basic concepts about elements that disrupt family unity". Major branches were taken as basis in determining the themes and sub-branches were used in determining the codes. In the creation of the codes, pictures and words were considered and the codes were placed within the relevant themes. In addition, the analysis results were expressed as frequency, frequency averages and percentages. The basic concepts associated with family types in the research; settlement, authority, size, biological and foster family themes. In this category, it was concluded that the theme that preschool teacher candidates predominantly included in their mind maps was family according to size. The themes created in the classification made according to family functions; biological functions, psychological functions, educational functions, social functions, cultural functions, economic functions. It was determined that the theme with the highest frequency was social functions. In the research, the basic concepts associated with family members were gathered under the nuclear family and extended family themes, and it was concluded that the nuclear family theme was more dominant. Emotions towards the family were categorized under the sub-themes of positive and negative emotions. It has been observed that positive feelings towards the family are given more place in the mind maps of pre-school teacher candidates. Themes for the basic concepts associated with the values of the family; power, universalism, benevolence, tradition, conformity, and security. Benevolence and tradition are the themes with the highest frequency in this category. Basic concepts associated with communication; attitudes, communication with the environment, communication within the family, technology tools, and outputs of correct communication. Among these themes, the themes with the highest frequency are; attitudes and family communication. It has been concluded that the basic concepts of lovelessness and incompatibility have the highest frequency in the category of elements that disrupt family integrity. In this study, mind maps were effective in revealing the family perceptions of preschool teacher candidates.

Current and future living arrangements: The perspective of young adults with intellectual disabilities

AbstractBackgroundThe transition from adolescence to adulthood typically involves exploring living options. However, there is very little research focusing specifically on the views of young adults with intellectual disabilities on this topic. This article contributes to this topic by exploring the views of Irish young adults with intellectual disabilities regarding their current and future living arrangements.MethodsTen participants (18–23 years; four males), living in their family home, were recruited through a disability services provider in Dublin. Semistructured interviews were conducted, and data analysed using thematic analysis.FindingsParticipants were positive about their current living situation, especially in terms of the people they live with, and the personalised nature of their home. In terms of future living, participants displayed a general openness to move out, although half of the participants would prefer to remain in their current living situation. Participants indicated a preference for living with familiar and compatible company. Participants highlighted their knowledge of rights and responsibilities, as well as their understanding of the value of daily living skills, and the costs involved with living. Participants unanimously expressed a desire to be the primary decision maker regarding their future living situation. Supports in both daily living and significant decision‐making were discussed.ConclusionsThis study provides an important insight into the views of these young adults and can assist in filling the gap in current literature regarding this population's views of their current and future living arrangements.

‘They Change Our Lives More than We Change Them’: Young Adults’ Perspectives on Relationships with Autistic Siblings

ABSTRACT Although sibling relationships are significant and enduring throughout the lifespan, research concerning relationships among young adults and their autistic siblings is scarce. The goal of this study was to gain a deeper understanding of multiple features of the sibling relationship from the perspectives of young adults with autistic siblings. Eleven participants completed a semi-structured interview focused on sibling communication, shared activities, family impact, benefits, and personal influence of having an autistic sibling. Qualitative analysis of participant perspectives yielded themes including Personal Qualities and Perspectives, Barriers to Communication, and Family Challenges and Limitations. Over half of the participants shared that their sibling influenced their chosen career path. Results are discussed in relation to previous literature, with an emphasis on the importance of acknowledging and supporting relationships between autistic individuals and their siblings.

Family communication challenges of adolescents and young adults with Li-Fraumeni syndrome: Implications for psychosocial care

ObjectivesThis qualitative-descriptive study explored adolescent and young adult (AYA) perspectives, experiences, and challenges with openness and closedness in family communication about Li-Fraumeni syndrome (LFS). MethodsWe conducted interviews with AYAs (aged 15–39 years) with LFS enrolled in the National Cancer Institute’s LFS study (NCT01443468). An interprofessional clinician-researcher team analyzed transcribed data using the constant comparative method and interpretive description. ResultsAYAs (N = 38; 26 females, 12 males, mean age=29 years) reported navigating openness and closedness about LFS in their families, which varied by LFS topic, relationship, disease trajectory, and developmental phase. AYAs described communication challenges, including broaching difficult topics (e.g., reproductive decision-making, end-of-life), balancing information-sharing with emotionally protecting family and self, and struggling with interactions that cause relational tensions. ConclusionsAYAs reported experiencing LFS family communication challenges that disrupted their psychosocial well-being. LFS-related stressors and life transitions complicated and were complicated by these challenging family interactions. Practice implicationsClinicians may support AYAs with LFS by inquiring about family communication, responding empathically to communication concerns, providing resources to support difficult conversations, and engaging mental health providers as needed. Researchers could partner with AYAs to develop tailored communication skills training and social support tools.

Telehealth for Social Interventions With Adolescents and Young Adults: Diverse Perspectives

ABSTRACT This article describes the telehealth experiences of adolescents, young adults, and youth workers during the first and second waves of the COVID-19 pandemic in the province of Québec, Canada, where remote appointments was the recommended alternative to in-person meetings due to various public health restrictions. Four main themes emerged from individual interviews with nine adolescents and young adults (aged 15–25 years) and focus groups with 35 service providers: the trust relationship, loss of nonverbal communication, confidentiality concerns, and youth disengagement. Participants agreed that face-to-face psychosocial intervention is the preferred option for quality care and service. However, with appropriate support and infrastructure, telehealth could be a reliable alternate modality for reaching adolescents and young adults in remote and rural areas as well as for follow-up care for adolescents and young adults who have an established and trusted relationship with their service provider. For interventions to remain youth-friendly and person-centred, adolescents and young adults must always be offered a choice of modality. IMPLICATIONS Perspectives of adolescents, young adults, and youth workers intersect to provide a unique understanding of telehealth in a specific context. There is scant literature on the use of telehealth as a social work practice modality, specifically with adolescents, young adults and their families. This article attempts to fill this gap by providing an early look at the experiences of telehealth during the first two waves of the COVID-19 pandemic in Québec, Canada.

A Qualitative Study on the Perspectives of Young Adults in Iqaluit on School-based Sexual Health Education

Introduction: Historical traumas led to the alteration of traditional education pathways, including education on sexual and reproductive health and healthy relationships. Parents no longer are the sole or majority source of information on these topics for youth; the education system and medical professionals have largely replaced parents to this regard. However, for many Inuit youth, parents largely remain the preferred source for this information.
 Methods: This narrative research study explores young people’s perspectives on the topic of sexual health education. Six sharing circles were conducted on six separate occasions in [community]. 12 youth aged 18 to 22 years participated, which included men (n=3), women (n=8), and non-binary persons (n=1). Four participants identified as LGBTQ+.
 Results: Sexual health education youth received was perceived to lack information they want and need to live sexually health lives. Peer networks were deemed a positive influence, however at times exerted pressure on youth to participate in sexual activities for which they were not ready. Parents were rarely a source of sexual health information, though youth overwhelmingly desired conversations on sexual health topics with their parents.
 Conclusion: Results show there is a need to implement community-based resources to address sexual education within Nunavut communities, and to educate parents on how to communicate sexual health information to their adolescent children. The development of a resource for adults could decrease the gap between youth and existing sexual health information including accessing support from family.

Perspectives on Intimate Relationships and Self-Determination in Young Adults With Down Syndrome

Abstract Date Presented 04/01/2022 Intimate relationships are significantly associated with quality of life for young people with Down syndrome (DS). These relationships are a facet of social participation within the scope of OT practice that is not often addressed in practice. This descriptive study explores self-determination and perceptions of intimate relationships from the perspective of young adults with DS (ages 18-30 years) and their caregivers. Implications of findings for OT practice are discussed. Primary Author and Speaker: Katherine Williams Contributing Authors: Evguenia Popova, Katie Frank

A safe place – Adolescents’ and young adults’ perceptions of youth clinics in northern Sweden

Background/objectiveAdolescents and young adults are a diverse group with varied health needs. In Sweden, youth clinics are critical for improving their sexual, reproductive, mental, and general health. The aim of this qualitative study was to gain a deeper understanding of key conditions needed for youth friendliness, and to better understand youth-friendly health services from the perspective of adolescents and young adults in northern Sweden. MethodsInformation was collected through focus group discussions and interviews with 23 adolescents and young adults (aged 16 to 25) at youth clinics in each of the four northernmost regions of Sweden. Interviews were analysed inductively using Braun and Clarke’s thematic analysis. ResultsThree themes and six sub-themes emerged. A safe, empowering and holistic space, outlines how youth-friendly physical spaces and staff contributed to a sense of safety in contrast to other healthcare facilities. The theme Youth clinics are accessible – but reaching out is challenging, refers to low thresholds for visiting youth clinics and perceived barriers to access. The third theme “You feel a bit vulnerable” – the importance of privacy, highlights privacy dimensions and young people’s vulnerability when their privacy is compromised. ConclusionAdolescents and young adults perceived youth clinics as being youth-friendly. Key conditions for youth friendliness were safety, respect, a holistic and empowering approach, accessibility, and privacy. Youth-friendly opening hours and outreach to specifically target groups with access barriers are needed. Young people should be involved in the development of equitable youth-friendly health services.

How Technologies Can Support Self-Injury Self-Management: Perspectives of Young Adults With Lived Experience of Nonsuicidal Self-Injury.

BackgroundThere is growing interest in the design of digital interventions to improve conditions for young people who engage in high-risk behaviors, like nonsuicidal self-injury (NSSI). However, few studies have focused on how young people self-manage NSSI, or their existing, and historic, use of technologies to support their goals related to NSSI behavior change. Such an understanding has the potential to inform the design of digital interventions that meet this population's unique needs.ObjectivesThis study aims to (a) understand the self-management practices of young adults who engage in NSSI, (b) explore how they currently use technologies for self-injury self-management, and (c) identify the ways they can envision an app-based technology supporting their self-management.Methods and MaterialsTwenty young adults (aged 18–24) with lived experience of NSSI, and who were not currently enrolled in therapy, were recruited from online venues. Participants completed baseline measures to assess mental health and NSSI characteristics, followed by a virtual 1-h semi-structured interview where they were invited to share their experience of self-management, their goals, and their thoughts on supportive technology. Interview scripts were transcribed and analyzed via thematic analysis.ResultsThemes and sub-themes are organized under two broad domain areas: (1) How young adults self-manage NSSI thoughts and behaviors and (2) Opportunities and challenges for digital interventions to assist young adults in their recovery process. We found that young adults had varied experiences with, and goals related to, NSSI. Participants reported a lack of effective strategies to reduce NSSI urges and a desire for an app-based technology to track patterns and deliver personalized suggestions for self-management. Participants reported existing use of technologies as part of self-management, as well as early information and support seeking for NSSI online.ConclusionsThis study contributes a greater understanding of young people's experiences with self-injury, their self-management practices, and their desire to engage with technology. Our findings highlight the need for design flexibility in developing digital interventions that support individual goals, unique presentations of NSSI, and needs at different phases of recovery. Implications for the design of highly personalized and relevant digital interventions to address NSSI are discussed.

Telepsychiatry services during COVID-19: A cross-sectional survey on the experiences and perspectives of young adults with first-episode psychosis.

IntroductionLimited evidence exists on the implementation of telepsychiatry within the context of early intervention services for psychosis, the need for which has become even more relevant during the COVID‐19 pandemic. To address this gap, we investigated the experiences and perspectives of young adults recovering from a first‐episode psychosis (FEP) following their use of telepsychiatry services (i.e. use of video conferencing technology to deliver mental health services to patients in real time).MethodsA cross‐sectional online survey study was implemented between November 19th, 2020 and March 9th, 2021 with young adults recruited from a specialized program for FEP located in an urban Canadian setting. Data were analysed using descriptive statistics, exploratory (Fisher's exact test), and content analysis.ResultsAmong 51 participants (mean age = 26.0, SD = 4.7; 56.9% female), the majority were satisfied with the service (91%, 46/51), perceived that the platform was easy to use (90%, 46/51) and felt secure in terms of confidentiality (82%, 42/51). Satisfaction was related to perceptions regarding ease of use, image quality, and employment/studying status. Several partially or totally agreed that the presence of a third party was essential to login during the first few sessions (35%, 18/51), and some needed technical support (24%, 12/51) throughout the sessions.ConclusionsThis study shows that telepsychiatry is feasible and acceptable to implement for patients in the early phase of psychosis recovery. It also highlights the importance of making technical support available, especially in the first few times of using the service, and addressing patient concerns regarding confidentiality, even when using secured health technologies.

“There wasn’t any build up to it, it was just like, now you have to go over.” Disengagement during the Child to Adult Community Mental Health Service Transition

This study explored the personal, real-time experience of accessing adult mental health services after aging out of child mental health services. Mean age of the 19 participants at enrollment was 18. Eleven identified as women, five as men, and two as gender non-conforming. Over half of the sample identified as Hispanic or Latinx. This study employed a longitudinal, qualitative design with three interviews over 12-months (e.g., baseline, 6-months, 12-months), and monthly check-ins to prevent study attrition. Interviews explored previous and current mental health service experiences; the transition experience from child-to-adult services, and perceived service barriers and facilitators. Research team members used thematic coding to code each interview individually, focusing on identifying the disengagement timeline, experience, and related factors. Universally, participants saw a benefit in continuing mental health services, but almost all disengaged due to difficulty in navigating care and getting their needs met during the transition from child to adult services. This study provides a young adult perspective on the real gap between child and adult services within one community mental health agency. Improved transition practices and tailoring services to young adult development may prevent mental health disengagement during the transition from child to adult service systems.

Adolescent and Young Adult Cancer Patients’ Supportive Care Needs—A Social Work Perspective

Abstract The purpose of this study was to identify (unmet) needs from a social work perspective of Adolescents and Young Adults (AYAs; aged eighteen to thirty-nine years) treated for cancer. The biopsychosocial model was used as framework to investigate the (unmet) needs of the AYAs. AYAs within two years after their cancer diagnosis were invited to participate in an interview. In addition, case studies were presented. Nine AYAs agreed to participate in the interviews. All respondents struggled with the rehabilitation and ‘post cancer’ phase and the impact of the treatment on their physical, sexual and psychological well-being. AYAs with an active desire to have children mentioned lack of information about the options of fertility preservation. The respondents would recommend psychosocial support for their peer AYAs, despite the absence of a need themselves. Themes such as lack of control, social economic (financial) status and existential issues were less prominent. Social workers should standardly be involved in the hospitals’ care path throughout the disease continuum: starting at diagnosis, continuing throughout treatment, and importantly, also in the rehabilitation phase and end-of-life care. The biopsychosocial model can serve as a tool to support the social worker in the counselling of these AYAs.

When and how to deliver oncology supportive care resources: An adolescent and young adult perspective.

6569 Background: The Coleman Supportive Oncology Collaborative for Adolescents and Young Adults (CSOC AYA) is a multi-institution Chicago-based quality improvement collaborative consisting of representation from AYA-focused oncology teams at six hospitals and national patient advocacy organizations. Coping with cancer as an AYA is challenging given their complex and unique phases of life and dichotomy between pediatric and adult care. AYAs with cancer are a recognized underserved population within the cancer community and have unique supportive care needs that are often unmet. The CSOC AYA focuses on improving access to resources for supportive care. Methods: We implemented an online survey across six cancer treatment centers (5 academic, 1 community) engaging 50 AYAs. Participants were newly diagnosed (2), currently on treatment (18), or off treatment (30). Participant age range was representative of AYAs ( < 18years: 2%, 18 – 24: 36%, 25 – 34: 55%, and 35-39: 7%). Reported race was 60% Caucasian, 10% Black, 18% Latino, 8% Asian, 2% American Indian, and 2% other. Questions were asked to inform which supportive resources were desired by patients, when the resources would be most useful during the care continuum, and the preferred methods to receive information. Results: Greater than 54% percent of respondents desire social/emotional resources and peer connection at diagnosis. During treatment and after treatment, > 71% and > 56% respectively, desire guidance regarding nutrition/diet and physical activity/exercise, in addition to social/emotional support and peer connection (See table). Preferred methods to receive information were identified: 72% via email or text, 60% in person, and 45% via a patient portal. Conclusions: The CSOC AYA survey identified the type of supportive care resources AYAs need, when they are wanted, and their preferred methods for receiving them. Optimizing accessibility and availability of supportive care resources can enable AYA self-management and has the potential to improve quality of life. These survey results will serve as the basis for a patient-facing online intervention implemented throughout the care continuum with the intent to improve supportive care access for AYAs with cancer. [Table: see text]

The Role of Social Capital in the Transition to Postsecondary Education of Students Who Are Deaf or Hard of Hearing.

Social capital can positively influence students' postsecondary aspirations and their postschool transitions to higher education and employment. Educators, families, and young people themselves can play an active role in generating and developing adolescents' social capital. A targeted focus on developing robust social capital could play an important role in the transition planning and support provided to secondary students who are deaf or hard of hearing (DHH) and contribute to their success in postsecondary education and employment. A qualitative study gaining the perspectives of DHH young adults attending universities in Australia investigated the role of social capital in assisting DHH students in their attainment of postsecondary education. Ten DHH university students who communicated primarily through spoken English participated in semistructured interviews. Thematic analysis identified social capital facilitator themes on four levels: community, school, family, and individual. In addition, two barrier themes were identified.

Assessment of adolescent and young adult oncology patient and provider perspectives in Philadelphia (AYA-4P).

TPS6604 Background: The overall cancer incidence continues to increase in adolescent and young adult patients (AYAs), defined by the National Cancer Institute as individuals diagnosed between the ages of 15-39. Both disease biology and psychosocial needs are unique for young adults living with cancer. AYAs are more likely to have challenges related to work, insurance, relationships, fertility and emotional distress. Studies demonstrate that specialized supportive care improves outcomes such as health-related quality of life, mental health, and physical functioning. Most AYA oncology programs are developed without patient input and affiliated with pediatrics. The Sidney Kimmel Cancer Center (SKCC) at Jefferson is an adult oncology group serving over 900 new patients annually between the ages of 18-39, but does not have a formal AYA program. With guidance from patient advocates and other validated tools, a unique survey-based needs assessment was created by SKCC to provide data for the development of a comprehensive, patient-centered model of care for AYAs. Methods: A one-time survey will be administered electronically to participants through Qualtrics. Solicitation from SKCC and the Young Adult Cancer Connection, a local patient advocacy group, will occur via social media and email aggregation. Eligible patients are those who received the majority of their cancer care within 30 miles of Philadelphia between the ages of 18-39. Eligible healthcare providers include current advanced practice providers or physicians who have practiced at SKCC for at least 1 year. There are no hypotheses being tested or primary outcome variables, therefore no sample size calculations were performed. A $10 Amazon card is offered as incentive for the patient-directed survey to improve response rates and reach at least 100 completed surveys. The provider survey includes no completion incentive. Each survey should take no longer than 20 minutes to complete and no follow-up is required. Surveys are multiple choice with a single open-ended, free response question at the end for additional comments. Categorical survey responses will be summarized using frequencies and percentages. Descriptive statistics and data visualization will be used to characterize the patient demographics and summarize awareness, experiences, and priorities of the participants. Primary objectives of the surveys are to assess AYAs’ current perspective of age-specific medical services and psychosocial support in Philadelphia, as well as to assess the knowledge and perspective of providers of the current care and available services for AYAs at SKCC. The secondary objective is to identify patient preferences and areas for improvement. By using the data generated from the surveys, SKCC will be more informed in their patient-centric approach to program development in an effort to improve the overall care for Philadelphia’s AYA oncology community.

625-P: Exploring Social Media as Potential Support for Young Adults (YA) with T1D

Objective: YA use social media (SM) frequently. Diabetes-focused SM posts may offer support for those with T1D. This qualitative study sought to explore perspectives of YA with T1D on diabetes-focused SM posts. Methods: Semi-structured interviews were conducted through videoconferencing with YA with T1D (age 18-25 years, T1D duration 1 year) . Ten diabetes-focused Instagram posts were selected, encompassing major topic areas identified in previous SM literature (e.g., humor, venting) . Participants viewed posts with captions and provided their perspectives. Interview transcripts were coded and evaluated using thematic analysis. Results: Fifteen YA participated (age 22±1.9 years, 86% white, 33% male, T1D duration 12±5.7 years, A1c 8.1±1.6%, 80% pump use, 100% CGM use) . All participants reported using SM at least once daily, but very few reported viewing or posting diabetes content. YA reactions to posts encompassed four major themes: 1. Perception of personal relevance: many participants noted whether posts applied to them. While many posts were described as “relatable,” others were suggested to be more useful soon after diagnosis or in contrast to participants’ own self-care behaviors. 2. Reduced isolation with T1D: many participants reported the posts made them feel “not alone;” some noted their lack of friends with T1D and mentioned benefits of community. 3. Frustration about living with T1D: some participants expressed anger or annoyance with diabetes, especially about hyperglycemia and cost of insulin. 4. Appreciation of public displays of T1D self-care: many participants valued openness with self-management in posts, although some expressed hesitancy in self-displays. After viewing and discussing all posts, some participants reported they may seek out diabetes-focused SM in the future when they had not previously. Conclusions: SM may be a source of community, support, and reduced isolation for YA with T1D. Further research is needed to assess SM as a means to improve self-care in this group. Disclosure T.Kaushal: None. L.A.Branka: None. K.Wentzell: None. P.V.Commissariat: None. L.M.Laffel: Advisory Panel; Medtronic, Roche Diabetes Care, Consultant; Boehringer Ingelheim International GmbH, Dexcom, Inc., Dompé, Insulet Corporation, Janssen Pharmaceuticals, Inc., Lilly Diabetes, Novo Nordisk, Provention Bio, Inc. Funding NIH/NIDDK (K12DK094721,P30DK036836)

“It's the Thing I Don't Want to Talk About” to “You Have to Talk About Dying if You Have Cancer”: Adolescent and Young Adult and Parent Perspectives on End-of-Life Discussions (RP416)

“It's the Thing I Don't Want to Talk About” to “You Have to Talk About Dying if You Have Cancer”: Adolescent and Young Adult and Parent Perspectives on End-of-Life Discussions (RP416)